#1136 Fifteen Year Old Type 1 Using a GLP

My anonymous guest is the mother of a 15 year old type 1 who uses Wegovy. We discuss the impact GLP meds have made to her insulin use. Crazy results!

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, welcome to episode 1136 of the Juicebox Podcast.

Today's guest is going to remain anonymous. She is the mother of a daughter who was diagnosed with type one diabetes at 13 years old. Today her daughter is 15 still has type one, but began using a GLP medication six months before this recording. When you hear what happened to her daughter's insulin needs on the GLP medication, your head is going to explode. Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan are becoming bold with insulin. When you place your first order for ag one with my link, you'll get five free travel packs and a free year supply of vitamin D. Drink ag one.com/juice box. If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode.

This episode of The Juicebox Podcast is sponsored by cozy earth.com Cozy Earth is where I get my clothing, linens and towels from they are incredibly comfortable and temperate. I love them. I really do love them. And I love that I can give you an offer code that will save you 40% off of your entire order. Just use the offer code juice box at checkout and you will save 40% at cosy earth.com This episode of The Juicebox Podcast is sponsored by us med U S med.com/juice box or call 888721151 for us med is where my daughter gets her diabetes supplies from and you could to use the link or number to get your free benefit check and get started today with us met. This episode of The Juicebox Podcast is sponsored by touched by type one touched by type one.org. And find them on Facebook and Instagram touched by type one is an organization dedicated to helping people living with type one diabetes. And they have so many different programs that are doing just that. Check them out at touched by type one.org. Okay, you're being recorded, you can introduce yourself when you're ready.

Anonymous Female Speaker 2:52
Okay. I'm the mom of a type one teenager, she is currently 15 years old.

Scott Benner 3:00
Okay, so you're gonna stay anonymous, and therefore, just gonna get everybody ready for that idea. So they're not like Why won't they say her name? She want to get from you people online. That's why. So your daughter is 15. Now how old was she? When she was diagnosed?

Anonymous Female Speaker 3:21
She was had just turned 13 when she was diagnosed.

Scott Benner 3:25
How long ago? Did she start using weego V. She

Anonymous Female Speaker 3:28
started using the Gobi in August of 2023. So it's been what is September, October, five, six months down through let's

Scott Benner 3:36
call it six months on the go v. And she's been using insulin the whole time. She's had diabetes the whole two years. Correct?

Anonymous Female Speaker 3:45
Yeah, she started right out the gate with insulin she was when she was diagnosed her fasting blood sugar was 319. And our agency was over 14.

Scott Benner 3:54
Do you think she went through a honeymoon?

Anonymous Female Speaker 3:57
I do not think she went through a honeymoon. I mean, they started as right out of the gate on like 1819 units of basil, you know, so there was no, no easing into it. And there was never a day where she didn't need insulin for food. We didn't even get the free snacks right out of the gate. We tried the 15 gram carb snacks that were supposed to be free and they would spike her every time. And so I think it was after about the first week that we literally were doing insulin for everything that went into

Scott Benner 4:24
her mouth. How did she manage in the beginning with an MDI. She was

Anonymous Female Speaker 4:29
MDI for the first six months because that's the endos preference. So yeah, she did MDI for six months and then transitioned to Omni pod. She did the arrows for a couple of months and then we got coverage for dash and upgraded and then hopped right on Omni pod five as soon as it was released, and lasted a few months there and ultimately transitioned to DIY loop. And that's how she she managed primarily at that point.

Scott Benner 4:56
Okay, don't tell me what she's doing right now. We're gonna get to that in our story. Okay, I'm gonna jump over to you. medical concerns for you anything auto immune? Yeah,

Anonymous Female Speaker 5:05
so I have Hashimotos and PCOS P

Scott Benner 5:09
ce o. 's. Now we're getting to it right away. How about your daughter anything besides the type one?

Anonymous Female Speaker 5:17
At the moment just type one we are watching for potential PCOS diagnosis. There's a couple of things that lead us to believe that she's probably going to end up there. But not not quite ready to make that call yet. Tell

Scott Benner 5:32
people about your PCOS. How does it when did it start? What's it like etc.

Anonymous Female Speaker 5:37
is horrible. I've had it ever since I can remember it. I just remember having really, really really horrific periods, horrific period pain, but also in between period pain was never regular and periods were always just ridiculously heavy from early on. And so I also had endometriosis which kind of played into it a little bit too. But finally found a empathetic OB GYN here a couple years ago and was very blessed with a full hysterectomy. And so life has been wonderful. Post hysterectomy for me but yeah PCOS was was everything that everybody says that it is right horrible periods, horrible period pain, weight issues. Just everything that comes with crazy hormones, right and the acting. I did have pretty terrible acne. Yeah.

Scott Benner 6:33
Terrible periods in length in a mouth. Oh,

Anonymous Female Speaker 6:38
all of the above. All of the above, they would last 567 days super heavy flow to the point that I was anemic. My iron levels were dangerously low. And so then I was blessed to get iron infusions fairly frequently to try to get me pumped back up again. Guys

Scott Benner 6:58
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Anonymous Female Speaker 9:53
I was in my 20s

Scott Benner 9:57
and just for reference now you're

Anonymous Female Speaker 9:59
44

Scott Benner 9:59
gratulations somebody made fun of me for being old and I was like, I'm alive. That's the only measurement. I

Anonymous Female Speaker 10:08
know every day is waking up on the right side of the dirt. So if I was

Scott Benner 10:11
younger, I wouldn't be here to hear your crap. Because I'd be dead already. Now anemic volatile How has your daughter ever shown anemia problems?

Anonymous Female Speaker 10:20
She has not all of her labs have been beautiful minus the sugar. glucose.

Scott Benner 10:27
When did her lady time start? What age

Anonymous Female Speaker 10:30
four teen. So she's a little bit late.

Scott Benner 10:34
And you think she might have PCOS? Do

Anonymous Female Speaker 10:37
just in that, you know, she's been cycling long enough that we should be seeing some regularity. And we're not and her periods are superduper heavy. And she gets the wonderful you know, horrible terrible cramps and, and all of that. So yeah, so I think we may be headed in that direction, but just not quite ready to to go there yet.

Scott Benner 10:57
When you speak to a gynecologist about it. What do they say? We've

Anonymous Female Speaker 11:01
not gone to gynecologist for her yet. So we've been talking about it just her endo and with her primary care. And they've given us some options of things to try right. The obvious birth control, which she's not interested in, and I don't blame her. But really, we're just trying to give it just a little bit more time not necessarily because I'm expecting it to change. But more giving her more time just to be comfortable with the next step of going to the gynecologist

Scott Benner 11:25
did the gynecologist ever suggest to you to go on the pill to help? Yes.

Anonymous Female Speaker 11:30
Oh yeah, I tried all the different birth control methods, pills, rings, IUDs all of them. And they just made everything so much worse for me. I just had terrible reactions to them. Okay, and so so I was better off on nothing.

Scott Benner 11:45
Did you have I'm so sorry to ask you this. But you're you're anonymous. Okay. Any unwanted thick or unpleasant or fast growing hair for you? Oh,

Anonymous Female Speaker 11:55
yeah. Okay, I started having to shave everything very early age. So and laser hair removal y'all it's a wonderful thing

Scott Benner 12:06
that that took it away and kept away it didn't necessarily

Anonymous Female Speaker 12:09
take it away completely but it made it much less noticeable. No

Scott Benner 12:14
kidding. All right. Interesting. Your daughter have any of their little

Anonymous Female Speaker 12:19
bit she does? She does.

Scott Benner 12:22
How was your weight through your life though?

Anonymous Female Speaker 12:24
You know, I was super duper active and so my weight was really great until about 30 and and then I really started to struggle where it it seemed like no matter how well I ate no matter how clean I ate no matter how low of a calorie diet I took in and how much I exercised. I was just turning into a human puffer fish

Scott Benner 12:48
what is PCOS belly? Common symptoms include insulin resistance, diabetes, reproductive hormone imbalance, missed periods and fertility overweight and obesity. PCOS belly is one symptom of the widespread syndrome. Yes.

Anonymous Female Speaker 13:01
And insulin resistance is real. And so all of my labs always showed really high insulin levels, really, really high off the chart C peptide, which just tells me that my body was trying really hard to keep things in check and was failing miserably, fighting an uphill battle, right? Yeah, fighting an uphill battle. And so that, you know, that explains why no matter how good I was, and how much I exercise, there was just nothing I was going to be able to do on my own. So GLP ones have been wonderful for me.

Scott Benner 13:33
So let's start. Who used it first, you or your daughter?

Anonymous Female Speaker 13:39
Me, actually, I jumped on the ozempic train early on,

Scott Benner 13:44
how long have you been using it?

