#1163 Lip Drill

Kim is 47 years old, diagnosed with type 1 at 24.

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Scott Benner 0:00
Hello friends and welcome to episode 1163 of the Juicebox Podcast

a we're talking to Kim today she's 47 years old, diagnosed with type one diabetes at 24. And her 13 year old son also has type one diabetes. She was a singer. Wait a second, what is all this I'm looking at my own notes here she's a singer started noticing her symptoms around the time of an audition in New York and her Oh, you're gonna love this one. I remember this one. Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Take the survey T one D exchange.org/juicebox. US residents who have type one diabetes or the caregivers of type one that are looking for you to fill out a 10 minute survey. It's just 10 minutes it's shorter than one of those like tests you take to find out what Hufflepuff you are you understand I'm saying T one D exchange.org/juicebox. You can do it right from your phone. Do it do it now. I commend you. When you place your first order for ag one with my link you'll get five free travel packs and a free year supply of vitamin D. Drink ag one.com/juice box

this episode of The Juicebox Podcast is sponsored by ever since the ever since CGM is more convenient requiring only one sensor every six months. It offers more flexibility with its easy on Easy Off smart transmitter and allows you to take a break when needed. Ever since cgm.com/juice box. This show is sponsored today by the glucagon that my daughter carries G voc hypo pen. Find out more at G voc glucagon.com. Forward slash juice box. Alright,

Kim 2:04
so my name is Kim. I'm 47 years old. And I was diagnosed with type one in December of 2000. And I have two kids, two boys aged 15 and 13. And my 13 year old is en and he also has type one. And he was diagnosed in May of 2018. And he was eight at the time 2018

Scott Benner 2:33
At eight. You were 47 When you were diagnosed?

Kim 2:37
No Oh, no, no, no, no, no, no 47 Now, okay, and it was 23 years ago. So I was 24 or I just turned 24. Well, my birthday is in September, and it was December. So it was Yeah, I

Scott Benner 2:53
was 24. It's my favorite part about when we talk about ages people get so oddly specific. I'm like you were 24. And people will go, Well, I had just turned 24. And I'm like, is any of this relevant? Or?

Kim 3:06
No, I know. Well, it kind of puts in perspective, like when was it in the year? And? Yeah, well,

Scott Benner 3:12
I think it's accurate. It's for the it's for people very obvious to me, that it's important to them for those small details to be correct for reasons that I think they don't see themselves as storytellers in this situation. It feels like they're their biographers, I guess to themselves, but like, but keep in mind, if you're listening to the podcast, whether you were 23, almost 24 Or just 24 When you were diagnosed, no one cares.

Kim 3:39
Makes no difference. makes literally

Scott Benner 3:41
no difference to what we're saying. Everybody gets stuck on it. It's It's fascinating to me a little bit. Yeah. Okay. So you were out of college, obviously. Yeah,

Kim 3:51
I had just finished graduate school. Actually, I went two years for graduate school after college and go off. Go ahead. And it was so I graduated that May and then this was December after that.

Scott Benner 4:06
Were you by any chance with the person you're married to now at that point?

Kim 4:10
No, no, no. We, we didn't meet till later. But yeah, I was. No, I don't think I was in a relationship at the time.

Scott Benner 4:18
Okay, so this diagnosis it comes. Are you living on your own? Are you back at home with your parents?

Kim 4:24
No, I was living on my own in a college in the Midwest. Yeah, it was in the summer through the summer. I was like doing a show and kind of started noticing some weird things. And I remember my dad saying like, hey, recognize you in the pictures, you know, because I lost a lot of weight and I guess I looked kind of gone in my face and all but then it wasn't until the fall. When I remember going like we used to go eat Mexican food a lot with my friends and I would come home Um, and, like, wonder if I was going to make it to the bathroom, you know? Cuz I mean, I guess my blood sugar was just so high and I didn't even know. And then my sister in law's a nurse and she had Thanksgiving. tested my blood says this is like a long, you know, month span, right? She tested my blood sugar to set a high on the meter. But then I had already planned to go to New York for a few days because I had some like auditions and things because I was a singer. That's what I was. I did and do and so I was I was still gonna go there were like, well, I don't know if that's a good idea. But I went, I remember having to buy like, reader's glasses because I couldn't see things. And so finally, I went home to South Carolina for Christmas. And my parents had made an appointment for me with this our family doctor, and that's who diagnosed the timeline. Yes, I

Scott Benner 6:02
was confused at first you were like, you just said a show. Like I knew that you were a performer, but I didn't know. So now I'm like getting it. So you were singing and dancing and like what like, we shooting for like Broadway type stuff or no,

Kim 6:15
no more. I'm sad, classical voice. So, you know, I performed an opera as an all in the summer to the opera company where I was living the, you know, traditional operas through the fall. And then the summertime, they did more light opera like if you know, Gilbert and Sullivan or, you know, things like that, that are a little more on the lighter side with more dancing and yeah. Oh, that's so I was in a show. There. Okay. Yeah. And started just kind of noticing things. And then I, I kind of put it together just by researching, you know, looking up symptoms that I was experiencing. And I was like, Oh, this might be something.

Scott Benner 6:57
Well, I love the blend of South Carolina and opera because you said you know, I do like OPERS and all. This is terrific. So your sister in law. So you're one of your siblings was married already. She was a nurse. Yeah,

Kim 7:15
they just got married. She's a nurse. And her mom has type two I believe in so they had Mater's lying around. And she came over when I was when I saw them at Thanksgiving, who she checked my blood sugar on the meter. And it just said, Hi. And she was like, you might want to get this checked out. And she started sending me all this, like pamphlets and stuff. Oh, Taiwan, and then. But yeah, I went to New York, and I did auditions. And I mean, I didn't I didn't even know you know, I didn't know that it was that dire of a situation. I was 24. You became

Scott Benner 7:49
you're 24 in a Duane Reade, I'm guessing by buying readers. And you don't think this might be problematic? Yes.

Kim 7:58
Well, I mean, I thought it was problematic, but I don't think I realized exactly. To the classes. Maybe I thought I just needed glasses, like all of a sudden, my eyes were bad. So oh,

Scott Benner 8:08
you know how that happens. You know how that happens for your eyes just suddenly stop working? When you're 24? You know, because Exactly. Any other type one or autoimmune in your family? Not

Kim 8:20
a lot. So my mom's okay. My mom's father's mother, her great grandmother, her grandmother, my great grandmother had type one in like that, you know, late 1800s, early 1900s. And she had 11 children and she lived in her 80s. And

Scott Benner 8:42
she didn't live into her 80s Without insulin. So when?

Kim 8:46
Yes, she well, okay, so, maybe I guess in that early 1900s Because my granddad was born in 1911. And he was like, in the middle of 11 kids, so

Scott Benner 8:57
Oh, maybe she was diagnosed. I mean, she had all I mean, if she lived at she had to have insulin, right? Oh, yeah, she hadn't. Yeah, so and that's 1921 2122 Yeah.

Kim 9:11
So around the time when I guess she was Yeah, okay. All right. Because I have children you said

Scott Benner 9:16
1800s. At first I was like and then she died when she was two like and Buffalo Bill carried her body to the gravesite like I was like I'm not sure what's happening here. So I love by the way how people with autoimmune stuff in their family like is there other type one your family like? Not a lot? Well,

Kim 9:34
I mean, like not a lot of type one. No, I

Scott Benner 9:36
know, but other people would go you know, other people who aren't indoctrinated into diabetes and autoimmune would be like, yes, there was a grandmother and like you're just not as much as you would think. How about other autoimmune? Do you look back and see it with anybody? Do you have any yourself?

Kim 9:50
I? I do I have Ashley Meadows? And my brother also just found out that he has Hashimotos give him my mom does not have any thing and her other than the grandmother with type one that's all that we know about. Like her siblings don't have anything I've asked her. My dad's side of the family I don't know so much about he so he passed right after I was diagnosed I'm sorry and so you know we didn't at that time didn't really talk much about autoimmune events didn't know about it so I don't really know much about on his side of the family but there's got to be you know, my brother has hash meadows and I have the two and you know, it's in there somewhere.

Scott Benner 10:32
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Kim 13:10
Well, we think it was a heart attack. It was son. He was 53

Scott Benner 13:14
Oh wow. I'm going to be 53 next year, so let's make up a different age where your dad died. Let's say he was 90. Okay. That sounds good way to panic me while we're watching while we're making up like oh my god, I just lost weight. Now.

