#626 Who Cares Why?

February 8, 2022Scott Benner

Maggie has a child with type 1 and another child with 3 autoantibodies.

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DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello friends, and welcome to episode 626 of the Juicebox Podcast.

Maggie is the mother of a child with type one diabetes and another child who has antibodies for type one. Today we're going to talk to her about her family, her story, her hopes and dreams, her struggles. And her triumphs. I'm just kidding. We're just going to chat. I don't really remember we talked about but but that sounded great. In 1914, Maggie was born in the weird world of type one. Parenting she, she had a deep enough voice even enough to make sense, right? Maggie was born in a log cabin in the middle of winter with no electricity and no hope. But she climbed out only to later have children. Who would one day have type one diabetes, but that did not thord Maggie, Maggie did not give up. She didn't blink an eye. See? I mean, anything in a deep voice really sounds important. Please remember while you're listening today that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a fish physician. Doctor before you know what I'm talking about become a Bolus. Just talk to your doctor before you make changes to your health care plan. This episode of The Juicebox Podcast is sponsored by Who do I want to be sponsored by today? It's my choice. Really? I can do whatever I want. Huh? Huh, no, no. Yeah. This episode of The Juicebox Podcast is sponsored by the Dexcom G six continuous glucose monitoring system. Go to dexcom.com Ford slash juice box to say hello to Dexcom. The podcast is also sponsored by Omni pod makers of the Omni pod dash, and the forthcoming Omni pod five. Learn more later today in the episode about Omni pod, their promise and so much more. Head over to Omni pod.com forward slash juice box to get started today with the Omni pod dash.

Maggie 2:27
I'm Maggie and I live in Gilbert, Arizona. And I'm a nurse and I have a newly diagnosed son with type one who just turned eight. And we're waiting on my oldest son who's 10 to be diagnosed.

Scott Benner 2:44
Oh, hold on. Why did Why do you think the second is going to be diagnosed?

Maggie 2:49
Well, we did the whole trial net thing. He came back with two positive antibodies. And then we did further testing. He came back with three positive then.

Scott Benner 2:59
So it's progressing? It seems.

Maggie 3:02
Yeah, yeah, it's slowly progressing.

Scott Benner 3:05
What are they? So what will they do for you? What will trial not be able to help you with?

Maggie 3:11
So trial net really couldn't do anything, honestly, like, they called me on a, I don't know, back in March or April, told me my son had two positive antibodies. But due to COVID. There was nothing they could do to further do any testing, at least here in Phoenix. And they said they'd fly us out to California to do further testing. But like, we're gonna fly all the way to California just for an A one C and a glucose tolerance test. So we did not want to do that because I have two other kids, you know, at home. And I actually ended up calling my pediatrician here. And she arranged getting us into the hospital and doing further because she apparently was affiliated with trial net before COVID. Oh, yeah, she got us in and did further testing for us.

Scott Benner 4:07
Now, are there trials that your son can get into?

Maggie 4:12
No, because he failed the glucose tolerance test if he would have passed it, and they would have considered it stage one than he could have gotten on one of their drugs.

Scott Benner 4:24
Okay, so people who, alright, so if you're in stage one that's early enough for their drug trials?

Maggie 4:32
Yeah. Where you're, you have the antibodies, but you can pass the glucose tolerance test. So you're not quite, you know, starting to your pancreas is still working pretty well.

Scott Benner 4:43
So okay, so that, I guess, obviously, there's nothing you could have done because I'm assuming you only knew because of your first son, your other son's diagnosis. Absolutely. Yeah. Okay. But I guess the idea is for other people, the earlier you find out about things, the more you may be eligible Due to try to slow progression those things. Yeah, exactly. I'm sorry. Wasn't in time for your son.

Maggie 5:07
I know why I'm hoping he can maybe get on that. Oh, other one that I can never pronounce the name that was supposed to be FDA approved.

Scott Benner 5:14
Oh, that there there seemed like they're having it's a slow down getting it through that to me. Yeah.

Maggie 5:22
Yeah, yeah, that one? Yeah,

Scott Benner 5:23
I don't every time I say it I'm not sure I'm saying it correctly.

Maggie 5:26
Yeah. I have no idea either.

Scott Benner 5:29
Well, how long ago was your, your son diagnosed?

Maggie 5:34
He was diagnosed two days before Halloween last year. So October of 2020.

Scott Benner 5:40
Oh, so almost a year now.

Maggie 5:43
Yeah, coming up on a year now.

Scott Benner 5:45
Nothing in your background suggested something like this might happen.

Maggie 5:49
No, nothing doesn't run on either side of our families, nor does autoimmune. My father has type two but

Scott Benner 5:58
yeah, no, like celiac, no thyroid, stuff like that.

Maggie 6:04
No, nothing at all. The only thing weird is my husband like he gets really weird viruses. So I don't know if that triggered anything.

Scott Benner 6:12
Your husband gets really weird viruses.

Maggie 6:15
Yeah. Like when he was a kid. He had like scarlet fever. And, you know, all the weird stuff that people don't get anymore. He had encephalitis and meningitis.

Scott Benner 6:26
So it's like he said, a western film like, yeah,

Maggie 6:30
exactly. So he gets some really weird stuff. That's the only thing we can think of. But it's interesting. No, no other autoimmune or anything else.

Scott Benner 6:38
I'm adding two things to my question list now. So you don't have to answer any bipolar in the family. Or pay bipolar? Yeah. We're pancreatic cancer.

Maggie 6:48
No, pancreatic cancer as far as bipolar. I mean, I definitely probably have like, like relatives, not like not like my mom or dad or any close relatives, but I have like cousins and stuff. Possibly. Mm hmm.

Scott Benner 7:03
Okay, that's all I'm I'm building my anecdotal list. I'm actually this week I'm gonna go to I have a meeting with the he won the exchange. And yeah, I'm gonna tell them like, I've now heard enough. People say some of these things. Like I hope they add these to their questions. Because that's cool. Yeah. Because I mean, how many times is someone going to come on here and be like, Oh, I'm bipolar. And I have type one or my, my mom has pancreatic cancer, like pancreatic cancer is not that common. No, not at all. And so many times I hear like, oh, yeah, my grandmother had pancreas. I'm like, man, what is going on? Like, there's some sort of weird, some sort of relation? Yeah, that I can't see. Because I'm stupid. But I can hear it enough to think like, somebody should pay attention to this. You know what I mean?

Maggie 7:49
Yeah, exactly. And you're hearing it more than everybody else. I'm

Scott Benner 7:52
sure I get to talk to a lot of varied people. So yeah, I'm gonna bring it up. They'll probably be like, please stop thinking so much. And just ask people to sign up to the exchange. will say, Oh, that's hilarious. Maybe not. We'll find out. Wow, how long have you been married?

Maggie 8:11
Technically, we've only been married for two years, but we've been together like 11 years.

Scott Benner 8:16
All these kids. And I feel I have counted three there with your husband. Yep. Okay. Interesting. Interesting. I like the so you guys just were like, hey, we'll just start a family. And then were you ever thinking of getting married? Are you considering not even doing it? This has nothing to do with diabetes.

Maggie 8:34
We're considering not doing it because I, I got married really young, back in my 20s and got divorced and pretty much swore I would never get married again. And then I met him and we had two kids. And finally, when I got pregnant with my third one, he's like, man, you got to take my last name now. We keep I finally agree. I was like, Well, yeah, you're right. It gets annoying at school to sign different names for the kids and me.

Scott Benner 9:00
So for clarity, Maggie, you got married? For the ease of filling out forms?

Maggie 9:06
Basically, yeah. And insurance. You know,

Scott Benner 9:08
we're not gonna let your husband hear this. Right because he's heartbroken.

Maggie 9:13
Knows he knows we're all good. That and my married last name would be or my married name now is Maggie McGee. It's the most Irish hardest name to say.

Scott Benner 9:28
It's spelled like somebody spelled it wrong. So

Maggie 9:31
exactly. I know. And so it took a long time for me to want to take that name,

Scott Benner 9:37
though. It really does. It looks like we already said where you live, but we're basically telling people how to get to your house now, which I feel badly about, but oh, yeah, think about that. But take out the town when I added it. Because right the last name is like MC he.