Anonymous Female Speaker 13:46
So I was on ozempic for about two years before my insurance decided that I didn't need it anymore because I wasn't diabetic. And it wasn't wonderful. I got my weight down was able to maintain it was no longer what I call the human puffer fish. You know, it used to be anything that I ate, I would just bloat like nobody's business. But it was epic. That didn't happen anymore. So I was on it for about two years. And then insurance said, Wait, wait, wait, you're not type two diabetic. We're not going to cover this for you anymore. So I had to go off of it. And I had to let nature take its course right, I had to let my weight get back up high enough that I could get approved for Wigo v. And so now I am on Wigo V and have only been on it for about five weeks at this point. But I'm starting to notice it reversing the bloating and the scale is no longer moving up every time I jump on it. So that's great. And I look forward to you know, as I increase my dosages, getting my weight back under control and feeling as great as I feel

Scott Benner 14:50
all the time. Would you tell me what your weight was prior to us? Empik prior to ozempic

Anonymous Female Speaker 14:54
Oh, I was pushing like 160 And for reference I'm four foot 11 In,

Scott Benner 15:00
okay, four foot 11 You can't even you can't even say five. You can't get away with telling people your

Anonymous Female Speaker 15:05
driver's license says five feet. So I feel like I can get away with it. But technically, I'm four foot 11 my calculation purposes 160

Scott Benner 15:14
pounds on your frame was was a lot. Yeah, it was a lot. Yeah. And how long did it take for you to get down to the weight? That you were like, Oh, I'm, I'm good here.

Anonymous Female Speaker 15:24
I know them back. I would say it was probably a good nine months, nine months. And

Scott Benner 15:29
then what did you get to?

Anonymous Female Speaker 15:30
I got down to 119 did not not all in that nine months. But in that nine months, I was I was making very steady progress where I felt like I was finally moving in the right direction.

Scott Benner 15:44
Two years 41 pounds. Yeah. Okay.

Anonymous Female Speaker 15:47
And then in the in the I was off of it about five a month and got back up to 150. Before I started going in,

Scott Benner 15:57
okay, in two years, it was fast. It took you two years to get the 119. And then five months to get back up, get 150 in those five months here dispel the rumors for people and those five months. Were you double fisting cheeseburgers because the ozempic wasn't telling you you weren't hungry anymore? Or no, I

Anonymous Female Speaker 16:14
absolutely changed nothing. And I feel like it was even more diligent about what I ate and how much I exercised, because I knew I didn't have the ozempic to help me. Right. And I needed to prove that this wasn't because I wasn't making the right choices, right. Like I needed to prove to the doctor that this was this was not me. I had zero control over my body packing the pounds on. And so I maintained a diet of no more than 1200 calories a day. I protein, low carb, low fat, and tons of exercise

Scott Benner 16:50
and you gained 30 pounds in five months in five

Anonymous Female Speaker 16:53
months. Yeah. Okay. It was beautiful. And so right then my doctor was like, Yeah, okay, I get it. You know, I mean, I heard what you were saying. It's not that I didn't believe you, but

Scott Benner 17:02
I didn't believe you. And that's not what the label says. And bla bla, actually.

Anonymous Female Speaker 17:05
And so it was not and honestly, when I started the ozempic and when I started the Wigo v, because I had been so strict with my eating habits, it didn't really change my eating habits for me. I didn't experience the you know, I mean, yeah, I do have to think a little bit more about like, Okay, it's time to eat. Like, I don't get hungry. But in terms of the amount of food that I could eat in a setting, that didn't really change. I've never been a big eater.

Scott Benner 17:33
Okay. Yeah. So you weren't, you weren't shoveling it in to begin with? And so now, so what were the impacts of ozempic for you? Like, I think of them as physical. And we know about the weight loss, but physical and mental. What did you learn from it?

Anonymous Female Speaker 17:47
I mean, physically obvious impacts, I was losing weight, I was not bloating with every bite of food. So that was huge. I mean, I felt like I walked around looking like I was pregnant for 30 years, you know? Yeah. And that wasn't happening anymore. And what that did, from the mental health perspective for me, was I finally felt good, right, a lot of the PCOS symptoms were relieved. And I just felt better. And so that snowballed into being more fun to be around and enjoying life in general. And then obviously, notice to the reverse of that when I went off of it, and my body started taking control and I was no longer in the driver's seat. It has a huge mental health impact on you. So

Scott Benner 18:36
I started using weego V in March of 2023. It's January 2024. Now and about three weeks ago, I switched from weego V where I had plateaued onto Zep bound, which is, you know, for people who are not keeping up we go V is ozempic. Zep bound is Manjaro. And it's not just, like, similar. It's the exact same thing, same thing. Yeah. Like the dosing strategy is different, and that's only so they can build it through insurance differently. I know it's weird, but it's the delivery system that they patent. So the way you deliver we go V start at point two, five, do it for four weeks go 2.5 like that, that's all like kind of proprietary I guess. And that's what makes it for weight loss. With ozempic. You and your doctor decide how much was Empik you need there's a ramp up but after that you have a pen and you can dial it up to what you need. And anyway same molecule, same drug is that bound is Manjaro. We go V is ozempic. So I start we go V for weight loss. And I should probably like I only usually talk about this in my weight in my go V diary, but I'll talk about it here. Let me get my phone out. To give people a little bit of context. I just weighed myself this morning. I am the lowest I've been since I started today. Today I weighed 188.6 pounds. Now I'm four foot four Nah, I'm fine. I'm five, nine, I weighed 188.6 pounds. When I started we go V in March, I weighed 233.4 pounds. I have lost 44.8 pounds. Yeah, it's amazing. Yeah, my body fat, my BMI, that free. Everything is better. My subcutaneous fat is better. My visceral fat is better my muscle mass is going up, my body water index goes up, my protein goes up, like my bone mass is going up. My, my metabolic age isn't moving. But so here's the thing. When you discuss what PCOS was to you, I find myself sitting here thinking, men can't get PCOS. I know that's not there's no way because they don't have all those bits and pieces inside them. But you're describing my life. Doesn't matter what I eat, or what I do, or how much I exercise or how much I don't exercise. I eat food again. Wait. That's it. I'm always bloated. If I ate like a normal person, I've been restricting my food my entire adult life. If I eat like a normal person, I swell up like I'm nine months pregnant, and I've been wearing tennis shoes in the summer. Like miserable.

Anonymous Female Speaker 21:14
You're just you feel like junk, unpleasant

Scott Benner 21:18
to begin with. And more so with this, and so people are like, you seem so nice. I'm not that nice. And so I you know, so this is my whole life. I couldn't if I ate a piece of bread. I was gonna wake up two pounds heavier. I'm not kidding. Right. Like, I'm not joking. My bathroom habits were tenuous at best. You know, the amount of times that I need something. I'd be like, I gotta get to the bathroom. Like that happened a lot, right? Oh, yeah. Oh, yeah. Yeah. So that's you

Anonymous Female Speaker 21:47
knew certain things. If you were gonna go eat a certain meal. You knew that you had to come home right after Oh, or at least for me. That's how I was like, I knew if I was gonna go eat at this particular restaurant and eat this particular meal that I love. I was going to have to come immediately. Dallas table prompt with the bill. You know, like, I will have to get home from milk on the way home. Yeah, no, no, stop it. Like if the server doesn't have the bill turned around the minute I put my fork down on my plate. You know, we're gonna have a problem.

Scott Benner 22:19
I've had the thought, oh my god, I'm done with it already. The credit card company doesn't even know I bought it yet.

Anonymous Female Speaker 22:26
Exactly. point point

Scott Benner 22:28
being also poor for my nutrition. Right? Like I'm not I have had low ferritin and anemia and had to have iron infusions, too, because my body not absorbing nutrients. Because what it does now seem to absorb nutrients. Fine. I haven't had an iron infusion in a year.

Anonymous Female Speaker 22:45
And don't you feel so good? Oh, unbelievable.

Scott Benner 22:49
I think most people here we go the ozempic Manjaro No, GLP one, they go, Oh, you just can't control yourself. And

Anonymous Female Speaker 22:58
I mean, I wish and I had that bad fight with my doctor, right for a very long time before she agreed to put me on ozempic Even in the first place. You know, she's like, you just need to not ever splurge. And you just need to cut your calories and you need to focus on high protein. And so I finally started journaling. Everything that I put in my mouth, like to the point that I was weighing everything on the scale, right? So you can hand it to the doctor. Yeah. And then I put it in front of her and I'm like, Okay, here we are. Another month has passed. I've gained 11 more pounds. Here's everything that I've eaten the last month. You look at this and tell me where I went wrong. Yeah. And she looked at it. And she was like, Oh my God. You're not kidding. When you say you've been trying? I'm like, Yeah, I eat chicken and green beans every day for breakfast, lunch and dinner, chicken and green beans.

