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Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

Filtering by Category: Interview

#220 Laura is a CDE with Type 1 Diabetes

Scott Benner

Laura has type 1 diabetes and is a certified diabetes educator…

Laura and Scott chat about type 1 diabetes like old friends.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon AlexaGoogle Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello everyone and welcome to Episode 220 of the Juicebox Podcast. Today's show is sponsored by Omni pod Dexcom and dancing for diabetes. You can learn more at my Omni pod.com forward slash juicebox dexcom.com forward slash juice box or dancing the number four diabetes.com. If you're looking for the greatest insulin pump in the world, the best CGM man has ever made, or the most wonderful diabetes organization on the planet. These are the places you'll want to be. There are links in your show notes at Juicebox podcast.com. If you can't remember the links I just provided.

In this episode of the podcast, I'll be speaking with a CBE who also has type one diabetes and was diagnosed a little later in life, but is living with type one for quite some time. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your medical plan, or becoming involved with insulin. This episode was recorded a few months ago. So for those of you who have been missing bazel snoring in the background, because he's not near me anymore. When I record, you're gonna like this one. Because that little dog is like, in the background, you'll you'll hear it Trust me.

I'm going to ask you to introduce yourself and I want you to consider this before you do. I don't know what you're going to say or how comfortable you're going to be saying it. But because because you're a CD, a nurse practitioner, you work with people who have diabetes, I'm looking for some real like honesty from you. So if you want to be anonymous, that's fine with me. Or if you think that your honesty is not going to get you in trouble at work or anything like that. Do whatever you want. So you can use your first name, your first your last name, we can make up a name. I don't care,

Unknown Speaker 2:05
whatever we decide, yeah,

Scott Benner 2:07
sure.

Unknown Speaker 2:08
I don't know what I'm gonna say. Yeah, that's perfect. And

Scott Benner 2:10
I'm leaving all this in right just asked you about your name, too, because this is this is exactly what I want. So. Okay, so we'll have to make up a name for now.

Laura 2:20
Oh, you can call me Laura.

Scott Benner 2:25
I was gonna call you, Barack. And so. Okay, sorry. Okay, so, okay, Laura. You're a CD, a nurse practitioner? Uh huh. And I know nothing else about you, except that you sent me an email. That pretty much indicated to me that you were excited about how we talked about diabetes on the podcast. And the reason we're getting you on so quickly, is because it is my It is my very, you know, not so private goal, to reach every CD, so I can stop doing the podcast, I would like to have it. I would like everyone to think about things like this in a way that they tell newly diagnosed people. So a whole new generation of people diabetes aren't scared. And I can use my free time for something else. So that's, that's my goal. But but so just tell me a little bit about yourself. Do you have type one? If not, how did you end up working with a give any connection with it at all besides your work?

Laura 3:25
Well, yes, I have type one diabetes. And yeah, I was diagnosed in about 1994. And so under 25 years, but I've been 20 years,

Scott Benner 3:37
I had an A 24 Oh, good. I went 94 out of 10. I got to 2004 at a time where I was 2014. Then Then I knew that was 2018 and 84. Right? Boom, like that. I was right on top of it. So Oh, yeah. Oh, please, you have no idea how smart I am. Now. Um, but so 24 years ago when you were in the what range of age?

Laura 4:04
So it's fine. I was 31 I believe 3132 or 31. And I was pregnant.

Scott Benner 4:14
So did you didn't start as gestational or did you have type one immediately? or How did that go?

Laura 4:18
Well, it was really interesting. I was diagnosed with gestational. But in fact, it was really my diagnosis for type one. Okay. Okay, during my pregnancy.

Scott Benner 4:33
So those two things mimic each other and then they just assumed because you were pregnant. That's what was happening were

Laura 4:39
Yeah, in fact, they I was considered gestational diabetes completely. And I never and I was at a major university in Florida at the time, which it was. I had great care and you know, everything and basically they never had me check my Blood Sugar after I delivered. And so I went along my merry way thinking that I just had to do insulin during my pregnancy. And I thought, Oh, you know, after I had our first son, that was it. And then it was a, it was actually after I stopped breastfeeding at about 10 months that I started losing weight. And I just the total typical signs that I tried to ignore. And, you know, I was thinking, Oh, this is great. I'm, you know, getting my, I'm better than my pre pregnancy weight. You know, and I, it was a, I've heard you tell the story, like where people would always have this diagnosis, either on vacation or holidays? Well, it was Christmas Eve. And I had some time off from work. And I checked my blood sugar on this old meter that I'd had 10 months earlier been using for pregnancy. And I was 800. And or no 600. Wait. Yeah, I was oh, I had gotten this box of Christmas, Carmel from home from family in California. This was like popcorn and nuts. And it was all Carmel and I ate. I ate the entire little package and lost three pounds overnight. And I'm like, wow,

Scott Benner 6:28
I'm onto something here.

Unknown Speaker 6:31
Yeah, something's wrong. So

Scott Benner 6:33
I'm gonna have another baby and lose 15 more pounds.

Laura 6:37
Exactly. So I looked in the mirror and I was like, Oh, my God, I look like I'm starving. My app is just bones. It was not pretty

Scott Benner 6:45
your small frame, right? Like I just you popped up for a second when we were setting up, but you're a smaller person.

Laura 6:51
Yeah. And I was basically down. And I just thought, Oh, I'm working full time. I have a new baby. You know, I just thought. Yeah.

Scott Benner 6:59
Oh, finally get my stepson.

Laura 7:02
Yeah, exactly. So are you working then? Yes, I was as a neonatal nurse practitioner. Okay. Yeah.

Scott Benner 7:12
So Isn't it funny is it so you brought up a couple of things and I'll just kind of skip over them real quickly. But the the one that I think is most important, is that everybody always thinks, oh, everybody gets diagnosed on vacation. We're at a holiday. And really the truth is, is you slow down enough to start paying attention to your health on vacation or a holiday. You don't mean like life just kind of a lie.

Laura 7:35
You know? You I heard you say that in another cast. And I was like, That is so true. It is it's just you're able to I was definitely hyperglycaemic. And, you know, just didn't pay attention to the signs until I had, you know, a few days off for Christmas. Yeah,

Scott Benner 7:52
it's funny what your body can accomplish. Like when you when you don't feel like you have time to die, your body won't die. Do you know what it you know what I'm always stunned by it. I don't in any way mean this to be amusing because I really don't but do you ever see a mentally challenged adult who's in it's in their 40s or 50s and their parents are still with them and alive in their 80s? And I always think, Wow, those parents just must feel like I can't leave this kid alone. And and and somehow that takes them a you never don't see that. It's it's really, it's sort of spectacular what your body can accomplish when it feels like it has to. And so you you know you were you were doing what you needed to do and and everything was okay, right up until it wasn't and then it is funny than the minute it's almost like having a long exhausting day. Right? As long as you don't sit down. You're okay about it. Yeah. And the minute you sit down you go, Oh, this was a mistake. That did sleepy time. So so you're diagnosed later? Was there any? Any? Any? Like anything in your family type one?

Unknown Speaker 8:58
Oh, yeah. They're

Scott Benner 8:59
endo issues. There was? Yes.

Laura 9:01
My sister has two children. They're adults now. But my sister's daughter was seven when she was diagnosed, and her son was three when he was diagnosed. And so and this was before CGM. So it was actually my niece was diagnosed before I was. And it was so funny because our family was like, Oh, it's got to be on, you know, the dad's side of the family. And then, you know, just a couple few years later, I get diagnosed. No, no, no,

Scott Benner 9:36
everybody sort of blaming each other. It's like, Oh, that's your that's your family, not mine.

Unknown Speaker 9:42
Yeah,

Scott Benner 9:43
well, so that's a shot I have to imagine. Right? You were I mean, even though you're in the medical field, you don't expect to get type one diabetes in your 30s even though people around you are habit and did you ever I mean, you weren't living like that thinking Oh, it's gonna get me eventually right?

Laura 9:58
Not Not at all. Not at all. Yeah, in fact, like, as I've kind of read about it and learned about it, it's kind of interesting, like 30% of new onset type ones are over the age of 30, new onset type one are over the age of 30. And now that I'm working, I work with kids, but I also work with adults. And it's amazing how many adults are diagnosed with type one. Yeah,

Scott Benner 10:22
absolutely. And later in life, and at all that all varying, I think by now, on this podcast, we must have somebody in every five year increments, you know what I mean? Like I was between 40 and 45 is between 55 and, you know, 50 and 60 seconds. I've hit everybody at this point. And, you know, so there is no, there's no magical age, like people were, you know, believing, you know, years ago, or when they call it juvenile diabetes. Okay, so, you've had type one now for 24 years. What did you when you were first diagnosed? I mean, that's so fairly, you know, just to put us in the right place, there's a meter and some insulin and,

Laura 11:01
yeah, there you go. Just like everybody else's story. It's really, although it's happening today at the same time, and I was at a major university. Like I was saying, in Florida, which were like trial net started. And, you know, it was very much type one, it was awesome. But yeah, I went to the emergency room on Christmas Eve. And they gave me a vial of insulin, but I had been, you know, I was a nurse and I had been gestational diabetes. So I felt, you know, I was I was equipped and, you know, the place I was living was a small college town. So I was going to a Christmas party where there was a CDE that was going to be there.

Scott Benner 11:37
Like, I'll just get my I'll corner them with a big time. Hey, so Christmas, right? I have diabetes, I'm just gonna, here's my $20 copay. Please sit still and set yourself free with the Omni pod dash system. Have you considered pot therapy and how you could say goodbye to needles and pens if you made the switch to the Omni pod to boost insulin pump? Well, if you have diabetes, and your body requires insulin, you need to know about on the pod, it can make your diabetes a smaller and more manageable part of your life. People living with diabetes everywhere are choosing the Omni pod insulin management system. Maybe you have type one diabetes, where you have type two and require insulin. Maybe you're the caregiver of adult or a child, it doesn't matter. Everyone who needs their insulin needs an omni pod. Now the best part about on the pot, of course, Mount you know, I could say it's the tubeless pump. It is the only tubeless central pub, I could say it's how small and discreet it is and how you can hide in your clothes. There's a lot I could say. But I guess the best part about this, this message you're getting right now is that on the pod offers a free, no obligation demo of the pod. They call it a pack, which like a pack. Here's what you do. My Omni pod I'm doing right now.com forward slash juice box. Now when you get there, you can request a free experience kit, a pod experience kit, there's no obligation and no cost. So you get a free pack from mommy pod. Miami pod.com forward slash juice box to the links in your show notes or Juicebox podcast.com. Get Your FREE experience kit today. Take a look at the Omni pod where it see what you think. And if you like it, it's simple to get started. All you have to do is let the pod know that you've tried it and you'll like it and you'll want to keep going. couldn't be easier than that. Okay, go get your pack.

Unknown Speaker 13:40
Did you get that?

Scott Benner 13:42
What do they call that? White Coat blindness or I forget there's a name for it. I'm getting it completely wrong, where medical people kind of give short shrift to other medical people because they don't think you need the explanation of what's happened to you.

Laura 13:56
Um, I think though I am inquisitive. So I didn't feel that. No, I was like kind of trying to learn as much as I could. And talking to everybody. I could Yes,

Scott Benner 14:08
you ruin somebody's Christmas party. So you would just stand out for a second. Tell me what are ketones. Okay, so now you find out you're type one. How old's the baby at that point? Just 10 weeks, like a couple months. Okay. Were you back at work by then? Oh, yeah.

Laura 14:25
I mean, I went back, you know, just like, after three months.

Scott Benner 14:30
How did you find managing at that time? Like, what did you call success? I guess like what were you shooting for?

Laura 14:38
Boy, it was a long time ago. And you know, the meters were so different. And I didn't even start they didn't have lantis like, Well, I think lantis was fairly new. I was on ultra lenti these weird influence that would peak at different times. And I think it was on reget. Well, human log was kind of new and, you know, so it was it was Kind of just take some insulin, you know, try to eat in a healthy way, I don't remember ever being told to carb count, necessarily at the very beginning. But that came later. But I also felt like I was in a good place, I felt like I had lots of support, and you know, had a good, good start, you know,

Scott Benner 15:24
so diabetes was at some point, type one was, at some point, just this thing that was sort of no different than a medication, like a disease where you had to take a pill, like, just take your pill the way you're supposed to. And, you know, once a once every year, we'll give you a blood test and stay alive. And that's your goal.

Laura 15:44
Yeah, or even, like, things have changed, like I've worked at a diabetes camp for it's a day camp here in my area. And at the beginning, like I, this was like, early 2000s, most of the kids didn't have a lunchtime shot. Because they would take you know, this intermediate acting with their short acting in the morning, and the intermediate acting would cover their lunch. And so basically, it was just checking blood sugars. For most of the kids, there was a writ, you know, we had a few kids on pump. But there was very little interaction, the kids would, you know, be high all day. And that was kind of the they would tell the parents, you know, like, your kids are going to be high this week, don't you know, and then it was just kind of the norm now camp is like, No, no, no, no, no, we try to make goal and you know, it's a different story. Yeah. So

Scott Benner 16:36
So basically, the tools change the medication and the tools change what At what point did you start counting carbs and sort of doing that? Do you know how long?

Laura 16:46
So I started on a pump? Probably within the first year, okay. I, and those pumps, you didn't put in your carbs. This was before the smart, you know, putting, so you just put in? Yeah, yeah. And so I would just Yeah, and I am like, you could already tell I'm not a real math person. So I would totally just have my calculator with me always and be doing the math for that. Isn't it funny? I've

Scott Benner 17:17
always wondered why older people, you know, in the last 10 years that I've met, were so excited that pumps had bolus calculators when I when I was already looking at them and thinking, and I would rather just make this decision myself. But they were always so like, oh, does your pump have a bolus calculator? That's fantastic. What is the bolus calculators that you know where people like my kit, you know, they'll get on line. They'll say my gave my son insulin, and his blood sugar still going up? What should I do? Well, what does your pump say your iob is? And I was like, yeah, who cares? You know, like you obviously didn't use enough insulin, your blood sugar's high. I will tell you this morning this morning. This is why this podcast is great. Why diabetes is great for a podcast, no matter when I sit down to record it. I have a fresh story about diabetes from six hours prior. But but but this morning, Arden gets up extra early. Because there's picture retakes today. She told him she told me and I don't want to. I can't curse here. But she told me she told me privately I She goes, I really eff up my pictures. Wait till you wait till you see. And then the picture came and I was like, Oh, wow. Yeah. What were you thinking? smiled like that, you know, she goes, I'm gonna retake them. I was like, okay, so she gets up extra early. She's straightening her hair and putting on makeup and doing all this stuff. And as we're leaving for school, she goes, I want to grab something to eat. And I said, Okay, you know, like, so she reaches out, she reaches in and she grabbed some sort of this like little baked pastry thing. And it has some icing on it. I don't even know where it came from the perfectly honest. I didn't I didn't buy it. And and she's like, I'm gonna have this and I was like, Okay, well bolus this much and do this with your bazel. And this is what's worked in the past with this thing. And she leaves the house and I'm watching a little bit as I'm coming home and from dropping her off, and it's gonna be okay. And then I get see it starts to creep up. I was like, hey, let's bump it a little bit. She bumps a little bit and at 140 the arrow turns diagonal up and I think, oh, we missed, and I'm texting or China like razor and I can see it's in between classes. So she's traveling through the harm thing and she's not going to see this. And I'm texting and I'm texting I'm telling you, we went from 140 diagonal up to 200 to up and I don't think we'll never see double arrows around here. And I was like, I'm like I'm like whoa. And she's like, what am I double your bazel for an hour and Bolus two and a half units. And I have to tell you, that was a blind blank I guess as I could have made and now we are two hours later and she's 130 diagonal down. So like I we caught it but it was crazy. It went from 140 to 250. And back to it's it's insane. Yeah, you know

Laura 20:00
And just like you were saying, it's having these tools now. So back in the day, we couldn't watch that we couldn't, it was much more static, you would check a blood sugar, and then you'd see the results, you know, like three or four hours. So you didn't really have a sense that you could intervene like we can now Yeah. And so to me, these tools that we have, have changed it from this static way of thinking of dosing, and that to this more dynamic process that we go through, on a most I mean, like, kind of what you're describing on a regular basis.

