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#214 The Frozen Urine Part of Diabetes

Podcast Episodes

The Juicebox Podcast is from the writer of the popular diabetes parenting blog Arden's Day and the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal: Confessions of a Stay-At-Home Dad'. Hosted by Scott Benner, the show features intimate conversations of living and parenting with type I diabetes.

#214 The Frozen Urine Part of Diabetes

Scott Benner

Isabel is from a land down under.….

Isabel is a nurse from Australia who not only has type 1 diabetes but also helps others to live better with type 1 at inrangediabetes.com.au.

You can always listen to the Juicebox Podcast here but the cool kids use: Apple Podcasts/iOS - Spotify - Amazon AlexaGoogle Play/Android - iHeart Radio -  Radio Public or their favorite podcast app.

+ Click for EPISODE TRANSCRIPT


DISCLAIMER: This text is the output of AI based transcribing from an audio recording. Although the transcription is largely accurate, in some cases it is incomplete or inaccurate due to inaudible passages or transcription errors and should not be treated as an authoritative record. Nothing that you read here constitutes advice medical or otherwise. Always consult with a healthcare professional before making changes to a healthcare plan.

Scott Benner 0:00
Hello everyone and welcome to Episode 214 of the Juicebox Podcast. This episode of the podcast is sponsored by real good foods Dexcom Omni pod and dancing for diabetes. There are links to all of the wonderful sponsors in your show notes and at Juicebox podcast.com.

Today I'll be speaking with Isabel, she's a nurse from Australia. Well, I think she's from Scotland, but she couldn't be from New York, it's hard to tell she's a bit of a jet setter. Really, she was when she was younger. Isabel has type one diabetes, she's the mom of two adorable children, one of them who you're going to meet at the end of the episode. And she runs a business in Australia called arrange diabetes, you can check that out at in range diabetes.com.au. That's right, we have so many Australian listeners at this point, I have to do episodes just for you guys. Thanks for that. By the way. Please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise. And always consult a physician before becoming bold with insulin or making any changes to your health care plan.

In my mind, you understand in my addled American mind, you live in a what I'm assuming is a shack made of three boards and analogous tail.

Unknown Speaker 1:24
I'm close to that.

Scott Benner 1:30
Well, then, in fact, I'm sorry.

Isabelle 1:34
I enjoy my shock.

Unknown Speaker 1:36
That's excellent.

Isabelle 1:40
So I'm Isabelle I am a type one diabetic and have been since I was 10. For for 24 years. I'm a mother of two little ones, one two year old and a three month old. And I live in Australia.

Scott Benner 2:03
Now you're probably gonna be fairly impressed is about when I tell you that you're 34 years old.

Isabelle 2:09
I'm very impressed. Very good. Thank

Unknown Speaker 2:11
you very

Scott Benner 2:15
well, so Australia, but you're Are you from

Unknown Speaker 2:18
Australia are

Scott Benner 2:19
you from?

Isabelle 2:22
I'm actually from Scotland. So I moved to America when I was four. I lived in LA for four years and New York for four years and then lived in Sydney, Australia for four years and then moved back to America for a year. And then.

Unknown Speaker 2:45
So we'll

Scott Benner 2:46
get to that in a second as well. But I think your your microphone might be touching your clothes, though. So I'm getting like,

Unknown Speaker 2:53
like a little Okay, yep,

Scott Benner 2:54
yep. So. All right, cool. Okay, so I could hear you fine. I just there was a little bit of scraping in the background that well, at some point while we're talking bother me more than anybody else, and I'll just be sitting, you'll be talking. I'll be thinking I can hear it hitting your sweater. Okay, so obviously, I didn't keep up as much as I would have liked. But you were born in Scotland. Yeah. Well, Los Angeles. moved to New York.

Unknown Speaker 3:23
Yes to Australia.

Isabelle 3:27
Yep. And then back back to New York and back again.

Unknown Speaker 3:32
Yeah, so your parents

Scott Benner 3:32
or you? I'm one of you. is an international gangster. Is that correct?

Isabelle 3:40
Yep, totally. No, my dad worked for the Bank of Scotland, which doesn't really sound like it means you would travel a lot but but we we get he got promoted every every once in a while. And we we moved.

Unknown Speaker 3:57
Moving around.

Scott Benner 3:58
I prefer to think that you were you were running on your father's gambling debts. I think it's a much more exciting story. I'm gonna tell myself in my head as we're talking. That's really crazy. Now, how did you find being transplanted so many times? I guess the first time when you're four, do you have a recollection of thinking? Well, none of these people speak correctly?

Isabelle 4:22
No, I have no recollection of that whatsoever. And even next move nothing next to moves nothing but it was when I was 12 and we moved back to New York. That was hard. And everyone just kind of ignored me.

Scott Benner 4:47
Here's why. If I can guess on the on the just at the onset, you have an Americanized Australian Scottish accent which you can actually hear or parts of while you're speaking. It's usually Start you start off Scottish you trail off Australian and everything is just a little American as you go.

Unknown Speaker 5:06
I Yep. So I hear very strange

Scott Benner 5:10
you hear it or not, I'm sure you don't hear it. If you're in the Orlando, Florida area, it's time to start thinking about the dancing for diabetes touched by type one event that's going to be on May 18. go dancing for diabetes.com. To find out more that's dancing the number for diabetes.com I think you're going to know one of the speakers. He sounds a lot like me.

Isabelle 5:34
I can't hear it at all. And I usually I was gonna say I usually can hear accent very well. But then if I hear an accent that Scottish or one that's an American, I'm, I can get it right away.

Scott Benner 5:51
So to the listeners, I have a lot of listeners on the west coast. We're originally from the east coast, I get a ton of notes that tell tell me that the podcast makes them feel comfortable because I talk the way they grew up. And yeah, every time I get that, I think Oh, that's so nice. Then the second thing I think is I don't speak any specific way which is completely untrue. No, none of us like that. The other thing is my brother in law is from Scotland, and has made no real effort to in any way. Americanize how he speaks. And when I speak to him, I stare at him. I listen incredibly intense,

Unknown Speaker 6:31
picked up.

Scott Benner 6:33
Really here as I as he's talking. And and I just I try so hard. And I'm looking and look. And sometimes you hear key words, and then you just get to the point you go.

Unknown Speaker 6:46
Because I don't know what he's saying. You assume something has been said.

Scott Benner 6:52
Yep. Fascinating. Now his wife hears him perfectly. And she's from you know, Pennsylvania. So I maybe if I lived with him longer, I would figure it out. But nevertheless, it just sounds like i i to me, and I'm not trying to be cartoonish about it. I mean, he mumbles nigh complete. Right? through what he's saying. He uses a lot of slang that has no no perspective for me whatsoever. And then he speaks very quietly, and then every once in a while just gets excited. This all sounds very familiar.

Unknown Speaker 7:23
Yes, yes, it does.

Scott Benner 7:26
Your father's speak sorry. He was able to pull it together to get his promotion at the bank, I guess.

Isabelle 7:31
No, he is. Uh, well, my friends think occasionally. They have difficulty here like understanding him. But I think because he was, you know, in the business world and whatever. He has quite an eye. Good. Understandable.

Scott Benner 7:51
It's funny how an international world changes everything. A friend of mine, just the other day pulled out his phone and he said listen to this voicemail. And he was he was left a voicemail by a colleague of his in India. And we have, I mean, to say that my daughter's best friend is Indian is not an understatement. Like there's a pretty big Indian population where I live and and I listened to that voicemail. And I said to him, I was like, I didn't hear three words. I'm sorry. And and how do you do your job. And he said, in the first couple of weeks, when I was at this company, I was, I really did have to sit around and intently. Try to like, slow myself down and listen, because he's like, you can hear once you can hear, you know, that's like, that's really kind of weird, but Okay, so you're an internet called jet setter? Who got back to New York when she was 12. And do you think it was because you were from somewhere else? And you had an accent that the kids kind of? Or did you? And how did you find that? Because you're two years into your diabetes at that point right?

