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Arden's Day is a type I diabetes care giver blog written by author Scott Benner. Scott has been a stay-at-home dad since 2000, he is the author of the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal'. Arden's Day is an honest and transparent look at life with diabetes - since 2007.
type I diabetes, parent of type I child, diabetes Blog, OmniPod, DexCom, insulin pump, CGM, continuous glucose monitor, Arden, Arden's Day, Scott Benner, JDRF, diabetes, juvenile diabetes, daddy blog, blog, stay at home parent, DOC, twitter, Facebook, @ardensday, 504 plan, Life Is Short, Laundry Is Eternal, Dexcom SHARE, 生命是短暂的，洗衣是永恒的, Shēngmìng shì duǎnzàn de, xǐyī shì yǒnghéng de
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Well the years are flying by and Arden's 504 plan is constantly morphing. Please feel free to read, download, use these documents as your own. You may need to make changes so the document reflect your child's specific needs. Arden's 504 was originally written by me in 2006 though I relied heavily on the JDRF and ADA templates of the day. Arden's 504 has been slightly modified each year since kindergarten, just like Arden it continually changes and grows. I hope that it helps you in creating your own. I'm digging up 504's from other grades and will be updating this page with new documents as I am able.
The plans have been redacted in the spots where you will need to fill in your information. Look for text that looks like this <TEXT>.
While you are thinking about diabetes and education I would like to urge you to listen to a few episodes of the Juicebox Podcast that focus on a student's time at school.
Texting Diabetes: All about how we use something as simple as text messaging to manage Arden's type 1 diabetes while she is at school or anytime that she is out of the house. This simple process has led to lower a A1c, better grades, an increase in self-confidence and much more.
Talking 504 Plans with D-Mom Jill: Getting a 504 plan is easier than you think and it's super important!
Talking To School Administrators That Don't Get Type 1 Diabetes
Going to College with T1D: College freshman Elias was diagnosed with type 1 diabetes before his senior year in high school.
Teach Our Children Well: Is what you say about type 1 diabetes to your teachers and administrators always what they hear and do your expectations and needs match what they understand and are able to deliver?
Advocating at School: This is taking advocating for children with type 1 diabetes to a new level.
College with Type 1 on Day One: Amanda has only been at college for a few days and she's on the podcast to tell us about her initial experience.
Teacher of the Year: Denny is a good man and a great teacher. This episode is all about the difference that one dedicated teacher can make in a child's life with type 1 diabetes.
I'm proud to introduce Dancing for Diabetes as the newest sponsor of the Juicebox Podcast and I am absolutely thrilled to have the opportunity to tell you about this amazing diabetes charity.
Dancing for Diabetes has been spreading awareness through the art of dance to better educate the community, raise funds to find a cure, and inspire those with diabetes to live healthy and active lives for the past 18 years and will continue to do so until a cure is found!
Diagnosed with type 1 diabetes at 10 years old in 1999, Elizabeth Forrest was determined to not let diabetes negatively impact her life. As a direct result, Elizabeth created nonprofit organization, “Dancing for Diabetes.”
As a student in a middle school dance program in Sanford, Florida, Elizabeth was inspired to host a show to raise funds but more importantly, spread awareness. What started as a small neighborhood event quickly transformed into a large annual production and then further into a year round 501c3 nonprofit organization. In the fall of 2018, Dancing for Diabetes will produce its 18th annual show.
Year round, Dancing for Diabetes provides free dance class for kids and teens with type 1 diabetes, hosts several outreach events and programs for kids, teens and adults, and produces Touched by Type 1 – an educational and empowering conference in Orlando, Florida. To learn more, please visit: www.dancing4diabetes.com.
Hello everyone! This is a guest post (sorta) from former Olympic Cross Country skier Kris Freeman. Actually, this wasn't written for Arden's Day - it's from Kris's Facebook page and I am posting it here with his permission. We talk on the Juicebox Podcast all of the time about how I use Arden's Dexcom data to make small adjustments to her insulin with settings that are available on her Omnipod. When I saw Kris's post I thought, "this is the next level of those ideas" and I wanted to share his process with you. Please visit Kris on FB or his blog, he's also been featured on Arden's Day a number of times and been a guest on the podcast twice. -- #BoldWithInsulin
Yesterday I competed in and won the Sea to Summit triathlon. The race traditionally starts with a 1.5 mile swim in the Salmon Falls river, continues with a 92 mile bike ride to the WildCat MT ski area parking lot, and finishes with a run up the Tuckerman Ravine trail to the Summit of MT Washington.
Unfortunately due to the heavy rains NH has had over the previous week, a lot of fecal matter has ended up in our waterways and the bacteria level in the river was above the safety limit. The swim was canceled and the event became a biathlon.
The swim would have taken approximately 40 minutes so I had to change my insulin dosing strategy to accommodate the slightly shorter race. My glycogen stores were topped off so I was running a 24/7 basal rate of 1.0 units per hour on my Omnipod. To cover race nerves, readily available glycogen stores and carb/calorie intake I settled on the following protocol.