Scott Benner 20:38
So then tell me, tell me something that because as we're as we're discussing this, what it occurs to me is that we have this, this, you know, current way of dealing with things, you know, many people have glucose monitors ways to see their blood sugar moving pumps, where they don't have to inject constantly, if they want to give themselves more insulin, they can push a button. But the but the rulebook doesn't. It's almost like we took the rulebook from 1980, and handed it to the people with the technology from 2018. Is that is that what's happening? Because why do people get such bad information about how to manage their type one?

Laura 21:17
But I just think it's, I totally agree, I think we haven't caught up. And I think that it's changing so fast. It's just, and I just think it's changing so fast. And if you're not, like living with it, day to day, moment to moment, right. It's, it's hard to provide guidance for that in a safe way.

Scott Benner 21:45
Have you checked out dancing for diabetes yet? I mean, have you gone to dancing for diabetes.com, or found them on Facebook or Instagram to see what they're really up to? Well, if you haven't, I'm encouraging you to do so. But additionally, if you're in the Orlando area, once you go to dancing for diabetes.com, click on the Events tab, and check out what's happening in May. That's right, the touched by type one conference will be held on May 18. This annual conference is designed for all ages, kids, teens and adults. And the goal is to educate, encourage, and empower everyone touched by type one diabetes, if you have type one, this is the place for you to be, especially if you'd like to hear me speak live about how to be bold with insulin. You're intrigued. I believe what you said not let's let's I'm gonna go with your premise that things are moving so fast. And you know, I come to work every day. Yeah, I don't fall, you know, an endo or anybody because they're they're doing they're doing what they know to do. And the world's pulling away from them. Like you said, you know, it's funny, just put up an episode with tide pool. Yesterday, art and pictures are during the launch, so we won't Pre-Bolus because I don't know how long it will be.

Unknown Speaker 22:56
And I say okay,

Unknown Speaker 22:58
yeah.

Scott Benner 23:02
Text me, as you know. So I was talking to Chris, and I said the same or he just made it, she just knocked it out of my head. Oh, my God. Wait, hold on a second speed of Arden knocked my phone out of my head with their text. Okay, oh, actually, you know, what, my inability to remember what I was gonna say is my point. How is it possible that me, the guy who just had to read a text and then forgot what he was going to say, could could figure it out, but a doctor can't figure it out.

Laura 23:33
I think this really this technique really works for you. And it really resonates to a lot of people and and like the more people I talked about your podcast with and you know, it's, it's fascinating, but there are people that think in a very linear way and you know, this method so so like, you kind of have to find what works for different people's brain in terms of what management is going to work for different people's abilities.

Scott Benner 24:13
But is it actually working for those other people? Yes, yes, there

Laura 24:16
are other people walking around with five to eight one sees who count carbs put it in at a certain time don't think about it again for three hours. They do it in a different way. They do it in a way that works for them like I'm sure and I haven't heard much about like Stephen ponders, we're, you know, kind of that whole thing of that sugar surfing stuff. So that is very much like kind of ORed with the same john Walsh's pumping insulin, you know, where it's all kind of laid out exactly how to dose and, and and that works for some people. So it's like you kind of have I really feel like you have to find what works for you what's safe for you with the tools You have over certain you

Scott Benner 25:01
have to have the right tools. You can. Yeah, I mean, what I'm doing right now with a meter is, I mean, would probably have you testing 20 times a day? I would more or more. Right, right. I would definitely think,

Unknown Speaker 25:15
yeah, yeah. So

Scott Benner 25:16
so I have, so I want to be clear, I don't care how anybody does this. I just want it to work for them. Yeah, I just I don't want

Laura 25:23
no. And I have people that listen to your podcast, they don't do kind of what you're doing. But they love the message. They love the like, hearing people struggle, you know, hearing people go through the same thing. But they're not on CGM. They're not on an pump, and they don't want to yet you know, there's issues, emotional, other, there's all kinds of reasons why. And so they just, they get something from this, so and it's helped them and they're seeing better numbers, and it's just kind of this awareness, this discussion, that doesn't happen in other places. Okay, so

Scott Benner 26:04
it's that you think that it's, it's funny, um, you think the discussion is where the value lies, as much as anything else.

Laura 26:11
So I think for some people, the methodology that can work for, for some people and other people, it's they cannot go there. But they still love listening to people their experience, how they're dealing with it. And so there's an and, and listening about the gift, they're not ready. I know it's hard to believe in this day and age, but some people are not ready for CGM. And it for them to hear all these people talking about it and how useful it is. And that is more than than someone just saying, you need a CGM, you know, it's very much a cut gives value to what their experiences and then they're open to hearing other ideas. Cool.

Scott Benner 27:00
Tell me the this the statement, they're not ready. This What is there?

Unknown Speaker 27:06
And there, you don't want it?

Scott Benner 27:07
And why why do people say they don't want it? Because I have my thoughts, but I want to hear yours, please.

Laura 27:14
There's different reasons. Some people and I deal with kids, but I also deal with adults. And so right now, when I'm thinking I'm thinking of the adults that I that she don't want to feel like they have to be thinking about it all the time. And if it's continuous, they feel like they have to think of it all the time. Whether or not that's based in what their reality should or shouldn't be. That's their reality. And so some people don't want to be tied down to this

Unknown Speaker 27:53
constant

Laura 27:55
thing that they have to look at and respond to.

Scott Benner 27:58
So here's how that strikes me. I'm gonna sound like such a jerk. Oh, wow, I don't do this very often. This is great. I'm gonna be jerky there are some people listening are like, dude, you're jerky all the time. Calm down. But But okay, so that would be to me, like saying that I smoke two packs of cigarettes a day. But I only worry about the health effects of my cigarette smoking on Saturdays between noon and 3pm. Because it's not like me not thinking about it doesn't make it not happening.

Laura 28:25
But let me put it in another way. Please. So so when I listened to you manage Arden's blood sugar's when she was younger, you did it, you know, like she didn't, you didn't want to burden her with all of that. Right? And so you are doing so you kind of it's, it is there for some people is seen as just too much, you know, whether it's where they are, emotionally developmentally, you know, so, so there is this component of Yes, it's a lot of information. And you do have to deal with it if you have that information. Or maybe not, but so I just feel like people are in different spaces, different places. And I would you know, if someone could manage me all the time, I think that would be great. But I'm like, I'm not offering that up to my husband to

Scott Benner 29:24
he doesn't have a podcast, or how's he gonna do so here would be my response to that kind of concept that made me think I guess I don't really know how to say what I want to say

Laura 29:40
this, but I mean, some people are ready and some people aren't and just like some people can't, but I feel like with smoking as an addiction, and that's, you know, I think that's a different place to just stop, you know, but there's also an emotional to this too.

Scott Benner 29:54
Yeah. And I may have had a bad apples to apples there. Maybe I was more like apples to like grape apples, but My thought was is that you can't you can't ignore something for a number of days and pretend that that's taking care of it. Because I don't know what's happening, or I'm not going to think about what's happening. But what I was going to say about the other part was, I hear that it could be my response to this would be, I understand that people might think that what I'm doing with art takes up a lot of time. But what I'm going to tell you is, is that it takes up less time. It once you understand the basic concepts that we chat about here on this podcast, it takes less effort and less thought to keep my daughter's blood sugar between 70 and 120. than it would to not.

Laura 30:37
Yeah, I believe you. I mean, I totally believe you once your blood sugar's high, it's so hard to get it into a good place. And then you're bouncing all over. Yep, absolutely.

Scott Benner 30:45
Stupid analogy, you're driving down the road, your car starts to drift. Do you nudge the car back to the left? Or do you wait till you're in a pothole and off the side of the road, you start turning because that takes more effort. Now you're being pulled off the road. There's other things at play, you have to steer more, it's dangerous, there's a tree there, etc. But when you saw the white line coming, all you really had to do was turn your steering wheel, just maybe a quarter of an inch to the left, you went back again. And so it's simpler to react in those tolerances with smaller adjustments because smaller adjustments create less counter adjustments so when you start swerving that's the roller coaster if you just a little this way a little that way. That's that's the other side of it. So I get the podcast in itself doesn't explain every, every week. What the diabetes that you know how to handle something does that you have to kind of listen through the whole thing and that you do, I do hear a ton of people who say, look, I listened for a while and I finally got it. Some people get it quicker. Some people get it slower. I also hear from there's a guy, Michael who listens, hi, Michael, who said one day sent me a note and he said, okay, you when I'm getting it on the pot. And what I what I took from his from his statement was, oh my god every week, but the sound the pot that I'm just gonna buy it if you like, leave me alone, you know, like, and and now he loves it.

Laura 32:07
Yeah. And so no, I, I just and I can tell you person after person that I've talked to listening to your podcast, and some of them are doing it. And it's and almost everybody is more engaged in their diabetes after when listening to you and kind of this. And, you know, yes, some are following kind of the formula that isn't really a formula, but just, you know, it works. Some people can do that other people. They're not there, but they're still getting value. You know, they're still making changes in their life. And yeah, it's awesome. Yeah. Listen, I

Scott Benner 32:44
got a message from yesterday, I joked with my wife when we got home. When she got home from work. I said, She's like, how was your dad's like, today was since got an email and tell him how great the podcast is today. I said, because I got seven of them today. Which by the way, thank you, everyone. And I will, I will respond to it at some point. But one of them was, you know, from from a woman who was just like, just talking like you like I love the podcast and changed how I think about things and everything. And I said, Can you tell me, you know, would you mind me asking what what struck you the, you know, the hardest? Like, what? What, what about the podcast, catch you looking for whatever I might have said. So I can know to say it again, basically, you know that it works on that it works and people hear it. And she said just not to be afraid. It was such a simple part of the idea because in my mind, and I don't know how I can run through it off the top of my head. But in my mind, managing Type One Diabetes begins with not being afraid. Once you're not afraid, you have to learn how insulin works in your body. You can't do anything until you learn how the insulin works. And then from there, it's all about timing and amount. And in the end, in the end, I don't see it as any more difficult than that base. There's more to it. But if you go back to those three concepts, you're a one sees going down a point and a half just for those three ideas.

Laura 33:59
Yeah. And I have I've so many patients, so many people that I work with that have had a bad experience with a low blood sugar. Yeah. And then they just they they cannot they cannot keep they keep their blood sugar in this very tight range between 200 and 300 all the time, because they're paralyzed with moving it down. And so that at least you know, if the were a CGM, then we just work on 20 points, you know, let's get it instead of 280. Let's try for 250 as your top, you know, yeah, all the time. I

Scott Benner 34:41
say if you keep it steady somewhere, you can keep it steady. Any Yeah. Right. It doesn't like what is the difference between 250 and 150, except your fear? What's the difference between 150 and 80? Except for you're concerned that your blood sugar is going to drop too quickly. And so, I mean, people say but really difficult when when you're faced with, you know, some

Laura 35:04
unknowns. Yeah, or just fear. Yeah, anxiety. Yeah, God,

Scott Benner 35:08
you have no idea of course, perhaps. Yeah, absolutely. I'm gonna tell I don't know if I've ever I've, I've said this yet, but I go to the dentist about six months ago. And I'm a person I hydrate a lot during the day. So I don't think clearly and drink probably what is the equivalent of 110 ounces of water in an hour and a half prior to going to get my right. So I roll into the dentist's office, they're like, Hey, you can come back. I'm like, Yeah, right after I pay. So I go and go into the bathroom. I go in now the girls working on my teeth, 20 minutes or so. And I look at her and I go, Hey, is this a good time for me to get up for a second? Because bathroom again. And so I do it again, right? And then later in the in the visit, she has the doctor come in to look over what she's done. And, you know, talk to me. And as I'm sitting there, she says that she ratted me out to the doctor. She says, you know, he's he's gone to the bathroom twice since he's been here. I'm like, well, that's like, holistic dentist's office. What are we doing here? Like, don't worry about my whole thing, just how's my teeth. And so, and I so I joke, I could go again, like trying to impress them. But I'm saying that because again, I i've consumed a cooler swath of water, you know, right before heading there. And he goes, you really could go to the bathroom again. I said, Yeah, I just I drunk. I drank a bunch of water. He looks right at me. He goes, that could be type two diabetes. Oh, my God. And I went, I went, wait, what? No, I just drank a bunch of water man. And he's like, Well, no. And then he starts talking about it. So the point of telling you the story is I get home, you know, I'm hungry. And I can't bring myself to eat. Because I'm like, What if I have type two diabetes, and no joke, like a rest of the day I kind of could meet. But I got up in the morning, I thought I'd forgotten about it. And I couldn't eat. I couldn't bring myself to eat because everything I know about insulin and my daughter's diabetes. And then this guy puts it in my head that I could have tied to it by 10 o'clock, I'm on the phone with my doctor, I need a physical and and he's like, wow, I'm like, I need a physical now I'm in now I'm at the physical. Right. And, and my doctor, you're gonna get the whole story, Barbara, why not? Let's tell it right here. So my doctor's services you come in the first time, you just meet with the doctor, let them know what's going on. It's 15 or 20 minutes. Excuse me, and then we'll make the real appointment. So that's what I believe I'm doing this day, I'm just coming in to sit with a doctor. I thought it was stupid. I didn't understand it. But I was doing. So I'm in with the doctor for a couple minutes, he starts asking some questions. He puts a stethoscope on my chest. And I think this seems more like a physical than to talk about a physical. It goes a little farther. And he looks at me and he says, I'm gonna need you to take your pants down. And I was like, What is happening? This is the weirdest meeting in the history of my life. And I think I gotta stop you for a second. I was like, is this the physical? And he says yes, the physical. And I'm like, but I was told I was coming in for a meeting. Oh, I don't know why they do that. So five minutes later, for everyone listening, I'm facedown on the thing with the doctor standing behind me thinking when I get out of here, I'm gonna go find this dentist and punch him in the face, right? Because look what has happened to me. And then the whole thing gets done, because we'll do a little blood work because it's part of the physical everything and he hands me the orders for the bloodwork. And I say my I see you didn't put a one C on here. And he goes, Oh, you don't have type two diabetes? No, no, no, I'm like, I want the a one c done. I was like, I don't care about the rest of this. And, and you're gentle man. But please do the a one seat. So anyway, there's a way funnier part of the story that's inappropriate for the podcast. But nevertheless, I get my one seat on May once he's fine. And, and but thank you, but but the point is, is that for three days, I couldn't barely bring myself to eat, because I was so afraid of what my blood sugar might be doing. And so I now have a renewed sense of how people must feel when they say they're scared. It's a little it's different. But I'm a little closer to the understanding at this point. You know, yeah, it really was sort of insane. I say it all the time. I get that if you're if you live alone, and you're an adult that what we talked about might be more difficult. If you don't have a CGM, it's in it would be a leap to do some things. Right. But what I would say is if you have insurance and you are financially able, in my opinion, just go into the podcast player, click on the link and check out Dexcom because that's how you could do this stuff. I mean, look at Arden's blood sugar right now is 112 now, so so it's so sweet. We