Scott Benner 23:50
Chicken to save time. That's

Anonymous Female Speaker 23:53
I mean, it's like,

Scott Benner 23:54
what do you want me to do your Hashimotos as well like controlled, what's your TSH? So

Anonymous Female Speaker 23:58
my last few years, TSH was 1.9. That was just a couple months ago. It was not well controlled for a very long time. And then I finally got medicated, and then got over medicated and actually went extreme hyperthyroid where my TSH was 0.001. It was really, really, really bad. Or whatever it was, it was, it was super wrong. It was not supposed to be what it was. And I actually started having heart issues because of it. And so that was about three years ago, three and a half years ago now. And so I went off of all of my thyroid medication, and I'm still not on any thyroid medication. So we're just kind of riding the wave for however long it lasts. My

Scott Benner 24:47
point is, you weren't gaining weight because your TSH was four six or something like yeah, no. So okay, so now we have a good background about that. And this obviously what it did for you also your story now uncommon, I see a lot of people online say, they took this medication from me because my, listen, there's a couple reasons it's happening. One, the insurance companies like cheese, a lot of people are using this, it's costing us money. So you know, they were willing to give it to anybody with a doctor's order, right? You know, at one point, like, it's, you know, we made it for type two diabetes, but here, go ahead, we don't care. Then when everybody wanted it, they were like, Oh, if you don't have really good insurance, then you weren't gonna get it, then all of a sudden, if you didn't have type two, you weren't getting those epic. And I've had people go in and say, Look, you know, my BMI is this, you know, I want you know, I want to get my a one C is right on the verge of being type two. And that and I've heard people be told by their insurance company, well, when you're a one C goes up a little more, we'll give it to you. Or, you know, the other one, you lost weight, you don't need it anymore. And then they have your story. And I've over and over again. There's a one woman my wife found online, I don't know where I apologize. But she said, I lost it. My my insurance, I lost my week over because of insurance. But I thought it's okay, I know how to eat now. Like, you know, she was a person who wasn't eating well. But she but she went back to, you know, she didn't change, same exercise. Same food as when she was on we go, he put all the way back on in six months. Just just all of it like didn't matter what she did just started ballooning up. I'm telling you, I'm not a doctor, I barely got out of high school. Some people have GLP deficiencies or something to that effect, because my body just works better now. Yeah, like, it's easy to say, oh, Scott lost weight. It's not that my body works better. Now, I don't run to the bathroom anymore. Right doesn't happen to me anymore. My energy is much better. I'm absorbing all of my nutrients. I used to take fistfuls of vitamins. I was like, this is not doing anything. Now I take a reasonable amount of vitamins. And guess what? I'm okay. My skin looks better. Like my face looks better. The dark circles under my eyes are going away. Like it's insane. From from GLP. Now, my weight leveled out. And I got to the point where I just I said to my doctor, I'm like, this was epic. Like, it only goes to like it's 2.4. Or we go V I'm sorry, I think we go The only goes up to 2.4 when you're on it for weight loss. And I said this isn't enough. And because I'm shooting it, and for four days starting to lose weight. And then the last three days of the week, my weights going back up again back on. So I was losing no like gaining and losing the same two and a half pounds. For months. I was like, Oh my god. So I went to my doctor and I was like, What are we gonna do? She goes, we'll put you on zap bound. I was like, let's do that. So now I've injected zap down three times. I'm using five milligrams because the measurement systems different from one to the other. And I've lost. I just told somebody today, but I forget already. I've lost seven pounds this month, in 2026 days. I haven't done anything different than I was doing the month before On we go V an end I've lost seven more pounds. Yeah, like and by the way, I want to I want to be very clear, I am still fat. Like I there's fat on my body that is not healthy. It is not just a visual thing. I'm not just like, oh, I want to look perfect or something like that. I'm still in heart attack range for my belly,

Anonymous Female Speaker 28:34
right? And that's it. Like I'm not I'm not in this to like get skinny. I just want to be alive. You know, I need to be in that healthy range

Scott Benner 28:41
and be one of those fancy people who finishes up dinner at a restaurant and then goes for a stroll.

Anonymous Female Speaker 28:47
That too would be nice, right? Yeah.

Scott Benner 28:51
But anyway, I'm a proponent. Obviously. Now I hear the arguments. Oh, it gives some people I guess your presets they were in the last budget. Okay, it wasn't right for them. Like parent Fair enough. I don't think it's going to work for every person on the planet. But absolutely turn your TV on. There ain't one fat famous person anymore. Okay. There's not one famous person has eight extra ounces in their face anymore. It works for a lot of people not gonna work for everybody. If it doesn't work for you, you certainly shouldn't use it. I'm not saying that. I'm saying it's

Anonymous Female Speaker 29:24
not gonna work for everybody and not everybody is good at following directions.

Scott Benner 29:29
Well, I do wonder that sometimes they know maybe

Anonymous Female Speaker 29:33
the way that you're told to and you have problems you know, like it just maybe everybody follows instructions well,

Scott Benner 29:42
so how do I know who's who when I'm getting feedback? That's my point to like, I think there are plenty of people who follow the instructions perfectly well and it made them sick or they you know, they got an intestinal blockage even right on it wasn't good for you. And I'm sorry that happened to you. But how many people thought oh, the magic juices me now I can eat whatever I want, and started eating a bunch of fatty foods or really slow digesting stuff, and it just got them really sick,

Anonymous Female Speaker 30:07
right? Or who decided they didn't want to do that point two, five dose for a whole month before they moved up, right? Yeah, I'll just jump right on ozempic When you can dial up the pen to whatever dosage you want, right? People

Scott Benner 30:19
are like, more is better, right, which is not gotta be patient.

Anonymous Female Speaker 30:23
Yeah, you want to use as little as you have to, to get the result that you're looking for, you know,

Scott Benner 30:29
patience is a key. And it's taught me to be patient, etc. But all of this is incredibly interesting. And I'm having a very good time talking to you. But it is not why you're on the podcast, right? Why you're on the podcast and why you're on a diabetes podcast is this. Your daughter, who was diagnosed with type one diabetes at 13, who we established did not experience a honeymoon period and was using insulin starts using we go V and tell people what happened.

Anonymous Female Speaker 30:57
Yeah, so it's been crazy. So I felt like it's important to discuss why she started using will go v. And, and it was to help her get to a healthy weight. You know, she was experiencing a lot of the similar things that I was experiencing that it didn't matter how good we were with our meals, she was putting the weight on and especially, you know, she had lost a fair amount prior to diagnosis, which was not a red flag to me. Because we were trying to lose weight, right? We were working with a pediatrician to get her, you know, at a healthier out a healthier way not to be skinny, but to be healthy. So I thought we were doing a great job, right. And then she got diagnosed with type one. And I was like, oh, and so once we got her, her insulin, you know, worked out and figured out and started controlling her blood sugar better the weight just came back with a vengeance. And so we had to do jump through the same hoops, you know, that I had to jump through, we had to talk to the doctor and the doctor would say, you know, we'll high protein, low carb, you know, no sweets, try to eat better get more exercise. And we did as well as you can do with a teenager. You know, it's hard. You can't monitor every bite they put in their mouth. But she's a really good kid. She's a really obedient kid. And so it's not like she was going off the rails, you know, like, she was really trying. She wasn't super successful with the exercise. But what teenager is honestly, and so finally, you know, the doctor realized after several months that yeah, okay, you know, they're really trying, but she's still gaining. So let's give this a shot and see if insurance will approve it. And so insurance approved the Wigo v. And she started on that back in August, about six months ago. And when she started the would go V prior to go the her average total daily insulin was now 4045 units. We were dry looping at that time. So it fluctuated but 4045 units, her carb ratio was 10 ish. Her correction factor was like 30. But she was doing great, you know, but when she started with go V, I started noticing,

Scott Benner 33:05
hey, stop for a second. Let's let it absorb in because it's gonna hit everybody right in the face. And you say this total daily insulin 45 units?

Anonymous Female Speaker 33:14
Yeah. 4045. Somewhere in there. Depending on the correction factor.

Scott Benner 33:17
One unit moves her 30 points. Ish. Yeah, yep. Carb ratio, one unit covers 10 carbs. Okay, go ahead.

Anonymous Female Speaker 33:28
So we she started the Wigo V, and I started noticing we were having a whole lot more lows than we usually had, you know, we I felt like we had it pretty dialed in where we didn't have to treat Lowe's very often. But we were treating Lowe's, you know, daily, if not multiple times a day. And so I started obviously reducing her insulin intake, which is super easy to do on DIY loop, you just throw on an override and say only give her 80% of what you think she needs, you know, so thank God for loop through this process. But in August get this at the end of the month, I pulled her numbers. Her average total daily insulin for the month of August. Our first month on movie was 27.7 Yuan

Scott Benner 34:14
month on me, which means she was using point two five a week. Correct or what they consider to not be a therapeutic dose of it. Correct. Point two, five,

Speaker 1 34:24
tell me the total daily insulin again. 27.7

Scott Benner 34:28
can I do math with everybody hold on a second, I'll do it with you. 27 they count up to 15. So that's eight and you carry along? You move out over there to make that 15 Then that makes this a three two. That's eight teen fewer units a day. 18 Does anybody know what 18 times here? Hold on a second. Yeah, I love this. Wait. I knew I was right. So every once in a while I'm right about something. A how many days are in a year? 365? Yes, that's 6500 and 70 fewer units of insulin in a calendar year. Yeah, keep talking. And so

Anonymous Female Speaker 35:05
her carb ratios we had to you know, start doing breakfast lunch and dinner a little bit differently, but her carb ratio is is now you know 2025 depending on the time of day

Scott Benner 35:17
one unit covers 20 to 25 not 10 Right.