Kim 13:27
You're in better shape now for sure. Oh

Scott Benner 13:29
my gosh. Oh, you you. You've seen my transformation.

Kim 13:32
I have. Yeah, I listen to your diaries. And yeah, it's fascinating.

Scott Benner 13:36
Oh, thank you my diaries where I'm like, either, like jubilant or like what is happening? Why can't this happen? Tim, I would tell you right now that I'm I'm I'm a little constipated, but we're not in the week of retirees. So

Kim 13:52
yeah, yeah, I've actually been considering the magnesium oxide myself.

Scott Benner 13:58
Oh, just for a little poopy. Yeah, that's a nice idea. I I went away this weekend and gave a talk. And I was so careful to take everything with me. And I took it while I was gone. Then I got home. And now I haven't taken it for like two days. Because when I got home, my pillowcase was empty as if that's an excuse. But I'm also like, the craziest thing happened. Can I tell you something that would never make it in the podcast if we don't talk about it right here unless it becomes like a horrible problem. Oh, gosh, yeah. I wanted to get home quickly to spend the day with my wife. So I flew out Friday morning to Orlando. I was on a plane at like 8am It was unpleasant. I'm not gonna lie to you. And I arrived in Orlando like 1010 30 I don't remember exactly. When I jumped in an Uber I was at the hotel. I did what any reasonable person does and they arrive at a hotel I unpack my bag and iron my clothes. No, no, I had to be in front of people. So I didn't want get caught with wrinkly stuff. So I took care of the irony. I went out, I grabbed a sandwich, I brought it back, I ate it by the pool, actually 20 minutes into that I thought I don't why do people live here so hot. And then then I made my way back to the room, etc, and so on. Got up the next day was brilliant all day giving my talks, but wanted to get home early for my wife, I had two options to fly on Sunday. One of them was a plane that took off at 6am. And I, like an idiot chose that flight. So I slept like four and a half hours woke up at three in the morning. And I got to the airport. Not too early. I'm not too late. It's all good. I sit down, I'm not there for five minutes, they push the flight back an hour and a half. Oh, it's like, okay, that's fine. So I stay awake, because I don't want to like you know, with my luck, they'll move the gate. And I'll wake I'll wake up and I'll be like, Wait, I don't want to go to Paraguay. You know what I mean? Like, it's gonna be like that. So I stay awake to get on the plane. We get on the plane. It's not very full. The stewardess comes around, she was hey, everybody can grab their own row. I don't know if you've ever been on a flight like that. But

Kim 16:07
yeah, where it's kind of empty. Terrific, right? And I think

Scott Benner 16:11
I'm going to sleep. So I laid down across the three seats, and curled up like a baby and I went to sleep well, it turns out the metal bar that separates the seat like under the padding, and the padding is like a loose term because it wasn't very soft. I must have laid right against something in my shoulder or my arm. And I think I pinched a nerve in my arm. And now it is four solid days later. And I have like, numbness and tingling in my hand and up my arm still. Oh my god. Yeah. So I'm pretty sure like a function of my hand. I don't want you to like think I'm like sitting here. And it's like laying off to the side. Like I have full function. But it feels it feels like it's been asleep, and it's almost done waking up. Oh, I hate that. Yeah. And I can't feel cold and hot correctly. And like water feels really ridiculous going over me. Anyway, I'm starting to panic about that. Yeah, maybe well, I'm old. So this could be it. This is how my arm falls off. You don't I mean, like for certain. Anyway. Why does this come up? Cuz? Because afterwards, I thought if I was still fat, I would have probably had enough padding for this not to happen. So I think losing weights can make me lose function in my right arm is what I'm getting. I don't know. I would have stayed chunky for that. You know what I mean? Anyway, I call the doctor. And he goes, Yeah, I'm not the right kind of doctor for that. I'll say, Oh, great.

Kim 17:47
Thanks. Wow. Okay, so

Scott Benner 17:50
who is a neurologist? Or oddly, a psychiatrist. Really ask why? Why? Well, the neurologists, for obvious reasons. The psychiatrist because apparently they're good with certain medications for depression that also helped nerve pain. Wow. I was like, Hmm, interesting. Interesting. But like a real man. I'm just going to ignore it until it goes well.

Kim 18:17
That's yeah, yeah. Yeah.

Unknown Speaker 18:19
Anyway, I

Kim 18:20
have a weird thing with my arm at the moment. And I think it's called shoulder impingement syndrome.

Scott Benner 18:27
Do you think you have a frozen shoulder? No, I

Kim 18:29
don't know. It's I don't think it's frozen shoulder. I think it's, um, I kind of, so I also should go to the doctor about it. But it's like when I try to reach above my head. Or if I try to reach behind my back, it pinches and it's kind of limited in the movement. So it's something to do with the space in between the thing that sticks out of the edge of your shoulder blade.

Scott Benner 18:58
And Kim, this just happened Arden. Really it's so crazy. You just said this. Yeah. Right. So Arden came home from college a couple of months. She's back now. But she came home for the summer. And she wasn't home long. She's like, Oh, my shoulder is killing me. And we looked and she laid on the floor because she's like, she's a walk on my back girl. So she's like walking on my back. And the muscles were like inflamed around her shoulder like sticking up. And we tried to do everything we could with it but it just wasn't going anywhere. So I took her to an orthopedic and he gets her in the office does the little put your hands out to your side raises over your head. She had limited motion it hurt moving her arm up that kind of stuff reached behind herself. He said yeah, you have like an impingement in your shoulder. He stuck a needle in her shoulder and filled her with whatever magic the put in there. The cortisone or cortisol that let me be honest, I didn't ask. Yeah, I just knew it's gonna make your blood sugar go up. For a couple of hours, which he did, but he sticks it in, like behind her shoulder blade a pretty, like meaty needle and pumps it in. She didn't feel the needle because he froze her skin first. But when he pumped the juice and she was like, Ooh, and then he took it out and had her just sit still for like, 20 I'm not lying. 2030 seconds. And he goes, Okay, try to lift your arm up over your head, and her arm shot up over her head like it was nothing.

Kim 20:26
Oh my gosh, she's

Scott Benner 20:27
like, that's amazing. So,

Kim 20:30
so did it then did it go away for good? Does she have any other issues with it? Now?

Scott Benner 20:35
It's only been a few weeks, but she hasn't complained about it. Wow. She's also a college now. So I don't talk to her as much. Yeah.

Kim 20:42
Yeah, that's the same thing. You know, you can't reach over your head. You can't do the thing where you like pull your arm in front of you and just stretch your arm. It hurts to like clasp a bra strap. That movement. Yeah, so

Scott Benner 20:54
apparently go to ortho Pedic that does shoulders, Hill, shoot cortisone or whatever the hell it is, like steroid in your shoulder. You're gonna need like 200 Basal insulin. Yeah, percentage for a few about three days afterwards. It was hard to Bolus for things for three days, like she was getting a lot, a lot of insulin. And then you do physical therapy to strengthen around it. And apparently that's the fix.

Kim 21:17
Wow. Okay. Well, that's good.

Scott Benner 21:20
Yeah. You got insurance? I mean, yeah, dancer. I don't know. You might not have any money. Yeah. And

Kim 21:25
then I got I'm a professor now. So

Unknown Speaker 21:27
what do you think?

Kim 21:29
I teach voice lessons and big music school in the Midwest? And yeah, I'm on the voice faculty there.

Scott Benner 21:37
Ken. We're gonna get to your diabetes and your and by the way, and your kids diabetes in a second. But can I ask one question before we move on? Yes. Why is my voice so pleasing in a spoken word, but I can't sing it all.

Kim 21:49
Ah, have you tried? I'm sure you can sing your you have a very resonant voice. And I mean, I would have you tried. Do you? Do you sing at all? I mean to myself, and it sounds bad. Yeah. Well, that's to you that maybe not anybody. No, no

Scott Benner 22:07
other people have commented.

Kim 22:11
Well, you should think about, like, let your singing voice kind of sit where you're speaking voices. That's kind of in the same resonant place.

Scott Benner 22:19
So I can't I can't feature I gotta be in the background, right? Yeah, maybe.

Kim 22:23
I mean, you know, speaking is more of your thing. But you know, you can work on it. It feels

Scott Benner 22:28
like I have to learn how to play bass so I can you know, Master doing Master of Puppets in my Metallica cover band? That seems like the only thing I'm gonna get out of this. Is that right? Maybe this why that lady made me sing in the chorus when I was little.