Unknown Speaker 39:45
want 12 right now,

Unknown Speaker 39:47
are you really? Yeah,

Scott Benner 39:48
I just looked down that might be the name of the episode. So but but but I mean, think about what happened. Arden ate something completely. Sugar rific this morning, we weren't able to Pre-Bolus the We wanted to we missed on the Bolus, readdress the Bolus within 25 minutes. And squelched a pretty severe spike and brought it back without making it. And, and that's, that's, that's common and wearing a pump. That will that was because we use temp basals in there and all kinds of other stuff. Unlike a blood glucose meter, which provides just a single glucose reading Dexcom provides real time dynamic glucose information every five minutes up to 288 readings, a 24 hour period, you can gain valuable insight about your glucose levels, including rate of direction and change. This will give you additional insight to proactively manage diabetes. What can that lead to? How about a reduction in a one C, reduced hypoglycemia, and active monitoring while you're sleeping. These are a lot of fancy ways to say peace of mind while you're sleeping, and the ability to see the speed and direction of your blood sugar. And if you want to know how someone gets an A one c reduction with a glucose monitor, here's how we do it. You hear us talking about all the time in the podcast. But if Arden's blood sugar tries to go over 120, we bump it back down again, the dexcom g six tells us, hey, you're rising. And then we can use a tiny bit of insulin to stop that rise when you only use a small amount of insulin for the rise. And you know very frequently, what I find for us, you know, your results may vary. But for us, when we use a little bit of insulin to stop arise, the likelihood of a low later. pretty unlikely, because you've only used a tiny amount of insulin to stop that 120 that's just starting to come up. And then you stay off the diabetes roller coaster, no bouncing all over the place. That's just one way that Dexcom helps us. The next thing you need to do is go to dexcom.com forward slash juice box or click on the links in your show notes. Where Juicebox podcast.com to get started today with the Dexcom g six continuous glucose monitor the best decision you'll ever make. In your opinion, if you could if you could take away people's you know how they feel for a second. We'll just we'll just take away people's Free Will for a second. If you could take freewill away from people for a second. And you were in charge of how people manage their diabetes. Would you put them on a pump?

Laura 42:29
I don't think a pump is as important as CG CGM. Okay,

Scott Benner 42:34
so you would definitely put them on a CGM. If I took away their Well, you would.

Laura 42:38
But it's so interesting because we can't get it covered by so for so many people. It's not covered.

Scott Benner 42:45
How is that? What what what ends up happening? Because their insurance covers it. You just can't sort of No, no, no,

Unknown Speaker 42:52
no, not at all. Not at all.

Scott Benner 42:54
Is it an age thing? Is it a? Is it an A one c thing?

Laura 42:58
No. We just got like Medicare to cover it about a year and a half ago or so. So that's been a huge. It's been wonderful. I mean, there were people that turn 65 and had to lose their CGM. Yeah, this is like crazy. So, um, but so that's good. Medicare is now covering it, but like the state insurances aren't. And yeah, and then the cost like some people have these, you know, they work for a small company, and the insurance isn't great. And they have to pay exorbitant amounts, basically, almost the whole cost of it. So I mean, there are a lot of people that if anything, we could change to me, it is the standard of care. We need everybody to have the availability to have it available to them. It would, it would save so many hospitalizations. You know, there's so many things that would be a benefit. But yeah, people can't get it.

Scott Benner 43:53
And so what are the What does the What do most insurance companies try to say when you say this person needs to see gym they go? No, they don't? Do they say they don't need it as they call it? not medically necessary? What do they? Yeah, so

Laura 44:04
then we have to do these prior authorizations. We write letters and they still say no, no.

Scott Benner 44:10
And does it once in a while workout, or do you have to have like some like PDF to show

Laura 44:14
we had the patient and this is gonna sad, very sound very sad, but he didn't have any fingers. And so out of all of these patients, one patient I know of God

Scott Benner 44:25
because he couldn't test his blood sugar because he didn't affect

Unknown Speaker 44:28
Oh, well. And that's what I mean. He could still test his blood sugar but but not it was Yeah, yeah. Yeah. Oh, my God. Yeah, that's

Scott Benner 44:34
not good. Oh, yeah. realities. I do think that we're probably I mean, I don't know. I really do. I'm not. I'm not being coy. I don't know. But I would imagine that once Dexcom gets the transmitter portion of the process smaller. That probably is the space where they can then say okay, We're gonna make this more mass consumable financially, like you would, you would think that's what is because they've that, you know, here's what I don't think people get about diabetes companies in general right is they're smaller companies than you think they are. They're not these giant, you know, they're not for the most part giant conglomeration. spintronics have, of course, a much bigger part of a pharma company, but are a smaller part of a pharma company, which makes them bigger and more powerful. But if you have on the iPod, or even Dexcom, those kinds of these are companies that sell one.

Laura 45:33
Yeah, and I live in Southern California. So I'm right there where Dexcom is, and yet I've gone into the factory or whatever you call it and, and talk to them. They are I it really feels like a small business as it is. Yeah. Love that. Yeah, they're very helpful. They're wonderful. But yeah, I just think we just need to get we need we need more help to make it so it workable. Yeah.

Scott Benner 46:05
Well, I have a, it's, it's, it really is such a crazy conversation, because it should, of course, everybody should have it. And at the same time, you know, there's an argument to be made for if the company doesn't make money, then none of us are going to have it. And you know, like and, and insurance companies should be you know, Bob, there's just there's so much it's just such a I imagine you see it every day, right? It's such a convoluted web of BS, I imagine.

Unknown Speaker 46:32
Yeah. Yeah.

Laura 46:34
It is. And it's frustrating because people just want it. People want nobody wants to do poorly with their diabetes. Right, right. Nobody does. Nobody does.

Scott Benner 46:47
That getting too low is a good reason to need a CGM. But getting too high is not like like, why is that? Why Why is it isn't it? I mean, so the insurance company values not dying today, but they don't value not dying next week? Like what? Yeah, what what why would that even be so it really isn't about your health as much as it is about

Unknown Speaker 47:11
I guess sweating out, I

Laura 47:13
guess. I don't know. I hate I'm not a cynical person. But, um, but you know, just know that it there are challenges out there. Why people can't use these tools that are available. Mm hmm. Yeah.

Scott Benner 47:26
I hear you. Okay, so, jeez. Well, what would you Okay, so you would give you would give people a CGM. If you if you were, if you were great and powerful Oz, you could take care of everything and just do whatever you want in that CGM would definitely be there. What do you think about?

Laura 47:42
Like, there's still, there's still especially there's people that don't want to have things on their body? And so it's not gonna be for everybody. But um, you know,

Scott Benner 47:53
Oh, absolutely. No, I hundred percent agree that there is there. There is a trade off though, right? though, if you if you, it's no different than if you look back to, you know, go back 30 or 40 years, and someone says, Look, I've been taking care of my diabetes for a long time without a meter. I don't need a meter. And, and because that is really I ever, you know, I know, people who were diagnosed when

Unknown Speaker 48:13
I see patients every day like that, yeah,

Scott Benner 48:15
yeah, I don't need a meter, I'll be fine. But but in the long run, they're not going to be fine without a meter. Right.

Laura 48:21
I, so I worked for, I don't know, 17 years, or no 15 years, with kids with diabetes. So I rarely saw complications. And then in the last three years, I started working with adults with diabetes. And so that changed my whole perception of what we do in pedes. And I still work one day a week at at the Children's Hospital and four days a week now with adults and young adults with diabetes, but it's just seeing all the complications has really changed my focus on our pediatric care to really engage kids, so that they're more like, active in their own care, and transitioning to adult, you know, independent care in a more seamless way.

Scott Benner 49:18
And that takes time. Is that is that your I mean, that's how I see it.

Laura 49:22
Yeah. Oh, yeah, it starts. Yeah, yeah. Very, very young. Yeah.

Scott Benner 49:27
And that's just I think it's a very slow I see it just like every other parenting idea like you don't, you don't grab your eight year old and start yelling at them about this is something you need to do get it done right. This second, like, you know,

Unknown Speaker 49:40
yeah,

Scott Benner 49:40
I think I think as a parent, my I was telling my son this recently, I'm like, he's like, what do you think your biggest job is like in parenting? And

Unknown Speaker 49:49
I said, Well, I

Scott Benner 49:50
think it's repeating things without getting annoyed. You know, because I think there are certain things you're going to need to hear a dozen times 100 times 1000 times. In a way that doesn't make you tired of hearing it.

Unknown Speaker 50:02
Right, you know, I

Scott Benner 50:03
think it's my job to kind of watch what's going on and keep directing you in a certain direction without you sometimes knowing you're being directed, you know, asking you, I did it to him the other day, and he's a college I, I told him something about his sister that I wanted him to know about himself. And if I would have told it to him about himself, he wouldn't have heard it. But when I told it to him about somebody else, he was like, Yeah, I see that. So you know, like, I think that's my job. My job is to manipulate you privately behind in a very kind of loving, right, yeah, yeah, let them let them have the idea. But you're basically showing them something in a way that doesn't make them immediately put up a defensive wall about that's, that's my thought. And, and so he was, you know, and I've seen it work, and it's working with the diabetes very slowly, just you know, even last week, or this, excuse me, this, it's been Arden's been a freshman now for about a month and a half or two months. And she's like, I don't want to set alarms anymore to remind us to Pre-Bolus for lunch, I'm gonna keep track of it. And I was like, Okay, great. Oh, great. Oh, good. So, you know, last week, I'm losing track sheet

Unknown Speaker 51:20
today. How did you do with that?

Scott Benner 51:22
I'm fine. I don't, I'm just I just stay fluid. My whole thing is just a float. So I'm like, so I'm like, okay, but she has a days and B days, and there's lunch on different times a day, and I lose track. You just saw me read a text and forget what I was gonna say. So I don't know if today's in a day or a B day, right. She either has lunch today at 1030 or 1130. I don't know. Because I don't know what that is. So one day, I'm like, oh, it must be. I don't know what day 1130. And 11 1030 goes by and it's quarter 11. It's 11 o'clock, and all of a sudden, I see her CGM change in a way that like, I was like, I didn't expect that that you know, and then the diagonal up arrow, which you know, I'm like, wait, what, what's happening? And then boom, I text her. I'm like, hello. She's like, um,

Unknown Speaker 52:09
I think I want to eat.

Scott Benner 52:20
Oh, my God, I eat. I'm like, how much is I've been done for 20 minutes. So everyone knows Arden's, you know, lunches are like a conglomeration of like, stops. I was like, uh, uh, and I think about what's in there. And I think, okay, if we would have done this on time. I think this is like 12 units. But now she's 20 minutes past having eaten, she'd probably been eating for 40 minutes. I'm, we're screwed. You know. So like, I was like, double your basal for an hour and a half. And then I bolused what I thought the food was gonna take plus, like three more units. And it went to 280. You know, but it came back. Right. And so and I wasn't upset. I was like, this is how most people rock, you know, like, so I was like, it'll be okay. And yeah, right. And everything was fine. And she got home and I was like, Hey, no big deal. Like we got your blood sugar back. No problem. I said, but you know, I need you to, you know, it's fine. If you don't, yeah, just remember, she's like, okay, like, five days later, it happened again. And now and now you see her? Like, she just texted me, hey, they're gonna do our pictures during our lunch. So we can't Pre-Bolus now that in my mind, is my daughter learning a lesson without feeling bad about it right without being like yell, yelled at, or directed or dominated or something like that. Just let it let let some experiences happen so she can learn from

Laura 53:41
them. And I think you know, that's awesome. Because, you know, some, I see some situations where it's all on the kid. And that doesn't work. Well, you know. And so it's just this intermingling of an adult brain and the kid and, you know, kind of helping that person figure it out. Helping the child figure it out, is key to success. And so that they're not alone. They're in that you guys are talking about it awesome. And that's how people can kind of transition to independent care in a more seamless way for sure.

Scott Benner 54:26
Don't forget to check out dancing for diabetes at dancing for diabetes.com they're also on Facebook and Instagram. That's dancing the number four diabetes.com if you'd like to see me speak live about being bold with insulin I will be at touched by type one and event run by dancing for diabetes, go to dancing for diabetes.com and click on the Events tab. You can't You can't say you can't do your thing. You can never throw your hands up with anything but diabetes especially can't go I don't know where this is the best I can do. Like, that can't be an answer. And I and I, I heard a person say the other day about their child with diabetes, that they were, you know, unable to mad, like pay attention to this kid's blood sugar as much as they wanted to during the day. And their blood sugar was getting pretty high from it. And as I was trying to imagine ways to affect that, they said, well, it's, you know, it's just, I can't do it. And I was like, wow, wait, what? Like, like, that's a strange idea. Like, like, to me like the the idea of, well, it's beyond what I can do. And I understand there could be a ton of reasons could be work related, it could be sleep related, it could be money, there's a lot of different reasons. But there's also usually a different way. If you if you just keep, keep wondering about it, like, just keep looking into it. Don't just keep running into the same wall over and over again. But think differently, you know, what I mean? Like, like your outline, or whatever you want to say outside of the box, or whatever. But once you've applied your thoughts to this, and you've come to know, answer, find someone else's thoughts. You know, because they said this to me, and I said, Well, have you considered this? I gave them my idea. I'm being very vague, because I don't want to ask somebody, I gave them my idea. And it turned out, they hadn't considered that. And now that's what they're gonna try. And I do the same thing. My wife said to me the other day, hey, we're not going to be able to go on this spring trip with with Cole's baseball team because of this. And I said, Well, why not? Why don't we try to figure out how to do it? And she's like, yeah, maybe we can. But it was her first inclination that it wouldn't work. And you always have to, if you if you can't imagine how to do something, find someone who can. That that's all I please never say the the dreaded sentence about diabetes. That's just diabetes, I please you make you make me crazy. If I even think you're saying that somewhere in the world. Never say that's just diabetes. It's something else. And keep trying. Reach out, find community, ask a person ask your doctor ask. Write it on a Facebook page. I don't know yell it out your window. Maybe your neighbors got diabetes, though. Y'all back Bolus. I don't know how it'll go. Tell me. So tell me this as we wrap up, what you think fears, the biggest hurdle that you see people have? Right? What do you think gets them past the fear?