Anonymous Female Speaker 35:21
This is where the fun is really fine is her correction factor now is no longer 30 Her correction factor during the day now let's do night first because nights funner because she needs more at night, her correction factor for nighttime is now 85. And her correction for daytime is 110.

Scott Benner 35:46
I was gonna guess 110 Okay, I should have guessed it would have been more fun if I guess. Okay, next time follow my heart. Yeah. And how long has she been on it now? a month. This is her first this is the first month still.

Anonymous Female Speaker 35:57
This is our first met her time in range, using you know the the standard 70 to 180. Her time and range is 97.9%. Her average? blood sugar's 99, or standard deviation is 20.8.

Scott Benner 36:13
Hello. What's your a one C?

Anonymous Female Speaker 36:15
I don't know. Because our endo only does a one C once a year. That's okay. So I don't have an updated a one C for August that comes what

Scott Benner 36:23
was there for the the govi before we

Anonymous Female Speaker 36:27
go, so her entire time of diagnosis. Once we got things, once we figured out how to use insulin, once we got things figured out. Our agency has fluctuated between 4.9 and five.

Scott Benner 36:40
Point 2.5 Yeah, I was gonna say a 99. And average 99 blood sugar is a five one a one say? Yeah.

Anonymous Female Speaker 36:47
And so our agency has always been great. And I credit that fully too. So I got introduced to the Juicebox Podcast, the very first night that we were in the hospital at diagnosis, I posted on a local mom's Facebook page and said, you know, hey, we're at the hospital, my daughter just got diagnosed with type one. I have no idea what I'm walking into anybody else in the hood, familiar with this? And this one very, very kind mom sent me the longest Facebook message ever. And I typically don't open messages from people that I don't know. But I opened hers. And she said, Hey, sorry to hear about this. My daughter's same thing. This is what you need to ask for before you leave. She's like, make sure you get a Dexcom you know, make sure you get all of your ratios and correction factors and start listening to the Juicebox Podcast.

Scott Benner 37:40
Okay, she didn't like pictures of your feet. So you thought I could trust this? Yeah,

Anonymous Female Speaker 37:45
like you know, okay, and so here I am, you know, awake at 3am at the hospital, and just reeling in. I am a data nerd. And so I just needed to start doing some research right about this type one diabetes thing, and found the podcast in and listened to defining diabetes the entire thing, like without stopping. And so we got a handle on the diabetes thing. Pretty quick. I felt like her by her three month appointment. Her agency was down in the sixes so so her agency has always been pretty good.

Scott Benner 38:22
Yeah, things were in bonkers. You were doing Whoa, just her. We were doing well.

Anonymous Female Speaker 38:27
Yeah. So like go back to December before she started, you know, six months before she started would go V O or even the month before she started would go V her time and range was 98%. Her average blood sugar was 108. And her standard deviation was 22. So it's not like we all of the sudden figured out

Scott Benner 38:44
you were doing a great job with but you were using a lot more insulin to do it. We

Anonymous Female Speaker 38:49
were doing a great job using a whole lot more insulin. Yeah. So yeah, so I was like, Okay, this is crazy. And so I texted the endocrinologist because we have a direct care endocrinologist, like a concierge endocrinologist. And so I have their cell phone number and can call and text and whatever. 24/7. And so I texted the endo and I was like, Hey, I'm noticing this, is this just random? Or is this a thing? Right? Like, she needs a whole lot less insulin? And she's like, oh, yeah, it's gonna impact her insulin resistance and all of that. And yeah, she's gonna need less insulin. And I was like, ah, yeah, the data nerd that I am like, I would have loved it have a little warning, but it's fine. I can handle it. I pay attention to her numbers. 24/7. So like, I got this. I know how to make adjustments. I'm good. But I got on Dr. Google. Right. And I was like, some magnitude impacts or semaglutide. however you say it, whatever the long word is for the drug impacts on type one diabetes. And an article popped up about an endocrinologist up in Buffalo that had done a very small All study with 10 newly diagnosed adult type ones. And he put them on ozempic Right out of the gate. And and as I read along, you know, I'm like, oh, yeah, it impacted their insulin needs to. And some of those folks even came off of insulin altogether as long as they stayed on their ozempic. And I was like, wow, that's really impressive. And what I read that it does is that it preserves beta cell function. So, you know, when you're newly diagnosed, and you're experiencing that honeymoon, it's because your beta cells are still, some of them are still working, right, your body is still producing some insulin. And so I was very curious. I was like, But wait a second. Here we are, you know, two and a half years into diagnosis, never had a honeymoon, I was like, so how is how is this possible? You know, how is this possible is impacting my daughter the way that it is? Yeah. And so then I jumped into her lab tests, right. And I just wanted to see and I was like, oh, okay, well, at diagnosis, her C peptide was still in the normal range. And a year after diagnosis, her C peptide was still the exact same. And two years after diagnosis, or C peptide was still the exact same. And so I was like, oh, we should have had a honeymoon. We never did. Apparently, insulin resistance is a thing, right? But I was like, so that's how this would go V is making this much of an impact. But I was like, but surely, you know, this is as good as it's gonna get right. Which was great. I was happy to be using, you know, almost half the amount of insulin in

Scott Benner 41:40
the first month, but you have these reductions in insulin, how much weight how much weight was reduced? You

Anonymous Female Speaker 41:45
know, I wish I had kept track of that. But we don't, with my daughter, I'm very careful about putting her on the scale. Because they don't want this to turn into an obsessive disorder to a number with her weight. Number. We really have been focusing all this time on being healthy, good and feeling good in our body. I can tell you that as of about two weeks ago, she's down about 20 pounds from

Scott Benner 42:18
for how long? She started. And that's how long ago? Six months, six months? So 20 pounds? And yeah, would you mind telling me you know, she's going to be your anonymous, so nobody will know what was her starting weight?

Anonymous Female Speaker 42:30
You know, that's a super fantastic question that I would have to look at her medical records to tell you because I honestly don't even know. I want to say that it was up around 150 ish. Okay. And she's like, 5354 She's growing. So.

Scott Benner 42:48
Okay. And so, but she's lost 20 pounds. Is it? Beyond noticeable or just noticed?

Anonymous Female Speaker 42:54
Oh, my, it is beyond notice the ball. She's so excited. So she does performing arts and they have uniforms that they wear for their performances. And she's gone down just the school year, right? So we're not far into it. She's now on her third dress. For Performing Arts. That's a smaller size. Like she's gone down three dress sizes.

Scott Benner 43:18
I started in a 2x T shirt. Right?

Anonymous Female Speaker 43:21
Oh, I started in like, she started in like a 14. And then she went to a 12. And then she went to a 10. And now she's in an eight. So she's like, over the moon excited and people I laugh because my parents will come down, you know, for performances and whatever. And my mom is like, I can't find her. Where is she? And I'm like, she's right there. She's like, that's not her. Like yeah, yeah, it is. And so it's like my parents didn't even recognize her in a crowd after not seeing her for like a month. You know, I

Scott Benner 43:52
walk past Kelly in the store recently. Yeah, she didn't even notice. You know, I didn't notice her. She's using weego V as well. Oh, exciting. My wife is probably elicit my daughter probably has PCOS. Yeah, my wife has Hashimotos or, you know, hypothyroidism. I don't think she's ever gotten tested for antibodies. And, you know, went through a significant weight gain after she had a heart and when her thyroid blew up, right. So she's lost so much weight. And like, I literally I walked right past her. I took two more steps. I was like, Oh, that was her. And I turned around and went back. I didn't tell her but that is amazing, though. I

Anonymous Female Speaker 44:27
mean, it's just, I've

Scott Benner 44:28
known her by the way. I've been married for 27 years.