Maggie 9:55
Yeah, I know. When we tell people to spell it. We say he Hey,

Scott Benner 10:01
I probably wouldn't have married him either. I see what you're getting. Are you Irish? Or me? Your first name is Maggie. You're Irish, right?

Maggie 10:10
Yeah. My family is like Irish English and then his. He's like Irish and Spanish. So

Scott Benner 10:16
that's the other thing, by the way. Not that this is any great like secret but Scandinavians, Celtic, like, Do you have any idea how many people say like my ancestors are from Ireland when they come on? or England or like it's all very mean, not that anybody can't get type one. But I hear that. Yeah. Unless I'm just reaching in Irish audience which I think the podcast is reaching enough people. I'm not just in one town in Boston, get an amen. So

Maggie 10:46
yeah, no, I've definitely heard it on your podcast. Yeah,

Scott Benner 10:49
it really is. fascinates me. Yeah, there's connections there. Obviously, it I don't know, maybe 300 years ago, some people weren't out in the sun and offer something. I have no idea. But apparently, anyway. So what was it like Amy, what was the start of because he was eight, or he was seven.

Maggie 11:07
Yeah, he was seven. When it happen to me. I mean, I'm a nurse. And I saw all the signs and symptoms. And I even told myself several times, like, oh, I only know, children that wet their bed have diabetes, but I was just in denial. Because, you know, school went back last September after COVID. And literally the night before they went back, my son just was throwing just huge tantrums. And that was the first night he wet the bed. And he's never done that even as a toddler. And I just kind of chalked it up to behavior wise, because he just didn't like the change of having to go back to school being off so long. And then that was in September never happened again. And we all went to Oregon like mid October. And the entire plane ride in the airport. And everything. I mean, he was just downing water like he couldn't get enough. But we thought he was bored because we had layovers, and he kept wanting to go to the water fountain, you know, to get water. So with, you know, looking back now the entire vacation, he, you know, peed every five minutes and was down in water. And he was starving. And he's not a kid that eats a lot. So all the signs were there. And we came home from our trip. And I actually, he threw some more tantrums, and then he wet the bed again. And this was like a month and a half later. So it was only like once or twice in between there. And I made him an appointment with his pediatrician because I just thought to myself, it's either diabetes or behavioral. And then my husband and I, we actually did keto, like, I don't know, years ago. And I happen to find the old keto strips that we had that we would pee on to see if we are in ketosis. And they were like six years old, but me and my husband peed on one. And then I made him pee online and it instantly turned like purple. So took him over to urgent care just to get a finger stick and it wouldn't read and then we went to the ER from there.

Scott Benner 13:14
He didn't have to go back to schools as quickly as everybody else. That's TR, G's. i It's interesting. The path you found to figuring it out too. Yeah, yeah. I mean, it's your background, right? You were like, Oh, I can get these strips. And? And that, yeah,

Maggie 13:32
yeah. So it was my background, but a lot of it. You know, my husband kept saying things and I just was like, whatever in denial. He's like, you know, he's really losing weight, and he looks sick. And I just kept thinking he was fine.

Scott Benner 13:45
You were like, Listen, buddy, you get a real last name. And I'll start listening

Maggie 13:48
to you. Exactly. Right.

Scott Benner 13:51
I can't take that seriously with that last name. Well, yeah, so did you not want to see it? Do you look back and diagnose yourself in that moment, or?

Maggie 14:02
Yeah, I don't. I just, I just was convinced that you know, it was more of a hereditary thing. And that was just not something that ran in our family. And he's always been our you, I guess you would say difficult one. So his tantrums and weirdness, like didn't really throw me off. And honestly, all my kids drink a ton because we're just a big we live in Arizona. We drink water, like it's going out of style. So it just wasn't hitting me. Until, you know, I actually took a look to like, Oh, you're right, you know, looking back at pictures and like, he's definitely lost weight. Something's going on.

Scott Benner 14:42
That sucks. Now. I'm sorry. Yeah. I had another question. It just fell out of my head. I'll find it. Hold on. Wait, you know what's wrong? I have this other thought that's in the way. You You mentioned that he went to the like, he peed the bed. And I was like, I want Yeah, and then it made me wonder where the term pissed off comes from. That's random. And I do not need to be diagnosed with ADHD by any of your emails. Okay, but okay, I just, I was like, Oh, I wonder where that comes from? And I knew I don't know. And I haven't. It's just stuck in my head now wondering where it comes from. I and then, you know, you kind of went the the stripper out and there was like, you know, peeing on the servers more peeing. Yeah, just kept feeding

Maggie 15:27
like this all is we're going in circles here.

Scott Benner 15:30
Like, we can't just call this episode like, pissy hee hee or something like that. But I'm very close to trying to figure it out.

Maggie 15:38
But no, I can't wait to see what you mean.

Scott Benner 15:41
I'm gonna have to go back over it before I know for certain, but it just it really did get stuck in my head and then it made me lose my real question. I'm embarrassed now. But okay, so he's diagnosed, you leave the hospital with what kind of gear?

Maggie 15:58
Oh, so that was kind of the crappy part. So I I used to be an ER nurse and you know, so I took him actually to the ER, I used to work at granted. The ER used to work out there was a peds side and adult side and I worked on the adult side, but I still knew some of the pede peds nurses, and we got there and they took us right back because, you know, his blood sugar wasn't registering on their glucometer either. But he wasn't in DK thankfully. But I do you feel like I got a little shafted because I was a nurse. They were like, well, you know, we're just gonna give him a units Atlantis. He's not in DKA. He was like borderline his blood sugar was like 688 or something. And as a once he was like, 11. And they're like, we're just gonna give them eight units a Lantis and send you home at this point. It's like 1am, two o'clock in the morning and call the endo in the morning and get yourself in there. And I was just like, dumbfounded and floored because I was like, you know, being a nurse. I'm like, I can't take him home and go to sleep with him. But no, glucometer No, nothing. I'm just gonna lay here and freak out the entire time. But that's what they did. They sent me home with eight units. Elena's

Scott Benner 17:19
the old you know what you're doing? Get out? Yep, exactly. So did you know what you were doing?

Maggie 17:25
No, not a clue. I mean, I admit, I've managed DK a lot in the ER, that's no big deal. But definitely an adult's, and most of them were type twos. But I've never, I didn't realize what a difference type one and type two really were. And I've never had to manage it, you know, outside of a emergency situation.

Scott Benner 17:47
In the last year of managing with type one, have you found your nursing to be helpful or a hindrance?

Maggie 17:58
Both it definitely. It's, I mean, it's definitely good because I have I have knowledge, and I know, you know, I can jump on things before he, you know, when he gets sick, I know what to look for sooner. But at the same time, I just, I don't know, I have the mom nurse brain too. So I ignore a lot of things. My husband would probably tell you that I think I know it all because I'm a nurse when it comes to his diabetes, so that gets in the way sometimes to

Scott Benner 18:33
do you know, are you usually right? Or do you find yourself just like, kind of mindlessly? And without any real reason? trusting yourself when you don't

Maggie 18:44
there? There are times when I know like I know what needs to be done or what I'm seeing. I can't like think of examples right now. But then there's other times where I'm just totally friggin winging it. And I have no idea what I'm doing. How and I mean, that would be pretty obvious if you looked at his a onesies and numbers.

Scott Benner 19:05
How I was gonna ask you, so first of all, I was about to, like what outcomes look like, but then it occurred to me that I want to hear Michael Jackson sing your last name. Then he realized he was dead. And I was like, well, we can't make that happen. Do you know why I'm saying? No, I have to figure out there's one song where he goes, gets really high and he goes he and I just like to get him to sign I need a Michael Jackson impersonator on this show immediately.

Maggie 19:37
Yeah, what song is that? It's gonna drive me nuts. Like one of his most famous one

Scott Benner 19:50
the way you make me feel i Which one is that? Is that is that? I think so. That's the one I'm thinking of.