Laura 57:21
For people that are really struggling with that fear? I think small changes, make big differences. So just kind of that idea of, you don't have to be 75 to 120 all the time. And that's just overwhelming when they're comfortable in this 250 range. But just you know, just for a week, and it's gonna be really, really hard. Try accepting. If you're, if your comfort zone is 252 30, for a week to you know, just bring it start bringing it down and wearing a CGM. You know, that, to me, that really seems to help. But I think also, I think everybody in diabetes needs to see a therapist, I really do. I think you're dealing with something that you have to think of every moment of every day. I think, you know, whether you're going to sleep or you're working out, or you're eating things that are basic to life. You have to have this other thing in your mind. And so it's overwhelming. And so I think it's a good idea if you're struggling, if you if you're having a hard time getting to goal, you know, keeping your time in range, then yeah, go talk to somebody. I think the emotional thing is, is pretty high. Spectacular advice.

Scott Benner 58:52
Quick question. Yeah. How low is too low? If you're steady at it? So let's say you're not falling, right? There's no danger, you're gonna fall. My blood sugar's 80. That's fine, right?

Unknown Speaker 59:04
I think so. Okay. 70.

Laura 59:09
Because you have insulin, working on your body.

Unknown Speaker 59:14
For

Unknown Speaker 59:17
most people

Unknown Speaker 59:19
70 is you're on the edge,

Scott Benner 59:23
because you're considering you're gonna keep falling.

Laura 59:26
Not necessarily everybody. So let's say they got to 70 after being 200 or 250. You're not going to feel good there, either. So some people, like when they've had highs for a long time, they may start feeling a low at 120. Right? They just, you know, they need to get to a spot where they're not in the two to 300 all the time. So they feel normal at 100. But 70 to me, especially in kids, and if you don't have a CGM, no way so So, to me, there are some limits and, and, and there were some studies early, like I don't know, 10 years ago about brain development and hypoglycemia, but those were studies before CGM before, you know, so I don't, you know, but so I don't I don't really know. And then there were studies in adults with a when seagulls you know, with type two, these were older people with type two and they thought, Oh, if sevens good, maybe we should get them lower. And that accord study showed that there was in this is an adult older population with type two diabetes so not really relatable. But there was more sudden cardiac death in patients who had a one sees less than 6.5. So how are we saying that a low A when C is that great either we don't have the data. So

Scott Benner 1:00:53
we have two mixed thoughts here. So let me let me unpack them for a second. So I get that if you're a person who's had a high blood sugar for a very long time that a 120 could feel like low, and that you want to come down slowly as your body gets used to it to stay on there. My but my question that I probably didn't phrase correctly was, I'm just wondering, when is it in the moment not forget long term, but in the moment, when does it become detrimental to your brain for your blood sugar to be at a certain thing, like I here's my thought, and, and I don't want Arden to be under 70 for any long period of time. But if she gets to 65, and it's going to sit there for a few minutes, I'm okay with that. If she hits 55, overnight, and I can trim a bazel and bring it back in 20 minutes or an avoid juice. I'll do that. Don't get me wrong, if she's 55. And she's falling. If she's 55. And she has, you know, I would counteract it with carbs right away. But if she drifts to 55, and then bounces right back again, and I'm talking about in 15 or 20 minutes, I don't think of that as horrible. It's not something I would want. And I don't think it's that it's healthy. But I don't think she's about to die either. And, and so I think that there's all I'm saying is I would like Arden's blood sugar to be above 70 and sitting as stable as possible. But I think it's important for people to understand that if their blood sugar should go to 65. They're not about to expire, and they haven't caused a third of their brain to die, or. Right, right. They just

Laura 1:02:26
need to act on it. Yeah,

Scott Benner 1:02:28
right. Do something. Yeah. But see, the reason I bring that up is because is because Do you have any idea how many people you see whose blood sugar's get to 120. And they start eating carbs. Because they feel incredible.

Laura 1:02:43
I talk to people and they say, my content, like a medium for the first time. And they're like, my comfort zone is I like to be 150 to 200 because that's where I feel good. If I'm lower than that, I feel low. And and so then there's this discussion, they just help, you know, they, it's just a matter of getting more information and getting, you know, because they're just going on how they feel like

Scott Benner 1:03:09
they made their body accustomed to something. Yeah, not right for that health. You saw a post online once, that said, we almost lost our daughter last night. And I was like, Oh my god, this is horrible. Her blood sugar got to 68 they thought she was going. And I was like, wait, what, what are we talking about? And so it said, I'm reading and I'm like, wait, maybe I'm thinking maybe she was 68. And they used a you know, like, like, I don't know novolog that Atlantis at night or something? They put it but eight units. And I'm like I'm so I'm trying to figure out what's going on? No, no, her blood sugar just gonna see jam. She drifted to this number. And, and sat there for a few minutes. They they were breaking out the glucagon. And I was like, Oh my god, it's 68 I'd be like, if I trim her bazel back 50% for an hour. We sleep all night. And I wake up and she's like, like, that's how I started thinking about it. This poor girl was almost in the hospital. And I was like, oh, gosh, and that's the misconception.

Laura 1:04:09
box the reality of everybody's coming from different places in terms of their understanding. And, you know, they're with they've been taught it's, you know, and and yes, we I think, you know, keeping your blood sugar over 70, you know, is a good idea. But when people are in tight control, they are going to drift down and just so long as they're dealing with it and bringing it back up. And yeah, you do not want to be you know, in a danger zone. Or often. Yes. Right, right. And that whole thing about the CGM is to kind of look at that time and range. You know, you can have a great day one See, but if you're having more than say 5% in that low, two areas, you know, yeah, you know, you kind of want To think, what could I do to get myself more in the green?

Scott Benner 1:05:04
By the way, too, I wanted to I don't have the person's name. I'm not calling anyone out, but to the person who said their clarity app from 50 to 300. And then posted Look at me, I was in range 100% of the time. Shame on you. Okay. I mean, seriously, between 50 and 300? Where are you in? 24 hours a no hitter? Uh huh. And I was just like, it was like, Oh, my gosh, like, look at this. This is like, and because joking aside, this poor person doesn't understand what they're supposed to be doing. They said, they said, it's like saying, you know, I don't know, I've got all five lanes of the highway, I never left my lane. Like no way what you're supposed to stay in between the white lines over here. If you drift a little bit, you've left your lane. And and I all I could really think was two things. First of all, what a horrible misunderstanding of what, what their health is about. And, and secondly, look at what they're showing to all these other people, because people are like, Oh, my God, that's amazing. I'm like, it's amazing. Was it How was that amazing? It's, it's, it's a misunderstanding of what you're doing. And, and so my point is this. And we started off by saying this in the beginning, and I still steadfastly believe what I'm gonna say. You said, Just now, it all depends on where they come from and what they've been taught. In my heart, I want people to be taught that that insulin is dangerous, and they need to respect it, but they can't be afraid of it, if they're afraid of it, that their health is going to, it's going to, at some point, suffer that they have to make smaller adjustments, because that keeps you off the roller coaster that highs cause lows, because you use a lot of insulin at a time when eventually the food leaves your system and and what's left behind is the insulin. If your blood sugar is high, you've likely have mistimed your insulin or miscalculated or combination of the both. And if your blood sugar is low, you've likely Miss times your insulin miscalculated, or a combination of the both. If you can afford this technology, please give it a try. I know you don't want it attached to you, or whatever else you're thinking. But just give it a try. If you don't like it after you try it, and then don't use it. But don't say, That's not for me, if you've never tried it before, I think if people got that simple direction earlier in their time with diabetes, that we'd see more people who could say, who would understand the 275 is not in their range. And and I just want you to know, it's your job now, to go tell every CD that I would do it, but no one's asked me to.

Laura 1:07:33
It's funny, you know, like, you talk about it, like a tug of war. And, um, I kind of think it's more to me, I mean, I like the tug of war thing. But, um, I kind of like the idea of it's like, it's like driving a stick shift. Okay. So when I, my husband and I met in high school, and like, I was learning how to drive. And he was teaching me and I was, like, I was very linear at the time, I think. And I said, Okay, and write down exactly when I'm supposed to change gears. You know, like, I want it exactly. I want you to spell it out. Exactly. And he goes, Hey, Laura, you just got to feel it, you got to know when you know, to lead off and when to give and, and, and to me, and then yeah, sometimes you saw, sometimes it's not perfect. But you can still get up the hill, you know. And so it's like to be it's kind of like that kind of it's a given take, it's kind of like how you have to feel it. And now we have these tools, like you know, the CGM to be able to see the result. You know, I don't know what that is in a car. But you know, like, basically,

Scott Benner 1:08:53
it's your head not jerking around when you shift. I like what you're saying about the idea of you have to feel it. I fear though the concept of a stick shift analogy has just struck three people that are listening and no one else. My I said to my daughter the other day.

Unknown Speaker 1:09:08
Right? I'm so old. Yeah.

Scott Benner 1:09:11
Not at all. But that's so funny.

Unknown Speaker 1:09:13
I know. I

Scott Benner 1:09:14
just I really believe that. There's, I genuinely think and I understand what you were saying before about doctors are in the moment. They're teaching it there. They're not living it. But if I could figure it out, and I can find a way to pass it on to somebody else, because the podcast is all well and good. But I could line up hundreds of people for you who've called my house. And we've had 45 minute conversations that have changed their entire perspective and put them on a new path. If If I can do that, then certainly a doctor can do that. And I'm sure maybe not everybody I've ever spoken to has gotten off the phone and been like, Wow, my life has been changed. Some people probably hung up and went well, that's not for me. And I get that. But there's no there's no reason And not to present that information to people? Yeah.

Laura 1:10:04
Yeah, I think I feel really fortunate because the university that I work at two of the attending, I have type one also. So it's like, and they teach the fellows. So they are teaching. So it's a different, it's a really good setting for that I feel like to get to what it's really about. Which I don't think everybody has to have diabetes to treat, I don't want that to be the message at all. But I think having a personal connection, and understanding and and that's true with any aspect of anybody's job, if you can connect with people on a personal level, and really try to understand what they're going through day to day. And if you can, you know, basically walk in their shoes, understand what's going on, whether you have type one or not. But just understand that you know, what people are facing every single day and the decisions they have to make to stay in a good place is important that you're

Scott Benner 1:11:06
not just reading to them from a manual, which is, as we talked about earlier, likely was written 20 years ago for technology. Nobody's using now. Okay. All right. I hear you. All right, go to work. And everyone, please log on at 630 her time with me in the morning. If someone said to me that there was $1,000 in my backyard, but I had to get it at 630 in the morning and be showered and dressed I'd say you know what, how badly Do I really need that money. And so and Laurie did this for free. And so thank you very much. I really appreciate you sharing your insight, especially with the work you do. And I genuinely appreciate you getting up so early to do it too. So I really do. I just want to say thank you.

Laura 1:11:48
Well, thanks for having me come and talk. I really appreciate it but I want you to know that there are so many people that aren't reaching out to you that are also I mean, I've someone from Mexico told me about your pot I mean, like you're reaching people all over and it's it's just powerful and I just want to thank you so that people can listen to these conversations and and just feel like they're they they're not alone in these decisions they have to make every moment

Scott Benner 1:12:17
I appreciate that so much it's so incredibly such a nice way for me to start my day so thank you and anytime someone mentions the podcast to them please pass my thanks on I really appreciate that

Unknown Speaker 1:12:27
they listen. I will thanks Have a great day. You too

Scott Benner 1:12:34
long show so I'm going to give you a short outro Thanks so much to on the pod dex calm and dancing for diabetes for sponsoring this episode of the podcast please go to my on the pod comm forge slash juice box dexcom.com forward slash juice box or dancing the number four diabetes.com these links are available in the show notes of your podcast player at Juicebox podcast.com. And by now I'm assuming seared into your brain because you've heard me say it so much. And even though they didn't buy an ad on this episode if you find yourself at real good foods.com use the offer code juice box to save 20% of your order. Thank you so much to Laura for coming on and being open and honest. In this episode. I quite enjoyed our conversation. I hope you did too. We'll be back next week and every week with another episode of the Juicebox Podcast.


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#219 Diabetes Pro Tip: Insulin Pumping

Scott Benner

Scott and Jenny Smith, CDE share insights on type 1 diabetes care.….

I am thrilled to welcome Jenny Smith, CDE back to the show. Jenny will be joining us for an extended series of conversations that focus solely on the management ideas that we discuss on the podcast.

Jennifer holds a Bachelor’s Degree in Human Nutrition and Biology from the University of Wisconsin. She is a Registered (and Licensed) Dietitian, Certified Diabetes Educator, and Certified Trainer on most makes/models of insulin pumps and continuous glucose monitoring systems. You can reach Jenny at jennifer@integrateddiabetes.com.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon AlexaGoogle Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello, everyone, and welcome to the sixth installment of my diabetes pro tip series with CDE Jenny Smith. Today, Jenny and I will be talking about insulin pumping. But if you're not using a pump still listen, lots of good information. As a matter of fact, listen in order, you want to start at the beginning and work your way through this series is designed to tell a story. This series is a narrative about how I manage my daughter's type one diabetes. The ideas you're hearing in these episodes, coupled with my favorite technology, is how we've kept my daughter's a one c between five two and six two with absolutely no diet restrictions for over five years. And while we're talking about that, this episode of The Juicebox Podcast is sponsored by Omni pod Dexcom dancing for diabetes, and real good foods. To get a free no obligation pod experience kit from Omni pod go to my omnipod.com forward slash juice box. Want to check out the Dexcom g six dexcom.com forward slash juice box. Go to real good foods that calm and when you place your order, use the offer code juice box and save 20% on your entire order. And never forget to go to dancing for diabetes.com just to see good people doing good things for people living with type one that's dancing the number four diabetes.com

Welcome back to the diabetes pro tip series with CDE Jenny Smith, I'm glad you're here. In this episode, Jenny and I talk all about insulin pumping and the ideas that surround the practice. Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And always consult a physician before becoming bold with insulin or making any changes to your medical plan. And double Don't forget that if you're interested in hiring Jenny privately, you can do that at integrated diabetes comm You can find links for Jenny at Juicebox podcast.com, or in the show notes of your podcast app.

We are back talking about insulin pumps today. Awesome. And the idea of pumping in general not any specific pump, although we might go over the ones that are available at the moment. So we discussed in the MDI episode that it's tough to get an insulin pump right away, you'd have to be have great insurance, you'd have to be able to get over the What do we want to call them roadblocks that some endo offices put up to you getting? Right getting an insulin pump. But but congratulations, if you've gotten that far, and you're thinking about getting an insulin pump. Why do you think? Well, do you think Let me ask you, do you think pumping has advantages over MDI? And if so, what are they?

Jennifer Smith, CDE 2:55
Yeah, I mean, a broad a broad statement. Yes, there are advantages. I think there are pros and cons to everything. But there are a lot of pros. I think one of the biggest ones is precision in dosing. I mean, you know, from the standpoint of injections, we can dose accurately, I quote accurately, to the half a unit with an injection, right? I mean, I've even got a couple of friends who still do MDI don't like pumping and, and they've sort of figured out how to get that quarter unit in an injection. But is that accurate? No, it's not like the pumps accuracy, you know, pumps can pumpkin, pumpkin get down to the point 05 or the point 025 of a unit. That's, that's precise. That's minuscule, you know, and for the broad spectrum of people that need insulin in different doses, the very, very little to the adult who is very, very sensitive for whatever reason, that can be important. So,

Scott Benner 4:07
okay, and I agree, I think that when, especially when they're younger, I've used mo I've had moments with Arden where it's a point one or a point to Bolus that can really move somebody and the, you know, the obviously, the lower your body weight, the more that kind of precision makes incredible differences. I guess the con to that can be if you are so small, it's possible that it might be difficult to set your basal rates up because if your basal needs are that little in the beginning, you can do that. I've seen people do all kinds of crazy stuff like set a basal rate on for one hour off for the neck, back and forth. And that's that there's a way to get through that. I think if you have a smaller child and you want to pump, there's a way to accomplish it. There is

Jennifer Smith, CDE 4:55
absolutely so precision definitely and then you know i The icebergs that kind of pop up in your day. And you know, you I know your strategy and a lot of people strategy is kind of the navigation of blood sugar, right? And utilizing the smart tools on an insulin pump smart being things like the extended bolus and the temporary bazel feature. You cannot do that with an injection. You just can't. And that is that's another huge pro to a pump.