Isabelle 8:51
away? Hold on. No. So a four out of four for when I got to La 456 and eight, moved away from America and I was 12 1314 1516 and then moved back when I was 16.

Scott Benner 9:07
Seven you had the trouble?

Unknown Speaker 9:09
Like with people Yes. That's when I had the trouble just going oh, that's Yeah.

Isabelle 9:13
When I when I moved back again. Yeah. And I I particularly wanted to go back to the same, the same area and the same school, obviously, because I was like, oh, I've got friends there. You know, it'll be easy. But, ya know, that was harder.

Scott Benner 9:28
16 It's a weird time to try to insert yourself into a

Unknown Speaker 9:31
circle. That's Yeah, no, I

Scott Benner 9:34
hear that. Plus, they probably thought there was a deadly spider hanging in your closet that you brought back from Australia, which is my entire understanding of Australia, by the way. And I've now I will tell you that the podcast is I don't think oddly but incredibly popular in Australia. I'm and yeah, New Zealand and that whole area gets a lot of downloads. So thank you, everybody. For that That's not why I had Isabelle on just to make you people feel better. That's not why I did this. Just kidding. It's not like, so you are a diabetes educator beyond having type one diabetes, is that right?

Isabelle 10:11
Yes, I'm a registered nurse and diabetes educator. So I've been doing my own private practice for three years now in diabetes education.

Scott Benner 10:22
So prior to that you worked in a hospital?

Isabelle 10:26
No, so that just means Yeah, but you can either be public or private, in Australia and public just means you work in a hospital and private private is that you've basically set up your own

Scott Benner 10:39
practice.

Isabelle 10:40
Practice. Yeah, okay, we're

Scott Benner 10:42
gonna probably stumble on a couple of words that aren't gonna are not gonna sync up here. But that's okay. So a doctor in your practice, or are you the are you the medical expert in the in the practice?

Isabelle 10:54
I, so I'm the only one in the practice. Normally here you would have? Well, no, not normally. But a lot of diabetes educators here worked out of a general workout of a diet, a doctor's practice. But I didn't want to

Scott Benner 11:14
basically set up shop on your own and you're just you're just focused on helping people with type one.

Isabelle 11:20
x? Well, no, type one and type two, technically. Yeah. Because, yes, too hard just to do type one. But, yeah, just basically,

Scott Benner 11:32
so you're supporting people with diabetes in Australia on you're very, by the way very industrious. Here's your two little kids. I had, I had trouble this weekend planning cutting the lawn was something else. Because I have children. I was like, I don't know if I could do both things in one day.

Unknown Speaker 11:47
But you were,

Scott Benner 11:48
you were obviously a little more industrious than I am. And, and so this is pretty cool. So what is your because your your email to me was, Hey, I found the podcast six months ago or so. And I'm enjoying it. And and I felt like you were saying you and I think about things very similarly. Is that right?

Isabelle 12:05
Yeah, yeah. And I don't know, I don't know where that stems from. And me I just taking each day as it comes, and, you know, not not thinking too much of, of, you know, the bad days, and then just just carrying on and that kind of thing, just sort of staying fluid with the whole thing. Yeah.

Scott Benner 12:29
So it's interesting, because genuinely, right before you and I got on, about an hour before we started, it's, it's very early in the morning where I am, and it's very late at night where you are. And so yeah, and by the way, thank you for staying up to do this is very nice. So Arden is in high school now. And she's been in there for about a month now. And I got a text this morning and said, My friend and I are going to go down to the cafeteria in between classes and get something to eat. Which is not something that has ever really happened before. You know, my son would do it all the time. But he'd be like, I jumped out of Spanish real quick and got a bagel or I didn't like, but she was suddenly saying it to me. And only about, you know, only about a half an hour before her blood sugar. Just It was crazy. It was sitting at like 110. And I was pretty happy with it. And I didn't think much of it. And all of a sudden I got 135 like straight up like it just the decks just said, Well, she's jumping up. So we pretty aggressively bolused for that 135 straight up. And you know, it leveled off at 140. And I thought, okay, I'll pull it back down slowly. You know, maybe we'll make another decision soon. But before I could do that, she texts me and she's like, we're gonna go get something to eat. And so I said, What are you going to eat? She said, I don't know. I've never done this before. And I was like, okay, so when are you going in a few minutes. I said, Well Bolus a unit right now. And she's like, okay, and before I knew it, I thought, Yeah, what are the odds that what she's going to get is that small plushies 140. And I wasn't sure that the small balls I used for the hour up was really going to bring her blood sugar back down. Anyway, so I texted her back. I said, Gina do two units. So she did to about 810 minutes later, I get a text that says I have a hashbrown which I said, Okay, is it bigger than your hand or smaller than your hand? And she's like, it's not, you know, like, right. So she tells me it's a little smaller than her hand. And I'm go, Okay, so she can't, she's got this great signal in the school, but it's just for tax. Like if you try to send a picture out of that school, it gets all like, bound up, you know, sounds like but forget taking a picture of it. Yeah, and beyond that, who cares, right? It's a hashbrown about the size of her hand you would buy at a school, and I thought to myself couldn't possibly be more than 25 carbs is my guess. Right? And so I'd given her two units she was 140. I figured that the point six I gave her for the arrow up probably just stopped the error wasn't going to Bring it down. So I needed another point seven to bring her back down. And the thing was, I was like, Alright, just double your bazel for an hour on top of this basically 2.6 that's already going. And right before you and I got on, I told her to cancel the Temp Basal. And our blood sugar's at eight nice and stable. Now that is the key, the core of what you're talking about just staying fluid and, and rolling with it. Because

Unknown Speaker 15:27
Yeah, I mean,

Scott Benner 15:28
imagine the other side of that. I'm 140 I want to go get a hash brown right now, most people would have just said no, like, right? Like, yeah, you can't eat now, like, don't eat now, because I don't know what's going

Unknown Speaker 15:39
on. Let's just not do this.

Scott Benner 15:40
Right? Yeah. So instead, I was just like, let's just be aggressive here. And we'll cut back if we need to. And if we have to, you know, if we have to cheat with some sugar at the end, because we got it wrong, too aggressively, better than you being 200 over eating this stupid hashbrown. Right. And I'm really thrilled with how it worked out. But is that something that you just picked up along the way as you were growing up? Because? Because it's interesting, right? Because you've gotten diabetes education in America? And and like in a couple of different places. So is this just an amalgam of different ideas? How did you come to this? I can tell you how I came to it. But how did you come to it? I just went to my omnipod.com forward slash juice box. I hadn't been there in a while. And on the pod spruced it up, they put new images there and some new tags, it's a, it's quite fancy. From there, there's nothing to do except fill in your name, your zip code, your email address, and a phone number. Then you tell me about what kind of diabetes you have. And you're off to the races. You get to experience the on the pod for yourself, because they're going to send you an absolutely free, no obligation, experience kit. Like that new word. It's not a demo pod anymore. They're calling it experience kit. Now I like it. It's more, it's more now it's more hip. It's what's happening. It's how the kids are talking. So if you're considering insulin pump therapy, the best way to understand the comfort and convenience the pod offers is to try it firsthand. Get Your FREE experience kit, which includes a sample nonfunctioning pod and see what you think there's absolutely no obligation to buy, you'll be able to wear a nonfunctioning pod to see how it feels. Find the area on your body that works best for you. and experience what freedom feels like when you were an insulin pump that doesn't have any tubing attached. If you'd like to try the insulin pump that Arden's been wearing for over a decade, go to my Omni pod.com forward slash juice box. When you get there, fill in the information, click the big red button that says request your experience kit. And you'll be well on your way, Miami va.com forward slash juice box with the links in your show notes or Juicebox podcast.com. The Omni pod is one of the best decisions we've ever made for our daughter. And I think you'll love it too. This is the perfect way to find out because there's absolutely no obligation or cost. In summary coming. Would you like to swim with an insulin pump that doesn't have tubes.