Kim 22:42
Because you have a very resonant speaking voice and they probably assume oh, she forced I have a booming singing voice.

Scott Benner 22:48
Nowadays, by the way, it would have been probably illegal the way she forced me to be in the course.

Kim 22:53
Oh, no.

Scott Benner 22:54
She's strong arm me. Okay, so I'm never going to be like, feature. Like, I can't do like, Lady Gaga or something like that. I'm going to be in the background like adding depth to the song. Yeah,

Kim 23:10
yes, you're going to be in the choir. And when they need the low notes, that's gonna be you. That

Scott Benner 23:14
doesn't sound like a lot of fun for me. Do people do that?

Kim 23:18
Are you to be maybe be a bear term, you know, which is a not the highest male voice but the middle kind of in the middle.

Scott Benner 23:25
I don't know. You're trying to be nice, but I hear what you're saying. I can't sing. It's fine.

Kim 23:30
I don't know. I'm not hurt you. I bet you could.

Scott Benner 23:32
Could you like coach me up enough to like, get me somewhere? Do you think? Yes. Really? Yes. That's what you do for a living but in college? Yeah,

Kim 23:43
I'm at a college. Yeah.

Scott Benner 23:44
How many people show up to sing at college, and can't do it. percentage wise, like, like, are bad singers, but don't know it? Well,

Kim 23:53
I mean, in the school that I'm in, you have to audition, you have to prove that you you know, have a singing voice. And you know, most of them are there because they want to pursue singing in some form or fashion. But it's interesting. A lot of them can definitely singing but like I'll have freshmen come in that, you know, don't know how to read music. They can't, you know, look at the music on the page and know what the notes are. So a lot of people can just think for fun, but they don't really know. The other parts that go into it.

Scott Benner 24:29
So how many people show up at the audition that you're like, Why would you come here like

Kim 24:33
oh, yeah, yeah, we get we definitely get those.

Scott Benner 24:36
But they don't know is that correct? Yeah.

Kim 24:39
You know, often sometimes they don't know sometimes, you know, their grandmother has always said oh, you have such a nice singing voice and then that maybe they're just not meant to like really pursue it. Yeah. You know, in a professional level. Yeah. them you know, they come in you're like why? Why are you here like you shouldn't This isn't for you how be

Scott Benner 25:00
like if I showed up at an NBA tryout is how it feels sometimes. Yeah. Yeah. How many people have a pleasing singing voice, and it's technically fine, but soloists, and they don't know that about themselves either. Yeah,

Kim 25:16
that that happens to where it's just kind of, I don't know, they just, well, it becomes kind of just academic, where they're not really making music, they're not being musical. So you can teach that and we have, you know, that's why you work with. So you have a singing teacher, and you know, a technical thing, teacher, that's what I do. But then we have people that are voice coaches that work more on the musical things, you know, how to express the music. And that can help.

Scott Benner 25:47
I always think how sad it must be for your voice to actually sound good. And yet, when you sing, it doesn't evoke anything from people. They, like, you know, how close you are to the mountaintop at that point. Right? It's upsetting to me. And

Kim 26:04
some of that comes with how they're using their voice. You know, sometimes they think, Well, I'm just gonna haul off and sing and try to be really loud. It just becomes like pressure and you feel like you're being yelled at.

Scott Benner 26:18
I know what you mean. Yeah.

Kim 26:20
Where it's just like, Okay, you're loud, right? That's all you know, then yeah, you can learn how to use your voice really effectively, where it just kind of pierces your audience more than it's more pleasing,

Scott Benner 26:33
like, like Janis Joplin is yelling at me, but I don't feel like I'm being yelled at.

Kim 26:37
Right. Yeah, right. Definitely. Uh, she had her own way of doing things. And I'm not always the healthiest, but something and people I mean, people love to, you know,

Scott Benner 26:49
I gotcha. Okay. So you're diagnosed in 2000. As an adult, what's the transition like, from Hey, I thought I was going to be a singer and a dancer to live diabetes.

Kim 27:01
Well, I mean, that didn't change like I, I kept going. But then I remember. So I think I, I started with like, hemozoin, I think. And then kind of quickly after that went to Novolog and Lantus. But I remember carrying it around with me. And it was kind of one of those things like, well, this is just what I have to do, you know, but I still kept. I mean, I was out of school at the time, but I was staying in the city where I was at graduate school and performing with the opera company there and doing some teaching. And yeah, I just, I think I was maybe a little bit of like, well, I don't really know what I'm doing. But I'm just gonna keep going. It didn't really stop me so much in a way of like, I didn't feel like like, I can't do this anymore.

Scott Benner 27:54
Okay. So your personality didn't like, lend itself to you getting bowled over by the scenario. But then your father passes? Yeah, yeah. Does that impact the diabetes at

Kim 28:05
all? It did. I mean, you know, I was still at a time where I wasn't checking it all the time. At that time, you know, and so I don't really know, specifically, from day to day, but I remember when he died, you know, it was traumatic and shocking and awful. But I had people telling me, like, you need to be careful, you know, you might, this might really affect you. Because I was fairly newly diagnosed at that time. And so I don't really I don't know, specifically, but he was the one that was with me when I got diagnosed, and was kind of just like, there to, you know, as the support person through the beginnings of it, even though I wasn't living at home, like I was in touch with him a lot. And so I think I just kind of kept going, because I knew that that was what he would want. Yeah, but it didn't. I mean, I moved. I lived in Boston, I lived in New York for a while, like I was on my own for a good bit, and maybe just like, not really knowing exactly what you were

Scott Benner 29:15
doing, what I'm doing what what were your goals, like, like health wise with diabetes? What were you trying to accomplish while you were living in those places? Like was it a one C driven? Was it how you felt? Yeah,

Kim 29:26
it was, it was kind of both I you know, I made sure that I was in with doctors quickly. Wherever I was living. It was definitely a one C driven. That was the big focus. And then also, you know, I remember, I would keep the little log books and I wanted it to be under 200. And, you know, I mean, those are my Yeah, I definitely had the goal of trying to stay under 200 and I wanted my agency. My agency when I was diagnosed was around seven Something I wasn't I never went into hospital like, it was just with my family doctor tried things over the phone and I would report back to them what was going on? And yeah, it was, I think a Wednesday was always the

Scott Benner 30:15
floor. And do you look back now? Do you have any? any complications at all? No, no. Okay. You feel like you. Whatever you were doing was working for you. Yeah,

Kim 30:27
yeah. Yeah. Excellent. Yeah. Even though what I mean, like now, you know, the difference now, being able to see, you know, with the Dexcom. And all that means, I look back and I'm like, I was just kind of like, looking through the wind a little bit and just kind of checking my meter when they told me that I should be checking it. But it wasn't as continuous as knowing what I where I am now tell

Scott Benner 30:51
people the feeling of getting a CGM for the first time and having lived so long without one. Yeah,

Kim 30:57
so that was interesting. Because when I first got the CGM, it was hard to, you know, see on the screen when, if I was going up, or if I was sitting too high. I felt like, oh, gosh, I'm gonna even get in trouble or something, or I didn't want I didn't like seeing that. So much difficult for you.

Scott Benner 31:20
Yeah, like, like, literally like feeling like, oh, gosh, this isn't going right. And having it in your face was hard.

Kim 31:25
Yes. Okay. And I remember I had the, like, the little separate receiver that was like, a rectangle shape. And it was on the little leather pouch thing.

Scott Benner 31:36
Yeah, I'm actually looking at one right now, because I found a drawer and I'm trying to decide if I should just throw it away or not.

Kim 31:41
Oh, yeah, I still have mine. I think that because that was what the G for I started with the g4, right. But I kept that on me, you know, I would check it. But then I remember when it was possible to put it on the phone through the app. I didn't want to do that, because I wanted to kind of keep it separate, like I didn't want, you know, just have to see it all the time on my phone in front of me that I would just play this as the separate thing. Like, I'll keep my diabetes kind of over here. And I was still, you know, very conscious of trying to stay in range and keeping up with everything I was doing, but it was it was hard to get used to sing all the time. Felt

Scott Benner 32:22
like pressure. Yeah, yeah. It does. Does it feel like that now? Oh, no. Hmm. Good. Now, you see the benefits of having it and yes, yeah, definitely. So when you when do you get the Hashimotos diagnosis? That

Kim 32:39
was pretty soon after I was diagnosed. So let's see. 2000. So I, I moved to Okay, so, September 11 happened, and I was in New York City. So I only stayed there for like three months and then moved to Boston. And I had a great doctor at the hospital there. And it was when I was living there. So it was, you know, maybe a year and a half or so later.