Scott Benner 5:29
Yeah, I, I can't say I agree anymore. I'm in full agreement. I didn't understand it all about pumping. When Arden was injecting, right? There were just a lot of words I didn't understand people would talk about bolusing and all that. What's that carb ratio? I have no idea. I know a little bit for me, Jackie. But it was so much more specific talking about pumping. I had its own language. And I've mentioned before that as we were in Arden's pump class at at her children's hospital. And I recognized that insulin was going to be used, like fast acting insulin was going to be used as basal insulin. Yep. And that I could turn it off and turn it back on and increase it and decrease it. I'm telling you angels,

Jennifer Smith, CDE 6:11
like a light bulb light bulbs are going off,

Scott Benner 6:13
like everything happened. I was like, okay, immediately. Yes, please. I genuinely think that before you have a pump, and for a lot of people after you have it, people just believe the pump is a way to avoid injecting. And I want to I want to, as we do the overview about in some pumping today, I want to show them that it's just so much more than that. So it is

Jennifer Smith, CDE 6:36
absolutely and I think another piece to definitely clear up. Even for anybody who might be listening to these that doesn't necessarily interact or is a caregiver for somebody that with diabetes, but they've come across it because they just want information. A pump is not the magic, do it all. You don't plug it in, and it takes care of everything that is is not the case. And for those who might be dying, newly diagnosed in our hearing Oh pump is like the magic thing. It does all these ones. It does what you tell it to do. And it does it based on the parameters you set within the pump. There's it's it's personal input is what makes the pump as beneficial as it can be. So you can then see that if you don't know what you're doing.

It could be not that's the best thing.

Scott Benner 7:31
Sometimes you hear people say I've had this pump for a month. And I'm thinking of going back because I think they had doing what I need. Yeah. And I think they had that expectation like look, I bought the pump I put it on Why did my UNC not go down? How come my spikes aren't going away? Why is my body and in some cases, people's blood sugars get worse in the in the in the beginning because they don't get their bazel setup correctly, right. Or, or I think for some people, your insulin needs change, sometimes greater or lesser, when you go from injecting the pumping

Jennifer Smith, CDE 8:03
because of the precision, especially of that bazel, sometimes with the imprecision of an injected basal insulin, and the fact that it isn't based on your physiologic need and the change through the course of the day, that basal insulin could be off via injection at a time when you need less insulin. And so things look like they're happening around a bolus when it really isn't the bolus is problem. It's the bazel. So getting that bazel set is huge. It's like the foundation of a house and the opposite as well to not instead of the boluses problem. You can't You can't give the Bolus credit. Sometimes Sometimes you have a lower stable blood sugar that you think you made this great Bolus off Oh,

Scott Benner 8:48
but but your 11 year or your lantis, you have too much of it, or it's just it's working stronger at that point or something like that. So when you switch to a pump, and you go to these more precise basal rates, using a fast acting insulin in the background, then if you don't have that correct at that number, you don't you no longer have that sort of like I don't know what to call it like when you inject basal insulin, it's just sort of a Is it a catch all? Is it a is it it's a blanket of insulin that you made?

Jennifer Smith, CDE 9:18
Yeah, that's a good way to think about it. It's kind of a blanket of insulin, but it's not a blanket that's always warm and cozy at the right places through the course of the day. I mean, I can my example is before I started pumping, I was using Lantus was my basal insulin, and I took it in the evening. If I did not have a snack, when I went to bed after taking it, I could have bet a million dollars that I didn't have that I would have a low blood sugar between two and 3am. And that's because

Scott Benner 9:49
your new basal insulin starts coming online and it works.

Jennifer Smith, CDE 9:52
And it worked the way that it did. I needed less insulin at that time, but lantis didn't know that Atlantis was like, Hey, you put me in here. I'm gonna get a tour of this, I'm going to do my thing that I was supposed to be doing right. So I needed at that dose for the rest of the day. But I didn't need that dose for that action time of the morning.

Scott Benner 10:11
So that's our first kind of lesson here with pumping, when you get an insulin pump, your basal rates need to be dialed in. And there's two things about that. The first thing is, and this, of course, is not true for everybody. But I do meet a lot of people whose doctors under welcome them with basal insulin, when they put them on a pump I because they don't want to cause a low, they don't necessarily tell you that going out of the office or you don't expect it. And so you get hot, you get home, you're high all the time. And it doesn't ever occur to people that it's bazel. So I get on a pump, get the bazel. Right, I think the next thing is

Jennifer Smith, CDE 10:48
one one comment about that as adjustment factor. And you mentioned it before insulin use may change going on a pump, we usually find give or take, we usually find that when you start on a pump, your bazel injected insulin dose in the pump will need to be about 10, sometimes 20% less than what you were injecting in your basal dose. So let's say your basal insulin is giving you 20 units a day via Lantus or levemir, to you know, to jail or whatever it might be 10% less than that is two units less. So we would actually dose your bazel in the pump on 18 units across that 24 hours versus 20 units. Because it's it seems to be that the body responds better to that one type of insulin or rapid and coming in at one precise point in the body all the time. Rather than being injected like all over

Scott Benner 11:49
really be either then you can you can get your pump set up with baselines and find yourself high all the time and realize your basis not enough or, or too low or where you have to come in. So that is why doctors start that way. Because I guess more over the likelihood is you'll need less. But for the people who that's not true for it's the situation I described. Right? So what we're really saying is, you're not going to know until you know, but but figure it out, get it in there and figure it out. I also want to know what you think about multiple bazel rates in the beginning, because in my mind, I think you set one up, and then you start adjusting off of that one.

Jennifer Smith, CDE 12:26
Right? Agreed? Absolutely. Even when I started pumping, you know, as an adult once there were finally pumps, like Omni pod. And that wasn't about tubing. I wanted that pod. But when I started doing that, you know, I actually did I started on one solid basal rate. And I was already an educator. So I knew about pumps, I just, you know. But yeah, you have to test you have to evaluate and see what does that one solid diesel? Where do I need it to be less? Where do I need it to be more for how long?

Scott Benner 13:02
Yep. And we're going to talk about the adjustments in our own little piece of this. So okay, so let's move on now to to the idea of bolusing. So I want everyone to understand that the doctor, your doctor is going your pump trainer, whoever you talk to is going to do their best based off of what they know about you to set up an insulin to carb ratio in the pump. But it is incredibly important to know that that is a number that is not completely made up. But it is a guess on some level. And so if you're putting insulin in for a bolus, and you just you say to yourself, man, I counted these carbs 100% correctly. And it's telling me three units. But I used to eat this food on injections, and I had to inject four units or two units or it was different in some way. I just think it's incredibly important to remember that your doctor just did the best they could putting that in there. And this becomes where sort of the next step of how people get confused starting pumping. Because things don't go the way they expect. And they never diagnose the idea that it's the it's the insulin and I mean, this series is obviously it's all about timing and amount, right, you're using the right amount at the right time. Their minds. I think Siri just heard me say something. Sorry. Sorry. It wasn't. It says, Hey, Siri, I have it's obviously it's all about timing. Shut up Siri. Sorry. My point is, is that you're our brains somehow focus on the idea of the pump specifically and not and we forget about the insulin. So I got on a pump and something didn't go the way I wanted. There's something wrong with the pump, that the leap you make. It's the it's it's very likely the insulin, so you can't jump over the obvious answers to get to the other ones. Then Then We run into the problem that people don't want to make insulin adjustments in their pumps in the beginning. So for all of you listening who are about to start pumping or a noodle pumping, and you're seeing something in your heart, you know, isn't right. I would implore you not to sit around for three months waiting for your next endo appointment. Right? Okay. So if you're not, if your blood sugar's high, you probably have not enough insulin, it's possible that you know, you haven't timed it, right? But there's safe ways to make small adjustments to your insulin on your own. Right. And absolutely. And so, would you talk to me about how you would How would you if someone called you and said, Hey, I don't know what to do. And you you looked at their graph and said, I think your basal insulin needs to be turned up or turned down? What percentage do you tell them to to move at? Like a kid in a candy shop, I just spent an hour using the Omni pod dash PDM. You may be listening to this now thinking it's not out yet, but but it will be very soon. And if it's already out, well, then, you know, welcome to time travel. While I was in that room, I got to use the new dash touchscreen, all color Bluetooth really fantastic. I also got to see the display and view apps that on the pod will be unveiling, Sophia, the caregiver of someone using it on the pod when they bolus you'll be able to see it on your app. You'll also be able to receive alerts on your app as a caregiver. And I know you're excited about that, there has never been a better time to use the tubeless insulin pump that Arden has been using for 11 years. The Omni pod. The best part, of course, is that Omni pod will offer you a free pod experience kit, they're going to send you a free demo of the pod. There's no obligation, it doesn't cost you anything, it comes right to your house, and you get to wear the pod to see if you like it. You don't have to just trust the guy on the podcast, you can see for yourself. So if you're switching to a pump or switching from a pump, in my opinion, there is no better choice than the Omni pod. You want to find out if I'm telling the truth. Go to my Omni pod.com Ford slash juice box and get yourself a pod experience get there's absolutely no obligation. It's 100% free. And if you can't remember that link, it's also available at Juicebox podcast.com. Or right there in the show notes of your podcast player. My Omni pod comm forward slash juicebox insulin pumping is absolutely terrific. And insulin pumping tubeless Lee with Omni pod is whatever terrific times a million is what percentage do you tell them to to move at

Jennifer Smith, CDE 17:44
it depends on what the overall picture looks like, you know, if there are small, if there are small, less aggressive looking changes to their blood sugars, but it's in a bazel only time period. And you can tell that obviously something is wrong, we recommend making adjustments if there's more than a 25 to 30 point shift up or down from a set blood sugar. So let's say if you're testing the overnight, you go to bed at this rock solid, you know one or two blood sugar, but by you know and that's 9pm. But by 1am, your blood sugar's at 201. That shouldn't happen on basal insulin, that's there's something incorrect there. So you know, with a shift like that, we would bump bazel probably by like a point one in that time period to offset the incoming flux of incoming need for extra insulin. Usually, if it's a smaller incremental change to blood sugar, you know, you're going from a blood sugar of 102 to 152, you probably don't need that much of a change. And so maybe more of like the point 05 in a rate, smaller increments to the point zero to five, which most of the pumps on the market can do. Not all of them, but some of them. So that may be something that you play with, especially if you feel like you're pretty sensitive to small changes in dosing, then you may want to start smaller and make an adjustment up or down. Right.

Scott Benner 19:14
And so again, it's a good place to point out that the numbers not important because we can't tell from one person to another. And I'll give you an amazing anecdote about that I was with a group of people this past weekend, there was a college age kid there who in my best guess was 610 and must have weighed 230 pounds. And his bazel rate was lower than my daughter's who is five, six and weighs 125 pounds. My daughter is also growing and you know gets a period and things like that. So you can't, you can't reach out into the public into back to your doctor and say Just tell me how much to turn it off. You know, like you have to pick an increment. That's not that's not crazy. It's not dangerous. Obviously. You're not Going to take 8.5 bazel and make it a one, you know, try point six. You know, like if you're if you're a little high trade point six, and then if you do it for a few hours and nothing's going on. I mean, try point seven like and you know, you might get to a point where you Oh, now I'm a little too low. And then again, I'll dial it back point six, five and, and make that decision on your own like, think it

Jennifer Smith, CDE 20:25
and certainly communicate with your provider. If you want some assistance thing, hey, you know, even calling your endo office, most often you get connected with a nurse, the nurse is then going to relay your message to the endo, you might get a call back, hopefully 24 hours, maybe 48, or, you know, whatever it might be, but at least you're acknowledging, hey, I'm seeing this issue. I'm making my adjustments because I'm the one living with diabetes 24 seven, I'm just telling you, so that if you've got any additional feedback,

Scott Benner 20:53
great to hear, yeah. But you can't, you definitely can't do what happens to some people, you just freeze because I want you to really consider what we've been talking about what you've been listening to going back to your doctor four times a year, and saying, hey, look at 90 days worth of my blood sugar's and adjust this and make it correct. It's just they're not guessing. But they're just doing their best and their best is limited because they're not with you. And so I know you're that it's probably happened to you before you sit and you stare at these blood sugars. And you think, well, this isn't what I was told. But just remember, you're getting this machine, and it needs to be dialed in. You just have to get it right, you got to get it running, right so that you can start enjoying the benefits which are significant. Once you get it going. And I will say that I was one of those people who got a pump for my daughter when she was four years old. Oh my god, over 10 years ago, wow. Yeah. And I slapped it on her. And then I stepped back and I looked at her blood sugar. And I looked at her. And I'm like, okay, just start going down. You know? Everybody get back this, this this, my gosh, back then this 8.9 a one see it's gonna be magically lower. Well, it did go down a little bit. but not a lot. I only went down a little bit because I guess I was able to bumper insulin a little more. That's where we started, right? Well, I guess a little more because back then if you missed on a bolus, doing it again met injecting again. And no one never wanted to do that. So you just waited and hoped and cross your fingers, right. But now I could give a little more in a little more. But in honesty, just adding an insulin pump without understanding it did not bring Arden's a one seat down that,

Jennifer Smith, CDE 22:36
that. I think it's kind of like, I mean, the adjustment is kind of like getting wheels aligned on a car, right? I mean, if you have, if you want to ride this straight line, you have to do these incremental adjustments so that you're not consistently like veering off there.