Maggie 19:56
Okay, we're just gonna take you're probably right. I would never was a huge Michael J. Some fan but I definitely know all songs

Scott Benner 20:02
that I am either it just, it is called the way you make me feel. And there's a hee hee in it. And I'm standing by everything that I've just said.

Maggie 20:11
No, I believe you I know what you're talking about.

Scott Benner 20:14
You really shouldn't believe me. I mean, that's a mistake, I think Arden episode that everybody's probably should figure out. Okay, boom, boom, boom, the candidate today, okay, Nurse brain, trusting yourself. And maybe you shouldn't. So what are your outcomes like in the first year?

Maggie 20:33
Um, honestly, I like to blame everything on the Omnipod. But we definitely aren't where I want us to be. We just had our last endo appointment two weeks ago, and he was still at a 7.2 which I knew that was going to happen. We just come out of summer. And so you know, he spent summer break non stop snacking and eating. If I could get the damn kid to Pre-Bolus we would be fine. Yeah, but that's a real issue for us. And we're not, we can't loop there wouldn't

Scott Benner 21:07
help. You'd have to Pre-Bolus with loop.

Maggie 21:10
Yeah, exactly. We have a lot. You know, I feel like we have a lot of pod issues. But then sometimes I'm like, is it pod issues? Or is it site issues? Or were you just insulin resistant at times?

Scott Benner 21:24
May I say, if you're not Pre-Bolus In your meals, and I'm not just talking to you now, Maggie, I'll be talking to anybody who's listening. If you're not Pre-Bolus In your meals, I don't really care how you're getting your insulin, it once the food gets ahead of the insulin, you're screwed. Like, absolutely. That's it like so you can't you can't say it's a site, because the site would have worked fine if you would have given the insulin the upper hand in the situation. But once you let the food get ahead of the insulin, now you're chasing the blood sugar. And you think, Well, I'm putting in enough often and what seems like enough in those situations is maybe never enough. And now time is also part of what you need. And, you know, you hear people like Oh, run around or drink water. Like you're now you're like, you're deep into the into your tool belt, like pulling on ideas like well, maybe this will help maybe this will help instead of just Pre-Bolus thing, which would, I'm assuming likely fix the whole thing. I bet if he Pre-Bolus This is a one season the sexes?

Maggie 22:22
Oh, yeah, I 100% agree. And I know that and I'm and I've gotten to the point now where I'm trying to bribe them. And now that he's back in school, I'm really hoping because now I can text them, you know, they're on a schedule, so I can get them to Pre-Bolus. But we've been, you know, sometimes we've been we have a lot of issues at night, which is weird, you know, when he has went hours without eating, and his and dead sleep. And you know, I've done the increases. Bailet just like last night, for instance, I think I gave him four units within two hours before I finally just pulled this pot off. And this was at, like, you know, 1am So he had eaten since 8pm. The night before?

Scott Benner 23:06
That seems like that could be easy growing as you gained weight or getting taller or anything like that.

Maggie 23:12
You know, he's he's a slow grower, but yeah, I mean, he has gained a little weight.

Scott Benner 23:18
So growth, you know, happens overnight.

Maggie 23:21
Really, okay. Cuz I'm like, why is this all this it's just been like the last three nights and I listened to you guys, after three days, I'm gonna increase his Basal tonight. After we just got done, we actually decreases Basal last week, because he was having lows all night.

Scott Benner 23:37
Well, so that's the weird thing with the growth hormone stuff. Okay, kids are growing, you're making me remember this, I'm gonna have a flashback that's unpleasant, but you it feels like, as soon as that the key to it, I hate to say this, the key to it is not to wait. So the problem is, is that by the time you find a pattern, usually whatever is making the pattern happen, stops, and then or, you know, takes a break or whatever, however you want to put it. So if you are fighting a hormone thing, and then suddenly start getting low again, like don't wait three days, like I go right away from it. And then if, and if the resistance comes back, or, and I don't even think of it as resistance. It's if the hormone impact comes back, jump right back on it again. I mean, and you're on a pump so you can just change you don't have to you don't have to It's not like you have to wait till the next morning to inject your you're slow acting or anything like that. So I say just stay very flexible and and meet needs as they happen. I don't think so. You

Maggie 24:42
think you think growth hormone would cause like that much? I mean, because normally, you know, a half a unit to a unit will drop him but he never never even dropped a point.

Scott Benner 24:54
Yeah, I would say yes. I mean, that's, you know, keeping in mind that I'm a moron and not a doctor. Yeah. I would say, I would say that based on my experience, the amount of insulin that I have found myself using in the middle of the night for Arden at times while she was growing was surprisingly, a lot more than I thought it was going to be. And it's not a fun time, the growth hormone.

Maggie 25:18
Yeah, I was just like convinced that his legs just have scar tissue or tunneling or something.

Scott Benner 25:23
I would still I would say to most people, while those things can happen scar tissue in a year seems unlikely. Today, I have an episode on timeline I just haven't put up yet. Oh, not that common. Okay, you know, like, I would say, don't look too far for problems. Like, okay, the most common sense, reasonable solution is likely the right one, or at least the right place to start. I, I think that it's not uncommon for what you're describing, like, you know, there's something wrong with my site, there's the insight, the one that always gets me is the insulins bad? Like when 2021 Everyone has a refrigerator? And people like did your insulin go bad? I'm like, that's your first thought. Like, probably not, you know what I mean? Like, like, just go with what makes sense. And what makes sense is, there's an impact happening in the body that needs more or less insulin, and just meet that need. Now, once you've done that, you know, look at other things, and it will take, I don't know how much time it's gonna take you. But you can see when a pump isn't gonna, when it's done, like when a site's done, you know, it doesn't matter which pump you're using, like, there are moments where you just like this site is not, it's just not good anymore. It's not gonna work anymore. And Arden had it the other day, like, she was on like, a 48 hour like carb bender. They're, like, like, and finally I was just like, hey, we got changed your site. You've just we've just put way too much insulin through the site in the last 48 hours, and it's just not reacting anymore. So let's just change it and go and, and we did that. And but when it went bad, her blood sugar. Well, when it went bad, it went bad after a bagel. So her blood sugar, she comes home from something and she's like, look how well I did with my bagel. And I was like, I see 140 diagnol up and she goes, No, I did so good with it. She's like, I eat that bagel two hours ago. And she's all like, I had this. And I was like, Alright, and so we looked and I was like, you can try Bolus. And again, maybe you missed. And she's like, I really don't think I didn't use enough insulin. So we waited a little longer, and her blood sugar started running. And we made one more Bolus. And that Bolus didn't stop the run. And so we bailed on the pump. But that was based on. Like I said, we knew we had run a lot of insulin through that in the 48 hours prior there was Chinese food. And you know, when that happens, like suddenly you look up like three days later, and you're like, I've not eaten one good thing in the last three days. Oh, yeah. Yeah. You're like, Yes, I do. That was the role she?

Maggie 27:55
Yeah. See, I'm still like, Oh, I'm always going back and forth. Like, is it the pump? Or, you know, yeah, is it that he you know, he obviously didn't Pre-Bolus For sure. But I just get, I don't know what it is. I always go to the pump, and port for Omnipod. They probably just think I Suck it, inserting them or something. So I'm always calling like it just quit working.

Scott Benner 28:17
Yeah, it's tough. Because in the beginning, I get that feeling. Like, especially when you like, probably, if you came out of any kind of a honeymoon. Did you have any honeymoon in the beginning?

Maggie 28:29
Yeah, for sure. Yeah, I'm not even convinced that we're not still in and out of that.

Scott Benner 28:34
So that could be it too. And so, listen, if I could give you one piece of advice over 30 minutes, I would say stop thinking it's the pump site and start thinking it's the amount of insulin. Okay, that would be my best end. To find a way to bribe the kid into Pre-Bolus.

Maggie 28:51
Yeah, that's what I'm working on, man. I'm totally cuz I know if we could do that. Our world would be it would change for sure.

Scott Benner 29:00
It changes. So I was gonna say earlier. Can I take a sip of water? Yeah. Like asking permission if I can have water?

Maggie 29:10
Absolutely.