Hour 1 = 1.0 units per hour
Hour 2 = .7 units per hour
Hour 3 = .3 units per hour
Hour 4 = .3 units per hour
Hour 5 = .3 units per hour
Hour 5-5.5 = .3 units per hour
Hour 5.5- to finish = off
It is very difficult to estimate how much insulin I will need in an event this long. I have to guess how insulin sensitive my body will become from prolonged exertion as well as how many calories I will need to fuel myself. The program that I used yesterday ended up being a little too aggressive and I had to force feed myself at the end of the race. On the bike I drank 60 ounces of Gatorade, 20 ounces of custom Cola/Coffee mix, and 24 ounces of RedBull. I had planned to take in solid food but I was sweating buckets and my stomach was not calling for it.
The bike took me four hours and ten minutes and my glucose was 116 at the transition to running. I drank another 16 ounces of Gatorade during the first 40 minutes of the hike. At this point my glucose was 117. I decided to pull off the Omnipod that was delivering .25 units per hour as I did not want to have to overfeed to get to the top of the mountain. I was wearing two pods and the other one was delivering the minimum dosage of .05 units per hour.
I ended up having to overfeed anyway. I drank another 16 ounces of Gatorade over the next 20 minutes but my sugar dropped to 80. I had to pull out my emergency flask filled with 5 Untapped Maple syrup gels. The flask contained 105 grams of sugar and I finished it five minutes before winning the race in five hours and forty-four minutes.
Every race is a learning experience. If I could do this race over I would reduce the first hour dosage to .7 units, the second hour to .5 and then I would have run .3 up until 4 hours at which point I would have suspended delivery. The attached picture is a graph of my glucose on a Dexcom during the race. It looks "perfect" but I really would have preferred to not take on over 100 carbs in the last 30 minutes of the race.
This could have a huge and positive impact on insulin pricing... Watch this space
Now that Amazon has snapped up internet pharmacy PillPack for around $1 billion in cash, how long will it take before consumers can rely on the e-commerce giant for their medicines, as they do for groceries, clothing, books and pretty much everything else?
And what will Amazon's strategy be once the deal closes this year?
CNBC spoke to a half-dozen drug supply chain experts to find out.
When Amazon bought Whole Foods, shoppers were able to access discounts the day the deal closed. It all started with a few items, but expanded to a much broader array of groceries.
Some experts believe Amazon will take a similar approach with prescription medicines to show value right off the bat. The companies said the deal would close in the second half of the year, which means it could happen any time.
"Amazon could rename PillPack as 'Amazon Pharmacy,' and start right away," said Talha Sattar, CEO of internet pharmacy start-up Nimble. "The bigger question is about the form that the offering will take."
Amazon could start by targeting those who pay cash for their meds, either for generic drugs or branded drugs with coupons from companies like GoodRx.
“Day 1, Amazon will likely focus on cash purchases of both generic and brand medicines — all they need to do so is [get] a board of pharmacy license in all 50 states, and dispensing capacity," said Jonathan Schwartz, CEO of another internet pharmacy start-up, CareZone.
That's a chunk of a $450 billion market, or about 6 percent of the U.S. population, which includes the noninsured and those with high-deductible plans. It also doesn't require working with the largest pharmacy benefits managers, like Express Scripts, which are gatekeepers of sorts for those who opt to use their health insurance.
Amazon's biggest rival, Walmart, already offers a service like this. It's essentially a list of generic medicines with a $4 price for 30-day prescriptions — no insurance required. Some experts believe Amazon could do its own version of this quickly, and with even lower prices to attract users away from its competitor.
"A company like Amazon could capture $10 [billion] or $20 billion in revenue by doing that well," said Sattar.
Pharmacy experts disagree on whether Amazon will have success forging relationships with pharmacy benefits managers.
An Express Scripts spokesperson said Friday that its agreement with PillPack is expiring in July and that the two companies haven't yet reached an agreement on rates. The company did not say whether a change in ownership would affect the discussions.
Other pharmacy benefits managers might shy away from maintaining an agreement with PillPack if they see it as a threat.
For that reason, it might take some time before the company is able to offer cheaper, in-network prices on prescription medicines.
Stephen Buck, who previously worked at drug distributor McKesson, suspects that it would be more than a year before that happens because he believes Amazon will be slow and deliberate with its rollout. Amazon might pick a small market, like a single state, to pilot the offering before expanding to others. PillPack operates in 49 states.
Amazon is also a partner with J.P. Morgan and Berkshire Hathaway in a program to fix heath care for their employees.
The PillPack offering might come in handy as the partners look to distribute affordable medicines to their 1.2 million combined workforce. Atul Gawande, the group's recently named CEO, recently spoke about his plans to target waste in the health-care system, including high prices associated with things like administrative costs and prescription medicines.
But it's possible that Amazon will work more quickly on its own. Gawande has made clear that disrupting the health industry could take decades — and Amazon typically works far more quickly than that. "Amazon is not known for doing things slowly," Sattar said.