Isabelle 18:07
We were diagnosed obviously, in New York, and they didn't really I guess, educate us too much at that time. And it was largely down to my mom, basically learning on the fly. So it was a lot of books and that kind of thing. And and I think and I just as time went by I was just curious, and, and looked to different avenues to learn, learn things and. And also just, yeah,

Unknown Speaker 18:45
we did it as it came. Just figure it out as

Scott Benner 18:49
it comes. There's a graph online today and a Facebook page where our parents like, look at this. It's the pump, it's this, it's that I'm like, your kid just doesn't have enough insulin, like I can see, looking at it like you, you can try blaming the pump, if you want, you can try blaming the food, if you can try blaming everything if you want to, you didn't use enough insulin, and now this kid's high, and you keep using not enough insulin to try to bring him or her back down. So you start to get a fall again, then it levels off because you don't have enough insulin. So that weird thought I ended up explaining by saying, Listen, if your blood sugar is too high, you've either you know, you know, you use you've used the wrong amount of insulin or you've mis timed it or sort of a combination of both. And if your blood sugar's too low, you've used the wrong amount of insulin, you've mis timed it or combination those two ideas. That really is it the whole thing is timing and amount, right? It's just exactly right. You call it whatever you want. I don't get I don't give up what you call it, you know, but it's, it's not a thing. It's not a rule. It's not a it's just common

Isabelle 19:55
sense. It's just yeah, that's exactly right.

Scott Benner 19:59
And so when you try teach that to somebody when someone comes into your, your your boathouse, right? Let's assume that's where your business is in a boat house, where you spend half of your day beating away crocodiles, the other half helping people diabetes, when someone comes in and shows you a graph like that, how do you explain it to them,

Isabelle 20:17
depending on the particular person who you're explaining it to? You be they adults or, or child, but also that particular person's personality, which I guess you get, you know, off of, off of how they appear and how they talk to you and what they say to you and everything like that. So it changes for everyone. Sure,

Scott Benner 20:41
no, I hear you because I spoke to somebody This is long enough, long and long ago enough now that I don't feel like I'm hurting anyone's feelings. But I spoke to someone who one time was a younger parent. And I mean really younger, and didn't appear through, like initial contact, that they probably got much past high school and their understanding of things was really more basic, right, like, and I really credit the conversation that I had with that person years ago with the simplify the idea is, because I was

Unknown Speaker 21:13
on the

Scott Benner 21:14
phone with a person I never met before who I sort of had said, I'll do my best to help you. And then once I got into that moment, I was like, I don't want to let them down. But what I'm saying, isn't registering with with her. And so I found like these different ways in that phone conversation. It was the first time I ever said to anybody, Hey, you got to think of it like a tug of war. And now, right? And now I say that here on the podcast, and people like, Oh, that's incredibly helpful, because I've now honed that, that idea by saying it to people over and over again till I've gotten it down to like a, like a brisk, you know, couple of moments to make up. I actually said to somebody the other day, there's a parent, I'm considering talking to you privately. And she said, I don't know how much time I have. I said, Don't worry, I can explain diabetes in between 42 and 55 minutes. And I really feel like that Now, like I can give you I can take somebody from very little understanding to a more firm footing in less than an hour. And and if they can follow along and keep up, you know? Yeah, yeah, it's really it's not as difficult as people make it feel. I guess, I don't

Isabelle 22:27
even know if I feel like I could do that, though. And I don't know, I don't know if that's, maybe that's because I'm, I'm spreading myself over every type of diabetes. But

Scott Benner 22:42
we're also giving complete information. I'm kind of painting. I'm sort of repainting your perspective, when I talk to you. Like, like, do you know what I mean? Yeah, like I'm taking this thing you thought about insulin. And you know, people say I'm afraid and I go, Okay, well, here's why you shouldn't be afraid. And here's where we can take some of the fear away. You just give them a fresh coat of paint on their thoughts. Because I think what happens to most people is just what happened to you, you get this very incomplete, you know, instruction when you're first diagnosed. And then you build off of this incomplete information, which only means you're making, you know, mistakes along the way. You know, you're assuming things you shouldn't assume you're letting your fear get out of you. Before you know it. You're so far away from your diagnosis, and so scared and freaked out and lost. That you know, what you really need is you need a reset, you know, you need somebody to push the buttons. Okay, let's start over. Think about it like this. Yeah, exactly.

Isabelle 23:40
And, and if you don't, if you don't just do that yourself, yeah, exactly. You just need someone to, to say you're, you're allowed you're It's okay. Just Just do it.

Scott Benner 23:50
All the permissions a huge part, which is ridiculous. is silly because I it happens to me all the time where an adult says to me, I don't understand it. Now that you've said it. I don't know why I wasn't doing that. Yeah, and I say this all the time. And I believe it's completely true. Doctors, you know, police officers, teachers, you grow up your whole life, your parents tell you just listen to those people. Don't Don't question them. You know, like, they have your best interest at heart. They know better than you. They went to fancy college, you didn't go to fancy college, or whatever it ends up being. And so we're just we're indoctrinated through you to just listen blindly. And so what I want what I find happens is that by the time people get to me, it's almost like a bad horror movie. Like they realize they should leave the house but they can't bring themselves to do it. Like everyone around them is being killed and they're like, you know, my car's here. I should probably go and instead, what's the chances there's a murder in the house with a knife, I'm probably imagining this whole thing. And they just stay till the bloody end, right. And you just need somebody to say you need to be the real voice in their life who's yelling from the theater, get out of the house. You know, and so yeah, once someone gives you permission, it's funny how interesting, because what am I really saying to you? You should trust yourself more.

Unknown Speaker 25:08
It's a one Exactly.

Unknown Speaker 25:09
I'm saying, you know, yeah,

Unknown Speaker 25:11
do do find

Scott Benner 25:12
that that is true with the people you meet or, or, I mean, sometimes.

Isabelle 25:18
Yeah, definitely sometimes. You know, sometimes it's, it's that and sometimes it's just, it's just that they've gotten random information from random people, and they just, they're trying to follow, follow what they've gotten from everyone. And, and it's all just so obscure, and I'm like, No, just just look at it yourself. Just listen, just, you know, you see it going up and down, you know, you don't need to actually do what this person or that person said, Just do what doing what you do, what you see needs to be done kind of thing. And, you know, listen to, you know, that test that you're doing, or you don't, it doesn't need to be, you know, based on any particular, you know, any type of information or that kind of thing. It's, you know, in the here, and now, what do you need to do

Scott Benner 26:28
is, well, I'm going to tell you that I think that you are, you've completely hit on something that I don't think I've ever articulated. But now seems like such a great time to do it. When you go find other people online, and you don't know them, you're listening to other people who don't know what they're talking about to they were there five minutes before you go, and I don't know what to do. Then someone came around and told them something, which by the way, may or may not have been true, or accurate or helpful. And then five minutes later, you show up and because they're they're already before you you think they know what they're talking about, then they tell this bs thing to you. And now you think it's a rule? And it's Yep. All right. It's It's so community is incredibly important. If it's, if it's if it's good information, but how do you figure out what's good? And what's bad when you don't know what the heck you're doing to begin with? Exactly. And what I mean, like I could put a, I could put a 10 year old in the car and tell them that the brakes the gas, the gas is the brake and pretty much talk them into driving into a wall if I wanted to, you know, every time you think the car when you think the car needs to stop, push the one on the right. Even if it feels like you're speeding up, trust me just keep pushing it down. Because that's what ends up I mean, think about the person earlier with the, you know, the graph and its people. There's something wrong with your infusion set. It might be your insulin, it could be this.

Unknown Speaker 27:52
Yeah, exactly.