Scott Benner 29:13
I just got I don't know why, like you came off very paternal. All of a sudden, I was like, now I need. No anyway. One thing I was thinking earlier, that I want to say to you while you were talking was try not to think about it as segments of time. This is like kind of, like, a little heavy, maybe but I don't consider diabetes. anymore to be like tonight. Last night tomorrow this afternoon, overnight during the day, I think of it is one continuous non stop log flume ride. Like I'm just on that path. And we're never getting off this thing. We're just going to go around corners and bob up and down and get splashed and this is never going to stop. I don't think about it. Don't think about it like, oh, look what keeps happening every night at this time, like I do, like, don't get me wrong like I do if I see a pattern a certain time, I think of a pattern as being at a certain time. But I think that once your settings, once your settings are really rock solid, and meaning Basal, and you know, meal insulin, and you're definitely Pre-Bolus thing, once those things are happening it's a it's such a in the moment, it's always in the moment decisions like you're always making, like decisions right now for later. And you're just like not getting off this ride. Like it just keeps going and looking back sometimes is is a hinderance. And that's really kind of like Wavy Gravy and hippie dippie thinking, but like, I try to step back so far, that I see the really, really, really big picture about what's happening. And in my opinion, the big picture about what's happening to everybody is timing and amount. And once you cause a problem by missing out on that. Now you're just, you're off the timeline now. Like now, yeah, time's running ahead of you, and you're somewhere else and you you need to sync back up again. Which is why I tell people like crush it, catch it start over again. Like don't don't keep chasing it because only really like, like I can, I can chase and win. But chasing and winnings hard for most people until you've really been around the insulin for a really long time. Yeah. Does that make sense to you? Because a lot of made up words in there. So tell me no,

Maggie 31:40
it makes perfect sense to me honestly.

Scott Benner 31:51
The Omni pod insulin pump has been in service with my daughter since she was four years old, and she will turn 18 this summer. That is 14 years of wearing an omni pod every day. Why do we make that decision? Well, there's no tubes to get in the way. You're not going to get your tubing caught on doorknobs or drawer handles or anything like that, because there just isn't any tubing. The Omni pod is tubeless. Arden doesn't want to do injections. So with the Omni pod, she doesn't have to. So if you're ready to ditch those daily injections are center tube pump packing. You can try the Omni pod today. It's a tubeless wireless continuous insulin management system. All you have to do is go to Omni pod.com forward slash juice box. See if you're eligible. Actually, on the pod has a 30 day free trial of the Omni pod dash that you may be eligible for you'd be able to find that out at my link. And if you don't want to get started today, because you're thinking, you know Scott on the pod just they just said the Omni pod fives coming out. I'm gonna wait. Well, you really don't have to wait. You can get started with the Omni pod dash right now today. And then when the Omni pod five is available, and you are eligible through your insurance, you can just switch from your Omni pod dash to the five that's on the pods promise. You know what they call that? The Omni pod promise. It's you know, it's a pretty basic name. But it's a rock solid promise on the pod.com Ford slash juice box head over there. Now get started. Just start stretching out your little typing fingers while you're listening and then as soon as you're done listening you're typing away Omni pod.com forward slash juicebox look good Scott's right just click click click click all done

was like a mini dance break there? Did you like it but then it didn't live in tainted anything. I don't know. I don't remember the music Dexcom dexcom.com forward slash juice box. Get yourself a Dexcom G six continuous glucose monitor today. See your blood sugar in real time. I will tell you what my daughter's blood sugar is now. I don't know what it is. But I'm going to open my phone. I've opened the Dexcom app and her blood sugar is drumroll please. 78. And it's stable. Actually, I can see at a glance her last three hours or last six hours for last 12 hours. Oh her last 24 hours. Not bad, my friends. Not bad law. I have time here to go over the last 12 hours. MID morning till two o'clock in the afternoon ish. blood sugar's in the 80 to 90 range very stable. Around 1230 Excuse me around 230 A little uppity up up up. Right around 120 We make a choice to say no no, no to up up up a little more insulin. level that out for o'clock starts coming back down again, we're more in the 105 range. She has a big meal we don't quite get the Bolus in time for and she pops up to 131 35. No matter, we add more insulin, we're just looking at our data and making good decisions. That extra insulin was for fat and protein in the meal that she had today, it was a secondary Bolus to the first Bolus. I figured out how to do that by looking at this data. And you can too, and now it's seven o'clock 78 blood sugar. Hey, these are my results. And yours may vary. But if you want a great shot at it dexcom.com forward slash juice box get yourself a continuous glucose monitor. If you're using insulin, they are I mean, I think their job one, two, the first step, getting to CGM getting yourself a good solid pump like the Omni pod. This is the way to go. I ran out of music there. But I was feeling all like, you know, serious. So I kept talking back to Maggie.

Maggie 36:01
And even you're like you always say, let go of the why?

Scott Benner 36:05
Yeah, it's a big, I think it's a big, big help. Like, who cares? Why do it? And yeah, looking for three days worth of patterns before like, I saw someone online the other day. And somebody said, like, how long do I have to wait after I make a Basal change to see if it's gonna work? And somebody was like three days? And I was like, you know, okay, yeah, I guess so. But I, you know, I prefer to turn it up until I get what I want. And if that ends up being too much, then back away from it. But the incremental like, let me turn it a little bit here and a little bit here. And then we'll wait and see what happens, you ignore the fact that there are all these other variables like growth hormone, or quality of the food you're eating, or, you know, hydration and blah, blah, blah, all this stuff, you're ignoring that you're not adjusting everything at the same time. Yeah. And so to me, I'm just like, I don't know, to me, it feels like I'm putting out a fire, like, I just turn the hose way up until the flame comes down to where I want it. And then I adjust the hose. So the flame stays where I want it to be. And that's how I think of the blood sugar as sort of this thing that I'm pushing down on from the top with Basal. And when I get it at a height where I want it, then that's the right amount of force. And I don't know why you have to wait three days to make those decisions. That's all.

Maggie 37:28
Wait to see a pattern.

Scott Benner 37:31
You know, I see a pattern. Great. But you'll be crazy. By the time you find those patterns. Magic.

Maggie 37:37
I know I already am slightly going crazy. Literally like two in the morning. I just kept thinking to myself. Yeah, you know, Scott wouldn't be saying why? Why am I up right now and trying to figure out why he's not coming down. Like just go and do something about it.

Scott Benner 37:53
Yeah, I don't even care why anymore. I'm just like, hit it. Hit that then do this. And Arden was one we came out of low. So yes to the story I told you about switching the pump actually happened yesterday. And then yeah, my brother's here from out of state. And we all went to this bar to get dinner that we used to eat out together before he abandoned us and moved away. And he's an adult, he can leave if he wants to. So we all went back there took my mom but my mom's birthday is tomorrow. Surprise my mom by bringing my brother in from out of state. And now all of a sudden you're in a bar. And Arden is like having like nachos like cheese steak nachos, try to imagine that it's nachos, but with a cheese steak on top of it. And so it's a lot of grease and a lot of meat, which is going to be a lot of protein and a lot of fat, and then the carbs from the chips. And there's cheese that's going to slow down the digestion and then the french fries, you know, like all this stuff happening. And three hours later, we've like, shut her budget are still like really great. And so my niece and nephew aren't from around here. And we took them to get water ice, which is something they kind of can't get where they live. And now Arden's eating like a water ice. And she's like, I don't think I'm gonna eat much of this. And I was like, okay, whatever. I was like Bolus, like 20 carbs, and she did 20 And she got a little rise. And so we threw in like 10 more and it held on for a while. And then finally, probably four or five hours after we had the meal. She started getting a rise up again. Now, I don't think it's the water ice because that's simple sugar and we kind of we think we squashed out at the time. This is probably fat from the French fries, something like that. And I wanted to go to bed. It was late, and I didn't want it to be high all night. So I just went in there and you know, she was asleep already and I hit her with like Basal plus one. So I did an hour's worth of her Basal plus a unit. And then I Okay, and I just went to bed. And yeah, I don't even know what happened. If I'm being honest, I can log on. I don't have to pull up here. So that would have been last night. Around 12 Okay, so she's heading up 124 145 It made it all the way to 155. At that I started to come down, come down, come down. One of the five 111 tried to rise again, it got to 140 We hit it one more time. And then she was yeah, she's under 100 About an hour later. And by one or by three o'clock in the morning, she was riding between 185 all night long.

