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Arden's Day Blog

Arden's Day is a type I diabetes care giver blog written by author Scott Benner. Scott has been a stay-at-home dad since 2000, he is the author of the award winning parenting memoir, 'Life Is Short, Laundry Is Eternal'. Arden's Day is an honest and transparent look at life with diabetes - since 2007.

type I diabetes, parent of type I child, diabetes Blog, OmniPod, DexCom, insulin pump, CGM, continuous glucose monitor, Arden, Arden's Day, Scott Benner, JDRF, diabetes, juvenile diabetes, daddy blog, blog, stay at home parent, DOC, twitter, Facebook, @ardensday, 504 plan, Life Is Short, Laundry Is Eternal, Dexcom SHARE, 生命是短暂的,洗衣是永恒的, Shēngmìng shì duǎnzàn de, xǐyī shì yǒnghéng de

Anniversary of Arden's Dx

Scott Benner

It’s just after midnight and I’m posting to mark the three year anniversary of Arden’s diagnosis.  It was almost exactly now three years ago when Kelly and I first thought that Arden may have type I diabetes.  The next few hours were spent finding a 24hr pharmacy, learning how to check blood glucose and rushing to a hospital.  I remember it being after 3 am when the doctor came into the room to deliver the news but to be honest we already knew.  A moment has never before or ever since felt so very still and so utterly horrifying.  The doctor’s words damaged my soul in a way that I don’t think it will ever rebound from.  I couldn’t bring myself to look at Kelly, it felt like I was going to die.

 

To this day that feeling sometimes tries to creep in.  It usually happens when I’m thinking about something that Arden will do one day, like going to school or sleeping at someone’s house for the first time.  Stuff like that, stuff that normally feels good...  Those things just scare the shit out of me and sometimes that feeling creeps in before I can stop it.  It can only be described as the complete visceral and intellectual understanding that our lives are finite, immeasurable and more fragile then we care to admit.  Because of that fear I never want to be far from Arden, it only takes a moment for something to happen and there are no indicators to guide us, none at least that can be trusted 100% of the time.  Vigilance is Arden’s best chance at a healthy and long life.  

 

Last night I went to bed at 3:30am because of Arden’s diabetes, her blood glucose just wouldn’t come down.  I slept for five hours and upon waking spent the first two hours of the day figuring out why she was high and getting her stable.  The hours that passed in between hurt Arden, not in a way that was evident today but in a way that may not be recognized for a decade or three, maybe not until she is sixty.  Parents make mistakes, that is part of life but usually there is a little room for error usually the mistakes we make don’t shorten our children’s lives or damage their little bodies.  I know two things for sure about type I; 1. every moment that Arden’s blood glucose isn’t normal is hurting her and 2. there is no way to keep her blood glucose normal for more then an hour or two at a time.  It’s a morning, noon and night race to balance the scales between insulin and carbohydrates and I fear that we are always running behind.

 

In a few weeks Arden will be walking to raise awareness and funds for the Juvenile Diabetes Research Foundation and I hope you can find it in your heart to support her with a donation, by joining us at the walk or by attending the poker tournament that we’ve planned... maybe by being a part of all of those things?  Vigilance is only Arden’s best chance until a cure is found.  Right now there are millions of parents just like me sitting awake wondering if tonight is the night something will go wrong.  Right now millions of adults with type I are wondering the same thing and somewhere their parents are scared because their children are too old for them to sit outside their bedroom doors to keep them safe from whatever diabetes has in store.  Finding a cure would fix so much more then diabetes.

 

And that cure is close, some of the advancements made in just the last few years are astounding.  Please help us help Arden by supporting type I research and all of the JDRF’s important endeavors.  The JDRF does so much for children with type I, the research is just the tip of the iceberg.  You can click on the links below to get started now.

 

Sign up to walk

 

Make a donation

 

Register for the poker tournament

 

 

Please accept our heartfelt thanks...

 

 

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The following are archived comments from this post. You can post new comments below.

Emily
Hey Scott, how did Arden's first day of school go?
Wednesday, September 9, 2009 - 09:53 AM
Scott
It went good... Look for a lot more info on Arden's first week on the site very soon.  Thanks for checking on her!
Wednesday, September 9, 2009 - 11:33 PM
Emily
That's great :)  Starting school was an adventure for me even WITHOUT diabetes, so I can just imagine what it must be like for Arden (and you). All the same, though, my favourite parts of this site are the pictures and blog entries about Arden just being a kid, and playing and having fun with her family, with Indy the dog, and now, her new school friends.  My very favourite picture of Arden is from Labour Day 2007, where she's wearing that rainbow tie-dyed bathing suit and jumping on the trampoline, with her hair flying behind her.  I also really like the pictures of Arden in her ballet class.  I took Creative Movement when I was about her age, but I wasn't really any good at it.
Friday, September 11, 2009 - 02:18 PM