Scott Benner 27:54
Did this happen? Has anybody, blah, blah, blah. But there's 19 different things. Now this person went from I don't know what to do Someone, please help me to. Okay, we'll just consider these 19 things and try out which, by the way, as I'm looking at the graph, and I'm looking at what people are saying, it's my I don't know for sure I'm not there. But it's my best. Yeah, I'm like, this is not enough. This is this guy's gonna spend days throwing away infusion sets and to get through a $40 vial of insulin in the garbage. And I'm just like, could you just like double your bazel there for a little bit. And let's try bolusing. Again, I think it's gonna come down in a half an hour.

Unknown Speaker 28:35
You know, like, yeah,

Isabelle 28:36
that's exactly. Yeah, that's exactly what I'm what I'm like, and um, it gets me into trouble sometimes as well because, like, other other health professionals and other specialists really don't really don't like changing things like that. And certainly,

Scott Benner 28:55
morons Isabel, okay.

Unknown Speaker 28:57
They just

Unknown Speaker 29:00
see, you're gonna make me upset. You're having a nice time. And so I

Unknown Speaker 29:04
may upset you. It really annoys me.

Scott Benner 29:07
Why do you think they won't just say to somebody, the first and most obvious thing, which is

Unknown Speaker 29:13
more influential, eat

Scott Benner 29:13
more, and you're not using enough insulin in your time yet completely wrong? Do you think they don't? So this is interesting, because I think you have a better insight in this than I do. Do they not know, where did they not want to be the ones that make your blood sugar low?

Isabelle 29:31
I'm certain that they know they have to know right.

Unknown Speaker 29:36
I think I think I think

Scott Benner 29:37
that's a huge assumption. I really do.

Unknown Speaker 29:41
I know.

Isabelle 29:42
I know. I think I think it I I would think it has to lie in that they don't be want to be the ones that to make your blood sugar low.

Scott Benner 29:54
That's really terrible. It really is to let someone live an entire life with an elevated blood sugar. To give them the stress and the anxiety and the health issues that come with that, and to make them think that that that this is like, quote, just diabetes, and there's nothing you can do about it. So just live this horror, you know, every day and every night forever and ever. And then this person is telling you that 100% knows, either it's not true or knows they don't know what they're talking about. Like, I don't know how with good conscience. Yeah, that's just horrible. You can give bad advice, right? Like, a real person who was concerned for your health would say to you, I have no idea. Go find somebody who does. Yeah,

Unknown Speaker 30:33
exactly. Right, right.

Unknown Speaker 30:34
Yeah, that's right. Not like, hey, let's

Scott Benner 30:36
flip a coin and try this now. Or I like the I like people with a graph, the kids blood sugar's 250, all day long. And they said, Oh, I contacted bar, our endo, and we're moving up our basal rates by 10%.

Unknown Speaker 30:51
Like, I'm like, Oh,

Scott Benner 30:52
well, what will that do? Make the kids blood sugar 230

Unknown Speaker 30:55
all day long. Like, what are you?

Unknown Speaker 30:58
Seeing? Right? Yeah,

Isabelle 31:00
I think sometimes that like the, the ones who are looking after it, you know, they don't, they don't have diabetes, they just don't quite understand.

Scott Benner 31:13
You know what else is often misunderstood? people's desire to not have a ton of carbs in their food. Some people just don't want that. Some people are looking for high protein, no green and low carbs. They want nutritious, and they want tasty. Some people are just like, Oh, just eat stuff with carbs in it. But that might not be for you. And if that's how you want to eat, you're absolutely in luck. Because there's a listener to the Juicebox Podcast, you will save 20% on your order at real good foods calm. Now, real good foods has an incredible selection of foods. I don't know which one you're going to want. You are gonna have to head over to the website and check it out for yourself. But I know there's cauliflower crust pizza, which is like all the rage right now. They also have pizzas with chicken crust, like crust made out of chicken. Gobble, gobble. How about cheese pork or chicken enchiladas. They even have chicken poppers with pepperoni, mozzarella, jalapeno and white cheddar, artichoke and cheese. And if you can't decide which one of those you want, just get a mixed case. For pepperoni. For jalapeno, you can do whatever you want. The cauliflower pizza has come in vegetable pepperoni, Margarita, and cheese. I think what I'm saying here is that you need choice. And real good foods offers that choice. You want to make the choice to eat low carb, do it. You don't want grains and your products, do it. You want to decide between jalapeno and pepperoni poppers mix up a case anyway you want you do it. And you can do all of that while saving 20% on your entire order plus getting free two day shipping. That's just for listening to the Juicebox Podcast. So go to real good foods calm. And don't forget to use juice box at checkout.

Isabelle 33:02
or understand exactly what needs to be changed or by how much or understanding why that is as well. And they just they just kind of go Tinker twinkletoes around it, you know, they just really don't change it by enough to make any significant differences. Obviously, you've noticed

Scott Benner 33:24
Twinkle Toes is a strong candidate for the title of this episode. Just so you know. No, and it's it's absolutely infuriating, because and I've used this stupid analogy before. But if I taught you today how to drive and you'd never driven before. And I told you don't press on the brake too hard, because it'll send the car into a skid or something like that. So just press down halfway. And then you went out and you were driving and I don't know you're driving towards a tree and you press the brake down halfway. But you weren't stopping? Would you just continue on with my advice until you crashed into the

Unknown Speaker 34:00
great? Course not?

Unknown Speaker 34:02
Of course not. Except

Scott Benner 34:02
that's what we all do with with our bodies, right? We're just saying what the guy said to do this, you know? And yeah, it's and how is it not? Listen,

Isabelle 34:13
how does it not change?

Unknown Speaker 34:15
Not change. Right? Right? How

Scott Benner 34:17
doesn't someone now and just like small increments, I have people who go back to their endos all the time. And I love you people who do this. They go back, they have a significant change in their agency, they have a significant change in their stability. The doctor says this is a miracle, which by the way, it's not a miracle. It's just they understand how to use their insulin. Now,

Unknown Speaker 34:36
what happened? And they tell them it took a lot of hard work as well. Yes. And they tell them look, I

Scott Benner 34:41
learned this on a podcast. be silly, you know, disregard me if you want, but I listened to you for years, and this is what we go. And I listened to a random guy on the internet. And this is why Right, right. Yeah. That really is the interesting part. I was trying to explain this to the a DA the other end The other day because I'm really trying to get this message into educators hands.

Unknown Speaker 35:05
But

Scott Benner 35:07
it doesn't really take that long. Like I take. I've seen people most emails most of your correspondence back to me, people who found a clicks for them, usually, yeah indicate 90 days. It took me about three months is what most your email say in a bed. They'll people who really struggle will say it took me two visits to the end. Or and then when you talk to them a little more, you realize they heard you but they got stuck on one thing and they couldn't make the decision. Some people be like, I hear what you're saying. But my agency didn't really go down that much. And then as I prod them a little more, there's Well, I don't Pre-Bolus still, like Well, okay, well, that's why, you know, or I haven't been as bold with my insulin as i as i think i should be. Okay, well, that's why. Yeah, and that's the thing. Yeah. You know, they got to get over but all it

Isabelle 35:55
all it really ever comes down to is more influence. Yeah, it's so stupid. Yes. People are just ever so scared of it.

Scott Benner 36:04
By the way, let's say this. totally reasonable. Right, right. Like it's completely reasonable to be. You know, I mean, you and I are talking in the beginning of October. And just last night, the episode with Izzy me hand went up, and I'm sure you haven't heard it. But

Isabelle 36:22
is he you know, that I've seen your podcast, read your blog, and post. And so

Scott Benner 36:29
it's so amazing, because by now by the time people hear this, they'll have listened to Izzy. And I really want them to revisit this idea for a second, like it's easy to say is he used too much insulin, she passed out she crashed her car. It's a very, it's a very basic look at what happened. What really happened, if you listen to her is that she was normally a very healthy eater who one day just got incredibly hungry at school and decided she was going for it ate a bunch of kind of junky food that she doesn't normally eat.