Maggie 40:44
How did you have to go do that? Or doesn't like the looping do that for you?

Scott Benner 40:48
The loop tried. But the loop doesn't know about fat and protein and all that. That's the really horrible things are Nate at that bar. Yeah. So oh, I gave it some help. So I basically translated the fat and protein in my head to carbs and then just added it as carbs. That makes sense. Gotcha. Yeah. But those are the things you have to do if I don't do those things last night. I think her blood sugar goes to 250 to 60 and stays there probably for four or five hours at least.

Maggie 41:22
Oh, yeah. For sure.

Scott Benner 41:26
And I don't have time in those moments to be like, Yeah, I wonder what's going on here. I'm just like, yeah, fat, more food. Crappy. Yeah, you know, blah, blah, blah. But you do you think you'd be like, Oh, it's going up for no reason?

Maggie 41:37
No, like, I listen to your guys's fat and, like, I don't know if it's weird that we're aren't seeing that yet with him. I haven't noticed really, you know, even thinking about last night. I mean, he had a goldfish for a snack. And then you know, his dinner was like a half a grilled cheese at like 4pm 5pm and hate it and start raising till I don't know two in the morning and I just to me, I'm like, well, there was pretty much no protein a little bit and the cheese. And the cheese had a little bit of fat. Goldfish had no fat because I still I do I try to think of the fat and protein. The only thing I see. For us with him so far is you know, obviously cereal and fat. That will keep him up for hours and hours. But so far, I haven't seen like, you know if he has a steak or something like that with dinner. I haven't seen that later rise yet.

Scott Benner 42:34
You could be bolusing well enough to catch a protein rise from a steak and a half a grilled cheese sandwich is a little bit of cheese. But I agree. I'd have to agree with you. I don't think dinner at like five o'clock is a rise at 2am I think that's yeah, that to me seems like growth hormone.

Maggie 42:51
Okay, yeah, yeah. Cuz that's been like the last few nights and and I've changed as pod twice thinking it was the pod and increases Basal and just gave way more insulin than I would ever give him and just not even budge.

Scott Benner 43:07
See, the other thing you when you change the site, you also kind of reset to like sites are not great in the first couple of hours. Yeah, for some people. So if you are fighting with the carbs or the growth hormone, and then you remove the pod, you're you're putting yourself in a deeper hole by starting over with a new site as well. Like, yeah, really? So I'll say this, if you really think it's a pod in a site in that moment, why don't you inject the next correction? Because if, if you're not getting what you want out of your insulin pump site, and you inject you'll get it from the injection. Right.

Maggie 43:49
And I and I always think to myself to do that. But then I always trick myself in my head like, well, if it does come down, I'm going to wonder if it was the pot or the injection again, even though I know it would have been the injection

Scott Benner 44:01
of a little bit of a voice in your head too. That's nice. Okay,

Maggie 44:04
all the time. All the time.

Scott Benner 44:07
You got to try to see Yeah, the only way you're going to know is to do it a couple of times. And yeah, because and also, you'll be teaching yourself what a bad site looks like, too. Because yeah,

Maggie 44:17
because first of all, definitely, I mean, he went on the Omni pod and February.

Scott Benner 44:22
Oh, yeah. You're very new with this. Okay. Yeah. Yeah. Very new. You'll be fine. It's coming. Just, yeah, keep going. Keep doing what you're doing. You know, try to take a little longer look at things sometimes. But other than that, I don't see. I mean, a one C, would you say 677? To seven to sorry, seven to eight. He hasn't had diabetes for a year yet. You just started a pump a handful of months ago. Yeah. Where does he sit? When he when he's away from food and away from meal insulin. Where does he sit stable when he sits stable or does he not?

Maggie 45:00
Well, we've just readjusted Basal again. We're always adjusting them, but honestly, the kid never goes longer than two hours about eating something. But he's still kind of that's why I'm not convinced he still not honeymooning because, you know, one day he can sit. I don't know, in the lower hundreds. Sometimes they'll sit at 90 Just fine. But usually when he hits the 90s, he's eventually going to hit 80 and then just keep going down. You know, like yesterday, I think it was three hours between breakfast and a snack. And he just dwindled down into the 80s and sat in the 80s for a little bit. But then we eventually had to have him eat a few Skittles, but not much.

Scott Benner 45:43
What about overnight? When there's no just

Maggie 45:45
when he overnight when he's not having a rise? He's sitting usually between, I don't know. 110 to 150 it just depends. Which is higher than I would like him to sit.

Scott Benner 46:00
That's fine. I'm trying to think 110 to 150 is a big window.

Maggie 46:04
Yeah, like one night, he could be 110 or 100 all night and just beautiful. The very next night, no different food or anything and hope you 150 all night.

Scott Benner 46:15
So maybe these these are like, just guessing, but maybe there is some honeymooning left. And when you don't have the honeymooning helping you, your Basal is keeping you at 150. And when you do have the honeymoon, helping you the Basal is keeping you at 110, which is an indication that at some point that a Basal rates not nearly enough. Yeah. How can I ask how much he weighs?

Maggie 46:44
He is let's see. I think he was like 58 pounds. What's last time we went?

Scott Benner 46:50
You know, what is Basal? Is it an hour?

Maggie 46:54
Well, during the day, he's at point three. And then, at night, they did have him at point one, five, I put him back up 2.2 Right now, I change it a lot though.

Scott Benner 47:11
Thinking, so we're having

Maggie 47:13
lows for a while at night. So I put him back down to 1.5 or point one, five, and then I put them back up 2.2. And then the past few nights I've been given them, or I've just been doing like 100% increase for an hour or two just to try to get them down. Yeah.

Scott Benner 47:27
So I don't obviously I do not have nearly enough information to like, say anything meaningful to you. But can we speak next essentially for a second? Okay. I think it's weird. That is Basal overnight is so much less than during the day.

Maggie 47:47
Yeah, his he, he almost never goes low during the day. And I mean, we've just increased his daytime Basal. When we went to the Endo, she actually she increases Basal and then decreased his carb ratio.

Scott Benner 48:04
Oh, well, you just did she think she thought he was getting low after meals?

Maggie 48:09
Well, she said she was like, you know, he should be 30% Basal 50% boluses. And that's definitely not where he was. And I just I let her do her thing. Literally the very next day, I changed all his carb ratios back I put them lower. I was like, This doesn't make any sense. So she

Scott Benner 48:31
she wasn't diagnosing anything. She was just moving Basal to Bolus Bolus to Basal

Maggie 48:38
basically, yeah. To get and I think she was a little thrown off to she you could tell she didn't really know what to do. She was just trying to

Scott Benner 48:45
get to this 5050 Number. Yeah, basically, that seems

Maggie 48:49
like that does. To me, that doesn't make sense. Because one thing he is an eight year old kid that eats all day long and most the time it's crap, junk, junk food. So we're given a lot of insulin.

Scott Benner 49:01
So I would like to I like, I like there to be in my mind, the Basal I like the Basal to be as low as possible. Okay, and for it to hold you steady at like 8590. Yeah, in that range. Right. So that may make you have to be more aggressive with meal insulin. Right. Okay. But that's like in my mind, that's the balance. I kind of want. I don't I don't care what the ratio is from Basal to Bolus, like if it's 5050. Like that seems kind of arbitrary to me. Like if what I mean, what if you eat a lot of food, but in a small eating window, like what if you're very curvy for lunch and dinner, but not at breakfast? Then overnight, right, like so. I like the Basal little work and do its own work. I don't like to massive problems with Basal insulin. So I don't want there to be like, I don't want you to be feeding the Basal ever, because I like to see when the food's gone. And when other major impacts are gone, that your blood sugar just wants to sit in that 8090 range and stay there. Yeah. And that to me would be your goal is to is to do that. Also. I mean, if he's point three during the day and 1.5 overnight, I think those are the numbers you said. And he's drifting up overnight, then, I mean, maybe he needs more Basal overnight. To

Maggie 50:36
Yeah, and I just increased that as well. Again, we, like I said, I go back and forth all time because sometimes we'll start going low at night, but I've increased the night time Basal. And it's hard to see as daytime. I mean, like I said, eat all the time, overnight time.