Scott Benner 22:54
Gotta rotate your tires, again, to get your your ball bearings all straightened down everything that was just the extent of my knowledge of cars, as we've heard, but you want you know, their engine, I joke a little bit I understand. So people who really understand cars, there's toe and camber, there's these these tiny adjustments that get made to your front wheels that keep your car moving straight. And it's the same situation. Those again, just like bumping and nudging blood sugars, these are tiny adjustments to get you where you want to be. And the difference between being 190 all day long. And 90 all day long, could just be point one, a half a unit of a change, depending on your size and your weight, your needs. The tiniest amount. And just imagine that, you know, we talked about all the time if you if you don't have enough basal insulin going when you Bolus, a lot of your Bolus is just replacing the Basal you don't

Jennifer Smith, CDE 23:48
have. And so that when the Bolus isn't there,

Scott Benner 23:51
you're wondering, Well, why I didn't even eat at this point today. And what's happening here, right? Why is this happening now? And so so you need to get these things straightened out. Now, I guess moving on to the idea of bolusing Yeah, before when you had your shots, you were counting your carbs, doing your thing, stick it in your pan or your needle and pushing it in there and just hoping you know, hoping for the best right? You are now opening yourself up to an entire world of Pre-Bolus saying and and doing it with

Unknown Speaker 24:22
different and what Pre-Bolus

Scott Benner 24:25
boluses all the things you're pumped, you know, well, first of all Pre-Bolus things not a setting. It's just the idea of putting in your insulin and giving it a headstart over the food that you're about to eat right. But an extended bolus. So we're talking right now it's 11am. And 40 minutes ago, Arden texted me and said lunch is soonish. I want you to really hear that. She didn't say she didn't say in 10 minutes. He didn't say 20 minutes from now she said soonish and I know based off of how this year is going at school, we're going to Pre-Bolus here And I thought about what was in her meal. There's not anything incredibly like simple sugary, that's gonna spike her right away. And she was 106 when we did this. So she'd been a little resistant towards the end of her period this week. We did a Temp Basal increase a 40% for an hour and a half. And so that takes Arden's bazel rate from 1.4 to whatever 40% more of that is for an hour and a half. And then I did a 11 and a half unit Bolus. We did 20% of it up front and the balance over an hour. So 20, whatever 20% of 11 and a half in 11 and a half units is goes in when she pushes the button. The balance of that goes in incrementally over the next 60 minutes coming online and getting active along the way. And now it's 40 minutes later and Arden's blood sugar is stable and 90. And she probably started eating 20 minutes ago or so. Mm hmm. I'm expecting the food to begin to impact her right now. Yeah, right. And so we got we got momentum on our side for the insulin, we've got our going down. You know, we've got that tug of war set up we've we've given you know, we were letting the insulin cheat. And we're going well, now, I'll tell you right now, if 20 minutes from now she starts curling back up. I might you know, if there's any temp, if there's any extended bolus left, I might cancel it and put it all in at once a extended bolus is over, I'm going to go through I might have missed a little bit. There's all kinds of different adjustments you can make to change the timing and the amount of the insulin. I want you though to talk about first about extended boluses. And I want you to talk about the way I know I can't, which is technically and smartly. Yeah.

Jennifer Smith, CDE 26:52
I think you give very good description, I think the biggest thing to understand to begin with when with an extended bolus is that all pumps can do them. They all term them or call them something a little bit different. And it really just kind of boils down to how you're telling the pump to give this this dose for a meal. Whether you want it all up front, meaning like you'd give an injection, you get this whole normal amount of insulin deposited under the skin all at one time. That's normal. And extended allows your pump to drip drip, drip drip, almost like your bazel is dripping all day. But in a time period you've defined whether it's 30 minutes, an hour, three hours, you told the pump, I want to deliver 11 units over the course of some now and some in an hour time period. That's what we kind of refer to as a dual wave bolus to dual being you get some normal up front, meaning a bump right now like an injection. And then the rest of the the meal like you said 2080, right 20% now is the normal 80% over an hour. So your pump is now saying Okay, I'm going to drip drip drip drip drip this 80% in and by the end of an hour, that whole extra 80% will have been dripped in. But it's action time then is pushed out because you didn't deliver it all right now that last pulse of insulin at end of our one still has now an active insulin time for whatever you have set in your pump, three hours, four hours, five hours out from that last active pulse. So I think that's the important thing to know about extended boluses some people first start to think of them as Okay, well, I'm going to get some insulin, but then three hours from now it's going to give me the rest of my insulin. That's not how extended work. They always give some and extend some drip drip. Or you might want to say for this meal, I'm eating a big ol plate of broccoli and a chicken breast. There's carb in that broccoli that you do have to count and cover. Is that broccoli gonna hit you like white rice. No way. It certainly isn't. So a meal like that. You may say okay with these really low glycemic carbs. I'm going to extend the full bowl is something we call a square bolus. You take that meal that's suggested as a bolus, and you drip drip drip the whole amount of it out over your designated time period. And there are different reasons for all of those. Yes,

Scott Benner 29:33
and you got to figure them out. And you can I was with a person eating low carb this past weekend. And we sat down at a restaurant. She had a meal that you would expect had almost no carbs in it but a ton of protein. She said she ate she sat and ate it. We got in the car drove away it's now 20 minutes or more past when the food was and she grabbed her PDM from around the clock. give herself insulin, because she does know she needs insulin for that protein. And but she didn't need it. If she would have bolus and sat down or Pre-Bolus sat down, she would have gotten incredibly low. Yeah. And she, it was amazing to see somebody figure that out. I was, I'm going to add what I learned about that, to me, like how the protein needs more later.

Jennifer Smith, CDE 30:19
Absolutely. It takes into the immune takes into the fact that we know these things from a set of rules. But I mean, the classic your diabetes may vary. Your diabetes bolusing strategy will vary. Well, it really yeah. Not Not me, it will vary. I mean, I my breakfast every morning, I've got a friend who eats the same exact breakfast after talking to me, she was like, Wow, that sounds awesome. I like it. I want to give it a try. Blah, blah, blah. And so now she loves it. Her bowl of strategy for it is similar, but not 100% of what I do. It's different because physiologically, she's different. Yeah.

Scott Benner 31:01
And and so if you've ever heard me speak live somewhere, there'll be a moment where someone in the audience asks the, you know, the question, how much how long, you know, and I go, I don't know, figure it out.

Jennifer Smith, CDE 31:13
Starting places, there are some starting sure things. It's like kind of like, you know, the How much do you adjust the bays? A lot? Oh, point point. Oh, 5.1. It's a starting place, right? Sure. Give it a try. If it doesn't work, Okay, next time you adjust different, right,

Scott Benner 31:30
and I'm more aggressive, like when I adjust basal rates, I adjust them like 30% of the time, because I'd rather cause a low and then back down from the low to find a level spot than to

Jennifer Smith, CDE 31:40
go high for several days

Scott Benner 31:43
in the high, right. Because also because I feel like you're getting a more accurate depiction of what's happening. If you're using more insulin, when you're using less insulin, then there could be resistance going on. And maybe

Jennifer Smith, CDE 31:54
you know me and the feel to them that you have to correct and so you never really get a true picture of what does the basal adjustment really just do because now I'm high and I want to correct and I'm not going to leave it high. So I don't understand what the bazel I know, I just know it's not enough,

Scott Benner 32:08
you'll get a look into my parenting style that way too. Whenever my children asked me something, I respond immediately with no. And then we work backwards from now. And so I sort of do the same thing on the inside, I slam the insulin, and then I work backwards from there to find a level spot. I wanted to say about insulin action time, it's another idea of settings near pump, right? So there's an amount of time that they you know, insulin should work in your body, like how long from when you put it into when it stops working. And you'll see people say all different kinds of numbers, you know, for hours, you know, it's different for me here and there. Same insulin, you know, they're using one kind of insulin. Some personal say, Well, my action time is four hours, my x times three hours. Arden uses a pager and her insulin action time and her pump is set at two hours. And so I have found that when you Bolus art and that Bolus stops having any effect on her in by two hours. Wow. Most of the time. Some of the time now. I don't know how to tell you the difference, but most of the time it's Yes. Last night it was now last night I couldn't get Arden's blood sugar to budge off of one ad. It didn't matter what I did. She had incredibly Carbo rific afternoon. Like I said, she still has her period. And you know she's going along. Now there's a moment where I'm like pushing and pushing and pushing and I'm finally that guy. This is enough like this insulin is going to start working eventually. And it did later at night after a hot shower. Her blood sugar started coming down and we had to catch it. It was hours and hours later. That doesn't make Arden's insulin action time six hours, right, right. That's a specific situation. Most times insulin I put in now doesn't cause her to get low Two hours later. Now keep in mind, insulin on board is calculated by the insulin action time set up in your pocket. Am I right about that? Correct. Can you explain that for us, please?

Jennifer Smith, CDE 34:07
Yes. So insulin on board specifically uses your active insulin time that you have set in your pump. So for Arden, two hours if she were to get a bolus now for you know, at at 11:07am. Two hours from now, at 1:07pm. The pump would no longer identify active insulin on board from this Bolus, which means that if she chose to Bolus at 115 it's only going to factor in blood sugar and the carbs she tells it she's eating to give a bolus suggestion. However, within active insulin time, let's see, you know, an hour from now somebody's birthday comes up and they bring a big old big old tree to school and she's like, Hey, Dad, I'm totally

Scott Benner 34:58
I'm gonna need another 30 carbs over On top of what we just bought for an hour, right,

Jennifer Smith, CDE 35:02
exactly, but that was an hour ago. So your pump still assumes, hey, there's still insulin on board from this bolus that she gave an hour ago, there's this much active insulin left. Important thing about iob is that you have to feed the pump information in order for it to consider iob information being blood sugar, and carbs. If carbs are a piece in the picture here, right? Because if you do not feed the pump, a blood sugar, it doesn't know the effect of the insulin onboard that's still left. And to calculate the next bolus correctly, it sees the insulin on board, but it may not be able to adjust because it doesn't have a pinpoint of glucose value to now say, okay, she was an hour ago at 82. Now she's at 179. That insulin on board that's left is coming into the picture, but the pump also sees a higher blood sugar. So it's gonna say, okay, she's high. She wants to eat this much more. This is how I'm going to calculate the bolus despite there being active insulin left but

Scott Benner 36:16
in a situation where like, for instance, now Arden's blood sugar's 111. Okay. And I'm seeing a curve up on her CGM. But her pump right now if you test it right now say she didn't have a CGM she tested right now for that, you know, surprise treat an hour later. And, and it says, Oh, your blood sugar's 111. You have all this insulin on board from the meal, go ahead and eat that you don't need insulin for this you don't need, you don't need as much insulin for that. That would be stalking. Okay, and that's a word that doctors are going to throw at you. And they're going to mean for it to scare you. And, and maybe maybe it should, in the beginning, I'm not 100% sure, but what they're going to tell you is you can't stack insulin, because eventually it's going to, it's going to catch up to you. And it's going to make you low. I say to that, yes. If you don't need the insulin, if you do need the insulin, it's not stalking, it's rolling, knowing the difference is the is the trick, I guess. To go back to, I'm going to layman's terms a little bit more about insulin on board and action time if I can. So if you decide that your insulin action time is three hours, and by you, I mean, the doctor sits down says this is what it is for most of my kids this age, so I'm going to set it for three hours for you. But your insulin action time is actually less or more, then your pump is going to make decisions based off of that number. It doesn't make it right, I want to be clear at the pump doesn't have a magic sensor that's in you somewhere that knows that it's telling you the right thing it's making, it's making a static decision from a static number. That's not necessarily correct, it's probably a good guess. It probably won't hurt, you know, it's gonna err you on the side of caution a lot. It's going to keep you from being you know, from getting well.

Jennifer Smith, CDE 38:07
And I think that's a good it's a it's a very good point to bring up. Because what we've actually found, especially in the community of people who are doing the Do It Yourself looping types of pumps, which is a whole nother broad topic, but I bring it up in this mainly because what we've found is that the action time of rapid acting insulin is actually beyond what most people have it set in that their insulin pump. And the reason that we have it set for less time in an insulin pump, is because we inherently do not want to run high blood sugars. And so if we give the pump and active insulin time of three hours, when really that bolus is probably lasting about four hours for us. What it means is that at three hours and one minute after this bolus was delivered, if your blood sugar is still high, your pump now no longer sees any active insulin and it can bolus you more aggressively for the blood sugar that you now want to drive down. Right. Whereas if you had it set for four hours, at three hours in one minute, you were like I'm high I want a bolus to get this blood sugar down. Your pumps gonna be like, let's be a little conservative here because you still have this like quarter of that last bolus still working.

Scott Benner 39:31
We are now six episodes deep into the diabetes pro tip series. We're halfway through talking about insulin pumping. And next month, the episode about how to use a CGM like a ninja is going to come out. It's time guys. Let me be bold and say I think if you don't have a dexcom at this point, if you want one, you have to take the leap. You have to go to dexcom.com forward slash juice box and get started right now. But if you need to be reminded again, why I'm happy to do that for you. Good Dexcom g six continuous glucose monitor is not only going to show you what your blood sugar is, it's not only going to keep you from having to check with a meter, it is going to show you the direction and speed that your blood sugar is moving. how fast you falling? How fast are you rising at what pace? is this happening? Should I put more insulin and should I not? The data from the Dexcom g six is going to help you make that decision. All of the things you're hearing in the Juicebox Podcast. And even more specifically in this diabetes pro tip series. If you'd like to put those things into practice, if you'd like to grab diabetes by the you know what, and just bring it snack and say I've had enough of this, I want to eat Chinese food, I want to have a pizza, I don't want my agency to be 12. Because of that, I don't want to spike the 400 I just want to eat. I think you can do that with the Dexcom. Now my results are mine and yours may vary. But I got a good feeling dexcom.com forward slash juice box or links in your show notes or Juicebox podcast.com. I mean, even if you don't want the Chinese food, wouldn't you just like to sleep overnight with some comfort.

If you have an omni pod, your pump is going to be completely self contained, it will adhere to your body, the insulin will be in there and all the smarts and everything and you'll use a wireless controller to tell it hey, I want you to change my bazel or put in a bullish or something like that. All other pumps have tubing and an infusion set, right. So you'll have an infusion set that'll put your cannulation tubing will run to the pump, and that pump will have its insulin in it, you'll need to keep that with you. It'll be clipped somewhere,

Jennifer Smith, CDE 41:50
right. And that's a good point to make to about the difference on the pod. The PDM does not have to be on your person for the pod to continue delivering. That's a big question that a lot of people have, well, I don't want to carry around this extra thing all the time. You don't have to once the pod has been told what to do. It does it

Scott Benner 42:09
as soon as it beeps and it recognizes the signal you're done. Actually you can walk away from if your insulin starts in like say you're putting into reverence delivering, right? As soon as it starts to walk away. You could you could run to, you could run across the state and your pdmp in your house and the insulin will keep delivering Yeah. It's also important to talk about there about pumping in general is that to bathe or swim on a tube pump, you're going to have to disconnect to more than that for most right. So even in you know more aggressive like sports, for instance, like you there's a lot of people who disconnect to go play soccer or you know, football or something like that. With Omni pod, you'll always be wearing it. I think to me, that's a huge point that made me want to do it. Because you always hear people say like, Oh, I went to the beach and I got high, I get high at the beach. And I always think back to someone who was on the show. I think it was a just a few episodes ago, where he said if you put a pencil in your back pocket, and then rob a bank, pencils don't cause bank robbery. And, and so the batch doesn't make your blood sugar high, taking your insulin pump off major blood sugar high. Right, right, like that kind of an idea. So just understand that there's different ways to manage with different pumps, I'm not telling you which pump they get.

Jennifer Smith, CDE 43:30
And that's a lifestyle look, right. And that's the biggest thing when I work with people. They're always like, what what do you think is the best? There isn't a best, there's the best for me, there's the best for you, you need to take a look at you know the pros and the cons of all of the pumps. What are the what's the pump that has the most Pros for your life, to navigate your lifestyle your needs, you know, an athlete, I've got a lot of athletes who really prefer Omni pod. Because of the tubeless piece I've worked with a lot of triathletes, who really they need I mean from going from a swim into a bike into a run, they need something that's a seamless management, then they're not having to clip in and pop in and reload and you know everything. So there? I think it takes a lot of examination of your lifestyle. Yeah,

Scott Benner 44:17
no, absolutely. There's no, I would I would jokingly say that, you know, I'm sure you think that I think you should get an omni pod. And probably if you ask me my personal opinion, I would say yes, right, not just because they advertise on the show, but because artists use one for 11 years. And it has been nothing but absolutely fantastic for us. But I completely agree with Jenna, you should decide what works best for you. You really have to do that. Not everyone's going to see the same pros and cons as everyone else.