Scott Benner 33:09
And you're doing Synthroid for that. Yes. What are your TSH goals? Where does your doctor keep you at?

Kim 33:17
I just recently found out that my app was above five. So yeah. So yeah, so it's been a while right that I've been on the Synthroid and everything has been now, I'm gonna give you a plug because I love thyroid series, I learned so much from that. And I had always looked at the range, you know, they give you right to stay in range when you have the bloodwork done. So now I'm a little more like I want it to be like low, you know, under too good for you. Is that happening though? So now it's happening, but there was a while so at the beginning of this year, I had some blood work done. I was having a lot of weird symptoms. When I was having a lot of like heart stuff going on, like palpitations. Yeah, it was like PVCs for you ventricular contractions. So that freaks me out because you know, it's used in my family. Exactly. Exactly. So I was really freaked out last summer with all of that going on. Um, you know, that I was sent to a cardiologist and a stress test and all this stuff and it was just really freaking me out and then in January, I started with a new nurse practitioner like a functional medicine kind of person and she did a lot of blood work and turned out my TSH was five some five point something because it had been, I mean, probably, for whatever reason, over six months since my last blood test, so the thin so she increased the center way and that fixed it all up. So last time I had it taken it was like just under one and that the PVCs has stopped and all of those issues that I was having I think all were coming from the elevated levels

Scott Benner 35:18
in hindsight Did you have any other thyroid related issues that have cleared hair for

Kim 35:23
hair? My hair was falling out like crazy weight? Weight Gain yes tired? Yes, sleeping all the time. Like I couldn't make kids will make fun of me because I couldn't sit in front of the television without falling asleep. So

Scott Benner 35:38
that didn't happen to you. Your kids would make fun of you for something else just

Kim 35:43
I mean, I'm not like I'm asleep a lot anyway. You know, I'm I'm I fall asleep a lot at night regardless. Yeah, like it was more it was definitely more so

Scott Benner 35:53
go away with the T TSH come down. Or is it still with you?

Kim 35:58
I still fall asleep but I think like the functioning through the day is much better. I don't feel exhausted like it was before.

Scott Benner 36:07
Yeah, don't overlook asking about like T three supplementing to Yeah.

Kim 36:13
In the those first tests, like she checked the T three and it was okay.

Scott Benner 36:19
Remember when your TSH was okay, but you were falling asleep on the sofa? Yeah.

Kim 36:27
But I go because they're definitely the tired thing for sure linger. So I wonder.

Scott Benner 36:34
I'm telling you. Arden is not an upright living human being without Saito. Okay. She would just persevere through horrible exhaustion and sleep forever, and then get up and be exhausted. And then you add the T three and it's much different for

Kim 36:52
and is does she take it because they saw like the deficit in her blood work or it just helps her

Scott Benner 36:58
no matter what she took it because I said you have to help her. This isn't working. She Yeah, yeah, we had her TSH under two and she's still exhausted. Yeah, so sometimes you make it but you can't take it up. You can't use it. And so by kind of giving you a little more it sort of overloads the preceptors. And you actually get it. Yeah, that makes sense. Yeah, might as well try. Yeah, you might need a very little bit. And if you have too much sight ml you'll know because you're like clench your teeth and like your heart or race like it's not, it's not a thing you'll you won't know is wrong. If it's wrong, that's for sure. Okay, yeah. Sounds like fun. Right. clenching your teeth. My gosh, well, I

Kim 37:44
mean, I, I have found that I'm doing that now. clenching my teeth. I don't know why. I was just talking to my dentist about that. Actually.

Scott Benner 37:55
I'll say something that sounds like a little hippie ish. But look into some people take something called skullcap for teeth grinding. Oh, it's just a second. It's an I'll tell you what it is in a second. Okay, and then we're gonna ask about your son. I'm typing you're gonna get a lot of pictures the guys with hats on at first. It's harder to type with a half Nam arm in case you're wondering.

Kim 38:23
Oh my gosh, I bet so definitely is your is your computer like your keyboard kind of elevated or is it on the I guess it doesn't really matter. You're still having to lift your arms.

Scott Benner 38:34
My arm is like so, skullcaps, the supplement. It's not a like a like anything crazy. Let me see. Let me see what's in it. By Sun takes it for teeth grinding. Chinese skullcap is just a root a ground up root sculpt sculpts malaria bowel. Obviously it's nothing I can't say. But it's a ground up route and people sometimes take it traditionally used to promote good night's sleep supports a relaxation and steady nerves. That all sounds like a lot of hocus pocus but you can try it is inexpensive and it helps with you if it if it helps you the teeth grinding. Say thank you. And if it doesn't stop buying it. Yeah, and I'm not a doctor. So yeah, there we go. All right,

Kim 39:26
I'll look into that is because interesting because I don't tend I don't think I do it. While I'm sleeping so much. I think it's just kind of like a nervous tic or something that I've kind of developed fun to the day. I'll just kind of realize, Oh, my teeth are achy. You know, me or my molars are?

Scott Benner 39:42
Oh, yeah. Oh, you're really biting down? Yeah. Oh, no kidding.

Kim 39:48
Yeah, I don't really realize it until I kind of look back and I'm

Scott Benner 39:51
like, Oh, you're gonna crack a molar and end up with a root canal? You know? Yeah, no, we don't. I don't want to deal with that. Okay. All right. So you live in your life with your Diabetes, you meet a boy, he ruins your life and marries you. You go along and you make some kids, when when your son's diagnosed, do you think? Well, yeah, obviously, where do you think, Wow, I'm bowled over by this.

Kim 40:13
Okay, so when I was having children like thinking about it now, it didn't really occur to me much. I mean, I just was more thinking about, can I have kids, you know, because you hear all the people saying, you know, the older thoughts of, it's not possible. But so he was born, he was fine. And then we did travel that. And this was probably when he was about one and a half or two. And he came back with four of the antibodies. And that at that moment, I was like, Oh, my gosh, like this could really happen. And I think a lot of the kind of upset feeling of the possibility of all of it happen then. So we kept we went and did one of the glucose tolerance tests to kind of start in with the trial stuff. But he didn't really have a handle that Well, I mean, at least with the, the IV, like the process of doing it. So I think we maybe did it twice, and then just decided, like, if it's gonna happen, it's gonna happen. And I know this is really helpful for other people along the way, but it just wasn't working out so well, for us to continue doing that. So

Scott Benner 41:34
I hear what you say your kids soft? No, I'm just kidding.

Kim 41:39
Mom was soft.

Scott Benner 41:41
Yeah, I hear you. Yeah. But when he gets those that return from the trial that he's got for, I mean, it's four, there's only five markers, right? Yeah. So there, they tell you, it's a, it's reasonably certain he'll get type one.

Kim 41:55
They've said it's a possibility. And it might, you know, just something to kind of keep an eye on. So they can, they suggested, you're gonna keep checking as a one C, because at the time, he was like, low fours. And so we just kind of every time we would go to the pediatrician, and be like, you know, this is what they showed, and we need to kind of keep looking at this. And so, like, once a year, I think he would get an agency check. And it was going along, okay. And then we, it was he was in second grade. And it was spring break. And we were at Disney World. And he was having a hard time staying in lines, you know, without having to leave to go use the bathroom. And he was wetting the bed more, and he was never a bed wetter. And so we came back home, and I noticed, you know, he was drinking a lot of water, and that I was kind of, I think in a little denial, which I have some regret about now looking back on it, because I probably waited a little bit longer than I should have to before he was actually diagnosed. But you know, my brain was telling me oh, it's okay. Like, he's not drinking as much water as he was. And he hasn't wet the bed in a while. So maybe it's not not too bad. But turned out we went to just a ragged so he had a birthday in April. And it was like right after that, you know, he had his like, normal checkup with the pediatrician. And she noticed that his weight was lower than it was at the year before that checkup.

Scott Benner 43:34
That's a major indicator for a growing child. So it is

Kim 43:37
yeah, definitely. But she didn't go to the type one she went to, well, you know, maybe there's something going on with growth things or growth hormones or something like that. So she said, Let's just keep an eye on it. Just let me know, you know, maybe keep weighing him at home, let me know. And I went home and I was like, No, like this. I know what this is. Yeah. And so I had my moment of like, being really upset and kind of grieving the childhood that he was about to change, you know, and call the doctor back the next morning and said, I want to bring him in and get his agency checked and get a you know, finger stick.