Anonymous Female Speaker 44:33
I'm telling you, these medications are so beneficial for so many different types of situations that I think that we've only scratched the surface right? Like I really feel like I mean, like with my daughter's story. I mean, it just gets better. I mean, obviously that first month I was like holy cow this is amazing. Right? And so then you know upper dosage go to the next month. Get this September so now she's she's still on what I call Baby dose right the point five, her average total daily insulin for September 14 units. Yeah, her carb ratio 35 or daytime correction factor 180 Oh my god, it's getting it's getting to the point where it's really hard. Like, I've never struggled so much with diabetes management in the whole process like not even at first month when she was diagnosed, that was a walk in the park compared to what this is right. And I'm so so so, so thankful for DIY loop, because I'm, you know, throwing overrides on of like, only give her 40% of the insulin that you gave her last week or whatever, you know what I have programmed in

Scott Benner 45:46
your moving settings and still having to tell it do less? Yeah, because it's

Anonymous Female Speaker 45:51
like, you know, the whole time three will go the managing diabetes was like you you moved things, but you didn't move them? Quickly. Right, right. Like you're talking you Okay, let's raise Basal by a unit a day, you know, or 10%. You know, this is like, if you compare August to September, she's using 50% less insulin in September than she was in August. That's

Scott Benner 46:14
huge. What happened in October, in

Anonymous Female Speaker 46:17
October, again, is just lows after lows after lows after lows. And I didn't even write October down because I was so frustrated of like, you know, things were just crazy. And so I finally in November, I was like, alright, Doc, here's what I'm thinking. I'm thinking, we're just going to cut all of her fast acting and just do basil. Like, let's just forget bolusing for food. And let's just forget correcting a high blood sugar. Like, let's just let's just try this and see what happens. And our endo was like, if it were anybody other than you, I would say absolutely not. She said, but I know that you're paying attention. And I know that you know how to react appropriately. She said, so go for it. And I was like, Okay, so we're DIY looping. And I go in and I open the loop, meaning like, people will understand that as being manual mode, right? I'm turning off the algorithm and I'm just letting it run basil. Still through, you know, still through her pod. So it's still technically fast acting, but it's her Basal delivery. So we're not Bolus paying for food or meals, or anything. And I'm still treating lows. I'm like, okay, so clearly, her Basil is too much, right? If I'm not bolusing for food, and I'm still catching lows, especially in the nighttime, right? Her Basil is too high. So I'm dropping her basil. And, and I get her basil down like things are great, right? And we're rockin and rollin. No mealtime Bolus is no corrections. You know, kid can eat whatever, whenever, however, don't have to tell me just have fun. And she even said to me, she's like, Mom, it's like, I don't even have diabetes anymore. And that just like, hit my heart. You know, it was like, she did so great with diagnosis, and overcoming her fear of needles, because that was huge. And she did great embracing technology and learning how to use it and learning how to carb count and make good choices. Like she did fabulously with all of that. But then when she said to me, it feels like I don't even have diabetes anymore. I was like, this really did impact her. You know, like she she played it very well. And so, so then she was sitting on the couch, and she was like, it was hot change night. They were still using our pods because we're still running basil through loop. She's like, mom, she's like, we have any long acting. And I was like, yeah, we've got some pens in the fridge. And she's like, Can I take a pod break? And I was like, Are you sure? Like, you know, really, you really want to? I love the flexibility of the Basal being delivered through loop, right? Because I could adjust it at any time. Right? And so I was terrified that going back MDI and doing that Basal injection meant a I had to figure out how much to give her and that once it was in, it was in right there was no pausing basil or suspending basil for a couple hours to help us overcome, right, a mistake. You know, I was terrified. And so I texted the Endo. You know, it's eight o'clock at night, whatever. And I'm like, so she wants to take a pod break. We've got, you know, some basil in the fridge. What do I do? And she she asked me, you know, well, what's her Average basil on the pod right now in loop. And at that point, our average basil was like nine units a day.

Scott Benner 50:07
Okay, down from

Anonymous Female Speaker 50:08
down from I mean, that's total daily insulin at this point not just based Oh, he's not all wishing

Scott Benner 50:13
yes sir total daily insulin started at 49

Anonymous Female Speaker 50:21
Nine, how long ago was this now? Um, this was in November. So it was what, August, September, October, so four months in the end of that fourth month, you know, she's right in about nine. And so the endo was like, Okay, well then give her nine of, you know, of whatever we're using, I think it's receba give her nine and give it a few days, you know, she's like, that one's a little bit longer than a 24 hour deal. So don't go changing everything the next night, you know, give it a few days and, and see what happens and, and the endo was following along, right, she had access to our Nightscout. So she was seeing, you know, numbers and everything in real time and was real good about checking in. And, you know, the perks of paying out of pocket for a direct care, endocrinologist. So we did it and she took up a pump break upon break and started just doing that one Basal injection every day or every night. And then just her one will go via injection. She did it on Saturdays, you know, every Saturday. And I thought, you know, this is this is like early November, actually, it's like the week before Thanksgiving. So mid November, and I'm like, There's no way we're gonna get through Thanksgiving without needing some fast acting insulin, right? Because like, we're not eating clean for Thanksgiving. We're eating. We love Thanksgiving. We love the Thanksgiving foods. We're not cutting back. We don't I mean, that was from day one. We holidays were holidays, you know, and we didn't do anything differently. And so I was very skeptical that we were going to survive Thanksgiving. But she survived Thanksgiving without bolusing for food, and without needing to do corrections. And I was like, holy cow. This is bananas. And not only did she survive, we ended up having to kind of cut back a little bit on her basil.

Scott Benner 52:05
Thanksgiving, turkey stuffing, gravy, stuffing mashed potatoes, gravy,

Anonymous Female Speaker 52:10
pies, cakes, cookies, like, and did she spike it all? I mean, she did. But they came right back down. You know, like it was it was literal. Like, I know, the goal is those gentle rolling hills, right? That she had mountain peaks. But they came to a point and then came just as fast back down as they went back up. Oh, hi. Not anything crazy. She might have hit 200 A little bit here and there. But for the most part, her spikes were 180 or under. And the endo told me that that was okay. And I went with it. You know, I was like, okay, because I'm like hyperventilating, you know, like, Oh, my God, she's at, you know, 190 Aren't you

Scott Benner 52:50
imagining her blood sugar is gonna be 400 in a minute. But yeah, like,

Anonymous Female Speaker 52:54
as fast as it was going up. I was like, you know, because my alarm starts going off at 120, you know, and I'm like, Okay, let's just watch. And then it hits 140. And then it hits 160. And I'm like, drink water. They'll walk around the block, you know, like, I'm panicking. And she's like, Mom, relax, you know, and I'm like, but I can't.

Scott Benner 53:14
How long do you think from this? The start of the spike till the end of it. And when it was back down, how long do you think that was?

Anonymous Female Speaker 53:20
Like an hour? Oh, yeah. Like it was stupid fast. And so then it's like when I would see it turn at the top and start to come back down. And then she would be straight arrow down, which like, we never were right. Before. You know, like the the goal was always diagonals. I didn't like straight arrows up or down. And so then I would panic, and then she would be double arrows down and I'm like, holy lip. You know, what, what do I do? Because I can't take insulin away. She's MTI. Right. And we've not put any fast acting in. So I'm like, How do I fix this? Because I'm not bolusing for food anymore. So the thought of using food or juice to bring up a blood sugar doesn't make sense because I'm not Bolus thing for it. Right? Yeah. So throwing extra carbs at her is not fixing this issue. You know, and so I would panic and it took me time to get past that of it took me time to get past feeling like I needed to take care of the high as it was going up. And it took me even longer to get past the feeling of needing to catch the low. Yeah,

Scott Benner 54:28
I want to say two things. I think that there are going to be some people listening to this like, Well, yeah, well, she lost 20 pounds. So obviously she needs less insulin, but that's not what this is.

Anonymous Female Speaker 54:37
No, I mean, she needs like I don't want to say no insulin because she's still on basil. Very little. But very little. Yeah,

Scott Benner 54:46
I was gonna say now it's two months since Thanksgiving. Yeah.

Anonymous Female Speaker 54:50
Two months since Thanksgiving. She's still MDI, right. She's still on basil. Currently, she's on I mean, it fluctuates based on time. Mobile payments, you know, we still do see those fluctuations. She's anywhere between seven and nine units of basil right now just kind of depending. She did get sick a couple of weeks ago, and I did give her some fast acting corrections. Because her highs were not coming down back. She would go high and stay there. But those corrections were terrifying because I'm using pens. And they're one unit pens and I'm like, holy, you know, do I really need to give her this unit? But I would and it was okay. Her body. Her body catches the lows for her. But she had to be high enough, you know, like like she had to be right 181 80 Before I was willing to you know do a fast living

Scott Benner 55:47
like a type two. Yeah, well on with Basal and then right. Yeah, and then some injections for higher things are anomalies. Yeah, but

Anonymous Female Speaker 55:56
it's those those injections for for fast acting are few and far between now

Scott Benner 56:03
to come for people. She definitely has type one diabetes.

Anonymous Female Speaker 56:06
She definitely has type one diabetes. She tested positive for Islip cell and God autoantibodies just trying to think of all the things. You type one. Yeah, that was my question, too. I was like, are we sure? And so the endo even repeated her antibodies. And she did test positive for to

Scott Benner 56:24
not listen these the GLP is they're not brand new, by the way. They're just in the last year. You've heard about them or they've been around a little longer than than that. Yeah. But the doctors are still probably just like it's a medication like, oh, that's for type two diabetes. You can't you hear it all the time type ones can't take that. It's for type twos. It's labeled for type twos, like you know what I mean? Meanwhile, people write me all the time. Hey, I went on we go V for weight loss, and I'm using a lot less insulin balaban like this, by the way, have her periods become more stable on it or not? That hasn't changed that at

Anonymous Female Speaker 56:58
all. That hasn't changed that. It has helped her appetite. Okay. You know, because she she likes to eat she loves food. She's a foodie, and loves to eat and loves to eat in large quantities. And we'll go via has impacted that.

Scott Benner 57:11
How about any does she have acne prior? Did it help that

Anonymous Female Speaker 57:15
she did have acne prior she still does have acne. I've not really noticed a difference here.