Jennifer Smith, CDE 44:47
And all of the pumps despite delivery and mechanism of driving insulin. They all do have some features that are different and may apply better to your lifestyle than another They're brand. Absolutely.

Scott Benner 45:01
So. So again, figure it out for yourself, do your due diligence. I think the greatest thing about the Omni pod might be is that they offer a demo, they'll send you one to your house and let you try it like that, where it the other companies are at a loss, they can't really do that, because

Jennifer Smith, CDE 45:16
of the problems is set up very big and extensive.

Let me just send you Oh, and I'll send it back. Yeah,

Scott Benner 45:22
please, please give it back. And a couple of other ideas. And he's it right, so what I was getting to whether you're using it on the pod, or you're using another one, there's going to be some adhesive of some sort, you know, a simple preparation, like we talked about back in the MDI episode, I think I don't over prep, skin, right? clean skin.

Jennifer Smith, CDE 45:44
Right, without lotion or anything on it, you're good to put it on. You could see.

Scott Benner 45:51
You know, if you have soreness with a pump, right, it shouldn't hurt. No, right. So it should not. So be careful. Like, if you start if you have soreness that you know, I mean, after it first goes on, obviously, you know, it's not fun to have a hole poked in you. And that's going to be done by any one of these pumps. But an hour later, whatever it is, if it's hurts, or it's hard to bend your arm, sometimes the candle can hit a nerve,

Unknown Speaker 46:14
or a muscle muscle like looking up again. All of

Scott Benner 46:18
these companies will if you call them up and say, Look, I had to put it in an infusion set, and it hurts so bad. I took it out. Can you send me another one? Generally speaking, they're their customer service is good, they will?

Jennifer Smith, CDE 46:30
Correct. And that's really important because it can affect absorption at the site. If you've got a site that isn't it that's hurt, or, you know, maybe getting infected or for some reason there's irritation under the site. If that site is bothering you, there, that's not good. Remove it, pop in a new one do something.

Scott Benner 46:47
Yeah, don't sit in pain. Yeah. And that I think that's important. tubing is something I don't completely understand I how much tubing Do I need is it just as much to get me to where I want to store my pump?

Jennifer Smith, CDE 47:04
Correct in that depends, you know, tubing comes in many, many different lengths for the tube pumps being of which there are only two on the on the market, either tandem or Medtronic are the tube pumps that are available now, at least here in the States. So the tubing length depends on exactly where you're going to move that pump to and pop it in. If it's in a pocket, you may need short tubing 18 inches, if you're going as some some of the guys that work with, you know where the shirt stays around their lower leg to keep their shirts tucked in, well, they end up just clipping their pump down their leg, and then they can easily lift up their pant leg to Bolus during the day. So if that's the case, you probably want 40 plus inches, tubing. how tall you are, you know, if you're Shaq, you probably need like

inches but yes,

Scott Benner 47:57
and and the two pumps also you when you go to put them on, they have to be primed, which means that you have to fill all of that tubing with insulin. Before you can put it on the pod self Prime's. So you when you there's no tubing, there's no tubing, there's a tiny little candle that that obviously goes under your skin stays there. Yep. So again, there you go. There's pros and cons with all of them. You know, I hear people say that so on the pod has a failsafe, right? If it gets around too much electrostatic electricity, and it and it affects the internals of it, it will shut down and ask you to do to change it. Yep. I've had it happen in 11 years, six or seven times, you know, it's happened. And people go, Well, that doesn't happen with a tube pump. And I'll say Well, yeah, and my daughter is also never walked past the drawer in the kitchen and gotten her tubing caught on and yanked out her infusion set. Oh, that's the tube pump version of that, to me, like they all have something if you're looking for something right? If you're looking for perfection. They don't ask a machine to do anything on it. Absolutely.

Jennifer Smith, CDE 49:03
And I think you know, one even that might be going towards the the tube pump potential need would be if, for some reason, the angle of the kanuma is a concern or an issue for you. That is one I would say potential drawback of Omnipod is that there's only one canula it comes on every pod it's exactly the same canula and it goes in exactly the same angle for every single person, which may not again, your diabetes will vary because your body physiology may be very different. So you may need to choose the pump. Despite not wanting tubing, you may need to choose a pump. That's too because you need a different type of canula or what's called infusion set. You may need something to go in at an 80 degree angle versus an angled you know, you may need a steel canula versus a plastic kanila for various body reasons. So there are a lot of considerations

Scott Benner 50:00
Yeah, absolutely. But don't take, don't you keep this in mind, no matter what pump you're thinking about. I know this is gonna sound a little dirty. But it's, it ends up being true. Companies have salespeople, salespeople influence doctors, doctors get stuck prescribing things right over and over, you walk into an office and say I want it on the pot. And the guy goes, No, no, you want one of these? Trust me, you don't need to trust him. You know, you can say that you appreciate your input. But I'd really like to try the on the pot or vice versa, I don't want it on the pot, I really would like to try that. You can you can, you can speak up for yourself, please, please do that. Absolutely do that. So at the very end of this, I want to talk about about something that can't, it doesn't happen with injections that could happen with a pump, right. So as long as you inject your insulin with your injections, you remember to put in your Atlantis, you'll never marry your trustee. But whatever it is, and you you know, remember to put in your insulin for your food or your high blood sugars, you're watching the needle go in your arm, you're pushing the button, you pull it away, you know the insulins in there. With any insulin pump, the possibility could exist that your canula could get bent, that your tubing could get kinked that the pump could, I don't know, the batteries could die like like, you know, on the pod doesn't have batteries. And there's the but the other ones, there's mechanical, you leave the house and totally forget that your reservoir only had five units. And for the rest of the day, you actually needed 20 units. And now you have no influence area and you're in trouble. Right? Right. So these are things that could happen when you try I we have a radius in my mind, if I'm more than 30 minutes away from my house for any extended period of time. I bring insulin and another pump with us. The other day, we drove an hour and a half to something stayed there all day had all this extra diabetes supplies with us didn't need one of them. You know, most of the time you don't need it. But when it happens, it happens. Now, in 11 years, I'm happy to tell this story in 11 years, we've had one insulin delivery problem with Omni pod. And it wasn't the pump. It was us. We changed the pump by sight. And it you know, it was at a pool. Right? So we put it on and I she got back in the water. And I think the adhesive didn't have time to adhere and it loosened up a little bit and it pulled her canyelles out. Oh yeah, of course of a day right along July day of swimming. We got home her blood sugar was still fine now. Was it still fine because the candle was still in it hadn't worked its way out yet because she was so active during the day. She didn't need as much as I don't know. But what I can tell you is, is that overnight Arden's blood sugar started to skyrocket. And I kept bolusing. And it took me a while to figure out that my boluses weren't doing anything. That's not going to happen to you injecting. Right? So is it is it I actually saw a person say the other day, I'm scared to get a pump because of that. And I think if that's why you're scared, I think you're worrying about things you don't need to worry about. But you do need to be aware of them. Correct, right? Your tube tube kinks, something happens. You're not getting insulin delivery, you're also don't have any slow acting insulin. And so when you lose your pump, you lose your slow and your fast acting you can go from everything's right on to DK a. Pretty fast, quick.

Jennifer Smith, CDE 53:30
Exactly, absolutely. And that's, it's a really good piece, you know, to discuss because it's one of the primary things when I work with starting somebody on a pump that we discuss, right in the pump training, is the risk for decay or the risk for a pump malfunction. And how do you how do you navigate that without having such tremendously high blood sugars that then take forever to bring down because you're at such a deficit of insulin right? I mean, our recommendations really are with a pump, an odd high blood sugar or now with the use of a CGM blood sugars that are like you said, just all of a sudden skyrocketing, and there should be no reason for that skyrocket like you didn't go eat the whole Dairy Queen cake and just not bolus for it right. There is something wrong, you bolus from the pump. If that initial bolus doesn't start to make a dent in that glucose within the next 30 to 60 minutes, you change everything out you change the site, the tubing, the reservoir, the pod, whatever you might even change the insulin you know especially if it's been a D at the beach and your insulin hasn't been kept change the insulin out really important I

Scott Benner 54:41
bail on a pump site. As soon as as soon as I know too. I will sometimes if I if I get a stuck number, but it's not too high. Sometimes I'll inject a little bit. And if you inject instead you go oh my god, it started moving right away. Maybe I'm gonna get off this pump site like a little banner. And that's, you know, to just go over a couple of like ideas, you can't keep reusing the same site over and over again, they eventually become less effective. For reasons we talked about in other episodes, you have to understand that when you when you put in an insulin pump, you've you've needle has poked a hole in you, and left behind a piece of plastic in most cases, right? This plastic is a foreign body. You're right, it's an irritant. I remember discussing with Aaron Kowalski from the jdrf, one time that he thinks one of the most ignored technologies for people with diabetes that we don't spend enough r&d time on is cannulated materials, and how to make them less irritating to the body. Because when your body thinks it's injured, it sends white blood cells to the place it believes there's an injury. And I don't know anything technical, but in my mind's eye, in my mind's eye that draws cartoons of what I think the world looks like, and how I understand things. There's little white blood cells, sort of like the beginning of Jurassic Park, when they show that cartoon to explain that I know DNA, in my mind, I see little white blood cells coming and attaching themselves around that Canyon and making my insulin not flow correctly. I know none of that's probably technically correct. But I do know that when a when a place gets irritated like that, that insulin becomes less effective. And there are times you have to bail on a site sooner than you want to.

Jennifer Smith, CDE 56:26
It could be and it's also a good just around site change itself to be very aware that the potential for that new site to be less absorptive, from really what you're talking about, there is inflammation. Anytime you introduce something underneath the skin, you ask your body to become irritated. And inflammation is what follows. So an absorption at that site is significantly decreased. Everybody's a little bit different. Some people it's for about an hour, some people it could last as long as four, six hours, that inflammatory response. It's also a guess, for those who are using a continuous glucose monitor, you know, that two hour thinking window? Yeah, a big reason for that to our sinking window. Besides that sensor needing to get wet, you've put something to sit underneath your skin, your body's got to get used to that and you don't want glucose values coming in, from a site that's probably injured. Right? So same with a pump, you really have to pay attention. What do your site changes look like? How does your glucose level change around site change time? And is this normal? Is this a normal flux in glucose? Or is my gosh, my blood sugar's never 300 after I change the site, right there in lies the difference of change it out or figure out how to navigate the site change, so you don't have a high blood sugar. And I think it's incredibly important to know that while this may sound scary, that you'll figure it out very quickly.

Scott Benner 57:54
It's not something that's going to dog you for your entire existence. There's little is the word peccadilloes, there's small things about everything that you have to you have to figure out along the way. And the only way just like we talked about within, the only way to figure it out is to do it. Let it go the way you didn't expect, you know, suss out what happened and and fix it next time. I think

Jennifer Smith, CDE 58:16
just the fact in you know, this episode, especially talking about these little pieces. It's really, really important because these are pieces that are often not talked about from an endo education standpoint. They're not they're missed. They're things that you figured out along the way. And you've talked to other people, and you're like, Ah, I'm not the crazy, man. This is what's happening. Right? Me, me, too. I mean, I, I could have sat and asked my endo about it. But there's things that in interjecting and working with other people and my own self experience. I'm like, I'm not crazy. This is what happens. And I'm not the only one great

Scott Benner 58:57
example, that when RM is younger, and we changed her pump, she'd get high. And people say, Oh, that's a thing. That's a pod chain tide only happens with Omni pod, and blah, blah, blah. And I'm like, you have to Bolus mark with Bolus with the old pod before you change the new pod because the new pod won't work and everything. None of that was the truth. You want to know the truth. Arden was incredibly nervous to get her insulin pump change when she was little, and the adrenaline would hit her and shoot her blood sugar up. And one day, Arden stop being nervous about having your insulin pump changed. And that all stopped. There was no match. So people had had imagined this entire story around this and I started buying into it at first I was like, oh, obviously the pump doesn't work right away and and all this and by the way, it doesn't it that's not an unnecessarily incorrect statement. There like you just said new inflammation. There's an injury, you do sometimes need more insulin. upfront and I don't disagree with that. But the leap she got wasn't the pump changing. adrenaline's adrenaline. And I still, like we talked about earlier, a new pump. As soon as I put on a new pump, I double the bazel for an hour, like, right, just to get it going. But, but I started thinking down that it's again, this cause and effect, it's the pencil in your pocket, right? Like, I changed the pump in her blood sugar went up, obviously, the pumps not delivering insulin anymore. Make sense? didn't end up being correct. Right? Right. So just you'll figure it out.

Jennifer Smith, CDE 1:00:32
My experience was coming from a tube pump to Omnipod. So I had experience with site change from a tube standpoint on the Omnipod. And I'm glad that I had that. Because I do experience that site change inflammation. And I had experienced it on a tube pump with the canula. And so I knew it was likely going to still happen on Omni pod. So, you know, again, your experience is going to be different from somebody else's.

Scott Benner 1:00:59
It's 100%. Right? Ah, good. Oh, did we didn't miss anything? Do we do okay? I think I like what you said at the end. I appreciate it. Because I wanted this to be a real real conversation. Not some like shiny. Oh, you'll get a pump and you'll love it. And it's gonna end by the way you will love it. It's in we won't. I don't know who you are. You know, I can tell you it's been an amazing experience for us, I believe wholeheartedly that the Omni pod is one half of the reason that we are able to keep Arden's agency where it is

Jennifer Smith, CDE 1:01:30
where it is. Absolutely. And I see the population of people that come off of a pump is small. But there are people who I've got a good friend who pumped for years and was like, man, she had a major issue with her pump. And she was like, No, I'm, I want to make sure I know I'm getting my influence. She's been on bolusing. She's gone through pregnancies with bolusing via MDI, it works for her. But again, that's her choice. And most people will stay on their pump. Listen, here's

Scott Benner 1:02:00
the here's the key, be happy, be healthy. That's all I care about. It doesn't matter to me what you do, just no differently than the way I talked about using insulin. I talk about pumps and glucose monitors the exact same way. I want you to know how it works. I want you to know what to do when you try it. And once you try it, if you don't want to do it, whatever, man, I don't care. You know, like I'm not telling you what to do. I'm here telling you, you shouldn't make decisions based off of bad information. When you have good information, make good decisions, do whatever you want. If you're enjoying the Juicebox Podcast, there's a couple of things you could do. In return, let's say you could leave a rating and a review on iTunes that helps the show be more searchable so more people can find it. You can support the sponsors and I'm talking about on the pod decks, calm dancing for diabetes, and real good foods. These are the people who bring you the podcast for free. Right, right support it. The last thing you can do is tell a friend, if something you've heard on this podcast has been valuable to you. help someone else to find it. podcasts are not intuitive to everybody, you may have to send them a link, you may have to show them how to put a podcast player on their phone. I'm not sure what that will entail. But I know one thing when you share the podcast, it grows. When it grows. The sponsors are happy. And when the sponsors are happy, the podcast continues. I hope you're enjoying the diabetes pro tip series. That's going to be it for March. Jenny and I are having a fantastic time making these. I have to tell you I think maybe we might even you know keep going after this series is over.