Scott Benner 44:22
By the way, you have a meter your house, but okay,

Kim 44:25
I know. I know that I knew

Scott Benner 44:29
you weren't up for finding out where, you

Kim 44:31
know, I didn't want to I didn't want to know, I was I was too. too nervous about it. Yeah. And, you know, interest. It's just interesting that, you know, the pediatrician didn't go to that.

Scott Benner 44:42
Well, also you have a thyroid issue. And he's not growing that mean that even is an indicator there. So, right.

Kim 44:50
So we went back the next day, it was a Friday and she you know, the blood sugar didn't read on the meter. It was the one that they had couldn't read that high. And his agency was like 14. She said, you're gonna go to the hospital. And where we live the biggest, like Children's Hospital is about an hour away. Okay, so we had to drive up there. And I took him in. But by that time, like, the day before I had my, I'm really upset about all this, and I have to cry about it. But that day, I was like, Okay, I know what this is, you know, we're gonna get this figured out. And so we did. We went to the hospital, and he was not in DKA. But he was, you know, sportin agency to stay there a couple of days.

Scott Benner 45:41
Your other children don't have markers. Is that right? That's right. Yeah. Which, which Gilberton solvent play does this most represent in your mind?

Kim 45:53
Oh, beautifully, like, happy and kind of political soccer.

Scott Benner 46:00
doesn't line up with your, your current experience at all? Right? Yeah, I'm not a Gilbert and Sullivan dork, like some people are. So I didn't know, I couldn't make a good reference. I thought maybe you could whip one out. But nevertheless, now

Kim 46:12
this is this was definitely more of a drama, for sure.

Scott Benner 46:15
How did your husband handle it? Oh, he

Kim 46:17
was great. I mean, he's, he's, he's more of like the, okay, let's just get this done. Like, let's go pack. Gotta go. I'm gonna take. So he stayed home. And my other son had a baseball game that night. And so he took him to the baseball game, and I got in the car, or the and off we went. And I think I kind of went into it. Like, I know all about this, you know, like, this is my thing. Right? I'm gonna, I know what to do. I'll take care of him. And, you know, my husband and my other son came and did all of the education stuff with us, you know, and because he knew, you know, my husband knew a little bit about all the stuff that I was going through, but not really intimately. I mean, you know, like, he wasn't watching my blood sugar numbers. He wasn't telling me what to Bolus by myself. He knew what to do for a low. But that was

Scott Benner 47:13
18 years, though of living together with that, and he really doesn't have a ton of information about it.

Kim 47:18
Right? Well, okay, I'm gonna tell you a quick story. So we met at a summer theater, in name, Dirty Dancing, but for singing offers

Scott Benner 47:29
what happened? Go ahead.

Kim 47:32
So the, we went back the next summer. And, you know, I mean, I, so I met him. This was 2003. And I have been, so about two and a half to three years, right. I've been doing all this. And so one night, I don't really know exactly what happened. But this was the one and only time that I've ever kind of passed out from a low blood sugar. And so he called 911. And they came and I remember waking up, like, being really upset that somebody had drank all of my orange juice, because I guess he was trying to pour the orange juice in my mouth. And well turned out. So I went to the ER, and you know, everything was okay. The next day, but he proposed to me the next day. And so he had all it was all planned, like he this was all coming in, and I just had to throw this

Scott Benner 48:26
past out during the moment when you were gonna get proposed to

Kim 48:30
Oh, it was the next day. He was to propose to me this was the night before he should

Scott Benner 48:34
have pushed it off a little bit, don't you think? Boys? Yeah. Only, by the way, only a boy would watch you pass out from a low blood sugar call 911 for you. You have to go through all that and go yeah, we're still gonna go through with the thing. Yeah. Any girl, any girl in that situation? Be like, I'm going to replan this for another time?

Kim 48:57
Maybe not today. But no, it all worked out. I mean, it was, you know, it was great. It was a great moment. But it was just because I remember we, I called my mom, you know, the next morning and he, I think called his parents to tell them but my mom obviously thought that I would be calling to tell her the good news, but I was calling to tell her about our trip to the emergency room. And so but she didn't say anything. So then when I called her back later to say Oh, actually, you know, we're engaged.

Scott Benner 49:25
Oh, your mom knew he was gonna propose. Yeah. How lucky that she doesn't blow it when you call.

Kim 49:31
I know. He very easily could have you imagine

Scott Benner 49:35
you say hello. And she's like, Oh my god. I'm so excited. You're like, what? I went to the house. How do you even know about this? Exactly. Yes, exactly. Was that a decent ring? Kim or Oh, it's great ring. Oh, then I guess it's fine.

Kim 49:49
today. Yeah, yeah.

Scott Benner 49:52
Yeah, that's hilarious.

Kim 49:54
That was the extent of you know, his experience. Yeah,

Scott Benner 49:57
he tried to drown you with orange juice. And that didn't work. He's like, I know how to ruin her life. Um, make her married. Right? Oh my god. Yeah, I'm joking. Marriage doesn't ruin your life in case you're not married. You're listening. Yeah, well. I just love. I love to giggle about it. So people who aren't married sit there going, oh my god, what is it? I don't know. You'll find out.

Kim 50:26
Yeah, we're 20 years in together on this.

Scott Benner 50:29
It's lovely. I've been married 27 years. Oh, wow.

Kim 50:32
Yeah. That's all everything's fine. A lot of days there.

Scott Benner 50:37
Yeah, no one's dead. What do you think of that?

Kim 50:40
That's all aim for that.

Scott Benner 50:42
My wife had to get up this morning at 2am to be on a call. That is like a conference call that's happening in Switzerland. And last night, she had to go to bed at eight, like eight at night to do that. And the last thing I said to her was, hey, when your alarm goes off at two, please do not wake me up.

Kim 51:05
I will not get up with you. Yeah, we joked about that, too. Sometimes Brian has to get up early for trips or whatever, like, national things to like, so if you wake up, and you could just go down and make me some tea. And I'm like, No, I'm not. He's joking. But like, I will not get out.

Scott Benner 51:21
She was gonna ask me. I don't know. She was gonna ask me help with the dogs. I could see it coming a mile away. And I was like, that's not gonna happen. You're gonna get up earlier and take care of the dogs yourself. Leave me the hell out of this. I'll be Suzy 20 years ago, she would have said this. Me. I would like yeah, I'll get on your schedule, and I'll get up with you. It'll be fine. Yeah, that's not happening. No, not anymore. So. Okay, so your son's diagnosed? I wonder how much if any comfort does he have from the fact that you have diabetes? Is that like a benefit or a detraction? Do you think?

Kim 51:54
I think it was a benefit? Because so think, talking back to that Dexcom receiver, for some reason, he always called it a Lucy wallet. I don't know where it came from.

Scott Benner 52:05
Dealing with his spare time. Let me let me Google that. Go ahead.

Kim 52:08
No, I think it's just something that he came up with.

Scott Benner 52:11
I think it's drug paraphernalia. He knows about Hold on. No, turns out it's not anything. Nevermind.

Kim 52:18
Yeah, so he always referred to it as the Lucy wallet. And he would kind of, you know, look at it and play with it and close it up. And so I remember telling him, you're gonna get your own loosey wallet, you know, and you're gonna do the things that I do, and you're gonna take insulin like I do. And so I think it was he was familiar enough with it to know what it was, and it wasn't gonna be this big, scary, unknown thing. And he was very much also, like, we got to the hospital, and they were showing him how to, you know, giving them the shots and checking his blood sugar. And he was like, so I'll have to do is just take a shower and a half to eat. It's like, I can do this, you know, and he very much had a, this is no big deal kind of attitude at the time.

Scott Benner 53:06
What's that attitude now?

Kim 53:09
Now, he would like to not have to deal with it. Exactly. Yeah. I mean, he's good about it. He He knows what his goals are, as far as staying in range, and Pre-Bolus Singh and all of that, but it just doesn't always happen.

Scott Benner 53:28
Oh, he's 1313. Yeah. 13. And

Kim 53:32
he's growing, you know, I mean, he's growing now for sure. And, you know, so we've got a lot of hormones surging and oh, so great. And some days are not and,

Scott Benner 53:43
yeah, what I meant to ask you about that. So when you gave him Synthroid, did he start growing?

Kim 53:48
So he, he's not taking Synthroid, he does have Hashimotos okay. They haven't put him on any center yet. And I'm like, somewhat, you know, I keep wondering, maybe if they should, yeah, what's his TSH, his TSH the last time we just had it checked and it was in the upper twos like 2.9 something Yeah,

Scott Benner 54:09
why not? A little bit is the small side because he want to be on the small side.

