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Winner 2011 Advocating for Another

 

Winner 2011 Editor's Choice


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Entries in Social Media (3)

Tuesday
Jan312012

Arden's Day is the Wego Health 2011 Health Activist Award winner!

So excited... I'll post more later when my heart stops beating so fast.

What a wonderful surprise it was to be chosen from among so many deserving and wonderfully written health blogs. A day after learning that I won WEGO Health's 2011 Health Activist Award in the 'Advocating for Another' category, well,  I'm still a bit in shock. 

WEGO Health houses an amazing collection of communities and blogs about a sweeping range of medical issues. It's members offer advice and support to countless people that need it. If you or someone that you know is living with a medical condition and looking for community, I strongly suggest that you click on this link and see if there is a group tailored to your specific need - I bet that there is.

I want to thank WEGO, the independent judges and the type I diabetes community for embracing what I'm trying to do with this website. It was a genuine honor to be named as the winner in such a broad and powerful community of people. I'm proud of this site and the words that you'll find on it. Moreover, I'm happy beyond words that it helps people. Thank you all very much!

 

Monday
Jan092012

Social Media is helping me lose weight

I have never been a thin person. I have at times considered myself fat, overweight, in shape, not too bad and an entire slew of other body and health terms. I put on weight for the first time in my life around age six and didn't return to a healthy weight until about ninth grade. That dance has continued throughout my life. My weight hit an all time high around 1998. That was the first time that I took a drastic measure to reduce my size. The diet worked great and before I knew it I looked the best that I ever had! Then we had Cole and I put half of it back on. I've been up and down ever since. I never get so heavy that I feel unhealthy but somehow I always feel better when I take off a few pounds so I know that the weight effects me poorly.

Intellectually I know that I should be leaner and I wish that I looked better but these things never seems to be enough incentive for me to maintain a constant weight. The truly odd thing about me being overweight is that I am not a food person. I don't have cravings or even get hungry very often. It took me a long time to realize that my issue was two-fold: I don't eat enough food or water (often I joke that my body thinks that we are shipwrecked and is conserving fat) and when I do eat, I put no effort into eating well (though my kids are fed very well). Even after coming to that understanding about myself... I still haven't addressed it. I did however eat two batches of Christmas cookies, one at a time, over an 18 day period last month.

I needed help but I know that I wouldn't have sought it out on my own.

About a week ago one of our friends posted on FaceBook that he needed to lose weight. In minutes the idea of a competition was suggested and a week later forty people were signed up for a weight loss contest. Everyone threw in twenty-five dollars and the 'biggest loser' will take home a cool grand. Nice idea and my wife was doing it so I joined in as well. I wasn't all that enthusiastic until I saw something happen, something that was very familiar to me because of diabetes and the DOC.

Along with the competition came a private FaceBook group. To keep things on the up and up everyone had to post a video of their initial weigh in. No one was too pleased and people spoke of dropping out to avoid making their weight public but a few intrepid souls went first and then the greatest thing happened...

People stopped feeling alone, isolated, embarrassed and the weigh in videos began to appear one after the other. Where had I seen this before? In the diabetes online community of course. It's the power of social media. Which is just a new way of saying that people need people. It's community, friendship, support, or as we love to say in the type I world... the knowledge that others are living with and surviving the same things that you are struggling with. Somehow, some wonderful somehow, once you understand that you aren't alone, everything magically gets easier.

I'm watching people that didn't know each other a week ago share things that I know they are embarrassed by. They are offering encouragement, recipes and a lot of needed contact. All of this is supporting and motivating the group. I wish that everyone could experience such community. Up until last week I thought that I would only ever feel like this when I was around the people in the DOC.

This is just another way that social media is helping me. Please share how social media and online relationships have helped you, your post may be their introduction to a much needed life change.


Monday
Dec192011

What should they tell you at diagnosis?

I was recently asked, "name one thing that you wish someone would have told you the day Arden was diagnosed with diabetes?" I thought about it and almost said that it would have been nice to know how unpredictable things would be.

but after serious consideration... I said,

"I wish someone would have introduced me to Twitter". I found the diabetes online community by mistake. Actually, I didn't know it existed even after I published Arden's Day - I was amazingly and embarrassingly unaware. I never Googled "diabetes", "type I" or the search that I see most now - "my child was just diagnosed with diabetes". I've said this before but there was a small amount of time when I believed that my blog was one of a kind - which of course it is/was not.

I sort of backed into Twitter. I (very honestly) originally joined because I thought that it would help this website find a larger audience. Very soon I realized that it was much more! I began to meet so many great people and communicating with them was very organic. It takes a lot for someone to email you through your website but sending a tweet isn't so daunting. Meeting more people brought new management ideas, more comfort and reinforced the notion that I wasn't alone.

A few weeks after I joined Twitter Arden's BG was unsteady at bedtime so I was sitting up and waiting for it to stabilize. Before I knew what happened it was after 3 am - I was falling to sleep... so in an effort to stay awake I opened Twitter. A quick swipe of my finger showed me that another D-parent was awake and doing the same thing. We chatted for a few minutes and my anxiety melted away. I was still exhausted but I no longer felt isolated.

I think that somewhere between being taught how to give an injection and carb counting class, the hospital should have a social media person drop by and explain why the kids are calling the number sign a hashtag.

My next few posts will center around social media and the great things that it has brought to my life. Look for the first soon after Christmas.

#DOC, #diabetes, #type I, #Twitter