Scott Benner 57:21
Now I'm asking because my daughter has been shooting point two five of the week OB for about seven or eight weeks now. And I don't know her weight loss. But it is. I mean, on her frame significant. She looks different. And her Arden's correction factor was one unit moves her 42 points. And now it's one unit moves or 83 points. Yeah, exactly. Yeah. And her insulin to carb ratio was was at one unit for for carbs. And now I think we have it at one to eight now.

Anonymous Female Speaker 58:00
Yeah, see, suppose there's half and a half the amount of insulin but

Scott Benner 58:04
it also put a big dent in her acne. And I haven't talked to her about her periods yet because she's off at school. Right? But I'll tell you what, it's having enough of an impact on her who she's actually a person with a fairly terrible needle phobia. She's overcome it enough to give herself the injections of ozempic.

Anonymous Female Speaker 58:24
That was huge for for my daughter. Initially, those injections were, for whatever reason, extremely intimidating. Yeah. You know, at that point, she had been on the pod for, you know, two years, and said, been a really long time since you've done an injection of any kind. And that was really, I mean, it would take her a couple of hours to work up the courage to do those injections for like the first load. Yeah. I mean, it was it. There were tears there were, you know, pinner in a corner. I hate to say it, but like, I mean, I would sit on her, you know, like to get her to overcome that fear, right? Or

Scott Benner 59:04
didn't had the Kung Fu hands as you came at her. She'd be like, no, no, no, no. And she'd be like swatting at you with both hands. Yes, yeah. Yeah.

Anonymous Female Speaker 59:10
And and it wasn't a fair fight. Because you know, I'm for 11

Scott Benner 59:15
holding the needle, I'm like, I'm like, be careful. Yes.

Anonymous Female Speaker 59:18
I don't want like she was bigger than me and taller than me and like, could do some serious damage. You know, it wasn't a fair fight. She'll complain about it when she gets it out of the fridge, you know, does your injection or do I have to and I'm like, no, like, you want to quit and she's she looks at me. No, mom. Okay, well then do it, you know?

Scott Benner 59:36
Oh, no, please. I once watched Arden as she was defending herself from the needle. She's laughing and crying at the same time. She's hysterical laughing because she knows how ridiculous it is that she is almost unconsciously swatting at me. Yeah. And at the same time she's crying from the fear about the needle like literally to say Fanta it's passing she's getting better and better.

Anonymous Female Speaker 59:57
It was horrible to witness but but Now she's you know, like because I, I very much want her to feel like she has some control over these choices right even though she's, you know, getting ready to be 16. She's still a kid by all rights and purposes, but I want I didn't ever want her to feel like I was forcing something on her. Like the the pump was her choice, you know? Which one do you want? When do you want to start it? That was her choice. The CGM was never her choice and will never be her choice. But the Wigo V was like, you know, we, I had a conversation with her about it before she started it and was like, you know, here's what it could potentially do for you. That's good. Here's what it could potentially do for you. That might not be so pleasant. Do you want to try? Yeah. And she made the choice, you know, yeah, I want to try. And I felt like that's so so important, you know, not giving her full control. You know, she ever made a decision that I disagreed with her. Yeah, it's gonna hurt her, then, you know, mom, mom would make the call. But I just feel like I get further with her if she feels like it's her choice right now. And especially as a teenager, you know, and so we'll go, he's always been her choice. And it was really, really hard that first month, like I laid it down, and I was like, you know, she wanted to quit by like, week two. And I was like, No, you got to three months, you got to give it three months, and then three months. If you still hate it, then you know, we'll have another conversation. And so now I do still ask, Are you sure you still want to do this? Oh, mom? Yes, mom, you know, it was like, I can't believe you even asked me that. Because she sees the benefit, that it's given her both from the you know, being able to eat as she pleases without having to do an injection or count carbs, which has been really nice. But also from the just being healthier perspective, she can see the changes in her body. And she recognizes that that's good in the long run. Yeah. And so I think that's important. And it's not, it's not this miracle drug. Right. Like you said, it doesn't work for everybody. It definitely has its place, and it definitely has its purpose. But I mean, we're living it and I feel like there's a whole lot of untapped potential. There. Oh, yeah. And I really hope that we start hearing more about it being a an option for treatment. type one or type while it's

Scott Benner 1:02:26
chi Beatty. Yeah, you gotta get past the insurance thing and everything but they're, they're doing the studies.

Anonymous Female Speaker 1:02:30
You know, there's case studies out there are endo intends to write a case study on my daughter, you know, once once she's been doing this for about a year, you know, just kind of see, because, you know, we're at the point where things are still changing with her basil. And so there may potentially be more reductions in insulin use for her. I mean, she's been down as low as four units on basil. She popped back up when she was sick, and we just haven't seen the need to cut it back again. But, you know, is there the potential that that she goes off of insulin altogether? I mean, yeah. Could happen. I guess it just kind of all depends on on, you know, her weight loss and and how her body holds up, you know, we want to repeat lab work in about six more months and see what her see peptide is, right. Has it remained stable? Has it increased as it decreased? You know, like, like, what is her body doing in response to this medication?

Scott Benner 1:03:32
There's a lot of uncharted territory here, too. Yeah. I mean, I don't think you were saying and I don't think anyone is saying that, you know, we go V. shores type one diabetes, you don't

Anonymous Female Speaker 1:03:44
know very much a type one diabetic. Yeah, but her

Scott Benner 1:03:46
insulin needs are just significantly lower. Right?

Anonymous Female Speaker 1:03:50
Insulin needs are significantly lower. Her body's playing nice.

Scott Benner 1:03:54
Yeah, this isn't everybody, by the way, either. I know. Jenny's told me about, like, people she works with privately who are like, you know, their insulin needs are down like 20%. And that's great. You know, like, it's, it's been a real benefit for them. They're losing weight, or they're right.

Anonymous Female Speaker 1:04:08
And I think it has to do too, with like, where you're at in your journey. You know, is your body still helping a little bit? Or is your body done? Right, right. You know, I think that's a big factor too. In, in what you see from from results. Yeah. Well, your daughter

Scott Benner 1:04:24
absolutely could go into a situation where you're back to 20 or 30 units a day. They absolutely,

Anonymous Female Speaker 1:04:30
absolutely like I mean, if her C peptide dives, then she's gonna need more insulin. You know, I'm not in the camp that thinks that this is fixing her right. It's this is just part of our journey. It's where we're at at the moment. It's very encouraging. I mean, she's not had any undesirable side effects from it, even when you're new to even when she started she the very first injection She was remarkably tired that week. But the second one did not impact her in that way. And she she recovered, Arden

Scott Benner 1:05:09
had some nausea. She couldn't eat the first week very much. And she's

Anonymous Female Speaker 1:05:14
not we've not had any, any of that she does get to the point. And it's really funny when we're eating because you can see it on her face, where she gets to the oh my god, if I take one more bite, I'm going to vomit, you know, like, and it just hits her like a like a break. He had no and you can see it all over her face. And like, all right, she's just hit her full point. That's new for her. You know, she she never really had experienced that before. But that that's really been the only I don't want to even call it an undesirable side effect. She doesn't like it when she feels that way. But it also is giving her the signal that she needs to quit eating. I

Scott Benner 1:05:51
opened up a little Mango Sorbet the other day. I took two teaspoons full, but I went oh, that is sweet. And that tastes nice. And I look back down and I was like, that's good. And I put the lid back on. I put it back. Yeah. Like okay, I'm telling you right now, I could have eaten a pint of that a year ago. Yeah. Oh, yeah. I think of it as I mean, I guess it's going to be somewhat different for everybody. But I have my brain does not tell me I'm hungry any longer. Yeah. And my stomach does not get that like rally feeling right? It gets empty, but not in a way. Like I actually that's not true. On we go via didn't get empty on zap bound. I can feel my stomach empty. Oh, wow. But it's not but it's not a weird or bad feeling. And it's not a hunger pain. Yeah, it's just I'm just like, I know, there's like nothing in here. Like, I can hear it.