Kim 54:14
Well, he not now and he's always been average for his age group. You know, every time you look up the height averages but my older son is huge. Like he's six three, and has always been really tall. And so Ian has always seemed small compared to Thomas, but if you look at averages, like he's always been right where he's supposed to be right in the middle, you know, sometimes I wonder if maybe it's the Hashimotos because we just so after I had all that bloodwork done and realized that my TSH was off. I went back to look at Ian's and I didn't even realize that he had the Hashimotos because nobody even really talked about it but it was discovered when he was diagnosed, but nobody, nobody talks about it in his they mean they'll check his TSH they'll check in for celiac disease and range and that's it stays in range and that's it but how she met us was never brought up.

Scott Benner 55:12
Does he have any symptoms? No, I

Kim 55:15
mean other than he has, has an always has had really dry skin. And I wonder if that might be a

Scott Benner 55:22
symptom. Let's get the TSH down. That's yeah.

Kim 55:26
And I mean, yeah, I don't know if that would be what he needed every day. Would it just be a

Scott Benner 55:31
it's every day you get? It's a small it's just a small dose. That's all a small dose. Yeah. I want to tell you there's a crazy amount of wallets with Lucille Ball available on the internet. Oh, really? I mean, just is is Lucille Ball still very popular figure in the world? Because my God Do you have your options? If you want a Lucille Ball wallet? That is hilarious. I'm not kidding. And by the way, only one with the peanuts on it. And and it's not even Lucia Peppermint Patty Lucy.

Kim 56:06
I mean, that's that's not I don't think that she's not really well known. And today's

Scott Benner 56:12
you wouldn't think you'd be most people. Well, yeah, you're old. But I mean, most people can't care about this, right? Yeah. I don't know. I don't like this at all. I might call this episode Lucille Ball wallet.

Kim 56:28
I really, I wish I knew where he pulled that from. But he's, he pulls a lot of stuff out of his mind that I don't know where it comes from.

Scott Benner 56:35
Lucy. What was the cause? Balls? I mean, Kim, maybe it's something about a pouch. Who knows what's going on here? I don't know. By the way before I forget to say this. I know people who are from South Carolina who have two boys and their boys names are in and Thomas. What? Yeah, freaked me out when you said that. When you when you said Thomas just now is like, Oh my God, why do I know that? And yeah. Is that like a thing there? And she calls him Thomas. Not Tom.

Kim 57:02
Yeah. Right. So my dad was Thomas. So that's where we got it from? He went by Tom. But yeah, Thomas is Thomas R. Thomas. Yeah, that's why and the. I mean, a lot of because I haven't lived in South Carolina since I left together. Weird.

Scott Benner 57:18
Listen, if Thomas was the one with type one, this episode would definitely be called Thomas is our Thomas is our Thomas, because that's what you just said. And I would definitely, definitely make that the title instead. So so your son's about where I expect a 13 year old to be with diabetes. He's like, this sucks. And I don't want to do this is to not have to think about it. Yeah, of course. Is he using an algorithm? are you what are both using? Yes, we

Kim 57:42
both have the tandem with control IQ.

Scott Benner 57:45
With G six right now?

Kim 57:47
Yes. Yeah. Right now. Yeah. We actually just had that the email about do you want to be in the trial group that, you know, tries out the g7? Would you say yes, yeah, I said yes. Yeah, they sent out? Yeah, I guess they're gonna just randomly pick some people to give it a try and see how it goes. Yeah,

Scott Benner 58:08
that's nice. Yeah. So you'll love the g7. It is tiny.

Kim 58:12
That's good. Yeah. I mean, for me, yeah, I don't really care so much. But I think Ian will definitely appreciate that. Because he can, you know, he always wants to make sure like his, because he wears it on his arm, and he wants to make sure it's covered up with his shirt. So

Scott Benner 58:27
it'll be much easier to conceal if that's what he wants to do. Yeah, yeah. It's really, it's pretty great. It's very flat, and much smaller. So good stuff. Have

Kim 58:38
you had any of the issues that some people have talked about with like the range and connectivity and things like

Scott Benner 58:45
Sikkim? Let me just say a thing here that I feel like is obvious. But I guess it isn't. When companies make new stuff, they still tinker with it after it's out. Yeah. So if you've been using Dexcom, for a long time, for example, you'll know that in the first few months of the iteration, the first iteration of something new, they still like, it's never the same product six months later, as it is the day it comes out. And I think those are software adjustments that they're making, obviously, because the hardware is is set, right? So I don't pay a lot of attention when stuff comes out. And they're like, this doesn't like the Bluetooth isn't whatever people said like Yeah, yeah, I just get the thing. And then we'll use it. And so did our didn't notice a Bluetooth issue. She did not. We had I think we we had a couple of sensors in the very beginning that were like full board out of the box, and then we haven't had that problem again. Maybe two of them. And so, but I don't know if maybe Arden just lives with her phone up or like maybe she's just never gonna have a Bluetooth problem because she's not walking away from her phone. Yeah, but I think You know, I would tell you that Arden's using G seven now with she's used it with Lupe, and she's now using it with Iaps. And we don't have any trouble with it all.

Kim 1:00:10
Okay,

Scott Benner 1:00:11
yeah. So, I mean, I'm also, I don't know, I don't focus on that stuff. I guess like I get. If it was a problem for us, then you probably hear me constantly going like this thing doesn't work. Yeah. But she, she's not having an issue with it. That's good. Yeah. But I think some people like to walk away from their phones a lot. And then they're like, my CGM doesn't work. And then like, well, it's Bluetooth. Bluetooth sucks to begin with, you know, so? I don't know. Yeah, I wouldn't. I mean, from my experience, I don't think there's anything to worry about.

Kim 1:00:43
Yeah. I mean, I'm eager to get it. And I think as long as it works well enough to be able to keep up, you know, with the algorithm and stuff then. Yeah, well, fine.

Scott Benner 1:00:53
I also think because you're online, you have that thought, because people complain. People love to complain. Right?

Kim 1:01:00
Well, that complain are louder. Yeah. Yeah. Don't have issues. And you're

Scott Benner 1:01:04
aware of it. Somebody listening right now, who's never been on Facebook is like, what Bluetooth issue? I've been using this thing forever. And it's fine. You know? So people like to talk about, well, listen, when something goes wrong, you try to figure out I mean, I don't blame people for onto the internet and being like, Hey, what's going on, but the thing that doesn't happen is they don't come online and say, Hey, I have a 19 year old iPhone. I've dropped it in the toilet six times. And my my walls are made out of concrete my house and I'm having trouble with Bluetooth. You know, like, you don't get their full story. Not that say that some people aren't using brand new phones, and it's just not working for them? I don't know. But I don't know. Like, it's, it's a weird thing to me. Like if your phone doesn't do a thing that you know, that you expected to do you don't then I don't know. Like if your phone's not connecting well, to your headphones. You think, oh, there's something wrong with the headphones, but it very well might be just Bluetooth. And it's not nothing's fault. It's I don't know. I sound like I'm not making sense. But no, I understand what you mean. Yeah, you don't I mean, like, it's just, there's a lot of variables, you don't know what they all are. And when people are complaining online, you don't know what their variables are. And if theirs will be yours, but not necessarily the new product. Yeah, I'm gonna go out on a limb and say if it didn't work, the FDA wouldn't let us put it out.

Kim 1:02:25
Yeah, and I remember you did, I guess you had a chat with the guy from DICE calm or something. And he mentioned that they were still kind of futzing with it. Yeah,

Scott Benner 1:02:34
they turned a little like the turning dials behind the scenes, that I've actually in past iterations of it. I think, if I'm speaking out of school, I'm sorry, but I think they improved accuracy, just by improving their soft, like the algorithm that they're using. Oh, wow, you know, which is crazy. So. So it's the, you know, the filaments in your skin and it's in your interstitial fluid, it's making the reading. But then they were able to make an adjustment on the algorithm side, like to their to their software, basically, I don't know if it's actually called software, because it's probably as printed on a circuit board somewhere. Anyway, I'm not very technical, but they were actually able to change that to do a more accurate interpretation of what it was reading. And so you didn't have to change the wire or anything that was on your side, like on the on the physical side, and they were still able to make accuracy better. This is going back a generation or so ago. Be others. There's a lot to be done there. A lot I don't understand for sure. But smaller, easier to use shorter warmup time, and you can pop one on before putting the other one on or taking the other one off. So simply say stated If Arden's got one on our left hip, and it's going to run out four hours from now, she can put a new one on her right hip, just put the the applicator aside, hold on to it. And then hours later, disconnect the one that's operating. Reconnect the new one. And now you've been wearing it for a couple of hours. And it's more accurate.