Did you think I was gone? I'm still here. At this point, you have to be asking yourself why am I not pushing stop? It's the Curiosity right? Like you think maybe something else is gonna happen. But I'm telling you right now nothing else is gonna happen. Could you hear me breathing? I was holding my breath right there.

Thank you for listening to the Juicebox Podcast. I'll see you next week.


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#218 Diabetes Pro Tip: Temp Basal

Scott Benner

Scott and Jenny Smith, CDE share insights on type 1 diabetes care.….

I am thrilled to welcome Jenny Smith, CDE back to the show. Jenny will be joining us for an extended series of conversations that focus solely on the management ideas that we discuss on the podcast.

Jennifer holds a Bachelor’s Degree in Human Nutrition and Biology from the University of Wisconsin. She is a Registered (and Licensed) Dietitian, Certified Diabetes Educator, and Certified Trainer on most makes/models of insulin pumps and continuous glucose monitoring systems. You can reach Jenny at jennifer@integrateddiabetes.com.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon AlexaGoogle Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello and welcome to the fifth installment of my series diabetes pro tip. Today, in this short but very important episode, Jenny Smith and I are going to talk all about how to manipulate your basal insulin.

Jennifer Smith has a bachelor's degree in human nutrition and biology from the University of Wisconsin. She's a registered and licensed dietitian and certified diabetes educator and a certified trainer and most makes and models of insulin pumps and continuous glucose monitoring systems. I first met Jenny when I had her on the podcast back in Episode 37, an episode called Jenny Smith diabetes guru had her back in Episode 105. And she and I talked all about a one C's really breaking down what they meant, what was important about them and what wasn't. One day, I just had this idea to bring Jenny back on to talk about all the concepts that we talked about here on the podcast, but real granularly just, you know, really break down ideas in a way that I thought you guys could absorb and remember and share and revisit. And that's what this series has been. Hopefully you've been enjoying it. This is the fifth installment of the diabetes pro tip series with Jenny Smith CDE. And please remember that nothing you hear on the Juicebox Podcast

should be considered advice, medical or otherwise. And to always consult a physician before making changes your medical plan for becoming bold with insulin, temporary basal rates, do a number of different amazing things

Jennifer Smith, CDE 1:45
laugh and laugh compared to what your doctor told you. Yes,

Scott Benner 1:49
and and so here's how I always think about it about basal rates in general, it is bizarre for us to think that we can set up a static basal rate that will always work at 2pm for the rest of this week, or this month or our lives, right. It's just an odd statement. I don't have diabetes, my blood sugar varies based on what's happening in my body or what I eat. And I bet you even though I have no medical training whatsoever that my body is more aggressive with the amount of background insulin that I get the amount of force it pushes on my blood sugar at different times.

Jennifer Smith, CDE 2:24
Because it's got natural compensation. Yes. And I think that that that piece about about measles is also really, really, really important for women. Right?

Scott Benner 2:33
Okay. Yes, because of their periods. Or, by the way now I've been told not to say, Lady time by people that maybe I should say, period. So then I went back to period to make that person happy. Then I got a beautiful note from somebody the other day, you said I think lady time is delightful. And I'm like, I can't win. But that's not the point. So so so here's a couple of ideas. We get Chinese food coming into the house, right or not so or something that's high carb that breaks down slowly in your system. Oh, my Pre-Bolus for Chinese food is this Temp Basal increase 95% for two hours, boom, I start right there. Then I get a healthy Pre-Bolus in you know, and I start the I want to decline when when Arden starts eating her food. Chinese is a good example. Because it's not it's simple sugars and complex carbs at the same time, right. So the coating on the meat might have a lot of sugar in it like the sauces will hit you quickly. But that rice could sit in your system forever and take hours and hours and hours to to break down and to go away. So I think of it as carpet bombing insulin, I want to I want to cover the entirety of the timeline that this food is going to have impact on art and with an increased basal insulin. It I would also use an increased basal insulin, when Arden's hormones are affecting her. Yeah, we just got done doing that this week, there was a day and a half or Arden ran a Temp Basal increase of 80% for two days straight. Yep, get a straight. Yep. If your basal is not right, your bonuses aren't going to work, right? Because you're just replacing bazel with your bonuses. So even again, you count your carbs 100%, right. But if your basal insulin is set at, let's say a unit, but it should be at two units, then when you make a bolus for a three unit snack, the first unit of it is only covering the bazel you don't have plus you haven't had enough bazel leading up to that. So you're probably insulin resistant and having a higher blood sugar to begin with. None of this works without base when people come to me and say, Oh my God, look at my rollercoaster. I'm 60 I'm 400 Um, but the first thing I say is okay, let's get your basals right. If your bases aren't right, the rest of it doesn't work. Right

Jennifer Smith, CDE 4:54
and temporary visas then are not going to work either because they're working off as a setting. That's not that's not right. To begin with,

Scott Benner 5:00
yep. Inevitably, while I'm talking about basis with people, they say, Well, what about my insulin to carb ratio, and I went, that's not even worth thinking about your basis, right. So now you can think about basal insulin as basal insulin used, you know, in the normal course of your day to keep your body function low when you don't have any food, and but if you really start to think about them around food, that's when they become incredibly powerful. Why. And so, there's also a time where, like I alluded to before, you can bump in nudge with bezels. Right, so not only can you create a hard bazel, that helps you with carb, heavy meals, but you can look at a blood sugar that's at, you haven't had insulin for hours, and then suddenly, it just a 75. And it sits there for a little bit. And instead of feeding that 75, you can Temp Basal back. So Temp Basal is unlike the, you know, when I think about the tug of war with with Pre-Bolus. Basal is I think of this way, I imagine if you and I put our hands out, stood up and put our hands together our palm the palm, and we pushed equal amounts on each other. That's it, you don't fall back, I don't fall back. That's a perfect bazel rate. Right now, there might be a situation where my my blood sugar starting to fall. So I need the body function to push a little more. So I, I take a little power away from the bazel, which allows me to push up. Same thing if I'm at a 90 that's going to a 95. And it's creeping up. But a bolus is definitely even a tiny bolus is going to make me later I might just do a Temp Basal increase to stop that kind of creeping. Yeah, this all occurred to me when I interviewed someone about artificial pancreas, and they told me that most of the adjustments that an artificial pancreas makes is through basal insulin. Yeah, not through boluses

Jennifer Smith, CDE 6:57
100%. If you're doing anything within the looping community to do it yourself, insulin pumps, either open APS or looper, Android APS are whatever that is. That's the gist of the algorithm. It is most of most of the incremental adjustments based on the trend in glucose are being done by positive and negative what's called temping, you get a bit of a bump up, you get a bit of a bump down, he had a bit of bump bump up, and it's all being based on your current bazel setting. Right? Right. But the incremental ups and downs are what keep you stable.

Scott Benner 7:34
This past week, I visited the army pod headquarters in Massachusetts, where they've just moved their production facility. It's about to go live. And I got to tour the floor, where you're on the pods are going to be made from now on, right here in America, right in Massachusetts. I want you to know that what I witnessed in Massachusetts on that assembly line, it didn't just renew my excitement about Omni pod, it shot me over the moon, the accomplishment of bringing a production like that into one facility, putting it under your roof that showed me a real commitment to the people living with Type One Diabetes. Right? This isn't being made overseas somewhere or you know, a bunch of different factories. It's all right there at the Omnipod headquarters, and its state of the art and it's absolutely stunning. This is a company who is behind you for the long haul. I believe that before but I believe it even more now. Here's what you want to do. Go to my omnipod.com Ford slash juice box or click on the links in your show notes or Juicebox Podcast comm when you get there request a free experience kit. That's right up pack. A pod experience kit on the pod is going to send you a pod that is an exact replica of the one you'll get when you start using the product for real, but this one's non functioning, and so it's safe to wear for you to try

Unknown Speaker 8:55
out.

Scott Benner 8:56
You'll be able to find out if you like it where you want to wear it. And you'll notice how after you've had it on for a little while you don't even remember that it's there. Miami pod.com forward slash juice boxes links show notes or Juicebox podcast.com. The Dexcom g six continuous glucose monitor gives you a complete picture of your glucose showing you where it's going and how fast it's getting there. There can be nothing more important. The dexcom g six also eliminates finger sticks for calibration, diabetes treatment decisions, and diabetes management. It also has an automatic inserter. Like it just you know you stick it on and you push the button and the next thing you know you're wearing it. Now you can use the dexcom receiver to get the information from your transmitter. But for those of you who enjoy using your cell phone, it works great with iPhone and Android as well. The last little thing about Dexcom isn't so little How about the share and follow features also for Android and iPhone. Your loved ones can follow your blood sugar anywhere in the world and if you're the pain Or a caregiver of someone with Type One Diabetes, you can be watching their blood sugar as well. You want to know what Arden's blood sugar is right now. It's 82 just glanced up and saw it just like that. Now my results are mine and yours may vary, but my daughter's a one C has been between 5.2 and 6.2. for over five solid years, the decisions we make about how to give my daughter insulin and when to give it to her, come directly from the data that comes from the dexcom g six. And I don't know if you know this or not, but my daughter does not have one dietary restriction. Those numbers are accomplished through waffles, just as well as through salads, through burgers, just as well as through zucchini, it doesn't matter, anything that impacts my daughter's blood sugar, that impact is shown to me by the Dexcom g sex, and then I make good decisions. You want to make some good decisions, go to dexcom.com forward slash juice box and get started today. That's the best decision you're ever gonna make. So when I talk about bumping and nudging, which is going to come up in the future a little more, it's the idea that if you don't use too much insulin, it can't cause a wide swing. Correct, right. So bumping a 120 diagonal up back to 90 takes a smaller amount of insulin than ignoring your blood sugar till it gets the 180. Now you're putting in a bunch of insulin and becomes Miss time and you get low later. So using these little bumps, just make sense that you can accomplish that with Temp Basal. Again, remember, Temp Basal is don't start working right away. You can't save yourself have a 65 one arrow down with the Temp Basal. No, that's, that's juice time. Right, right. But, but but a 70 that's drifting low and has no impact from insulin really could be saved with it couldn't be saved. Maybe it won't be but you try and figure out for yourself, maybe that'll end up being a 90 that's drifting low that you'll eventually use Temp Basal for. But they are, they are such an important tool. And if you're not using them, you're missing out. I I'll say it here, I'll say it again, an insulin pump is not just a way to get less injections. It's also a way to be able to give yourself micro bonuses to be able to manipulate your basal insulin to be able to manipulate your boluses to spread them out. These tools are vital. So please tell me and I know you and I are short on time here. But tell me how you talk about Temp Basal with people like where do you Where do you really focus in on on education about it.

Jennifer Smith, CDE 12:33
So I we I and I usually really, really focus in on all of the scenarios that are likely to come up where temporary bazel is really an important piece of management, that that bumping and nudging that you talk about, you know, unfortunately, most people are only taught about exercise and the benefit of temporary bazel. And they're usually told, well just, you know, just set it for zero percent or turn your bazel off during that time. Well, that's 100% incorrect to begin with. But exercise is one of many reasons that you may want to change your bazel for a, you know, a duration of time, illness, a woman's menstrual cycle, or that woman's time of the month or whatever you're going to call it, that time, you're going to definitely need temporary bazel you're going to need it for sedentary days, I can go to a conference where I'm literally sitting for eight hours. And while I might be walking between conference rooms, the sitting and sedentary, I need a 25% increase in my basil. In order to not run high that whole day. I've figured that out right? I figured out what I need to do to take a five mile run versus a 12 mile run temporary bazel changes. I figured out what to do for different kinds of illness a stomach bug may require a decrease. an illness like a sinus infection or a bronchial infection may require an increase. Even even temporary bazel around food like you mentioned before with the Chinese high fat food, yes. 100% requires knowledge of using temporary bazel because I know we'll talk about extended boluses and things a little bit too but temporary bazel for high fat man that can affect you eight to 12 hours after you're done eating it and it keeps you high and you may go to bed with an awesome looking blood sugar thingy that I made. I nailed that I really got it. What do you get an alarm at two o'clock in the morning where you're 300 and you're like what happened?

Scott Benner 14:37
And those are the examples By the way, when you can't say to yourself, oh, well that's just diabetes. It's not just diabetes, that it's you didn't use the insulin right? And so every time you think diabetes is just this, this, you know, magic fairy that runs around messing with you. It's something happened like you might not know what it is in that moment. But some thing happened. And you can figure out what those somethings are and stop them. And there's a great example high fat, you might need a Temp Basal increase that goes on for hours and hours later,

Jennifer Smith, CDE 15:11
high fat 50% at least 50% increase for at least six to eight hours after the meal. Right?

Scott Benner 15:18
Right. It's just it's, I know, it's a little mind numbing to think that, but that's a lot to think about. But I want to, I think now's a great place to say this. As much as we're breaking things down and really stretching them out. So you can see the tiniest little aspects of these ideas. For people who understand them, I will speak for myself, I do not think about diabetes that frequently during the day, this stuff just kind of happens. I know that sounds crazy. But I look at a plate and I go, Okay, here's what this means. And if and if I miss I readjust. But But I don't spend a lot of time, of course aside of this podcast, but I don't we don't say the word diabetes in our house very frequently, I guess is what I'm saying. We're not always fighting and, and you know, scary lows, and oh my gosh, she's been high for three hours. Like that doesn't happen around here. Right. And you can live that life too, by understanding how insulin works. Isn't Jenny terrific. You know who else is pretty great on the pod and Dexcom. Go to my omnipod.com forward slash juice box to get your pod experience kit today. That's right, a free no obligation demo of the Omni pod is yours to have by going to my omnipod.com forward slash juice box. You want to make these great adjustments, you're probably going to need a CGM. I recommend the G six by Dexcom. Go to dexcom.com forward slash juice box to find out more. These links are also available in the show notes of your podcast player, or at Juicebox podcast.com. I put three episodes out this week, this one Pre-Bolus thing. And the next one insulin pumping. Don't forget, get all three. This diabetes pro tip series was designed to be listened to in order. So if you're finding this one, go back, work your way through them. They build a narrative around type one diabetes. Coming up next month, using your glucose monitor, bumping and nudging and more. You can hire Jenny at integrated diabetes.com. Instead of me talking to her you could be talking to her. You could get Jenny on the phone or by Skype through FaceTime. She talks to her clients in many different ways. Bring up the things that you're struggling with and Jenny will help you go to integrated diabetes.com. To find out more about that. If you're interested in seeing me speak live and you're in the Orlando area, I'm going to be at the touched by type one event put on by dancing for diabetes. Just go to dancing for diabetes.com go to the Events tab click on touch by type one. When you do you can register to attend. This event happens on May 18 2019. It runs from 8am to 5pm. And there are a lot of great speakers not just me. If it's after May 18. Please still go to dancing for diabetes.com. They're a sponsor of the show. They do amazing work with people living with type one diabetes, and I would love for you to find out more about them. They're also on Facebook and Instagram.


Please support the sponsors

The Juicebox Podcast is a free show, but if you'd like to support the podcast directly, you can make a gift here. Recent donations were used to pay for podcast hosting fees. Thank you to all who have sent 5, 10 and 20 dollars!

Donate