Unknown Speaker 37:03
Normally, yeah,

Scott Benner 37:04
she didn't know how to Bolus for it. And she didn't Pre-Bolus for it. And so she gave herself some insulin, her blood sugar started shooting up, she waited probably too long to try to address it. Then she addressed it with a bolus. And then it kept going. And she addressed it again. And even as that happened, a number of hours later, she was pretty her blood sugar was good. It was very, it was very stable. And at a good number. The one thing she didn't take into account was that the Miss timing of the insulin like sure what she put in was able to stop this giant spike and bring it back. But she forgot that pretty soon the insulin, the insulin was going to still be active while the food was going out of her system. And then she told me she counted on her CGM to tell her if she was getting low. She made this great analogy made this great analogy. She said, I used to treat my dexcom like a GPS. And I was like, What do you mean, you know, and she said, I follow my GPS wherever I need to go. But the truth is because I do that I don't understand the roads at all. I don't ever know where I'm at. With this thing tells me and she said and I've been doing that with my Dexcom. For years, it's always been okay, but this one time, her blood sugar dropped faster than the technology could could keep up with. And so she did not get an alarm that told her Hey, something's going bad because the thing didn't know it was going bad when it happened. And you can look, you know, and then I asked her afterwards about what do you still think about the technology? He said, it's amazing. I use it all the time. And I still wear it saved my life a bunch of times it just this one time. It didn't. It didn't. It was a confluence of events, right that led to this low blood sugar. But yeah. Some people will listen in here is he took too much insulin and crashed her car. That's not what is he probably took the right amount of insulin and completely miss timed it with the food. Yeah, that's what really probably happened. And you'll never know for sure. But you know, I think her story was incredibly important to share. But at the same time, I was scared.

Unknown Speaker 39:19
Definitely.

Scott Benner 39:20
But then people would get fearful and say, Oh, see. So, you know, this is maybe my way of coming along afterwards and telling people look, you can't be afraid because your story,

Unknown Speaker 39:29
you know? Yeah, that's right.

Isabelle 39:30
Yeah. And yeah, you Yes, you can't be scared because you hear any stories like that. You've just got to keep on going. But it's the same as with anything. It's, you know, I've heard you use car crashes as an analogy for for insulin, numerous times. And that's exactly you know, it's exactly right. You know, you can't, can't be scared of driving because you you've seen a car crash. You still have to go out and do it.

Scott Benner 39:58
life in general is exactly Like that you can't be I mean, I switched recently to the statistic that a couple of times a year, a large chunk of frozen urine falls out of an airliner and like hits a house or something. Yeah, I don't hide in the house because of my fear of frozen and flying out of the sky. It just wouldn't be so. And if we, if we made a list of all the things to be scared of, then and and you actually

Unknown Speaker 40:25
never leave the house?

Scott Benner 40:26
Well, and you heated that list, you would then have a mental illness. But you really would you would you would beat yourself into a spot where you would say, Well, I mean, why am I even alive? If I just sit in this space, like, like, hoping the urine doesn't hit me, and

Isabelle 40:47
I get such funny images in my head.

Scott Benner 40:49
I appreciate that. Because in my mind, it's like a big iceberg. And it's yellow. And and they you know, and and it's coming down, like at this incredible rate, and, and then and then later, you're outside you go,

Unknown Speaker 41:00
do you smell that? What

Scott Benner 41:01
is that? And why is there a hole in the roof, and so, but like, I just the point has to be that you got diabetes, and that sucks. But this is your truth. So move forward with it, and do the best you can with it. And and don't lie. Don't lie to yourself about what the best you can is. I think that's one of the scarier things I see people do is they talk themselves into believing they're doing everything they can.

Unknown Speaker 41:32
Yeah, yep. You know, yeah, that's right. And I don't, I'm sorry,

Isabelle 41:38
some people, some people are, some people can take it on and just, you know,

live with it and do it, do it right, or try to do it right. And I think some people just you have to be in the right frame of mind, or you have to be in the right place to start doing something like that. I just I have so many clients who are have a few clients who, you know, you just work so hard at trying to get them to just do a bolus, just do anything. And, and it just doesn't get through to them yet. These are mostly younger, younger kids. And you just it just does not even read register with them kind of thing or registers on the day. But then, but then the next day, it doesn't find out. It hasn't. Yeah, exactly.

Scott Benner 42:34
I think the other side too, and I do want to kind of like add on to what I said is there are some people have legitimate illnesses like like, you know, anxiety and depression and things that stopped them from doing that. I'm not talking to you, you know, you people have a different hill to climb. I'm talking about everyone else who just, you know, doesn't Pre-Bolus for a meal, eat cereal, blood sugar goes to 400 mega, that's just diabetes, nothing I can do about it, and just moves along their way. Because none of that is Yeah, right. Right. Yeah, none of that is true. I mean, what I tell you exactly what was Arden's blood sugar, 88 and stable. It's 85 and stable now. So I with no heads up with a food I've never seen before. With a food, I don't know how much carbs is and I have no context for what she's about to eat. And I hit this number because I use these kind of five or six basic concepts that we talked about on the podcast all the time.

Unknown Speaker 43:38
And yeah, when they come down,

Scott Benner 43:40
it's what you said in the very beginning, I just sort of stay fluid. You know,

Unknown Speaker 43:44
again,

Scott Benner 43:44
I don't get rigid about it. I don't care so much about the math. I don't care. I mean, here's the deal, right? I look at that hashbrown in my mind. And I imagine that in any normal situation, if I was able to Pre-Bolus for it, it would be two units. Right? But I can't Pre-Bolus for it because she's hit me with this. I'm walking down right now to get food. So at a 140 blood sugar, I'm just like, Okay, well put into units, because she's gonna be eating in five or six minutes, these two units is not scary. It's not even a proper Pre-Bolus. So then I then I add the extra bazel and the extra insulin Why? Because now I'm over bolusing the hashbrown to make up for the lack of Pre-Bolus. Right? If you don't let me Pre-Bolus for the hashbrown maybe I only would have used unit three quarters two units maybe and and what it would have been okay, if I could have created the right kind of downward drag on our blood sugar as the hashbrown was going in. But I couldn't I couldn't so I just over Bolus to make up for the lack of Pre-Bolus. Yeah, people don't, that people generally don't think like that. And it's, you know, it really is. It stems from one of my first like visuals in my mind about diabetes. When I tried to explain to somebody what it was like to use insulin Before I really understood how to use it, I said, I sent somebody one time, it's like there's a big scale like a scale of justice in front of me like with, you know, the big dishes on either side that you can put stuff in, you find level, except those dishes have holes in them. And on one side, I'm dumping in carbs on the other side, I'm dumping in insulin, just trying to keep them level, you know, and it's a little more carbs a little more insulin. And that's how it used to feel, to me used to feel like a panic, like I could never catch up to it. But I realized now that was just the beginning of a thought that now later, kind of homemade in the idea of, you're creating a tug of war that you're hoping neither side wins, and you can't let go. And you can't let one side pull first. And you can't let one side pull harder. And when they're both tired, and they stop, they need to be tired and stop at the same time. You can't, one team can't get tired. And 10 minutes later, the other team get tired because then you're going to end up being over pulled in one direction or the other. And and so how do you do that? Right? You start to figure out how insulin works in your body. But it's not that hard. Like it really isn't like I meet people all the time. Like, I'm like, my blood sugar is always 150 won't go down. And I was like, Alright, well, how much would it go down? If you put in another unit? Oh, I don't know. Like, why? like, Well, I mean, what if I get low? Like the way you're not like, you know, you're not the Serengeti.

Unknown Speaker 46:21
Yeah, like if it's at diagonal down and you're like, Oh, God, I

Scott Benner 46:25
just put this one in, like 20 minutes ago, try to realize all you really done is really well Pre-Bolus for whatever it is, you're about to eat to stop this drop.

Isabelle 46:33
You're not risking lower. Yeah.