Kim 1:04:12
Oh, that's great. And then you don't have a gap? Yeah,

Scott Benner 1:04:14
no, it's like basically no gaps soaking.

Kim 1:04:17
That's cool. Yeah,

Scott Benner 1:04:19
I don't know if soaking is a word everybody knows. But yeah, you put on your CGM. And I think most people know in the first sometimes 12 hours or so like CGM can be like a little strange when you first put them on. And that's what they refer to as like a soaking in period. So you can kind of live soak it without losing your numbers from the the already operating sensor. Yeah, that's great. And it's got a something very simple which words are escaping me now? An amount of time between when it stops working and when it actually stops working a grace period. Yeah, there's a grace period. Yes. Like God came I couldn't find the word Grace Period have saved my life. I have that trouble too well, also in fairness, I'm sitting here thinking my pinkies numb. So distract. I'm a little distracted with the idea that I'm not gonna be able to feel my arm one day, but I hope I think it's gonna get better cam, don't

Kim 1:05:16
you? Yes, definitely it has to. Why does it have to kind of take a nap like,

Scott Benner 1:05:21
you know, that's exactly see your wit you realize I agree I woke up and I was like what's wrong with my arm? And I was like, ah, that'll go away in a second. And I'm walking to the airport, and I'm like, This is not getting any better. And then I'm like out to my car. And I'm like, Hey, what the hell? Thought I was just trying to get some goddamn sleep. This isn't fair. I actually thought I help people with diabetes this weekend. Is this my gift? Oh, I get it.

Kim 1:05:56
Thank you so much, Kim.

Scott Benner 1:05:58
Is there anything we haven't talked about that we should have? Because I still have one more thing I want to do with you.

Kim 1:06:01
I mean, I think we've talked about a lot other than, you know, I was just gonna, like, mention the the interesting paradigm, or I don't know what the right word is, but of like being type one mom, and then the type one kid, kind of paying a little more attention to the type one kids sometimes and you know, it's an interesting balance of remembering. I need to take care of myself, you know, because I'll be really focused on, you know, especially back when you did like the calculation episodes, you know, of the math. Yeah, the math. Yeah. I really went in and tried to make sure like, all of his settings, were good for where he is based on those equations. And then I find myself going, Oh, maybe I should do that for myself. Do you think

Scott Benner 1:06:52
it only takes me five more minutes? Can you are already doing it?

Kim 1:06:56
I know. But it's interesting, because, you know, I don't know if it becomes because He's younger? And, you know, I don't know, it's I never went through puberty with all of this, in my life of diabetes has been a little bit more stable. I think maybe because of I mean, you know, still having the monthly stuff, but I don't know, I think I just want to make sure that he is set up well, right. So yeah, I just have to remember sometimes you also how diabetes, this

Scott Benner 1:07:25
isn't some weird psychological thing. You're not punishing yourself. martyring yourself anything like that?

Kim 1:07:29
No, no, no, no. I think it's just he is the first focus for me sometimes. Yeah. Well, you should remind myself that I also have to, yeah.

Scott Benner 1:07:43
Yeah, I mean, plus, he doesn't care. If you're like, we're gonna make an adjustment. She he's probably like, what I don't, I don't care.

Kim 1:07:50
I just take the pump. I don't whatever. I'm busy.

Scott Benner 1:07:53
I was talking to Arden yesterday, like she calls a lot like, so we FaceTime. And, um, and so like, she's doing homework, she's telling us all about her day when her day went so well at school. And the entire time she's talking, I'm thinking, you need to change your pump. Like, I see, it's been happening for three hours. Now the pump is the site's gone. It's just it's done. Like, you know, like you're almost out of insulin, the site's not working as well. If you just change your pod right now, your blood sugar is going to come right back to where it belongs. And I did not say anything. I was so good. And I because if I would have said already that she would be like, I know dad, like I'm not still i I'm an adult, I'm taking care of this. What do you think take care of when you're not here, like I would have got that whole thing. And it would have been upsetting to her and I don't want to upset her. So I just I swallowed it. But then, Kim later last night, I FaceTimed her and she was like now down to like, there was like 19 units left in the pod. And yeah, the the units aside, the pod was just clearly not working well at that site anymore. So she calls me back. She called us in the shower, and we're talking while she's drying her hair and stuff like that. And I still don't mention it. And she's like, I'm gonna I said, So what's up for tonight? She tells me about her evening, and she's going to eat and everything. And I said, Oh, do you have class in the morning? And she says, No, I don't. I said, Okay, good. I was worried because I, you know, because I think you're gonna run out of insulin before the morning. And then, but I said, but if you know, if you don't have class the morning, maybe it'll make it overnight. And then I just let it go. So I actually like, reminded her that she needed a pump without reminding her that she needed the pump. Like it wasn't super smooth, but it wasn't bad. I'm gonna just drop this. Let me just mention it off on the side here like but not directly. And then I don't know, maybe two hours later, I saw her blood sugar like go back like tight into a tight range. And I looked on my Nightscout and I could see that her pump now had like it was full. So she put a new pump on my and I was like I did it. I tricked her A

Kim 1:10:01
very subtly, very, like, you're not gonna get her upset so she can't talk back to you.

Scott Benner 1:10:07
Also, I don't want to say this Kim in a way that makes people upset, but I deal with my daughter differently than I deal with my son. Like, I tried, where this is gonna get me in trouble being direct with Arden worked really well until she became a lady. Yeah, and now being direct with her doesn't work the same way. Uh huh. And whereas I could just if that was my son, I could have just said, Hey, you got to do this thing. Don't forget. And he go, yeah, and that would have been the end of it. Right? So anyway, my wife's like, you can't just say it to her. I'm like, That's ridiculous. And she's like, Well, are you ever gonna learn and I was like, probably not, but I'll keep trying. Yeah, I might try it with my wife, though. I think she was like secretly telling me the same

Kim 1:10:49
thing about herself is how you need to talk to

Scott Benner 1:10:53
just talk around it a little odd. So, so exhausting, but okay. All right. All right, Kim. So here's my last question. Okay. If I came into your classroom, somehow I got through the I got through and you what, what are some like things you would teach me? Like? Like, there are practice things I could do. And can I do some of them right now with you before we get off the pot? Yes.

Kim 1:11:18
Oh my gosh. Well, okay, so so we do a lot of vocal eases, you know, like warm ups things to kind of practice.

Scott Benner 1:11:27
I'm ready.

Kim 1:11:30
Well, I don't know how to do a lip trill I'll often just in the microphone, you do lip trill. Like that, but you got to sustain it.

Scott Benner 1:11:39
Wait, hold on. How the hell do you do that?

Kim 1:11:44
Like that. Yeah. But see if you can. For how long? Am I afraid a little longer? How long? Well, I mean, like we'll do

Scott Benner 1:11:55
a lot of air control, then that's what I'm working on.

Kim 1:11:57
Actually, that's a big part of it.

Scott Benner 1:12:01
It's hard. I

Kim 1:12:06
think about just getting the literal going like without a note, and it just

Scott Benner 1:12:14
Oh, I almost had it there. My lips get dry and then they stopped bouncing. Can I believe them? That might help. People know that I sit next to a giant jug of Vaseline when I make this podcast to keep my lips dry. Also, how do people keep their mouth wet when they're singing?

Kim 1:12:33
Well, just hydration. There's no answer. Like I can't just take a pill. Oh, no, unfortunately.

Scott Benner 1:12:38
I thought you knew something. But okay, hold on. Oh, can I bring in fresh air through my nose? While I'm doing it? Ah, next you want the air to me moving out? Yeah. Oh, it's a lot about a deep breath.

Kim 1:12:59
Yes, you need a deep breath

Okay, that's probably better because it's about you know, using the air is a big part of it.

Scott Benner 1:13:12
Okay, it's going to help me all make the podcast or know. Well, well

Kim 1:13:16
then. So when you do the lip trill you want to think of? So do you feel the sound if you feel the sound in your throat, you don't want that. You want to feel that the sound is kind of all at the lips, at the lips and in front of you.