Scott Benner 50:53
Was that I want to before I forget my thought overnight, sometimes he gets low overnight. Does that mean that he drifts low, you fix it and he drifts low again. What does it mean? He drifts low you fix it and it stays up.

Maggie 51:07
He drifts low, we fix it, it stays up.

Scott Benner 51:10
Okay, then that's it. And then that's not Basal then. Okay, because if he kept if you had to keep feeding him to keep him up and the base, pulling him low, pulling them low point low, but if you're having a low, you fix it once and it stays up, then that to me indicates an issue of like a late night snack Bolus, or even maybe your Basal too high in the preceding hours. Before the low, yeah. So even up to two hours. Like if you see a low consistently at one o'clock, you might want to turn your Basal down at like 11pm Yeah, all right.

Maggie 51:46
Okay, that makes sense. Yeah, totally.

Scott Benner 51:51
Cuz I'm swimming trying to like picture your life. I've never seen it. Like just trying to keep everything in my head as straight as I can. I'm sorry. You were I know that. I cut you off. I apologize.

Maggie 52:00
I don't. Oh, yeah. I was just saying that it's hard to know his daytime because, I mean, the only time he might not eat for like three hours in a row will be if he's like playing video games. So here's what I'm gonna sometimes I'll let him play video games for three hours just so he doesn't eat and I can see where his blood sugar goes. Here's I'm not gonna lie.

Scott Benner 52:21
I'm gonna tell you this. I don't think you can understand any of this until you start Pre-Bolus In the meals during the day. Yeah, I know. Because you're probably just creating the first problem right? So for people listening, and I think Maggie, it sounds like you listen enough that you understand what I'm about to say but you eat adult Bolus. food drives up your blood sugar, you throw in a bunch of insulin. The insulin can't overwhelm the food as it's in your system. Ai tries and tries and tries you sit high. Eventually I'm losing my voice Hold on a second

was embarrassing. Sorry, eventually the food digests out of the system leaving behind the unbalanced insulin because you didn't Pre-Bolus blood sugar starts to fall but eat so much you don't really care. So you put in more food restart the unbalancing he gets higher you put the insulin in. I'm dying here Maggie, this is the end Hold on. Oh my god. Um The the the process starts over again. And then it happens again foods in it's causing a high insulin Xin it's in too late. It's fighting, fighting, fighting with the carbs can't overwhelm it food digest leaves, the system comes back down. Does this sound like what happens?

Maggie 53:52
Oh, absolutely. All day long. I mean, so you're

Scott Benner 53:55
now trying to figure out a problem at 1am. That's based on you not Pre-Bolus thing breakfast? Probably yeah, no. So this, by the way, incredibly common. Maggie talked to a lot of people. This is incredibly common. So you cause a problem, the first meal of the day, or even have Basal too low overnight, which comes into the morning too high. And then you don't Pre-Bolus And now boom, we're off to the races. Up, down, up, down, up, down. It's happening more and more because he's eating so much. Eventually, the end of the day comes he stops eating all of this unbalanced insulins left from the last meal drags him low. You start thinking, Oh, he gets low overnight. And that becomes your focus when I'm telling you what the focus should be is Pre-Bolus. And none of this will happen. Yeah.

Maggie 54:48
I wholeheartedly agree with you. I think if we can somehow bribe this kid to Pre-Bolus in our lives will be much easier.

Scott Benner 54:57
You know, in the 70s you could hit him but now I know people understand. I'm kidding. But there's got to be something that although they, I mean, if it was the 70s, you probably would just pull them into a corner be like, listen to me. Oh, hell yes, I would. But instead, we're all evolved. Okay, we know. Right? We figured that out. And so you need to motivate him to Pre-Bolus his meals. Is there anything that's happening to him health wise that he wished was stopped? Like, I mean, does he hate this whole process? Or are you catching it in every spot, so he doesn't really notice it's happening?

Maggie 55:33
He probably could care less. He doesn't complain anymore. Even you know, the site changes or anything. He's just like, whatever. I mean, he gets frustrated sometimes when he's trying to run out the door to a friend's house or something, but he just will go and you know, he'll do his own boluses and everything, but he's entering the Bolus as he's eating the granola bar.

Scott Benner 55:58
Well, with a granola bar, that might not be bad, because that might not hit him right away. Like there are some foods where you don't have food. Is everybody ready for me to contradict myself? After 55 minutes? There are some yeah, there's some foods, you don't have to guess the takes so long for your body to start digesting? So yeah. So you can get away with not Pre-Bolus a granola bar as an example. Because, you know, unless it's all covered in sugar than chocolate, and it's not really a granola bar, but like a real healthy granola bar goes in your stomach.

Maggie 56:28
Oh, now we're talking like Kirkland brand. So I'm sure it's okay. pure sugar.

Scott Benner 56:33
Chocolate, then we still want to Pre-Bolus But listen, I know that's so hard. I don't I you've gotten to the end of my understanding, like, how do you motivate an eight year old to wait 10 minutes before you eat some because we're really only talking about starting with 10 minutes. And just like give me 10 minutes. Money, too young for girls.

Maggie 56:54
I've tried the money thing. And I still, but he's also like, oh, you owe me $1 They Pre-Bolus and his his concept of Pre-Bolus thing is the insulin all going in before he takes a bite. Not waiting. A Pre-Bolus I'm like, no, no, that doesn't count. The only thing that motivates him is video games. So then, that might be our next thing.

Scott Benner 57:16
Right now. I think it's super simple. Tell me to 10 minute Pre-Bolus before every meal. And every minute Pre-Bolus. His is an extra minute of video games. And that way, if he eats five times a day, he can build up 50 minutes of video games. That seems pretty reasonable to me.

Maggie 57:34
He Yeah, that might actually work for him. Honestly.

Scott Benner 57:38
You just have to, because then it'll become you know, the truth is it'll become habit at some point. And you and you'll kind of forget about all this and it won't matter. Like he'll just start Pre-Bolus thing after a while. We'll just get accustomed to it. I mean, I can't wait. Yeah. Like there are times when art and Bolus is and I'm like, you gotta wait. You have to wait. I see unwrapping that thing like just like, wait a little bit. I'm hoping Yeah. Oh, my God, I know, you should have thought of that. 10 minutes ago, and Bolus. And it's not always possible. Like, don't get me wrong, it's not always going to be possible. So when you mess it up, crush it, catch it, start over again, don't chase throughout the day. But at the same time, if you want all this to get much easier, and for you to stop talking to the voices in your head, trying to figure out what's happening at two in the morning. I think that's the that's the first step honestly.

Maggie 58:26
Yeah, I agree. And I just want to Yeah, try to master it before I've got two of them like this.

Scott Benner 58:33
Right? Like, oh my god, yeah, I forgot about that. Oh, how can I ask you? I know we're up on your time a little bit. But

Unknown Speaker 58:43
no, you're fine. What is it?

Scott Benner 58:47
Is it in the back of your head all the time? My kids about to get diabetes? Or do you not think of it because you already have a kid with diabetes? And it doesn't seem as dire as it did the first time?

Maggie 58:55
No, it's they're such opposite kids that it's always in my head because my oldest who is my 10 year old who does not technically have it yet. He's just he's he's a different breed here. First of all, his skin is crazy sensitive, so I don't know how he's gonna wear anything. And then he's just, he's super he's just a sensitive kid period. So you know, even doing fingerprints on him is a very big like, he's got to take a lot of breaths and sit down and contemplate it he analyzes everything. So I just I just worry for him like I feel bad I think about it all the time. Like what he's going to go through and it's going to be a pity party for him. He's very dramatic, I guess put it that way. So people have said I'm going to be Yeah, he's gonna be he's gonna be something different whereas river my middle son who has it he's like, whatever kind of go with the flow kind of kid. He actually didn't care from the beginning. Really?