Scott Benner 46:36
Do you do that ever? Like do you ever miss get really high? And then crush it to bring it down? realizing that what you are, man? Yeah, what you're mainly doing is Pre-Bolus and for the next food you're gonna eat? Oh, completely.

Isabelle 46:48
Yeah, yep. See? Yep, completely. Actually, I did that just tonight.

Scott Benner 46:54
Yeah, cuz a long day for you, right?

Isabelle 46:58
Yeah, well, I went to sleep and then I've I've set my alarm and go No. Real adult.

Scott Benner 47:03
You're a real adult. I would have stayed up and then

Unknown Speaker 47:07
I'm feeding.

Scott Benner 47:09
Are you? Are you breastfeeding? Yeah. Oh my god. Really? That's terrible.

Unknown Speaker 47:14
Yeah, always nice to get. Yeah, I know.

Unknown Speaker 47:17
So tell me a

Scott Benner 47:18
little bit about that. You've had two babies in a short amount of time. How did you find being pregnant with diabetes?

Isabelle 47:25
Oh, um, I didn't find it too bad. Like I had done my research. You had someone on the podcast that I had already previously. looked at. She did a

Unknown Speaker 47:35
ginger book

Isabelle 47:36
about type one and pregnancy. Yep.

Scott Benner 47:42
Have you listened to the previous episode of the podcast? The one where Jake leech came back from Dexcom to talk about the upgrades to the G six mobile app. How about you can say hey Siri, what's my blood sugar now and it tells you I'm already getting notes from people who are telling me that the Hey Siri functionality is crazy helpful while you're driving? If you haven't heard that episode, head back after this and check it out. But to the rest of you. To those of you who don't have a dexcom yet. I want to speak to you in a very deep and soulful voice. Wouldn't you like to know what direction and speed your blood sugar's moving? Wouldn't you like to be able to see your child's blood sugar while they're off at a friend's house or at school? Wouldn't it be great to see how long it takes insulin to start affecting your blood sugar? Don't you think I should start speaking even deeper go to dexcom.com forward slash juicebox to find out everything about the Dexcom g six continuous glucose monitor my daughter ardens a one C has been between 5.2 and 6.2 for five solid years and you know because you listen to this podcast that I accomplish those numbers largely due to the data and information that I get back from the Dexcom g six continuous glucose monitor. Would you like to make a real change and find comfort tried Dexcom g six today go to dexcom.com Ford slash juice box or use the links in your show notes for Juicebox podcast.com results shared or mine Yours may very deep voice decks calm try it today.

Isabelle 49:30
I had read her book and kind of done my research and I already changed all of my rates and all that by myself anyway so I was kind of set for it. And yeah, it was a pregnancy was pretty pretty crazy. It's crazy how how much more influence the body demands. But But yeah, just kind of went along and I was a bit of a pain and pain in my specialist Robots here because I didn't want to induce the I don't know if it's the same in America, but they, with anyone with type one diabetes or diabetes, they, they want to induce it 37 or 38 weeks,

Unknown Speaker 50:16
you said no to that here.

Isabelle 50:19
But yeah, I said no. And that I wanted to get to 40 weeks, you know, if nothing else was wrong, and nothing else was wrong for either of them, like nerds had, like pressured or their size was pretty normal and all of that sort of stuff. So I was like, well, Nope, I'm gonna just carry on and see how it goes. And so I did that with both of them and got to 39 six with the first and then was induced because they certainly weren't let me go over 40 unfortunately, but then with the second just everything went went into labor naturally and had it all without anything which is cool.

Scott Benner 51:06
Excellent. Good for you. Yeah. I think it's um, so it's interesting because you said you read ginger Vieira's? Buck, right. And, and, and, and the one thing that you thought dimensioned, while you were talking was I make I already make my adjustments to my insulin when I need to. So imagine that a big piece of what ginger was telling you was, you can't wait three months to go back to a doctor to move on. You have to do it yourself. Yeah, it's not just great advice for being pregnant with diabetes. It's

Isabelle 51:33
great advice for anytime,

Scott Benner 51:35
right? Because Because what is the real goal? What are they? What's the a one see they put on you when you're that you say you're gonna get pregnant, your ob says I want your a one c one under six? Is that what they tell you?

Unknown Speaker 51:46
Yes. Okay.

Scott Benner 51:48
And so, I mean, is anyone listening? Who doesn't want their agency under sex? i?

Unknown Speaker 51:54
Right. Well, there are people, but But yeah,

Scott Benner 51:58
you know, it's funny, I was talking to someone the other day. Who said, you know, my one c seven and a half, and I'm happy with it there. But but that person had diabetes for 20 some years. And I didn't argue with him. I mean, it's his life, he can absolutely do whatever he wants with it. But I want what I wanted to say to him was your theory about your agency, is, it's just preconceived from what someone told you 20 years ago, when the CGM you're wearing didn't exist. And the insulin pump you're wearing didn't work nearly as well as the one you're wearing now. And the insulin you're using didn't work nearly as good as the insulin you're using blah, blah, blah. And I'm like, so you're using, you're basically using 1980s diabetes advice with 2018 technology. I mean, like I said, I wish him nothing but luck, but I just think he's stuck in an idea.

Isabelle 52:54
Yeah, yeah, exactly. And you also get those people that say, you know, I'm happy it at 7.5, or wherever it is, because I, I feel really low at six. And you're like, but yeah, that's because you're running a little bit higher, and you're accustomed to it. Yeah, exactly.

Scott Benner 53:10
No, no, I'm sorry. I gotcha.

Isabelle 53:15
No, no, I was finished.

Scott Benner 53:20
You're making me laugh. Okay. So.

Unknown Speaker 53:23
And I think,

Scott Benner 53:24
listen, if you're a person who's like, Look, I'm gonna keep my blood sugar at 140. Because I'm scared to death. And this is good. And I'm not disagreeing with you. I'm certainly not saying that.

Unknown Speaker 53:37
You're saying what I'm saying.

Scott Benner 53:39
Right? Don't tell me that 110 isn't possible, or 90 is not possible as an average blood sugar during the day. Don't tell me that it's impossible. Just tell me it's not something you're interested in doing. That's a different story. And the reason why that distinction is important, is because that when you go out into the world and tell people Oh, it's 140 because I'm scared to be in low. You've now told people

Unknown Speaker 54:03
that that's the rule. Yeah. And it's not the rule. It's the rule for you. It's also that there's something to be scared off, but

Unknown Speaker 54:10
like, you're you're spreading the word that it's scary, right?

Unknown Speaker 54:15
They're gonna kill you eventually. It's

Scott Benner 54:16
it's a matter of Well, yeah. And, and so listen, it could happen to any of us. That's the that's the that's the frozen urine part of diabetes. But that that really is very close to the title of the podcast frozen.