Scott Benner 1:13:35
I got better. Okay. Yeah. So I stopped stop emanating from my chest. I'm not making a noise. The lips are making the noise. Exactly. I got it. Okay, what's another one? Tommy? Yeah.

Kim 1:13:47
Okay, let's see. You can also do Mmm Hmm. Well, so a lot of times if you I mean, can you think of a phrase that you like that you could sing? Do you know song? Oh

Scott Benner 1:13:58
my god. Hold on. I'm writing down to call this episode elliptical.

Saw Oh, so here here. This is interesting. Can we segue for a second? My wife gets so pissed at me. I don't know the words to songs. Oh, but recently, I heard someone speaking about this. And they said something that I resonated with. He said I hear the words as another instrument as music and that's how I hear it. The words are like rhythm and, and and beat. They're not. I don't care what they're saying. The word seemed like music to me. Yeah. So as you asked me that question. I'm like, I don't know the words that any songs even my favorite songs. So just give me one and I'll do yours.

Kim 1:14:52
Well, I mean, you can even just like on Happy Birthday. Okay. All right. Because what you want to be able to do event She is to like, sing the phrase with the lip trill. So then you're getting the air going, how enough?

Scott Benner 1:15:06
I was cursed. How? What do you mean? Like I need to make words while my lips are bouncing? No, no, no, no. Oh, oh

Kim 1:15:21
damn you then you're, I'm up an octave. You're not gonna be you're gonna be lower

Scott Benner 1:15:31
Oh, I had it for a second. Okay,

Kim 1:15:33
so you can't see me but I have my hands kind of on either side of my like if you're going to call out you know, hey, with your hands up around your mouth. Hold your hands there while you do the lip trill. And just think of all the sound being in the front, like kind of called out megaphones. He

Scott Benner 1:15:58
came at what point am I gonna pass the hell out from this? Because I'm getting lightheaded.

Kim 1:16:06
Are you gonna have to start paying me for my time?

Scott Benner 1:16:09
Oh, yeah, he would just the meter start running, you're like, that's enough, buddy. A few extra minute, I just keep thinking what you're gonna hear next is this. And that's gonna be my head slamming off this when I pass out. But it's

Kim 1:16:21
funny, because I'll have students that say that too. They're like, this is so much more air than I'm used to. And it's a rush, you know, generates the, like the there's going to come through the vocal folds. And that's what vibrates the folds. And yeah,

Scott Benner 1:16:33
you know, my biggest problem, honestly, with all this is that when I definitely think this is not a story I've ever told the podcast, but when I was five years old, I got new dress shoes. And we were poor. So that was exciting. So I was coming down the stairs at my grandmother's house. And my uncle was across the room. And he was like, Hey, I heard you got new dress shoes. And I like an idiot raised my foot up to show them to him and then fell down the stairs. Oh, no way. My nose has never been the same since then. Oh my god. Yeah. So I don't do well. Drawing air through my nose. Mm hmm. I probably need that like deviated septum surgery. Yeah, yeah. But I'm 52. And I think what if I just made it to the end? It didn't have to do that. But I think I wonder how it would change my voice actually.

Kim 1:17:34
Yeah, it's interesting. I've had a few students with that. And they've had the surgery and then their voice is different because like the the resonating cavities and all change. Yeah. Because the space is in there is changing. Yeah. When

Scott Benner 1:17:47
I go off on a rant, I don't breathe through it. It's it's like almost weird. Because I can't. I can't I can't draw air in through my nose without it feeling forced. Wow. So anyway, yeah, my uncle needed to see my shoes. And now I can't breathe, but he's dead. So I want you can't blame it on the uncle anymore. He's been gone for a while. So but yeah, but anyway, like, like, it feels like if somebody gave me a breathe right strip, but it was made out of like a, like an industrial clamp. Maybe I could breathe better. I used to. I used to do a you know the nose spray that open? Like, like, opens up the like your nose? Yes. There were times I'd have to do that before I made the podcast. So I could kind of breathe while I was doing. I've taught myself how to do it differently now, though, but wow. Yeah. There's a little inside

Kim 1:18:40
baseball breathing through your mouth. I mean, you can breathe through your mouth, but then it gets dry. And

Scott Benner 1:18:45
yeah, like I can breathe through my nose. Fine, but not while I'm speaking. So I would probably be a terrible singer. I probably pass out in two seconds. It'd be like, Oh, he sounds so amazing. But it keeps falling over. All right. Well, I think we all know that I should keep talking and not saying it's bad. Yeah. But

Kim 1:19:05
still, but even with your speaking voice, you know? Think about it. Because you don't really want to feel it in your throat. You know, you want to feel it. In the front of the face where it feels like resin. Like if you were gonna, huh, like hum. Do you feel Can you feel buzzy in the front of the face?

Scott Benner 1:19:22
I got it. Yeah, I do feel it. Yeah. So then try to keep

Kim 1:19:25
your speaking was there. Okay. You know, it's taking pressure off the vocal folds. And it's odd.

Scott Benner 1:19:33
That's where I speak from, honestly, because when I do the, the bumpers and the opens and I like I don't know if people realize it or not, but I'm sort of making fun of radio announcers when I do the opens of my podcast. I'm like this episode of The Juicebox Podcast. Yeah, like I'm just, I'm just abusing myself. I don't know what you guys think to be perfectly honest. But, but I just, I wanted there to be some difference between In my voice is overthinking, but I wanted there to be some difference in my voice when I'm selling to you than versus when I'm just speaking to you. But my voice is so kind of deep and right here. I can't actually change it that much. So I had to go for like over the top to make that happen. Yeah,

Kim 1:20:18
yeah. That makes sense. Yeah. Yeah. Just. Yeah. If you ever feel if your voice is getting tired, or sore mouth, do you ever experienced that?

Scott Benner 1:20:29
No, the only time I have troubles I, I once had to give a talk over a weekend during Shabbos. And so there was no, no microphones in the room. And I had to project my own voice in a room for like, 400 people. Oh, yeah, I was. I was fried after that. Yes,

Kim 1:20:46
that you can do that. By thinking of it all being Hmm. You know, find the buzzy place in the front of your face and let your voice sit there. And instead of feeling like that, because that's how I will project know. You know, instead of it feel like you have to kind of be Yeah, all or Yeah,

Scott Benner 1:21:04
it feels like it almost feels like it's coming from the back of your neck. I don't know. Like another way to say that. But yes, yeah, way more talk about how people's voices sound and most people care about I'm gonna say, so I'm gonna let you go now. Most people are like, I have a thought. I don't even bother to think if it's right. And then it comes out of my mouth. That's talking, you people are overcomplicating this, right. So

Kim 1:21:30
when you do it for your living, you know, you have to take care of yourself.

Scott Benner 1:21:35
Yeah, no, it's it's a crazy thing. I usually record every day of the week. So even like getting sick. Like there's sometimes I feel myself getting sick and I'm like, oh, no, no, no, no, that can't happen. Today, Oh, no. You know when that can happen later when I'm dead. Not now. I'm gonna be time for this. Like so. Yeah, I got sick during the remastering of the Pro Tip series. And I have to be honest, the opens are great because that because my voice was like

Kim 1:22:01
extra. Yeah, yeah. Yeah. I just

Scott Benner 1:22:06
had to record in like shorter bursts. And then then breathe and then record and then edit it together. So anyway, thank you can I really appreciate you having this conversation with me? Thank you very much. A lot of fun. Oh, good. I'm glad. Hold on for me one second. Sure.

A huge thank you to ever since CGM for sponsoring this episode of the podcast. Are you tired of having to change your sensor every seven to 14 days. With the ever since CGM, you just replace it once every six months via a simple in office visit. Learn more and get started today at ever since cgm.com/juicebox. A huge thank you to one of today's sponsors, G voc glucagon. Find out more about Chivo Capo pen at G Vogue glucagon.com forward slash juice box. They spell that GVOKEGL You see ag o n.com. Forward slash juice box. If you're living with type one diabetes, the afterdark collection from the Juicebox Podcast is the only place to hear the stories that no one else talks about. From drugs to depression, self harm, trauma, addiction, and so much more. Go to juicebox podcast.com up in the menu and click on after dark. There you'll see a full list of all of the after dark episodes. If you're not already subscribed or following in your favorite audio app, please take the time now to do that. It really helps the show and get those automatic downloads set up so you never miss an episode. Thank you so much for listening. I'll be back very soon with another episode of The Juicebox Podcast. The episode you just heard was professionally edited by wrong way recording. Wrong way recording.com

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