This morning I saw a tweet from @StaceyDivone that got me to the keyboard...
I’ve always wondered how high or low BGs make Arden feel in the moment, later, the next day and so on. The problem is, Arden has been diabetic since she was two and I think that the feelings that I see PWD experiencing must just be ‘normal’ to her.
Any parent could tell you that one of the main goals of parenting is the overall comfort of your child. I remember when my son was a baby, the first time that he got a cold all I could think was, “does he feel the way I do when I’m sick? - of course he must...” I’d imagine the pressure in my head, the general feeling of being exhausted, light-headed - the only thing that comforted me was the idea that he wouldn’t remember and that of course that the feeling would go away - not be a constant.
It’s not the same for Arden, she is going to experience highs and lows throughout her life. On one hand maybe it’s good that she’ll think of these moments as ‘normal’ but I’m more focused now on understanding how she is feeling when she is low, going low, high, going high. Does it effect the next day, her energy level, what? I don’t know and Arden isn’t able to discern enough to tell me in the detail that I would like. That is, she knows if she doesn’t feel well and she definitely knows and verbalizes how she feels in the moment but I want to know if a rough morning is because of an overnight high or low. Could an uncharacteristic outburst be due to a recent or impending event. Again, I know that her ability to reason and control her temper is effected by a low and that she feels nausea when she’s high but I’d really like to hear in detail from an adult about how diabetes makes a person feel so that I could be even more empathetic to Arden in those moments.
If you have time please leave a comment and share your experiences. This would be great information for many parents of T1 kids to have and understand. Thank you!
Oh and if you aren’t following @StaceyDivone or me @ArdensDay on Twitter... please do!\
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