Unknown Speaker 54:35
But that's the

Scott Benner 54:35
that's the part of it. That's the leap you have to make here and listen, some people drive their car over 40 miles an hour because they think it makes it less likely to be in an accident. What I'm going to tell you is it makes you more likely to get rear ended by me because I'm going 70 and Okay, and that's maybe my fault, but I hear that so it's a theory idea but so funny. I this is gonna seem disconnected for a second but I saw a person on social media just this morning. Say that they're blocking people. And it feels so good. And I might the inference was they had heard too many kind of mean nasty things around the judge Kavanaugh, confirmation here in America and they had had enough of it. They didn't say what side they were on, which makes this point even better. I don't I don't know if they thought, you know, this guy's getting railroaded. Oh my god, can you believe what this guy's doing? And we're still like, I don't know what side of it they were on didn't matter, right? What what mattered was, I'm blocking people I don't agree with which there's eight in there one way or the other what the value is, and just showing yourself the things you agree with, right. But another person comes into the thread, and says, I just had to block someone to because of how offensive what they said was, and here's what I thought, I wonder if what that other person said was really offensive or not. Or if it was just offensive

Unknown Speaker 55:56
to them, which doesn't

Scott Benner 55:58
make it which doesn't make it wrong. If it's offensive to you, that's fine. But when you're explaining it to other people, the lack of that word, in your sentence directs people to believe that you're right and someone else was wrong. I don't you're right for you, you might not be right. For me, I might have heard what that person said. But they alluded to and think it's the funniest thing I've ever seen in my life. And or I'm not offended by that at all. I think that's honest, or any number of other things. But we we

Unknown Speaker 56:30
we don't and it's

Scott Benner 56:30
reasonable. We don't think about our own thoughts as wrong. But you only have to examine what you're thinking, because look around your life, unless your life is perfect. You've been wrong, sometimes you've made a decision about something and thought this is going to lead me to this, and it didn't lead you there and there probably was a decision back then that would have gotten you there. So just understand that everything that pops into your pretty little head, or my pretty little head isn't exactly right. It's just something I agree with, based on my knowledge of the world, which is fairly incomplete because I was asleep in high school. So it really you have to see, if you don't see that. Well, I think that's something you should work on personally. But if you don't see that when you're telling other people about diabetes, that, you know, you're 200 blood sugar that you can't affect. You know, when you say that's just diabetes, what you're really saying is, I don't really know the answer to this question. Because, and right, and you could, but what you've done is you've just talked someone else in the believing there's no answer to that's the dangerous part. That's the part that makes me upset and somehow our, you will see that I brought something full circle and not. I'm really a magician. Yo, yo. I'm mostly joking and partly really proud of myself.

Unknown Speaker 57:58
Quite impressive.

Scott Benner 58:01
It's quite impressive is now it's cool. It's quite impressive. I don't know, I'm gonna throw the whole three together into like a hodgepodge of words that don't make sense. Really. I want to ask you, what if you don't mind sharing a couple of things. First of all, do you worry about your children having diabetes one day? Or how do you think about it?

Isabelle 58:25
That's a good question. Um, I, I don't worry about it as such, but I, I wouldn't like if they were to get it

Unknown Speaker 58:38
off, but

Isabelle 58:41
I don't but I don't worry about it. And I don't I don't do trial net or any of those things. Unfortunately. I did do I don't know if you've heard of andaya.

Scott Benner 58:55
But what is it? I know the word?

Isabelle 58:58
Yeah, it's another it's another study of type one diabetes. So it's environmental determinants of type one diabetes. And it's a study that they've been doing here in starting in people that are type one or have type one, I think in the family and two are pregnant. And they start, they start the test in pregnancy and they also get information on your diet and everything like that and do blood tests and stuff. And then once the baby is born, they start a whole bunch of tests on on the baby, as well as the mom as well as the baby's diet and everything pretty much and just trying to

Unknown Speaker 59:44
determine like what if there's any seances? Yeah, exactly.

Isabelle 59:48
So I was I was involved in that initially but in I live in Canberra, in Australia, and it's one of the smaller city centres I guess. And there's all a lot of other areas have like, hospitals that do these tests. But, but camera camera didn't and you you literally got sent out like a package of testing material. And you had to do it on the baby. And I was just like, Yeah, no, it's not gonna happen. I'm a nurse, and I know how to do every single one of these tests. Like I couldn't do it, but I just cannot find time to do it. I'm like, it's not happening. That was just

Unknown Speaker 1:00:37
like, said, you don't

Scott Benner 1:00:38
do trial on that. And you said, it sounded a little like you were like, Oh, I'm sorry. I don't but do you not do it? Because you don't have the time? Because you don't want to know if your kids have the markers or because there's a reason you don't do it. What is it?

Unknown Speaker 1:00:52
Yeah,

Isabelle 1:00:53
I I it's partly because I don't want to know, but then I also do want to know, the reason is flimsy. Yeah, I just, I just went through it.

Scott Benner 1:01:08
And I'll tell you whose answer. I'm from a parent who also has type one. those answers always stuck with me the most. Excuse me. Okay, this is the end. Sorry. Sam fold is an American baseball player. He was on the show a couple years ago. And I imagine I'll have them back pretty soon. But he just I asked him about his kids. And he said, I live a really great life with Type One Diabetes. Like if they get type one, they get it?

Isabelle 1:01:37
Yeah. And that's kind of that's my kind of attitude as well.

Unknown Speaker 1:01:41
I'm like that,

Isabelle 1:01:42
even though I kind of I kind of would like to know, but I really don't want to know, because I don't think I Well, I'm sure it would change. Something I did. Like I would probably try and go low carb or whatever. If If I knew they were at risk, but then I don't. I don't think I want to know because I don't want to change that for them. I don't want to and then you know, if they were to get it, that's fine. We can do with it. But But if we were to change all of that prior to like, what's the point? Because they're gonna get it anyway. Yeah.

Scott Benner 1:02:18
You're, of course gonna want to check out dancing for diabetes.com. But don't forget to also find them on Instagram and Facebook. That's dancing the number for diabetes.com Yeah, my fear we did my son once he didn't have markers. And we didn't keep up with it to be perfectly honest. Because I started thinking, if he did have one of those markers, I'd look at him like a ticking time bomb then, like I was just be looking at him wondering when this thing was going to happen. And I thought that's just not healthy for any of us.

Unknown Speaker 1:02:51
Yeah, and

Scott Benner 1:02:52
I it did slow me down. Like, I have to tell you as crazy as it is like, the boys never shown any indications of type one so far. And as he was leaving for college, you know, I dropped him off and in the middle of that very emotional time. About a day or two before we took him. I pulled him aside and I was like, Look, I don't want you to worry about this. This is nothing to worry about. Don't think twice about this ever. But if you start losing weight or urinating a lot are get really hungry and stop using the bathroom. Yep. Those are signs of type one diabetes, and I need you not to ignore them.

Unknown Speaker 1:03:25
Yeah, by

Scott Benner 1:03:26
the way, that's not going to happen likely. So try not to worry about it because I just thought like, isn't it funny, right? I just thought, well, I interview so many people who hit stressors that change of life situations. And they probably they have the markers already and then the stressors sort of

Isabelle 1:03:45
just been like accelerates because of this.

Scott Benner 1:03:47
Yeah, they always think it's you know, everyone always wants to assign blame to why they have type one diabetes, the science will tell you is gonna whenever it happened, it was going to happen eventually. And maybe you got into a stressful situation that maybe sped it up or you got sick and it's been luck, but it was coming you know and so as I told him that I thought I partly felt badly for putting in his head and I partly thought no wait, you know what, this is no different than saying hey, listen, you got to use a condom. You know? Like Like I

Isabelle 1:04:16
you're completely empowering and with that information like

Unknown Speaker 1:04:19
I thought you're better than them

Scott Benner 1:04:20
yep then a week into school he got sick like he got a terrible head cold started losing weight and I was like Well here it comes self fulfilling prophecy and that's fine find out by the way, but

Isabelle 1:04:32
my point is I get where you're coming from with not wanting to know and i also I agree with I agree with taking time bomb factor like I think if I if I knew God like I occasionally check my my kids blood glucose levels as it is like if I knew oh my gosh, like I'd probably be doing it a lot more regularly.

Scott Benner 1:04:56
bg check mom. I don't have diabetes. Please. Hello, I need a prescription for a dexcom CGM for my kid today. No, but it's coming and I can't you know it's a weird space to be in it really is to any other type one in your family line.

Isabelle 1:05:20
No type one. I've had people with type two diagnosed since I was diagnosed. But then the only other thing is thyroid.

Scott Benner 1:05:29
Other endo stuff. endocrine stuff. That's what usually my write up my my wife's whole bloodline. The female side of my wife's bloodline all has different endocrine issues. Not one of them repeats. Yeah, it's really sad. But but they all have

Unknown Speaker 1:05:45
something. Yeah.