Anonymous Female Speaker 1:06:37
I don't get hungry anymore. doesn't really get hungry anymore. But I we both still think about food a lot. I didn't realize that we liked food. Yeah, I've like if we're if we're getting ready to go somewhere, you know, and we know, the different foods that are going to be available. Wherever we're going. Let's say we're going into town because we need to pick up toilet paper at Costco, you know, then we'll be like, oh, there's a Cheesecake Factory right there. You know, like, let's go there for lunch. You know, we still do think about food. But we also have had to reframe how we enjoy food because we know that I take as much of it and that we can't Yeah, we can't get as much as we would have before before we hit that point. So we make sure when we're eating our meal, you know, at the Cheesecake Factory and I get that barbecue ranch chicken salad thing that's the size of your head. But I know that I want the pineapple upside down cheesecake. I have to pace myself with that salad and be like, you know, could I continue eating this salad? Yes, but if I do, I might only get to enjoy one bite of that cheesecake. You know,

Scott Benner 1:07:45
we took my wife out for her 50th the other day and went to a steak place. I had a steak. I had I have steak. I had shrimp. I had other sides. Had a little bit of this a little bit of that. I got it all in. And at the end they brought out. I don't know, like I guess we made a reservation online. So they said is there any special occasion? My wife's like, it's my birthday week. I don't think she thought it was any they brought this giant Sunday out there were four of us at the table. So everybody kind of went after it. And I was like, Oh, I eat some ice cream. And I had a little bit of like a cone in the cones good. And like, um, and then that was it. But I swear to you, I know I could have eaten the whole thing a year ago. Yeah, like by myself. I could have like fended off the other three of them with one hand and eaten the entire Sunday with my other hand if I needed to. And so you could say oh, yeah, see, Scott, you're eating less. That's why you're losing weight. I could have done that. I wouldn't have found that. Like yeah, yeah, but I could you

Anonymous Female Speaker 1:08:42
didn't you didn't stop because you you couldn't eat anymore. You stopped because you knew better than to continue. Yeah,

Scott Benner 1:08:48
but now my flavor for food is a little different. I don't I don't mind it. Honestly, like I like the steaks still tasted great and everything. But it does cut a little bit of the highs out for me the the real sweet taste is kind of going out of things. Yep. And like savory is still there, but it's not as much you know, I decided yesterday I was like oh, I want to like try to lose a little more. I'm going to kick this little weight thing at the end of the week here because I'm my injections tomorrow. And so I'm like yesterday I'm like I'm just going to eat like completely like no carbs yesterday had like chicken wings and like all kinds of like low carb stuff yesterday Right? I never ran to the bathroom even though I had like wings sauce on the wings and everything and that stuff. I was all fine. I got up this morning I did what I did and I got on the scale and I lost like a pound since yesterday. Nice like it's just it's insane it's insane. Yeah, like you know, like it really is crazy.

Anonymous Female Speaker 1:09:39
I mean it's a helpful tool it will I feel like it's more helpful if we play smart yeah for sure easily if we're there's ways to help all the time. It's not going to be you know, yeah as as good of a result but

Scott Benner 1:09:51
I don't think I could like greasy is really was hard for me before but it's much harder for me now. Oh

Anonymous Female Speaker 1:09:57
yeah, for sure. Yeah. And I do find myself, if I'm not being smart with what I'm eating, I find myself needing Tums.

Unknown Speaker 1:10:06
Okay, so now Hey, funny thing

Anonymous Female Speaker 1:10:07
like things are giving me heartburn a little bit easier than they were before.

Scott Benner 1:10:11
I had pretty bad heartburn prior to this. And then it got better on Weibo V but never completely went away. And that's one of the reasons my doctor switch me because she's like I hear the doctor was like I hear like Manjaro no like southbound. You don't? Yeah, the heartburn, it helps with heartburn too, so I don't have any heartburn now. Nice. It's crazy how well it's working for I would literally, I wouldn't kill a stranger to get this F mount. But I dig in with my car a little bit if you like if you said like, you can't have it unless you ding this guy with your drive. Like, he's not gonna die. Right? Let's try.

Anonymous Female Speaker 1:10:47
We tried to get that bound for me. And my insurance didn't play nice. Okay, but I was just happy to get whatever they would give me really at that point. It was like, you know, not having anything is not an option. Yeah, obviously for the kiddo that will go v is the only thing that's approved for

Scott Benner 1:11:03
for the weight kids, or do you think they're gonna yank it away from her when she loses gets to a certain way?

Anonymous Female Speaker 1:11:07
Yeah, so that was a concern that I had. Because when she initially went on it, the insurance, the pre authorization was for three months. And I was like, Okay, well, I understood it, right. If it doesn't work, then no big deal. But we went back for that three month, you know, to renew their pre authorization. And by that point, I had seen the impact on her insulin needs. And realize that this was something that we we wanted to continue Very much so. And I was really super concerned about it. And so I dove into the research, right, jumped on the bulgogi website to look at like the dosing guidelines and everything. And everything that I read talked about a maintenance dose, right, like once your goals have been achieved, and you'll continue a maintenance dose. And so I was like, okay, it doesn't sound like this is something that's intended to be just for like a short period of time. Sounds like this is something that's like long term. And then I talked to her endo about it. And she was like, it's all in how I submit the paperwork, right of like, it was initially approved for obesity, BMI was, you know, XYZ, and BMI is, you know, this or whatever. And so we're seeing success. But to continue, she, she gave me this whole spiel about like, it's all in how you submit the paperwork. And so when she submitted for the renewal insurance, renewed it for a full year. And so I feel fairly confident, you know, that was just in December that it was renewed. And so I feel fairly confident that come next December, the pre authorization may not even be a thing anymore. I'm hopeful. I'm hopeful. I'm optimistic, in general about life. But I'm very optimistic that over the course of this year, the industry is going to see,

Scott Benner 1:12:53
I'm gonna assume because the pharma companies are making money too. So they're gonna they're gonna pressure insurance to cover it too. Right? I always laugh when people are like, well, what if you have to take it forever? I'm like, I don't care.

Anonymous Female Speaker 1:13:04
I mean, I feel bound by me. Yeah, I

Scott Benner 1:13:05
think I mean, it's, it's a, you know, it's a peptide like it's not. And now I'm getting GMP and GLP. With was that bound, which is obviously helping me with, you know, the stomach acid too. So when people are like, what do you have taken forever? My, what a weird thing. It's worked out.

Anonymous Female Speaker 1:13:22
And it's, I mean, at this point, it's a little bit like, I'm still a little bit weary of having to be on anything like this long term. Because there's just not a lot that you can find about people that have been on it.

Scott Benner 1:13:36
You want some data, I'm sitting at a 90 degree angle on a chair, and I can see the hinge of my hip. When I look down. I didn't even know that was there.

Anonymous Female Speaker 1:13:47
So like, I don't know that I'm ready to say that I'm, I'm okay. With the thought that this is a forever kind of thing, based on what I know today about how I feel off of it versus on it. And the same thing for my daughter. It's a risk I'm willing to take. Yeah, at this point in time, like pending more information, right. I'm always open to changing my mind. If something comes up, right. Sure. something pops up and like, oh, I need to, you know, need to not do that anymore, then we won't do that anymore. And we'll figure it out. But yeah, but based on what I know, today, I'm okay with that.

Scott Benner 1:14:26
I agree. Yeah. If somebody comes along and says, Hey, here's data, you're gonna get foot cancer, I'd be like, Oh, God, I gotta get fat again. Okay. Like Like, yeah, like or

Anonymous Female Speaker 1:14:33
it's like, do I want to feel good every day and not have a foot just one I know that sounds crazy. I don't know. Honestly. I would probably choose to lose the foot at that point. You don't

Scott Benner 1:14:50
know what it's like to feel bloated like that. And it's

Anonymous Female Speaker 1:14:55
and what it did mentally to me, right? Like it's not just about the food As a goal, but but it impacted my happiness and my well being. And it impacted my family because I wasn't fun to be around impacted my co workers because I just wasn't nice. You know. And so I would have to think long and hard about that if it came down to, you know, stay on the GLP one or lose a foot like I probably could do okay, without the foot like, as long as it was just one of them. You don't want to talk on both of them.

Scott Benner 1:15:26
If you want to hear me be emotional about losing weight, go listen to that we go V Dyer I've been making because I've, yeah, I've had a couple of journeys. Yeah, well, yeah. But nevertheless, listen, I want to be clear about this to our insurance does not cover ozempic. For Arden, I am buying it through a Canadian pharmacy, I'm paying cash for it. And it's not a thing we could afford. If she had to shoot it the way it's the way it's the way it is for a type two, like like, like, you know, bunch of units or whatever. However, it's, she's taking the point two, five, that's all she's taking. So we can get a pen through Canada, one

Anonymous Female Speaker 1:16:06
of those one ml pens, and it lasts for freaking ever. Yeah.

Scott Benner 1:16:09
We're getting like months out of it. So like, it's, you know, it's it's still it's, it's an expense, right. But it's an expense that, you know, I'm going to tell you if it was if it was just an acne medication, I'd pay it for Yeah, if it was just helping her with her periods, I'd pay it for if it was just helping with her insulin needs, I'd pay it for like, we're getting, she's getting all of these things out of it. Yeah, yeah.

Anonymous Female Speaker 1:16:37
I mean, I would I, I'm a single parent, I don't know that I even threw that in there. You know, initially, I'm a single parent, she is my only child. So finances are not, you know, we don't have a lot to spare. But if it came down to it, and insurance quit covering it, I would absolutely get a second job if I had to.

Scott Benner 1:16:54
No, I feel I feel the same way that I do. Also, you know, and I'll let you go. But like your to your point about we don't really know what this is doing yet. Go ahead and Google things like ozempic babies, like women who have not been able to get pregnant, their whole lives are on ozempic and getting pregnant. Right? Like, and I'm not saying it like boosts your fertility. It's I don't think it has anything to do with that. No,

Anonymous Female Speaker 1:17:18
but if it's helping to regulate your body, like if you're a PCOS sufferer, and it's helping to regulate your your system, then absolutely, that's going to contribute to Oh, you're

Scott Benner 1:17:27
gonna see this die. This is going to be like they're already studying it about things like impulse control, right? Like for like gambling and drinking and like, I don't know what they're gonna find there. But I'm telling you, if women who like have been infertile for so long that they just don't even bother using birth control anymore. And then they get on a start on us and then boom, baby time. Like that's getting, by the way that's already being looked into. So it's Wait, it's it's impulse control. It's insulin resistance. It might be the ability to have a baby it might be the ability to like fend off these horrible things that women go through with their their uterus isn't like this PCOS and like Jesus Christ, it's terrible. If it makes a dent in that for somebody, like, let's go, you don't I mean, like, what else is it going to do?