Scott Benner 59:59
Wow. Maybe we should call them all River and they all could have gone with the flow. That's right. The other ones names not Damn, is it? Because that might have been your fault? Right

Maggie 1:00:09
now? I have a two year old who is we're hoping he doesn't eventually.

Scott Benner 1:00:16
Yeah, test. I was wondering have you ever taken a little sliver of like adhesive from the potter Dexcom and stuck it on your other son to see how his skin reacts to it?

Maggie 1:00:25
I have not the only way I know that his skin was really bad was when they when they did the trial net testing, he had to go in for an IV and the tape for the IV for four hours on his arm just I mean, his arm just swelled up and was awful for a good day. But um, I should try that because I actually have like, you know, an EOS? Or what do you whatever you call those older pods? Yeah, they accidentally sent me one time I could put one on him. And then

Scott Benner 1:00:55
even just the adhesive, you pull the pot off and just like the IDs of them. Yeah, I should. I'll tell you, if you're really worried that adhesive is going to be an issue. Understanding how to get ahead of that will save you so much. I don't even have the right word. I was gonna say hassle. I was gonna say drama. It's not enough. Like if people have adhesive allergies and have to wear medical devices. It's a really serious problem. So if you can figure out a way to get ahead of it before it becomes a thing where you need to stick something to him. I think you'd save yourself a lot of headaches, you know? Yeah.

Maggie 1:01:28
Yeah, I definitely will. I'm sorry. Definitely start looking now will start looking into things and try. I'm hoping when Dexcom does all their new adhesive trials.

Scott Benner 1:01:38
They're doing it now. Yeah, yeah. So hopefully, they'll figure something out. Is it slightly? No, it is. It sucks too. Because if you have that problem, that's of course of a paramount issue. But it's not most people, like most people don't have any problems with the adhesive. And so you're Yeah, you're trying to figure it out for a small segment of the population to and hopefully that makes it easier to figure out. I don't I don't know. But and he's

Maggie 1:02:03
a like I said, he's very dramatics. I can only imagine how he's going to handle that if he gets, you know, even a red mark from it.

Scott Benner 1:02:14
I put up an episode today that obviously was like recorded, like forever ago. And I'm in there. I'm talking about I had a pain in my back for a while. And I was talking about how I was like walking around the house like I'm dying. This is it. It's over. Everyone's like, yeah, so hopefully, I don't know how that happened. But I know I was in pain at the time. It felt very important to let everybody know.

Maggie 1:02:38
Exactly. Yeah, that's exactly him.

Scott Benner 1:02:42
How old's the youngest? Do you say to?

Maggie 1:02:45
He just turned two and June?

Scott Benner 1:02:47
Will you do trial net for him?

Maggie 1:02:50
i Yeah, I think so. I know, my endo had mentioned maybe waiting a little longer to do it for him. Because if he comes back negative, then we wouldn't be able to test them again through trial net. Once they're negative once they have

Scott Benner 1:03:05
a happy with how they're funded where they can only do it one time. That actually yeah, I'm on at some point. I have to ask them to explain all that to me.

Maggie 1:03:14
Yeah, but I know there's other places that will test too, but I don't know. I I probably will even though I kind of don't want to but

Scott Benner 1:03:23
yeah, I mean, if it's gonna happen, it's gonna happen. Right. So yeah, exactly. If you know, you can do something who knows? Wow. Yeah.

Maggie 1:03:31
I'm hoping maybe they the first to have some sort of virus together. Oh, I see. And maybe those are my hopes and dreams.

Scott Benner 1:03:42
Let me explain my hopes and dreams to you. I have a dream. My children got sick at the same time. And that's why this is happening to them. Exactly. Well, I mean, at least they didn't get Rubella or whatever else your husband can get.

Maggie 1:03:56
Yeah, I know. Yeah, he gets some weird stuff.

Scott Benner 1:03:59
You were making that list earlier. And I was like her husband got diseases like that, like the hookers in like, Westerns get

Maggie 1:04:07
like, oh, yeah, we went to Mexico back in like March this year. And he got something that I mean, I have showed every one of my nurse practitioner friends and I mean, nobody can explain what some weird skin stuff came up on him. Just

Scott Benner 1:04:24
weird. So he's got maybe his skin sensitive like your son's toe?

Maggie 1:04:29
Yeah, yeah, probably. I mean, he's got a little ginger on him. So

Scott Benner 1:04:37
he has ginger.

Maggie 1:04:40
They're all sensitive skin.

Scott Benner 1:04:42
He has some ginger could easily be the title of this episode. Easily, because the rest of it, Maggie, were laughing through it. The rest of it's really sad and I don't know what else to do. Like. You've laid out a rather sad story and are you doing it I do want to ask you at the end here, like, how are you doing personally? Are you holding it together? Or is it starting to get to you?

Maggie 1:05:07
Um, I'm holding on to I think the sleepless nights here recently are tearing me down a little bit, but I'm holding it together. I was pretty much like a not really a closet alcoholic for a while, but I turned to a lot of drinking for a while. So was that I'm not doing? What's that? Oh, good.

Scott Benner 1:05:28
You're not doing?

Maggie 1:05:30
I'm not doing that. Like I was that that was my coping mechanism for a while. Oh,

Scott Benner 1:05:34
that's interesting. So I just got to be the only podcast for somebody like I was drinking to cope. And then the person goes, that's interesting. But I, I do find it interesting. Did you prior to diabetes? Did you drink the coke then?

Maggie 1:05:50
No, not I mean, I've always like, enjoyed, like, you know, having a beer or something after work or whatever. But not, I think COVID kind of started it. And then diabetes hit and that was just like, my, it's basically what would put me to sleep at night almost, or, you know, just my way of coping and try not to obsess on it and think about it all the time. Because I'm very obsessive. Like, I will think about something until I'm blue in the face. So you just be my way to relax. Really?

Scott Benner 1:06:25
You're trying to shut your brain off? Yeah, pretty much. How long? Did you do that? Before you thought I should probably stop doing this.

Maggie 1:06:33
Probably, I mean, quite a few months. Really? Honestly, I just told myself a few weeks ago, like okay, you know, got to take the drinking down a little bit.

Scott Benner 1:06:45
You got worried you got worried for yourself?

Maggie 1:06:47
Not every night, that and it's really exhausting. If you have alarms going off all night, and you had two drinks before you went to sleep, and you just want to go to sleep.

Scott Benner 1:06:57
So have you replaced that with something else to help you? Or are you just what do you know? I

Maggie 1:07:02
mean, I definitely had to take something to sleep at night, or I will like, listen, and you know, think about it all night. So you know good Benadryl usually will do the trick for me. I was

Scott Benner 1:07:13
gonna say you get up sex, but you might get another one of those hee hee babies and just have a problem again. So

Maggie 1:07:18
yeah, we're fertile.

Scott Benner 1:07:21
I mean, obviously 10 eight, two, it just sounds like you took a break in there to save some money.

Maggie 1:07:28
Yeah. Yep. Had to finish nursing school and stuff. And they're all boys.

Scott Benner 1:07:35
Yeah, that's gonna be Hello problem at some point that they're, oh my God, my mom had three boys. And even last night at her part. You know, we're together. She's 79. And I still look around. I was like, oh, like one like well measured girl in the mix would have really just helped her eyes.

Maggie 1:07:52
Yeah, absolutely. Yeah,

Scott Benner 1:07:54
you keep having babies. You're gonna keep having boys. And that's gonna be that. I know.

Maggie 1:07:59
Well, my husband wanted to go for it for a girl. And I was like, nope.

Scott Benner 1:08:03
Was that before the diabetes? Yes, yeah. That was before. Has he said that since then?

Maggie 1:08:11
Oh, no. Yeah, um, come

Scott Benner 1:08:12
to him write down. How involved is he in all this?

Maggie 1:08:16
He's there. I mean, he's working from home now after COVID and everything. So he's definitely we both, you know, we we do a lot of texting diabetes from you. And so he's pretty involved. We definitely we get a little tufts about it. Because, you know, he thinks like, he thinks that I think I'm always right, because I'm a nurse, which I don't but, or if I correct him on something, no matter what way I approach it. It's offensive, which I get it either way. So yeah, but he does he does good. I don't I don't worry. You know, he's home with them all day or anything like that?

