Disaster Information

Click to download the DDRC Preparedness Plan in English

The Diabetes Disaster Response Coalition (DDRC) formed in 2017 in response to a succession of devastating Atlantic Hurricanes that impacted the mainland US AND territories. DDRC is a national coalition of Nonprofit and for-profit stakeholder organizations that have A direct interest in serving the needs of the diabetes community and/or a role in planning and executing supply chains, public awareness, and healthcare services during times of disaster.

The DDRC website houses all of the information and links that you need during a disaster.

DDRC Resources

• Pharmacies & Shelters

• Healthcare Providers

• Customer Care Phone Numbers

• Insurance Support

• Hurricane Resources
  
  Resources

DDRC Preparedness Plans

• English Text

• Spanish Text

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Giveaway for Juicebox Podcast listeners

4 entires will be chose at random. winners will receive a $25 Amazon gift card...

All of the details that you require are contained in this 3 minute audio explanation.

Send your entries here

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Arden's past and current 504 plans are available to Download

Back to school...

Well the years are flying by and Arden's 504 plan is constantly morphing. Please feel free to read, download, use these documents as your own. You may need to make changes so the document reflect your child's specific needs. Arden's 504 was originally written by me in 2006 though I relied heavily on the JDRF and ADA templates of the day. Arden's 504 has been slightly modified each year since kindergarten, just like Arden it continually changes and grows. I hope that it helps you in creating your own. I'm digging up 504's from other grades and will be updating this page with new documents as I am able.

The plans have been redacted in the spots where you will need to fill in your information. Look for text that looks like this <TEXT>.

Good luck!

Documents for download...

Arden's Kindergarten 504 for download - Word, Pages

Arden's Sixth Grade 504 for download - Word, Pages

Arden's Seventh and Eight Grade 504 for download - Word, Pages

Go deeper...

While you are thinking about diabetes and education I would like to urge you to listen to a few episodes of the Juicebox Podcast that focus on a student's time at school.

Texting Diabetes: All about how we use something as simple as text messaging to manage Arden's type 1 diabetes while she is at school or anytime that she is out of the house. This simple process has led to lower a A1c, better grades, an increase in self-confidence and much more. 

Talking 504 Plans with D-Mom Jill: Getting a 504 plan is easier than you think and it's super important!

Talking To School Administrators That Don't Get Type 1 Diabetes

Going to College with T1D: College freshman Elias was diagnosed with type 1 diabetes before his senior year in high school.

Teach Our Children Well: Is what you say about type 1 diabetes to your teachers and administrators always what they hear and do your expectations and needs match what they understand and are able to deliver?

Advocating at School: This is taking advocating for children with type 1 diabetes to a new level.

College with Type 1 on Day One: Amanda has only been at college for a few days and she's on the podcast to tell us about her initial experience. 

Teacher of the Year: Denny is a good man and a great teacher. This episode is all about the difference that one dedicated teacher can make in a child's life with type 1 diabetes.

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Dancing For Diabetes

I'm proud to introduce Dancing for Diabetes as the newest sponsor of the Juicebox Podcast and I am absolutely thrilled to have the opportunity to tell you about this amazing diabetes charity. 

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Dancing for Diabetes has been spreading awareness through the art of dance to better educate the community, raise funds to find a cure, and inspire those with diabetes to live healthy and active lives for the past 18 years and will continue to do so until a cure is found! 

Diagnosed with type 1 diabetes at 10 years old in 1999, Elizabeth Forrest was determined to not let diabetes negatively impact her life. As a direct result, Elizabeth created nonprofit organization, “Dancing for Diabetes.”

As a student in a middle school dance program in Sanford, Florida, Elizabeth was inspired to host a show to raise funds but more importantly, spread awareness. What started as a small neighborhood event quickly transformed into a large annual production and then further into a year round 501c3 nonprofit organization. In the fall of 2018, Dancing for Diabetes will produce its 18th annual show.

Year round, Dancing for Diabetes provides free dance class for kids and teens with type 1 diabetes, hosts several outreach events and programs for kids, teens and adults, and produces Touched by Type 1 – an educational and empowering conference in Orlando, Florida. To learn more, please visit: www.dancing4diabetes.com. 

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Kris Freeman's Triathlon with Dexcom and Omnipod

Hello everyone! This is a guest post (sorta) from former Olympic Cross Country skier Kris Freeman. Actually, this wasn't written for Arden's Day - it's from Kris's Facebook page and I am posting it here with his permission. We talk on the Juicebox Podcast all of the time about how I use Arden's Dexcom data to make small adjustments to her insulin with settings that are available on her Omnipod. When I saw Kris's post I thought, "this is the next level of those ideas" and I wanted to share his process with you. Please visit Kris on FB or his blog, he's also been featured on Arden's Day a number of times and been a guest on the podcast twice.  -- #BoldWithInsulin

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Yesterday I competed in and won the Sea to Summit triathlon. The race traditionally starts with a 1.5 mile swim in the Salmon Falls river, continues with a 92 mile bike ride to the WildCat MT ski area parking lot, and finishes with a run up the Tuckerman Ravine trail to the Summit of MT Washington.

Unfortunately due to the heavy rains NH has had over the previous week, a lot of fecal matter has ended up in our waterways and the bacteria level in the river was above the safety limit. The swim was canceled and the event became a biathlon.

The swim would have taken approximately 40 minutes so I had to change my insulin dosing strategy to accommodate the slightly shorter race. My glycogen stores were topped off so I was running a 24/7 basal rate of 1.0 units per hour on my Omnipod. To cover race nerves, readily available glycogen stores and carb/calorie intake I settled on the following protocol. 

Hour 1 = 1.0 units per hour
Hour 2 = .7 units per hour
Hour 3 = .3 units per hour
Hour 4 = .3 units per hour
Hour 5 = .3 units per hour
Hour 5-5.5 = .3 units per hour
Hour 5.5- to finish = off

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It is very difficult to estimate how much insulin I will need in an event this long. I have to guess how insulin sensitive my body will become from prolonged exertion as well as how many calories I will need to fuel myself. The program that I used yesterday ended up being a little too aggressive and I had to force feed myself at the end of the race. On the bike I drank 60 ounces of Gatorade, 20 ounces of custom Cola/Coffee mix, and 24 ounces of RedBull. I had planned to take in solid food but I was sweating buckets and my stomach was not calling for it. 

The bike took me four hours and ten minutes and my glucose was 116 at the transition to running. I drank another 16 ounces of Gatorade during the first 40 minutes of the hike. At this point my glucose was 117. I decided to pull off the Omnipod that was delivering .25 units per hour as I did not want to have to overfeed to get to the top of the mountain. I was wearing two pods and the other one was delivering the minimum dosage of .05 units per hour. 

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I ended up having to overfeed anyway. I drank another 16 ounces of Gatorade over the next 20 minutes but my sugar dropped to 80. I had to pull out my emergency flask filled with 5 Untapped Maple syrup gels. The flask contained 105 grams of sugar and I finished it five minutes before winning the race in five hours and forty-four minutes. 

Every race is a learning experience. If I could do this race over I would reduce the first hour dosage to .7 units, the second hour to .5 and then I would have run .3 up until 4 hours at which point I would have suspended delivery. The attached picture is a graph of my glucose on a Dexcom during the race. It looks "perfect" but I really would have preferred to not take on over 100 carbs in the last 30 minutes of the race.

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