Anonymous Female Speaker 1:18:16
Right?

Scott Benner 1:18:16
I haven't gotten taller. But you know,

Anonymous Female Speaker 1:18:18
I wish I would pay good money for something that really hit me. Smart.

Scott Benner 1:18:23
Yeah, you wouldn't. You would definitely I would.

Anonymous Female Speaker 1:18:26
Yeah, I feel like it. We're just at the tip of the iceberg. With this. Yeah. It's gonna be really exciting to see what, what this does for people, you know, I mean, it just, I feel like it's given my kid her life back in a sense, you know, of being able to just eat the pizza, you know, or just haphazardly decide to go be active without having to remember that she's got insulin onboard from dinner. Yeah, or even even taking showers. Right, like pre would go V. She couldn't shower with insulin onboard because she would crash and burn. And so we would have to be like, Oh, you need to shower today. Do that before dinner. You know,

Scott Benner 1:19:11
and health both just health like I I'll share this here, then I'll let you go. Right. I think we've covered everything, don't you?

Anonymous Female Speaker 1:19:19
I feel confident.

Scott Benner 1:19:22
Yeah. You know, people tell me all the time, like, oh, Scott, you gotta make social media videos to support your podcast, and he's like, Oh, I don't want to or that's silly, but I what I was thinking is I don't look good. And I don't mean just like I look fat. I mean, like, I don't look good. I look unhealthy, you know, and like, I'm not like when I wasn't one of those people who was like carrying around 40 extra pounds. I looked like Ashley Graham. Like you know, do you mean like, like, I wasn't like all beautiful and smooth skinned and just happened to way more like I didn't look healthy, right? Like I was definitely not taking in nutrients that I am now taking in like now I like I jump in front of that camera. I'm like, Hey, there's an episode of the podcast coming up. I don't even look at myself. Like before that I would have had that thing at a certain angle, it would have been up on the ceiling pointing down from my head. Like the only mean like, I would have only done it certain times a day. I couldn't have done it if I wasn't shaving because I would have looked like I was on a bender. But I

Anonymous Female Speaker 1:20:13
wasn't. And I feel like I can say this to you because we've all got no, but it just it. Do you looked like you might be coming down with something. Yeah. Yeah. You look like you might not feel super fantastic. Right? And it wasn't I never thought of it as anything more than that. But I was like, Oh, he's got a cold coming on or something.

Scott Benner 1:20:36
Oh, my dentist once told me he's like, you gotta have type two diabetes. Look at yourself. And I went I don't I wasn't even anywhere near to Mike my one seat. It wasn't up at all. Like, you know what I mean? He's like, you don't look good, man. Check into type two. And like, and I was good, wasn't that and it just, and you're so used to it after years? You don't even fight against anymore? You just like I guess this is how I'm supposed to feel. But right now turns out no. I know.

Anonymous Female Speaker 1:21:01
Right? It is possible to feel good about things and to feel good in general. And

Scott Benner 1:21:07
skinny Scott loves fashion. We learned by the way. I don't know if you know that. Scott likes to dress nicely. I didn't know I did. I thought I was like I'm happy and sweatpants. I happy and sweatpants. I was dying. It was in a puddle. Anyway,

Anonymous Female Speaker 1:21:20
I'm still in my happy and sweat pants phase. But I'm very much looking forward to being able to expand my wardrobe.

Scott Benner 1:21:27
Actually, though, my sweatpants are much nicer now. I get them at cozy Arthur. Very

Anonymous Female Speaker 1:21:30
nice. Yes, I you know, I've got a pair coming that I am very, very, very excited about.

Scott Benner 1:21:35
I just want to say, Save 40% with the juice box at checkout. But that's not even a joke. They're really nice. Do

Anonymous Female Speaker 1:21:41
they? I'm so excited. I've heard you talk about them so much that I'm like, Okay, I'm splurging one beer,

Scott Benner 1:21:47
I hope you like them, I really do. I really do appreciate you doing this. Again, no one is saying like GLP medications are not a cure for type one diabetes, like, but you're gonna hear more and more stories from people with type one who are using less insulin, and maybe getting other benefits to my

Anonymous Female Speaker 1:22:04
disclaimer that I had kind of thought of was like, you know, please, please, please, if you find yourself blessed enough, to be able to try one of these medications, please do it. Only if you feel like you're really good at making adjustments to your insulin and to your settings. And that you have that kind of relationship with your prescribing physician that they will be an asset to you in the journey. Because I just I think about how quick the impacts were. And if I wasn't at the comfort level that I was at, with making adjustments to run overload sensitivity factors, it could have been very, very bad.

Scott Benner 1:22:51
Yeah. Because you had to make you had to make some big adjustments taking insulin away, and people would have thought to do

Anonymous Female Speaker 1:22:59
huge, huge adjustments. And in reaction of like, you know, we've all caught a low, right, we've all had a scary low, but it was happening three, four or five times a day. And in you just have to have the capacity to deal with that. Right? Don't start on it, and then send the kiddo off to camp for the week, you know, or if you don't have that great relationship with the school nurse, where they'll listen to you make adjustments on the fly, you know, like, I just feel like we can't overstate the importance of being knowledgeable and comfortable. in caring for yourself, if you're the type one and going on this journey, or caring for your child or your spouse.

Scott Benner 1:23:52
Well, that's in the lives, it's in the labor, don't ya jump

Anonymous Female Speaker 1:23:57
into this without any thought preparedness and preparation and a game plan. Because, you know, we jumped into it not knowing that these impacts were going to happen. It was profound. And we were in a really good place. And I feel like, I don't want to brag, I want to be humble, but I knew what I was doing with my daughter's insulin and diabetes care. And I panicked, you know, and so, I just want people to hear that if nothing else, you know, don't don't hear this and think that it's a miracle fix and I'm just gonna do it. Please. Make sure you have the support that you need. You're gonna listen to it's gonna be a lot I don't want to hear a very, very, very sad story because somebody jumped into it without those resources.

Scott Benner 1:24:55
I actually think the the label for about type one is on these medications says like, you know, we go we, you know are one of those GRPs will cause low blood sugar, but you have to think of it the right way. It's not causing low blood sugar, it's causing your insulin needs to be significantly less. And you're, now you're suddenly using too much insulin, and that's causing low blood sugar. But yes, the mechanism is you had a certain amount of insulin in there, you put in this GLP, and then boom, you know, you're and

Anonymous Female Speaker 1:25:23
now all of a sudden, what you use to to take care of that low blood sugar is not going to take care of that low blood sugar anymore, right? That that four gram glucose tab is no longer going to cut it, you know, you're not gonna see that make a dent in that low that's resulting. And so just that that's my one thing is, this is a very happy story. We're very happy with our journey. But I don't want somebody story to be the opposite, because they didn't have the support or the knowledge going into it. That this, this is a big thing. And it changes things. It has the potential to change things in a big way. Yeah. And just just know that right, just to be smart about it, use your head. You know,

Scott Benner 1:26:10
we're also early on in this right now. Like, you'll look back on this episode a year or two from now. And you'll be like, oh, yeah, we all know that now now everybody's getting this you know, like that. That kind of a thing. And like, wait, wait, do you see because I've, I mean, you you mentioned the University of Buffalo right? at Buffalo. Yeah, they

Anonymous Female Speaker 1:26:28
got their dandona up there doing doing fun studies. Yeah,

Scott Benner 1:26:32
yeah, you should check it out. So okay, well, thank you so much for doing this. I got to ask you a couple of questions before I let you go, but I'm gonna stop the recording right now. Thank you great.

Arden has been getting her diabetes supplies from us med for three years, you can as well, US med.com/juice box or call 888-721-1514. My thanks to us med for sponsoring this episode. And for being longtime sponsors of the Juicebox Podcast. There are links in the show notes and links at juicebox podcast.com. To us Med and all of the sponsors. I'd like to thank cozy Earth for sponsoring this episode of The Juicebox Podcast and remind you that using my offer code juice box at checkout will save you 40% off of your entire order at cozy earth.com where you can just click on the link in the show notes. A huge thanks to touched by type one for sponsoring this episode of The Juicebox Podcast. Check them out on their website touched by type one.org or on Facebook and Instagram. If you're looking for community around type one diabetes, check out the Juicebox Podcast private Facebook group Juicebox Podcast type one diabetes, but everybody is welcome type one type two gestational loved ones. It doesn't matter to me. If you're impacted by diabetes, and you're looking for support, comfort or community check out Juicebox Podcast type one diabetes on Facebook. If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. The episode you just heard was professionally edited by wrong way recording. Wrong way recording.com

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