Scott Benner 1:05:47
Gotcha. So it was pretty It was pretty when you were diagnosed. That wasn't something. Anybody

Isabelle 1:05:55
out of the blue? Yeah. I think they said my parents looked a bit into into my family and whatever and said, all your great great grandpa might have had diabetes. I'm like, just that had our

Unknown Speaker 1:06:09
babies here.

Unknown Speaker 1:06:11
Thank you.

Scott Benner 1:06:14
Oh, dude, can we say the baby's name?

Unknown Speaker 1:06:16
A hunter. Yeah,

Scott Benner 1:06:18
Hunter is gonna need to be 100 He lives in Australia.

Unknown Speaker 1:06:23
How old is hunter?

Unknown Speaker 1:06:26
Hunter is three months. Wow, that's

Scott Benner 1:06:29
incredible. You made a person. It's pretty damn impressive. I gotta tell you. Is he is he hungry? Or is this the first breastfeeding on the podcast that's

Unknown Speaker 1:06:38
ever happened? It's quite possibly.

Scott Benner 1:06:42
You know, it's funny now that I said that. I thought How do I know someone else wasn't breastfeeding? Or if I guess I never asked before.

Isabelle 1:06:49
heard something. Other hunters. You've had bronchiolitis lately, and he's got a bit of a cough now so you can hear him a lot.

Unknown Speaker 1:06:58
And the other child, does he have a favorite side? Just one?

Unknown Speaker 1:07:02
No, no, no, neither of our are minded.

Scott Benner 1:07:04
Yeah, they'll go away and they'll go wherever they go. How do you find how long did you breastfeed with your first one?

Unknown Speaker 1:07:10
For 18 months?

Unknown Speaker 1:07:13
You are a trooper isn't? That's well

Scott Benner 1:07:16
done. And this is your intention with hunter as well.

Isabelle 1:07:20
Yeah, yeah. Just until, well, Austin is my first and he kind of I think he felt wings because my breast milk probably changed. flavor. I guess when I was pregnant. Maybe I see. So yeah, he sells kind of winged so I guess. Yeah, I'll do it until until possibly doesn't want

Scott Benner 1:07:43
to have Austin look up at you and go, the quality of your product has dropped. I'm gonna go on to something else now. Did you?

Isabelle 1:07:52
I didn't really care too much. It was it was a slow period. And he just he just kind of like that was that dwindled and thought, like reduced kind of slowly and yeah, I it hasn't really bothered me. I don't know. I don't know the feelings that people. Some people get when they're like, Oh, my God, it was the last breastfeed. I wish I wish I could have I don't know done What? Nothing.

Scott Benner 1:08:20
Just imagine your toddler sitting around with other babies going used to go to this great coffee shop, but they changed the formula. And so I just I stopped while I'm looking for another place now. That's really cool. Oh my gosh, that's incredible. Like, how does breastfeeding change? Does it change? I guess I should ask your your self care that you have.

Isabelle 1:08:46
Not for me Really? Normally I think people's blood sugar's go too low with breastfeeding. But I've noticed that mine has no pattern whatsoever when breastfeeding. So like I can I can go high, I can go lower. I can just stay stable. So it's CGM is my best friend. Basically. lost without it?

Unknown Speaker 1:09:08
Yeah, which one do you use?

Isabelle 1:09:09
I'm I'm on the Medtronic. 640 g with the end link?

Scott Benner 1:09:14
Um, no, you're using the How does that work for you? Is it keeping your blood sugar at that 120 spot pretty regularly or?

Isabelle 1:09:22
Ah, no, no. So that I think that's the 670

Scott Benner 1:09:25
That's it. I'm sorry.

Isabelle 1:09:28
That's 70 now so I can I can set my own targets. So I'm generally around the five. That's my target.

Scott Benner 1:09:38
That's really cool. Well, I know I want to let you go out of respect to what you're doing. And at the same time, I feel like for the podcast I need to keep you on while you're breastfeeding. But I am gonna let you go because it is very late. What time is it is it one in the morning.

Unknown Speaker 1:09:54
Midnight, midnight,

Scott Benner 1:09:55
it's midnight where you're at? you're feeding your child. You've done an over an hour, pilot gasps, which I really appreciate. Did I leave anything? Did we not say anything that you wanted to say? I always like to check with you.

Isabelle 1:10:08
Um, I guess you didn't ask about any complications of which I have none. I just want to

Unknown Speaker 1:10:15
I just wanted to the end doesn't

Isabelle 1:10:18
let people know that it's possible, you know, there you don't have to have had diabetes for what? 24 years and, and have complications.

Scott Benner 1:10:26
No, you're not trying you're trying to tell people look, there's a real there's a real path to you know, and listen, I think you would you would you agree you do you do as best you can you do the right stuff. Yeah, there's some listen you there are people out there who could keep their a one C at five and a half and, and still the location. But you're putting yourself Oh, the baby so cute. Okay, now I you know, I've been a stay at home dad for 18 years. I'm basically a lady is the roll. And so when the baby I tried I couldn't get it was really something. I read all the books. I felt like I was doing it right. But it didn't pan out for me. I've moved on. So that kid, what's that? I'm

Unknown Speaker 1:11:18
sorry. You take the hips as they come?

Scott Benner 1:11:21
Exactly. I'm just rolling with this the same way as everything else. Now unless you can make that baby make one more cute noise. And I don't know how you actually make a baby do that. I'm gonna let you go. So you can see you can do what you need to do.

Unknown Speaker 1:11:32
I don't know, either.

Scott Benner 1:11:35
Thank you so much for doing this. I really appreciate it.

Isabelle 1:11:37
No problem. Thank you. And thanks for the podcast. Like it's awesome. I really try to tell as many people as I can here. I'm telling all my all my certainly type one clients about it and thing. Yeah. Got a lot of great information. And yeah, I think I think everyone has value from it.

Scott Benner 1:11:57
Thank you. I very much appreciate that you do that. I appreciate when everybody does that. But that is that's definitely why it's growing. And I just had to put together my proposals for 2019 sponsorships. As I as I, as I looked at the numbers, I was like, wow, this thing is really growing. And it is it is totally because somebody like us out there telling someone about it. So thank you very much.

Unknown Speaker 1:12:23
How long have you been doing it? Again? Oh, gosh.

Scott Benner 1:12:27
I started in January of 2015. So I'll be starting. I'll be starting my fourth year in a few months.

Unknown Speaker 1:12:32
painting. Yeah,

Scott Benner 1:12:34
yeah, it's gonna have to, it'll have 200 episodes, probably. By the time. Yeah, by the time the fourth year starts.

Unknown Speaker 1:12:41
Oh, yep. Very cool.

Scott Benner 1:12:43
I find it very. I find I find it incredibly fulfilling. So I can't imagine not doing it.

Unknown Speaker 1:12:51
Yeah. That's good. Cool. Well, thank you again,

Unknown Speaker 1:12:55
not a problem. Thank you. Bye. Bye.

Unknown Speaker 1:12:59
Bye.

Scott Benner 1:13:01
Well, I definitely want to start by thanking Isabel for staying up so late to record this episode. I also want to thank Dexcom on the pod dancing for diabetes and real good foods. Don't forget that you can find links to all the sponsors at Juicebox podcast.com. Or in the links that are right there in your podcast player, their show notes in there just tap, they'll say it's a pretty long episode. But before I let you go, I want to remind you to leave ratings and reviews in iTunes because they help the show be found. And if you need proof that that's true. Here it is. You guys have been leaving a lot of really great ratings and reviews lately, which I appreciate. Because of that the podcast is steadily in the top 200 and it's category has been for like six weeks. We used to pop in and out of the top 200 but now we're just there were like there to stay. So that's all you guys thank you very very much when you leave those ratings and those reviews that helps iTunes understand that people like the show. It also helps them find the show when they find the show subscribe when they subscribe, we end up in the top 200 Not only that, but we're the best and most well reviewed diabetes podcast online. And for that a sincere thanks. Don't forget to check out the diabetes pro tip series if you haven't seen those, and I'll be back next week.


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