Scott Benner 1:08:58
Well, you'll you'll adapt to all that too. I think you've just described a number of issues that most people have, you know, with trying to figure out the balance of, of who who does what, and when can you step in and say something like when you step in and say something? Are you stepping in because you think something's really going wrong? Or because it's not the way you would have done it?

Maggie 1:09:20
No, usually if I'm stepping in and saying something, I am usually saying it like well here, you know, I'll step in and say, Well, this is what I did, you know, yesterday or something and it worked. I don't know if you know, you want to try it or you know, so it, it just depends on the day and how I approach it. Honestly.

Scott Benner 1:09:46
Are you taking responsibility for your tone?

Maggie 1:09:49
I, I don't know if it's my town, or I mean, he'll admit to you too. He's moody like a woman so it could be on what type of mood he's in when I bring it up. or if you know, or how frustrated or tired we are dealing with diabetes when we bring things up. So it goes both ways

Scott Benner 1:10:09
to meet more people from Arizona. I like the way you talk. Thank you. I very much enjoy just now when you call your husband moody, like a woman for some reason, like, that's not a statement people are generally willing to make in 2021. So

Maggie 1:10:24
Oh, he'll admit it, too. He knows. So.

Scott Benner 1:10:27
Yeah, well, listen, he's, everyone's stressed out like, right. It's a ton of stress, obviously. I just wonder, I just wondered if you were saying like, sometimes I come at him in a way that I understand his response.

Maggie 1:10:40
Yeah, I will. Yeah, probably, sometimes. But sometimes I feel like I'm coming in a very neutral like, hey, no, I was just bringing it up. Because I didn't understand either, or I just learned this today or something. Yeah. Yeah,

Scott Benner 1:10:54
he won't be a person for like, 12 more years. So you're fine. You're gonna have to ride that out. It takes me Yeah, it's there's a very I don't know, like, I don't know, his background. And I'm sure everybody's not like this. But it's not hard to feel attacked. You know, for some people. Yeah. And then you get your you get defensive. And you're like, Well, what's wrong? I'm doing a good job. Like, why? You know, and then it before you know it, you're not talking about the thing you're talking about anymore? So absolutely, yeah. Let's, uh, it's messy being alive. So. Really? Yeah. When you were 18. And you were like, oh, it's gonna be great. I'll meet a boy and probably get a car or something. And maybe I'll get a job or whatever. And, yeah, you're never like, you know, what will happen is one day I'll say something in a tone and my husband will get defensive about it because of the way he grew up. And this is all going to be very upsetting because one of our children have diabetes. Yeah, it wasn't exactly it wasn't the picture you're painting in your head.

Maggie 1:11:50
100%

Scott Benner 1:11:52
Guess what? I think we're all in the same boat. So at least we're together. Right isn't really that helpful for being a little more tolerable? Well, I really appreciate you coming on and doing this. I want to make sure that we talked about everything that you wanted to die leave anything out, or

Maggie 1:12:10
Yeah, no. Oh, I was gonna ask you do any do since you are asking a lot of people about things that their children had or whatever do a lot of do you find a lot of kids with? Like get type one or have type one have that Moleskine? contagious and which ones that the little the like viral skin infection?

Scott Benner 1:12:35
I haven't heard that one yet. I hear hand Foot Mouth. Yeah, a lot. Which one did you just say?

Maggie 1:12:42
That's called molluscum can pay geo some googling it

Scott Benner 1:12:50
I think you're confusing. Harry Potter speller. Oh, wait, I got it here. Do some viral skin infection that results in round firm, painless bombs that condition spreads through our contact spreads through contact with an infected person or contaminated object. Though painless, the small bumps might itch, scratches, scratch bumps can spread infecting surrounding skin. The bumps usually disappear on their own in rare cases, the bumps can be removed using medications 200,000 a year, usually self treatable.

Maggie 1:13:25
Hey, well, the fact that you haven't heard of it makes me happy. So that's

Scott Benner 1:13:28
good. Okay, by having unprotected vaginal, anal or oral sex by skin to skin contact handshakes or hugs. Well, there's a wide chasm there. Hmm.

Maggie 1:13:37
I was gonna say that's not happening with my children.

Scott Benner 1:13:41
I was like, I just I'm just reading how it spreads here. And it just struck me I was like, wow, from hugs to.

Maggie 1:13:48
I know. And then when you feel if you type in like toddlers or children, it's, you know, yeah. Basically, any kind of touching.

Scott Benner 1:13:56
pox virus. Oh molluscum contagiosum virus is a DNA pox virus that causes Hold on. That causes the human skin infection. Alaska can teach you some facts about well pox virus. is I think hand Foot and Mouth is a pox virus as well.

Maggie 1:14:18
Is it? I'm looking I was there I have to look that up. Because what's the other one besides the hand Foot Mouth? I remember you had the doctor on normally presents with like it Coxsackie Oh,

Scott Benner 1:14:30
yeah, well, yeah, yeah. Coxsackie is hand Foot Mouth Disease mouth. It is that viral infection common in young children, sores in the mouth and rash and has a feet commonly called a pox virus. Oh commonly caused by Coxsackie virus. There's no specific treatment for hand foot mouth and I'm looking home Cox virus pox virus. BC Z causes chickenpox while the Coxsackie virus tip Causes H F. MD symptoms and signs of chickenpox in hand Foot Mouth Disease that are similar include rashes that often formed blisters feeling unwell malaise and fever? I don't know. If I'm going off something just anecdotal like where? Yeah, when Arden had Coxsackie Adam told her her pediatrician told her told us like it's like the chickenpox you get it once and then never comes back again. Except her sort of never went away. I don't know. I think we're beyond my.

Maggie 1:15:31
Yeah, my I have to look into that. Yeah.

Scott Benner 1:15:35
I'm not a you're out of my depth.

Maggie 1:15:39
Well, I was just curious if you had heard any of your, you know, listeners ask about it. But the fact you haven't heard of it,

Scott Benner 1:15:47
although maybe I just haven't heard of it, because people can't pronounce.

Maggie 1:15:51
I know. I it's very hard. Yeah. I usually have to Google it. And I forget about what it's called. I'm like, wait, what's it called again?

Scott Benner 1:15:58
Hmm. No, I have to find out. Then you if you let if you find out, let me know. Please. And I'll add it to the end of the episode. Yeah, cool. Yep. All right. Well, thank you very much for coming on and doing this with me. Um, I hope the rest of your day is better than the hour you spent lock that little room so you

Maggie 1:16:16
know, thank you so much. I was super excited to come on.

Scott Benner 1:16:18
Thank you did a great job.

Hey, huge thanks to Maggie for coming on the show and chatting with me. And thank you goes out as well to Dexcom and on the pod. Don't forget about that. Dexcom g six@dexcom.com. Forward slash juice box. And go find out if you're eligible for the 3030 almost, I can't even say I'll try again. Go. Whoo. Here we go. And go find out if you're eligible for that free 30 day trial the Omni pod dash at Omni pod.com forward slash juicebox. Remember the Omni pod promise, you don't have to wait for Omni pod five. Get yourself a dash today. And as soon as Omni pod five is available and covered by your insurance, you can switch they promise. Thank you so much for listening today. Please remember to go to T one D exchange forward slash juice box and fill out the survey. It will take you fewer than 10 minutes it will help people with type one diabetes and it supports the podcast. It must or I wouldn't say it this much. Is it I'm saying like if you appreciate the podcast, go fill out the survey, please. All you have to be is a US resident who has type one or a US resident who cares for someone with type one. I'd also like to remind you that we have a Facebook group and it's pretty gosh darn terrific. Juicebox Podcast type one diabetes on Facebook. It's a private group. It has over 20,000 members. And the only thing it's missing is you. That was hokey. Hmm. And the only thing that's missing is you head over today. Honestly, it's a great Facebook group. I think you'll get a lot out of it. You should give it a look. Juicebox Podcast type one diabetes. If you promise to go check it out. I promise to stop saying hokey things I heard on commercials in the 70s.